Khawuthelekelele umntwana wakho omncinci ebaleka edlala, aze ngequbuliso enye yeengalo okanye imilenze yakhe ibonakale ikhubazekile. Okanye amalungu omzimba akhe abuthathaka kangangokuba akakwazi nokuma nkqo. Ukubona into efana nale kuya kumoyikisa nawuphi na umzali. Namhlanje siza kuthetha ngemeko yemithambo-luvo engaqhelekanga kodwa enzima kakhulu enokwenzeka ngequbuliso. Le yi-Acute Flaccid Myelitis, okanye i-AFM ngamafutshane.
Yintoni kanye kanye i-Acute Flaccid Myelitis (AFM)?
Ngamafutshane, i-AFM yimeko embi kakhulu echaphazela inkqubo yethu yemithambo-luvo. Ibangela ukudumba, okanye ukudumba, kwi-grey matter yomqolo wethu.
Ngoku usenokuba uzibuza ukuba yintoni le nto ingwevu. Cinga ngomzimba wethu njengesekethe yombane entsonkothileyo. Ingqondo kunye nomqolo ziindawo eziphambili zokulawula oku. Into engwevu kweli gumbi lokulawula yindawo ephambili ethumela imiqondiso elawula iintshukumo zemisipha yethu. Ngoko ke xa le ndawo ibalulekileyo yonakele kwi-AFM, imiqondiso ethunyelwa yingqondo ayihambi kakuhle kwimisipha. Ngenxa yoko, amalungu omzimba ngequbuliso aba buthathaka, angabi namandla, kwaye ii-reflexes ziyalahleka.
Esi sisifo esitsha. Oogqirha basichonge njengesifo esahlukileyo ngo-2014. Ngaphambi koko, xa kwavela iimpawu ezinje, oogqirha babecinga ukuba sesinye isifo semithambo-luvo esifana ne-"transverse myelitis".
Yintoni umahluko phakathi kwe-AFM kunye ne-Guillain-Barré Syndrome (GBS)?
Esinye isifo abantu abaninzi abasibhidanisa ne-AFM yi-`Guillain-Barré Syndrome` (ngamafutshane i-GBS). Uphawu oluphambili lwazo zombini ezi zifo kubuthathaka bemisipha. Kodwa ezi zimbini zahlukile ngokupheleleyo. Makhe sibone ukuba zeziphi ezo zahluko.
Khawuthelekelele ukuba inkqubo yethu yemithambo-luvo ifana nenethiwekhi esasaza umbane kulo lonke ilizwe.
- Kwi-AFM, umonakalo uyenzeka: kwindawo ephambili yamandla yale nethwekhi, into engwevu kwintambo yomqolo. Xa indlu yamandla ngokwayo yonakele, ayinakuvelisa kwaye idlulise umbane.
- Umonakalo we-GBS: Iintambo ezithwala umbane ukusuka kwisikhululo sombane ukuya emakhaya. Ezi sizibiza ngokuba zii-peripheral nerves. Xa iintambo zonakele, nangona umbane uthunyelwa ukusuka kwisikhululo sombane, awufikeleli emakhaya ngokufanelekileyo.
Ngamafutshane, i-AFM yingxaki yenkqubo yemithambo-luvo ephakathi . I-GBS yingxaki yenkqubo yemithambo-luvo engaphandle .
Kukwakho nomahluko kwindlela ezi mpawu ezisasazeka ngayo.
- Kwi-GBS: Ubuthathaka budla ngokuqala emilenzeni buze bunyuke kancinci kancinci emzimbeni.
- Kwi-AFM: Ubuthathaka bunokuqala naphi na, mhlawumbi ngengalo enye, okanye nakwimilenze yomibini.
Enye into ebalulekileyo liqela leminyaka apho esi sifo sidla ngokuvela khona. Ama-90% ezigulana ze-AFM ngabantwana abancinci abaphakathi kweminyaka eli-1 neli-7 ubudala. Nangona kunjalo, akunakwenzeka ukuba sivele kubantu abadala. Nangona kunjalo, i-GBS idla ngokubonakala kubantu abadala abangaphezu kweminyaka engama-40 ubudala.
Sixhaphake kangakanani esi sifo? Ngubani onokuba naso?
I-AFM yimeko engaqhelekanga kakhulu . Kwanakwilizwe elifana ne-United States, kuqikelelwa ukuba ngaphantsi komntu omnye kwisigidi ufumana esi sifo minyaka le. Nangona kunjalo, kukho ukwanda okuncinci kwinani lamatyala abikiweyo kutshanje.
Njengoko besitshilo ngaphambili, esi sifo sixhaphake kakhulu ebantwaneni abancinci . Abantwana abangaphantsi kweminyaka esi-7 ubudala ngabona basengozini enkulu. Ekubeni oku kunokwenzeka ebantwaneni, kubalulekile ukuba njengabazali sikuqaphele oku.
