Ndiyazi ukuba ukuhlala ne-ankylosing spondylitis, okanye i-AS ngamafutshane, kunokuba nzima ngamanye amaxesha. Nabani na okhe wahlupheka yiyo uyazi ukuba kunzima kangakanani na ukudlula usuku lonke ngenxa yentlungu engapheliyo yomqolo namalungu kunye nokuqina kwasekuseni. Kodwa awuwedwa. Zininzi iindlela kunye nezixhobo ezinokukunceda, zikunike amandla, kwaye zikunike ulwazi olutsha kolu hambo. Yiloo nto sithetha ngayo namhlanje.
Kutheni olu hlobo lwenkxaso lubalulekile kuwe?
Ngamafutshane, i-AS yimeko engaqhelekanga enokuchaphazela iinkalo ezininzi zobomi bakho. Ngenxa yokuba yimeko engapheliyo, kubalulekile ukuthatha amayeza ngexesha kwaye ufunde ukuphila nayo. Kulapho amaqela enkxaso kunye nemithombo yolwazi ethembekileyo iluncedo khona.
Khawucinge ngendlela ekunokuba luncedo ngayo ukuthetha nomntu oqondayo intlungu oyivayo kunye neengxaki ojongene nazo. Kwaye indlela ebekuya kuba lula ngayo ubomi bakho ukuba ubunokufunda ngonyango lwamva nje kunye neendlela ezilula zokulawula iimpawu zakho. Yiyo loo nto kubaluleke kangaka ukuqaphela izixhobo ezinje.
Ndingayifumana phi inkxaso nolwazi?
Kukho iindawo ezininzi ezinokukunceda kwaye zikubonise indlela elungileyo. Amanye ala maqela anokudibana ubuso ngobuso. Amanye anokusebenza kwi-intanethi kuphela. Kufuneka ukhethe indlela ekulungeleyo.
| Apho ungafumana khona uncedo | Inkxaso oyifumanayo |
|---|---|
| Ugqirha wakho. | Umntu ofanelekileyo onokumbuza malunga namaqela enkxaso athembekileyo okanye izixhobo ezifanelekileyo kwimeko yakho. |
| Isibhedlele okanye ikliniki apho ufumana khona unyango | Izibhedlele ezininzi zineenkqubo zenkxaso ezikhethekileyo okanye iinkqubo zokwazisa izigulane. Zijonge. |
| Amaziko ezeMpilo oLuntu | Ungafumana ulwazi malunga neenkqubo ezahlukeneyo zempilo ngokusebenzisa amaziko afana nala akwindawo okuyo. |
| Iingcali zonyango zeedyunivesithi | Ngamanye amaxesha sifunda ngeenkqubo ezigxile kwizigulane ngeeyunivesithi zophando. |
Ngaphambi kokuba ukhethe iqela, yenza uphando malunga nokuba iqela ligxile kwintoni, indlela abadibana ngayo (kwi-intanethi okanye ubuso ngobuso), kunye nokuba ngubani okhokela iqela.
Lumka ngezi zinto xa ungena kwi-intanethi!
Kule mihla, unokufumana ulwazi oluninzi kwimidiya yoluntu efana ne-Facebook kunye ne-YouTube. Ungafunda kwaye ubukele amava abantu abaphila ne-AS, izinto abazenzayo. Ezi zinokuba luncedo. Nangona kunjalo, le yindawo apho kufuneka ulumke kakhulu .
Khumbula, musa ukuthatha nantoni na oyifumana kwi-intanethi, ingakumbi amava omntu, njengengcebiso yezonyango. Kubalulekile ukuthetha nogqirha wakho ngaphambi kokuba uzame nantoni na.
Xa ujonga ulwazi kwi-intanethi, zibuze le mibuzo:
- Ngubani oqhuba le webhusayithi okanye iphepha le-Facebook? Ingaba liqhutywa ngumbutho wezonyango owaziwayo, okanye ngumntu ongaziwayo?
- Ngaba bazama ukuthengisa into ethile? Ngamanye amaxesha bazama ukuthengisa iimveliso zabo ngokuthi “Eli yeza liza kukwenza uzive ungcono.” Musa ukukhohliswa yiloo nto.
- Ngaba kuvakala kukuhle kakhulu ukuba kungaba yinyani? Ukuba ubona into efana nokuthi "Imfihlo yokunyanga i-AS kwiintsuku ezisi-7," mhlawumbi bubuxoki.
- Ingaba olu lwazi lutsha? Ngaba kukho isiseko sesayensi? Jonga ukuba ulwazi olupapashiweyo lusekelwe kuphando kwaye luhlaziyiwe na.
Imibutho yamazwe ngamazwe ethembekileyo kunye neewebhusayithi
Zimbalwa imibutho ye-AS enxulumene neSri Lanka. Nangona kunjalo, kukho imibutho emikhulu yamazwe ngamazwe ephanda ngesi sifo kwaye inceda izigulane kwihlabathi liphela. Nangona ezi webhusayithi zibhalwe ngesiNgesi, zipapasha ulwazi oluxabisekileyo noluchanekileyo malunga nesifo, unyango olutsha, umthambo, kunye nendlela yokuphila nesifo. Ukuba uqhelene nesiNgesi kancinci, ezi ziya kuba luncedo kakhulu.
