Ukuba une-hemophilia A, ungathanda ukwazi ngale gonyo ikhethekileyo? (I-Antihemophilic Factor, i-Fc Fusion Protein, i-Recombinant)

Ukuba ungumntu onesifo esibizwa ngokuba yiHemophilia A, mhlawumbi uyazi ngamava akho ukuba kunzima kangakanani ukuyeka ukopha nokuba unesilonda esincinci. Kodwa ungakhathazeki, kuba ngokuhambela phambili kwesayensi yezonyango, ngoku kukho unyango oluninzi oluhle olunokunceda kwiimeko ezinjalo. Namhlanje siza kuthetha ngelinye iyeza elikhethekileyo, okanye isitofu, esinokuba luncedo olukhulu ebomini bakho. Oko kukuthi, esi sitofu sibizwa ngokuba yi -Antihemophilic Factor, i-Fc Fusion Protein, i-Recombinant . Usenokuba ukhe weva ngaso ngegama elithi ELOCTATE.

Luhlobo luni lonyango olu? Kutheni oku kubalulekile kuwe?

Ngamafutshane, iHemophilia A yimeko ebangelwa kukunqongophala okanye ukungasebenzi kakuhle kweproteni ekhethekileyo ebizwa ngokuba yiFactor VIII, enceda ukujiya kwegazi. Yiyo loo nto kuthatha ixesha elide ukuba ukopha kuphele nokuba kwenzeke ingozi encinci.

Ngoku, into esithetha ngayo ngale vaccine (i-Antihemophilic Factor, i-Fc Fusion Protein, i-Recombinant) kukuba ikunika i-factor VIII osweleyo emzimbeni wakho. Kufana nokugcwalisa intswelo. Oku kubangela ukuba igazi lakho lijiye ngokukhawuleza, nto leyo eluncedo kakhulu ekulawuleni ukopha kwaye ngamanye amaxesha kuthintele ukuba kwenzeke.

Igama elithi "recombinant" egameni leli yeza lithetha ukuba alenziwanga ngegazi lomntu, kodwa lenziwe ngendlela ekhethekileyo yobunjineli bemfuza kwilebhu. Enye yezona nzuzo zinkulu zoku kukuba linemingcipheko ephantsi kakhulu yezinye izifo ezazifunyenwe ngaphambili kumayeza enziwe ngegazi. Oko kuthetha ukuba likhuselekile ngakumbi .

Okulandelayo, inxalenye ebizwa ngokuba yi- "Fc Fusion Protein" ithetha ukuba le molekyuli yeziyobisi inenxalenye encinci enamathele kuyo. Cinga ngayo njengokongeza 'i-anchor' encinci kwiyeza. Le 'anchor' ivumela ukuba iyeza lihlale lisebenza emzimbeni wakho ixesha elide, nokuba ziintsuku ezimbalwa. Into entle ngale nto kukuba inokunciphisa inani lamaxesha ekufuneka uwafakelwe. Ayisiyonto ilula leyo?

Zeziphi izinto ekufuneka uzixelele iqela lakho lezonyango ngaphambi kokuba usebenzise eli yeza?

Ngaphambi kokuba uqale olu nyango, kubalulekile ukuxelela ugqirha wakho, umongikazi okanye omnye umntu osebenza ngezempilo onyanga ulwazi olubalulekileyo. Musa ukufihla olu lwazi, kuba kungenxa yokhuseleko lwakho.

• Ii-Allergies: Ngaba une -allergy kweli yeza (i-Antihemophilic Factor, i-Fc Fusion Protein, i-Recombinant) okanye naziphi na izithako zalo? Okanye kwamanye amayeza, ukutya, iidayi, okanye izithinteli? Oku kubaluleke kakhulu kuba kunokuba yiyo nantoni na ukususela kwirhashalala encinci ukuya kwi-allergy enkulu.
• Ngaba ukhulelwe okanye uzama ukukhulelwa?: Ukuba ukhulelwe okanye uceba ukuba nomntwana kungekudala, kufuneka uxelele ugqirha wakho.
• Ingaba ungumama oncancisayo?: Ukuba uncancisa, yazisa ugqirha ngaloo nto.

Ngokusekelwe kolu lwazi, iqela lezonyango liza kugqiba ukuba eli yeza likulungele na kwaye liza kukunika njani.

Ndingayisebenzisa njani le yeza?