Zithini iimpawu ze-AFM?
Eyona nto iyingozi ngesi sifo kukuba iimpawu zibonakala ngequbuliso . Ezi mpawu zinokuvela kwiiyure ezimbalwa okanye kwiintsuku ezimbalwa. Ukuba umntwana wakho unezi mpawu, musa ukuzityeshela.
| Uhlobo lwempawu | Inkcazo |
|---|---|
| Iimpawu eziphambili kunye nezingxamisekileyo |
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| Ezinye iimpawu ezinokwenzeka |
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| Iimpawu zesilumkiso ezifuna ukulaliswa esibhedlele ngokukhawuleza! | |
| Ukungaphumeleli kokuphefumla | Eyona nto iyingozi kakhulu enokwenzeka kwi-AFM bubuthathaka bemisipha ekuncedayo ukuphefumla. Oku kusongela ubomi! Lumka kwezi mpawu:
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Ukuba umntwana wakho ubonakalisa iimpawu zokulahlekelwa lilungu ngequbuliso, mse kwiSebe lezeMpilo eziNgxamisekileyo (ETU) lesibhedlele esikufutshane ngaphandle kokulibazisa. Esi asisosifo esinokushiywa ekhaya.
Yintoni isizathu soku?
Lo ngumbuzo oogqirha abasakwazi ukuwuqonda. Asikaqiniseki ngokupheleleyo ukuba yintoni kanye kanye imbangela ye-AFM.
Nangona kunjalo, abaphandi abaninzi kunye noogqirha bacinga ukuba kukho uhlobo oluthile lwentsholongwane olubandakanyekayo . Kukho ukurhanelwa okukhulu kokuba iintsholongwane ezikwiqela le-'non-polio enteroviruses' zisenokuba yimbangela.
Khumbula, ngaphambi kokuba kuvele iimpawu ze-AFM, abantwana abaninzi bane-infection yokuphefumla, njengomkhuhlane oqhelekileyo , umkhuhlane, kunye nokukhwehlela . Oku kwandisa ngakumbi ukurhaneleka kokuba kukho unxibelelwano lwentsholongwane. Ngokukodwa, iintsholongwane ze-'Enterovirus D68' kunye ne-'Enterovirus A71' zichongiwe kwizigulana ezininzi ze-AFM.
Ugqirha uluchonga njani ngokuchanekileyo olu sifo?
Ukuchonga i-AFM kunzima kuba ayiqhelekanga kwaye ineempawu ezifanayo kakhulu nezinye izifo zemithambo-luvo ezifana ne-GBS, i-transverse myelitis, kunye ne-polio, esixoxe ngazo ngaphambili.
Ngoko ke, ugqirha kuya kufuneka enze iimvavanyo ezininzi ukuqinisekisa ukuba le yi-AFM okanye esinye isifo.
- Uvavanyo lomzimba kunye novavanyo lwemithambo-luvo: Okokuqala, ugqirha uza kumhlola umntwana ngononophelo. Baza kujonga ubuthathaka kwimilenze, imeko yemisipha, kunye nendlela ezisebenza ngayo iingqondo.
- I-MRI scan: Olu lolona vavanyo lubalulekileyo noluluncedo ekuxilongeni i-AFM. I-MRI scan yengqondo kunye nomgogodla ingabonisa ngokucacileyo utshintsho, olufana nokudumba, oluphawu lwe-AFM kwi-grey matter yomgogodla.
- Ukubethelwa koMgogodla/Ukubhaqwa kweLumbar: Oku kuquka ukufaka inaliti encinci emqolo ongezantsi nokususa inani elincinci lolwelo olujikeleze umgogodla (ulwelo lomgogodla lwe-cerebral - CSF). Olu lwelo lwelo lunokuvavanywa ukuze kubonwe ukuba kukho usulelo okanye ukudumba.
- Ukuvavanya ukusebenza kwemithambo-luvo kunye nemisipha: Uvavanyo olukhethekileyo lunokwenziwa, olufana nezifundo zokuqhuba imithambo-luvo, ezilinganisa isantya esihamba ngaso imiqondiso kwimithambo-luvo, kunye ne-electromyography, elinganisa umsebenzi wombane wemisipha.
Ugqirha ufikelela kwisigqibo sokugqibela ngokudibanisa ulwazi olufunyenwe kuzo zonke ezi mvavanyo.
Ngaba kukho unyango lwe-AFM?
Ngelishwa, akukho nyango luqinisekileyo olunokuyinyanga ngokupheleleyo i-AFM. Ngenxa yokuba sisifo esitsha, oogqirha kunye noososayensi basaphanda ngonyango olufanelekileyo lwaso.