- Umbutho weSpondylitis waseMelika (SAA):Le yenye yezona mibutho zinkulu eMelika ezizinikele kwi-spondylitis, kuquka ne-AS. Iwebhusayithi yabo (spondylitis.org) ineengqungquthela ezininzi zezigulana, amaqela enkxaso, kunye nolwazi lwamva nje.
- Isiseko seArthritis: Lo ngumbutho omkhulu obonelela ngolwazi malunga nazo zonke iintlobo ze-arthritis. Iwebhusayithi yabo (arthritis.org) inecandelo elikhethekileyo malunga ne-AS.
- I-Arthritis National Research Foundation: Baxhasa uphando ukuze bafumane unyango lwe-arthritis. Ungafumana ulwazi malunga nophando lwamva nje kwiwebhusayithi yabo (curearthritis.org).
- I-National Institute of Arthritis and Musculoskeletal and Skin Diseases (NIAMS): Le yiarhente karhulumente wase-US. Ulwazi olupapashwe kwiwebhusayithi yabo (niams.nih.gov) luthembekile kakhulu kwaye lungqinwe ngokwesayensi.
Iindawo ezikwi-intanethi apho unokufunda khona amava abanye abantu
Amaqonga eendaba zoluntu akuvumela ukuba uqhagamshelane nabantu kwihlabathi liphela abaphila ne-AS efana nawe. Inkxaso oyifumanayo inokuba ngumthombo omkhulu wokhuthazo. Kodwa, njengoko benditshilo ngaphambili, ungazami nantoni na ngaphandle kokuthetha nogqirha wakho.
| Iqonga | Inkcazo |
|---|---|
| I-Facebook | Ukuba ukhangela i-Ankylosing Spondylitis, uza kufumana amaqela amaninzi. Amanye ngamaqela abucala, kwaye kufuneka ucele ukujoyina. Kula maqela, abanye abantu babuza imibuzo kwaye babelane ngamava. |
| I-Reddit | Le yenye indawo edumileyo yokwabelana ngolwazi kunye nezimvo. Yiba lilungu loluntu elibizwa ngokuba yi-`r/ankylosingspondylitis` apho unokubuza imibuzo kwaye ufunde ngamava abanye abantu. |
| I-Instagram / i-Twitter | Ungafumana izithuba ezifanelekileyo usebenzisa ii-hashtag ezifana ne-`#ankylosingspondylitis`, `#arthritis`, `#chronicpain`. Nangona kunjalo, kufuneka uqaphele kakhulu malunga nokuchaneka kolwazi olukwezi zinto. |
Ujonga njani ukuba iakhawunti yakho kwi-intanethi ithembekile?
- Mamela imbilini yakho: Ukuba kukho into evakala ingalunganga okanye ingekho ngqiqweni xa ujonga iakhawunti, mhlawumbi injalo.
- Khangela iiAkhawunti eziQinisekisiweyo: Iiakhawunti ezivela kwimibutho emikhulu nehloniphekileyo zinephawu eliluhlaza ecaleni kwazo, oko kuthetha ukuba iakhawunti yeyokwenyani kwaye ayiyoyobuxoki.
- Buza umgangatho wolwazi: Njengoko bekutshiwo ngaphambili, soloko ucinga ngokuba ngubani owenza oku, ngaba kuyathengiswa, kwaye ngaba kuyinzululwazi.
Uhambo olunesi sifo lunokuba lodwa kwaye lube nzima ngamanye amaxesha. Kodwa ngolwazi olufanelekileyo kunye nenkxaso efanelekileyo, ungayilawula kakuhle imeko kwaye uphile ubomi obonwabisayo.
Umyalezo Wokuya Ekhaya
- Awuwedwa kuhambo lwakho lokuphila ne-Ankylosing Spondylitis (AS). Amawaka abanye abantu, njengawe, baphila nale meko.
- Ugqirha wakho onyangayo ngoyena mthombo wakho wolwazi ubalaseleyo. Thetha naye kuqala ngayo nantoni na.
- Nangona i-intanethi, ingakumbi amajelo eendaba ezentlalo, iyindawo entle yokufumana ulwazi, musa ukukholelwa kuyo yonke into oyifundayo. Musa ukucinga ukuba amava omntu ngamnye aya kusebenza kuwe.
- Ngaphambi kokuba uzame naluphi na uhlobo olutsha lokuzilolonga, ukutya okunesondlo, okanye nantoni na enye, qiniseka ukuba ubuza ugqirha wakho ukuba ikulungele na.
- Nangona iiwebhusayithi zemibutho yamazwe ngamazwe zibhalwe ngesiNgesi, ulwazi oluchanekileyo nolwesayensi abalunikayo luya kuba luncedo olukhulu ekwandiseni ulwazi lwakho.
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