Eli yeza linikwa ngokujova emthanjeni . Oku kudla ngokwenziwa esibhedlele okanye ekliniki ngugqirha okanye umongikazi oqeqeshiweyo.

Nangona kunjalo, ngamanye amaxesha iqela lakho lezonyango liya kukuqeqesha ukusebenzisa eli yeza ekhaya. Ukuba kunjalo, kufuneka ulandele imiyalelo yabo kanye njengoko bekuxelela. Thatha idosi efanelekileyo, ngexesha elifanelekileyo. Musa ukulithatha rhoqo okanye ngaphezulu kunokuba ugqirha wakho ekuxelela.

Eyona nto ibalulekileyo: Ungaze ulahle iinaliti zakho ezisetyenzisiweyo kunye neesirinji enkunkuma. Zifanele zibekwe kwisikhongozeli esikhethekileyo "sezinto ezibukhali" esinikiweyo. Ukuba awunayo, ungacela enye kwikhemesti okanye kugqirha wakho. Oku kubaluleke kakhulu kukhuseleko lwakho nolwabanye.

Ngaba eli yeza lifanele linikwe abantwana abancinci?

Eli yeza linokunikwa abantwana abancinci kwiimeko ezithile ezikhethiweyo. Nangona kunjalo, kukho izinto ezithile ekufuneka ziqwalaselwe. Ke ngoko, ukuba unika umntwana wakho eli yeza, thetha nogqirha wakho wabantwana ngalo ngononophelo kwaye ufumane iinkcukacha.

Yintoni omawuyenze ukuba idosi yeyeza iyanda?

Ukuba ucinga ukuba usele kakhulu eli yeza, ungoyiki kwaye utsalele umnxeba kwiziko lolawulo lwetyhefu elikufutshane okanye kwigumbi likaxakeka ngokukhawuleza.

Khumbula: Eli yeza lelakho wedwa. Ungaze wabelane nabanye ngamayeza akho.

Wenza ntoni ukuba uphoswe yintlanganiso yamayeza?

Kubaluleke kakhulu ukulithatha eli yeza ngexesha. Ukuba awukwazi ukugcina idinga, fowunela ugqirha wakho okanye umboneleli wezempilo ngokukhawuleza.

Ukuba usela amayeza akho ekhaya, ukuba uphoswe yidosi, yithathe ngokukhawuleza xa ukhumbula. Nangona kunjalo, ukuba sele kusondele ixesha lokusebenzisa idosi yakho elandelayo, yitsibe idosi oyiphosileyo uze uthathe idosi yakho elandelayo ngexesha elicwangcisiweyo. Ungaze uthathe iidosi ezimbini ngaxeshanye okanye uthathe iidosi ezongezelelweyo.

Ngaba ezinye izinto zingasebenzisana nale yeza?

Ewe, amanye amayeza anokusebenzisana nale nto (i-Antihemophilic Factor, i-Fc Fusion Protein, i-Recombinant). Oku kuthetha ukuba xa ithathwa kunye naloo mayeza, inokuchaphazela ukusebenza kwawo okanye yonyuse iziphumo ebezingalindelekanga.

Ngokukodwa, iFactor VIIaKukho ithuba lokuba oku kunokuchaphazela amayeza.

Olu luhlu alubandakanyi zonke iindlela zokunxibelelana ezinokwenzeka. Ngoko ke, xelela ugqirha wakho ngawo onke amayeza owasebenzisayo (amayeza amiselweyo, athengiswa ngaphandle kwemvume kagqirha, amayeza esintu, iivithamini, izongezo zokutya) . Kwakhona, xelela ugqirha wakho ukuba uyatshaya, usela utywala, okanye usebenzisa ezinye iziyobisi. Ezinye zezi zinto zinokusebenzisana namayeza akho.

Zeziphi izinto ezikhethekileyo ekufuneka uzilumkele xa usebenzisa eli yeza?

• Ngelixa usela eli yeza, ugqirha wakho unokufuna ukwenza izinto ezifana nokusebenza ngegazi ukuze ajonge imeko yakho.
• Iqela lezonyango liza kujonga imeko yakho ngononophelo olukhulu xa unikwa eli yeza.
• Ukuba une-hemophilia, nxiba i-medical ID bracelet okanye i-chain echaza imeko yakho, amayeza, imilinganiselo, kunye namaxesha okugula, okanye uhlale unekhadi ngamaxesha onke. Oku kuya kuba kubaluleke kakhulu kwabo bakuncedayo ngexesha likaxakeka.