Ngoko ke, injongo ephambili yonyango kukulawula iimpawu nokunceda umntwana aphile ngcono kangangoko.
- Unyango Lomzimba Nonyango Lomsebenzi: Olu yinxalenye ebalulekileyo yonyango. Olu nyango lunceda ekuqeqesheni amalungu abuthathaka, ukuvuselela amandla emisipha, nokuqeqesha umntwana ukuba enze imisebenzi ezimeleyo.
- Ezinye iindlela zonyango: Kwezinye iimeko, izinto ezifana notyando lwemithambo-luvo olusecaleni ziye zabonakala ziphumelela ekuthinteleni ukuphelelwa yimisipha. Nangona kunjalo, ingcali yemithambo-luvo iya kugqiba ukuba ezi zinto zifanelekile na kumguli ngamnye.
Ukuba kunokwenzeka, kungcono ukufuna unyango phantsi kwengcali yezifo zengqondo enamava ngesi sifo.
Ithini ingxelo yokubikezela esi sifo kunye neengxaki ezinokubakho?
Ngenxa yokuba i-AFM sisifo esitsha, abaphandi abakwazi ukuxela ngokuthe ngqo ukuba iza kuba yintoni na imiphumo yexesha elide xa isenzeka. Kodwa ngokusekelwe kwinto eyaziwayo, iziphumo zingahluka kakhulu kumntu nomntu.
- Ukuchacha kancinci: Abantwana abaninzi, ngonyango oluqhubekayo olufana nonyango lomzimba, bayachacha kancinci kancinci ngokuhamba kwexesha. Amandla emisipha ayakhula kancinci kancinci.
- Ukuchacha ngokupheleleyo: Ngaphantsi kwe-10% yezigulana ze-AFM ezichacha ngokupheleleyo. Uninzi lusenokuqhubeka nokuba nobuthathaka obuthile.
Iingxaki ezinokubakho ezinzulu
- Ukungasebenzi kakuhle kokuphefumla: Le yeyona ngxaki iyingozi kakhulu esiyixubushileyo ngaphambili. Ukuba izihlunu ezinceda ekuphefumleni ziyabuthathaka, isigulana asiyi kukwazi ukuphefumla ngokwaso. Ngelo xesha, kuya kufuneka siqhagamshelwe kwi-ventilator. Le meko yenzeka kwisithathu sezigulane ze-AFM.
- Ezinye iingxaki ze-neurological:Kukho amathuba okuba kubekho iingxaki ezinzulu nezisongela ubomi, ezifana notshintsho olungaqhelekanga kubushushu bomzimba kunye noxinzelelo lwegazi, kunye nokubetha kwentliziyo okungaqhelekanga.
Ngaba ikho indlela yokuphepha oku?
Ekubeni unobangela we-AFM ungaziwa, akukho ndlela ithile yokuyithintela. Nangona kunjalo, ekubeni kucingelwa ukuba ibangelwa zizifo ezibangelwa ziintsholongwane, kubaluleke kakhulu ukulandela imikhwa yempilo esiyilandelayo ukuze siphephe iintsholongwane.
- Hlamba izandla zakho rhoqo ngesepha namanzi. Fundisa abantwana bakho ukuhlamba izandla zabo kakuhle, ingakumbi ngaphambi kokutya, emva kokusebenzisa indlu yangasese, nasemva kokunyamekela umntu ogulayo.
- Kuphephe ukuchukumisa ubuso bakho, amehlo, impumlo, nomlomo ngezandla ezingahlanjwanga.
- Hlala kude nabantu abagulayo.
- Nika umntwana wakho zonke izitofu azidingayo ngokweminyaka yakhe.
- Coca iindawo eziphathwa rhoqo (izibambo zomnyango, iitafile) ngesibulali-ntsholongwane.
Le mikhwa ilula yezempilo inokukhusela abantwana bethu kungekuphela nje kwi-AFM, kodwa nakwezinye izifo ezininzi ezisulelayo.
Umyalezo Wokuya Ekhaya
- I-Acute Flaccid Myelitis (AFM) sisifo semithambo-luvo esingaqhelekanga kodwa esibi kakhulu.
- Oku kwenzeka kakhulu kubantwana abangaphantsi kweminyaka esi-7 ubudala .
- Uphawu oluphambili kukuphelelwa ngamandla okanye ukuba ndindisholo kwengalo okanye umlenze .
- Ukuba ubona naziphi na kwezi mpawu, yingxamiseko yezonyango . Mthathe umntwana umse kwiYunithi yoNyango oluNgxamisekileyo (ETU) yesibhedlele ngoko nangoko.
- Nangona kungekho nyango luthile, unyango olufana nonyango lomzimba lunokunceda ukulawula iimpawu.
- Kubalulekile ukulandela imikhwa emihle yempilo ukuze uphephe ukosuleleka ziintsholongwane.
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