Ngaba nawe ufumana iintlungu ezinganyamezelekiyo kunye nokutsha eluswini lwakho xa ubekwe elangeni? Kwabanye abantu, oku akuqhelekanga, kwaye kunokuba luphawu lwesifo esingaqhelekanga esibizwa ngokuba yi -Erythropoietic Protoporphyria (EPP) . Kumntu onesi sifo, ukukhanya kwelanga ngamava abuhlungu kakhulu. Namhlanje, siza kuthetha ngamayeza akhethekileyo anikwa ukunceda abantu abanjalo, kodwa ngendlela eyahlukileyo kancinci.
Yintoni inaliti ye-Afamelanotide?
Ngamafutshane, i-Afamelanotide liyeza elinceda ekunciphiseni umonakalo eluswini lwakho olubangelwa lilanga kunye nentlungu eliyibangelayo. Isetyenziselwa ngokukodwa abantu abanesi sifo esikhankanyiweyo ngaphambili esibizwa ngokuba yi-Erythropoietic Protoporphyria (EPP).
Khawucinge nje, i-EPP yimeko engaqhelekanga ebangelwa yimfuza. Kule meko, ikhemikhali ebizwa ngokuba yi-'protoporphyrin' emzimbeni wethu iqokelelana ngobuninzi egazini. Xa aba bantu bephuma elangeni, loo khemikhali iyasebenza kwaye yonakalisa ulusu, nto leyo ebangela iintlungu ezinkulu kunye nokudumba. Iyeza i-Afamelanotide lisebenza ngokwandisa imveliso yepigment ekhusela ulusu (i-melanin) kunye nokwandisa amandla alo okumelana nokukhanya kwelanga. Ke ngoko, kunokwenzeka ukuphuma ukuya kuthi ga kwinqanaba elithile ngaphandle kwentlungu. Eli yeza lithengiswa phantsi kwegama elithi SCENESSE .
Izinto ekufuneka uzixelele ugqirha wakho ngaphambi kokuba ufumane olu nyango
Le ayisiyopilisi okanye ikhrimu. Le yi-implant encinci efakwa phantsi kwesikhumba. Ngoko ke, ngaphambi kokuba uqale olu nyango, kubaluleke kakhulu ukuthetha ngokukhululekileyo nogqirha wakho. Qiniseka ukuba umazisa ngezi zinto zilandelayo.
- Malunga ne-allergies zakho: Qiniseka ukuba uyasixelela ukuba unayo nayiphi na i-allergies, kungekuphela nje kwi-Afamelanotide, kodwa nakweyiphi na enye iyeza, ukutya, isithinteli, okanye ukufaka imibala.
- Ukuba ukhulelwe okanye uzama ukukhulelwa: Akukaziwa ngokupheleleyo ukuba eli yeza liza kuyichaphazela njani i-pregnancy. Kungoko ke, kubalulekile ukuxelela ugqirha wakho ukuba ukhulelwe okanye ulindele umntwana kungekudala.
- Ukuba ungumama oncancisayo: Akwaziwa ukuba eli yeza lingena na kubisi lwebele. Ngoko ke, ukuze umntwana wakho akhuseleke, xelela ugqirha wakho ukuba ungumama oncancisayo ngaphambi kokuba afumane unyango.
Ulisebenzisa njani eli yeza?
Eli asiloyeza onokulithatha ekhaya. Eli li-implant elincinci. Eli li-implant, elinobukhulu obungangenkozo yerayisi, lifakwa ngononophelo phantsi kwesikhumba esiswini sakho ngugqirha oqeqeshiweyo.
- Indawo yokufaka inaliti kufuneka igcinwe icocekile kwaye yomile kangangeeyure ezingama-24 . Oku kuthetha ukuba akufuneki ibekwe emanzini.
- Ngokwesiqhelo emva kweenyanga ezimbiniUgqirha uza kuyisusa i-implant endala. Ukuba ufuna unyango oluqhubekayo, i-implant entsha ingabuyiselwa endaweni yayo.
- Kufuneka kuqatshelwe ngokukodwa xa kunikwa abantwana eli yeza, ngoko ke thetha nogqirha wezingane ngalo.
Inqaku elibalulekileyo: Eli yeza limiselwe wena kuphela. Musa ukwabelana ngalo nabanye abantu nangasiphi na isizathu.
Yintoni omawuyenze xa kukho imeko engxamisekileyo?
Khumbula, ukuba ukrokrela ukuba ulisebenzise kakhulu eli yeza, ungoyiki. Yiya kwiCandelo loNgxamiseko lwesibhedlele (ETU) ngoko nangoko. Okanye, fowunela iZiko loLwazi lweeTyhefu leSizwe kwiSibhedlele sikaZwelonke saseColombo ukuze ufumane ingcebiso.