Zithini iziphumo ebezingalindelekanga ezinokubakho zale yeza?

Njengayo nayiphi na iyeza, eli linokuba nemiphumo emibi. Asinguye wonke umntu oyifumanayo, kodwa kulungile ukuzazi.

Iziphumo ebezingalindelekanga ekufuneka zixelwe kugqirha okanye kwingcali yezempilo ngoko nangoko:

• Iimpendulo ze-allergy: Ezi ziimpawu ezibonakalayo:
• Ukuqhambuka kwesikhumba
• Ukurhawuzelela okanye ukurhawuzelela
• Ukudumba kobuso, imilebe, okanye ulwimi
• Ubunzima bokuphefumla

Ukuba ubona naziphi na kwezi mpawu, musa ukulibazisa , funa ingcebiso kagqirha ngoko nangoko. Oku kunokuba yinto enzulu.

Iziphumo ebezingalindelekanga ezihlala zingadingi ngcebiso kagqirha (kodwa ukuba ziyaqhubeka okanye ziyakhathaza, kufuneka uxelele ugqirha wakho):

• Ukuziva ugula ngokubanzi okanye iimpawu ezifana nomkhuhlane
• Intlungu yamalungu
• Intlungu kwindawo apho kufakwe khona inaliti

Olu luhlu lusenokungabandakanyi zonke iziphumo ebezingalindelekanga. Ukuba ubona into engaqhelekanga, thetha nogqirha wakho ngayo. Ungaxela iziphumo ebezingalindelekanga kwiziphathamandla zempilo ezifanelekileyo (umz., i-FDA kwi-1-800-FDA-1088), kodwa kungcono ukuxelela ugqirha wakho kuqala.

Ndingaligcina njani eli yeza?

• Soloko uyigcina kude nabantwana abancinci.
• Eli yeza lidla ngokunikezelwa esibhedlele okanye ekliniki, ngoko ke akuyi kufuneka uligcine ekhaya.
• Nangona kunjalo, ukuba unikwe eli yeza ukuba ulisebenzise ekhaya xa kukho imeko engxamisekileyo, uya kunikwa imiyalelo yokuba ungaligcina njani ngokufanelekileyo. Landela loo miyalelo ngononophelo.
• Ungaze usebenzise amayeza aphelelwe lixesha. Jonga umhla wokuphelelwa kwawo kwileyibhile uze ulahle naliphi na iyeza elingasetyenziswanga.

Izinto ezibalulekileyo ekufuneka uzikhumbule (Umyalezo Wokuya Ekhaya)

Kulungile, ngoko ke, isitofu (i-Antihemophilic Factor, i-Fc Fusion Protein, i-Recombinant) esithethe ngaso, oko kukuthi, iyeza elifana ne-ELOCTATE, lunyango olubaluleke kakhulu olunceda ukulawula nokuthintela ukopha kwabo bane-hemophilia A.

• Oku kusebenza ngokubonelela umzimba wakho ngeproteni ebizwa ngokuba yiFactor VIII, enceda ukujiya kwegazi.
• Ikhuselekile kuba "i-recombinant" , kwaye kuba "yi-Fc Fusion" ihlala emzimbeni ixesha elide, ngoko ke imfuneko yokujova rhoqo inokuncipha.
• Qiniseka ukuba uxelela ugqirha wakho malunga nee-allergies zakho, ukukhulelwa, kunye nokuncancisa .
• Sela iyeza kanye njengoko ugqirha wakho ekuyalele . Lahla iinaliti ngokufanelekileyo.
• Ukuba ufumana iimpawu zokunganyamezelani komzimba, funa ingcebiso kagqirha ngoko nangoko.
• Xelela ugqirha wakho ngazo zonke ezinye iziyobisi ozisebenzisayo.
• Kubaluleke kakhulu ukunxiba ikhadi lesazisi sezonyango .

Esi sisishwankathelo nje. Ukuba unemibuzo engaphezulu malunga nale yeza, nceda ungathandabuzi ukubuza ugqirha wakho, ikhemisti, okanye ingcali yezempilo ekunyangela. Baya kukwazi ukukunika ulwazi oluthe kratya. Xa usenza izigqibo malunga nempilo yakho, kungcono ukuba nolwazi!

I- Hemophilia A, i-Antihemophilic Factor, i-Factor VIII, i-ELOCTATE, ukopha, i-Vaccine, unyango