Izinto ekufuneka ziqwalaselwe xa usenza unyango
Kubalulekile ukuba ukhathalele umzimba wakho kancinci ngelixa usenza olu nyango.
- Ukuhlolwa rhoqo kwezonyango: Qiniseka ukuba uya kuvavanyo ngemihla ugqirha wakho akunika yona. Xelela ugqirha wakho ukuba iimpawu zakho aziphucuki okanye ukuba zibonakala zisiba mandundu.
- Ukuhlolwa kolusu: Eli yeza linokubangela ukuba ulusu lwakho, amabala, kunye neempuku zibe mnyama. Ngoko ke, kubalulekile ukuba ulusu lwakho lonke luhlolwe ngugqirha ubuncinane kabini ngonyaka .
- Ukukhupha i-implant: Kunqabile kakhulu ukuba le implant, engaphantsi kwesikhumba, ikwazi ukuphuma yodwa. Ukuba ucinga ukuba i-implant iphumile, fowunela ugqirha wakho ngoko nangoko.
Iziphumo ebezingalindelekanga ezinokubakho ngenxa yamayeza
Njengakweminye imithi, kukho iziphumo ebezingalindelekanga. Makhe sijonge ukuba zeziphi. Ezi zinokwahlulwa zibe ziindidi ezimbini eziphambili.
| Uhlobo lwesiphumo esibi | Inkcazo |
|---|---|
| Izinto omele uzixelele ugqirha wakho ngoko nangoko | |
| Iimpendulo ze-allergy | Ukurhawuzelela kwesikhumba, ukurhawuzelela okanye ukurhawuzelela, ukudumba kobuso, imilebe okanye ulwimi. |
| Intlungu kwindawo yokufakelwa | Intlungu ebuhlungu kwindawo efakwe kuyo. |
| Izinto ezingaqhelekanga ukuba zimbi, kodwa kufuneka zixelwe kugqirha ukuba ziyaqhubeka | |
| Iimpawu ezahlukeneyo | Ukukhwehlela, isiyezi, ukozela, isicaphucaphu, ukudinwa. |
| Utshintsho kwindawo yokufaka i-implant | Ububomvu okanye intlungu/ukutsha okuncinci kwindawo yokufaka. |
Olu luhlu alubandakanyi zonke iziphumo ebezingalindelekanga. Ukuba ubona into engaqhelekanga, nceda unxibelelane nogqirha wakho ukuze akunike ingcebiso.
Ngaba kukho iingxaki ngamanye amayeza?
Okwangoku akukho ngxelo yokuba eli yeza libangela ukudibana namanye amayeza. Nangona kunjalo, oko akuthethi ukuba akufuneki uxelele ugqirha wakho malunga namayeza onke owasebenzisayo.
Nika ugqirha wakho uluhlu lwazo zonke izinto ozisebenzisayo. Lufanele luquke oku kulandelayo:
- Amayeza asetyenziswa ngugqirha kwezinye izifo
- Amayeza angagunyaziswanga ngugqirha
- Amayeza esintu, iziqholo
- Iivithamini kunye nezongezo zokutya
Ukongeza, qiniseka ukuba uxelela ugqirha wakho ukuba uyatshaya, usela utywala, okanye usebenzisa ezinye iziyobisi ezingekho mthethweni. Ezinye izinto zinokuchaphazela amayeza akho.
Umyalezo Wokuya Ekhaya
- I-Afamelanotide liyeza elikhethekileyo elinciphisa iintlungu zolusu oluvezwa lilanga ezibangelwa yimeko engaqhelekanga ebizwa ngokuba yi-Erythropoietic Protoporphyria (EPP).
- Eli asiloyeza onokulithatha ekhaya, kodwa liyeza elincinci elifakwa phantsi kwesikhumba ngugqirha oqeqeshiweyo.
- Ngaphambi kokuba uqale unyango, xelela ugqirha wakho ngazo zonke izinto ezibangela ukuba ungabi naso isifo, nokuba ukhulelwe okanye uncancisa, kunye nawo onke amayeza owasebenzisayo.
- Ngexesha lonyango, qaphela naluphi na utshintsho kumbala wolusu. Jonga ulusu lwakho ubuncinane kabini ngonyaka. Ukuba i-implant iziwa yodwa, xelela ugqirha wakho ngoko nangoko.
- Ukuba ufumana iimpawu ezibuhlungu zokunganyamezelani komzimba, ezinje ngokudumba kobuso, funa ingcebiso kagqirha ngoko nangoko.
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