Ngamanye amaxesha amagama amayeza esiwanikwa ngoogqirha ayinkimbinkimbi kancinci, akunjalo? Kodwa xa siqonda nje indlela loo mayeza achaphazela ngayo imizimba yethu, siziva sikhululekile kakhulu. Namhlanje sithetha ngelinye lamayeza akhethekileyo, eliyiBurosumab, elinikwa njengenaliti. Olu lunyango olubaluleke kakhulu, ingakumbi kwabo banesifo semfuza esibizwa ngokuba yi-X-linked hypophosphatemia (XLH).
Kwenzeka ntoni ngokwenene ngale mithi?
Ngamafutshane, i-X-linked hypophosphatemia (XLH) yimeko apho izintso zikhupha i-phosphate eninzi kakhulu efunekayo emzimbeni wethu. Njengoko mhlawumbi uyazi, i-phosphate ibalulekile ekugcineni amathambo ethu eqinile. Xa amanqanaba e-phosphate ehla, amathambo anokuba buthathaka, aqhekeke, kwaye kubantwana, ukukhula okungalindelekanga, kunye nentlungu emathanjeni nasemalungeni.
Kulapho ke i-Burosumab ingena khona. Le ntsholongwane isebenza ngokulawula ukukhutshwa kwe-phosphate emzimbeni nokubuyisela amanqanaba e-phosphate egazini kwimeko eqhelekileyo. Oku kuvumela amathambo ukuba afumane i-phosphate ayifunayo aze aqalise ukukhula ngamandla.
Okubalulekileyo kukuba, iBurosumab lunyango olulawula imeko, hayi unyango. Eli yeza laziwa kakhulu ngegama lophawu iCRYSViTA.
Izinto ekufuneka uzixelele ugqirha wakho ngaphambi kokuba uqale unyango
Ngaphambi kokuba uqale olu nyango, ngokuqinisekileyo kufuneka uxelele ugqirha wakho izinto ezithile malunga nempilo yakho, kuba olo lwazi luya kumnceda agqibe ukuba eli yeza likulungele na okanye akunjalo.
- Ukuba unayo nayiphi na imeko enxulumene nezintso .
- Ukuba une -allergy kule mithi yeBurosumab, naluphi na olunye unyango, ukutya, okanye idayi.
- Ukuba ukhulelwe , okanye ulindele umntwana kungekudala.
- Ukuba ungumama oncancisayo .
Musa ukumfihlela ugqirha ezi nyaniso, kuba zibaluleke kakhulu kukhuseleko lwakho.
Ulisebenzisa njani eli yeza?
Eli asiloyeza onokulithatha ekhaya. I-Burosumab yinaliti efakwa phantsi kolusu . Inikwa ngugqirha oqeqeshiweyo esibhedlele okanye eklinikhi.
Ingaba ninika abantwana abancinci oku?
Ewe, kwezinye iimeko ezikhethekileyo, olu nyango lunokunikwa abantwana abaneminyaka eli-1 ubudala. Kodwa kufuneka kulandelwe amanyathelo akhethekileyo okhuseleko. Ke ngoko, ukuba unika umntwana wakho eli yeza, qhagamshelana nogqirha wezingane ngalo.Kubalulekile ukuthetha nabo ngokupheleleyo uze ufumane iinkcukacha.
Kuthekani ukuba ndifumana amayeza amaninzi kakhulu?
Oku akunakwenzeka ukuba kwenzeke kuba kunikwa esibhedlele. Nangona kunjalo, ukuba ucinga ukuba usele amayeza amaninzi kakhulu, fowunela iZiko loLwazi lweePoison kwiSibhedlele sikaZwelonke saseColombo ngoko nangoko. Okanye yiya kwiYunithi yoNyango oluNgxamisekileyo (ETU) yesibhedlele esikufutshane.
Kubalulekile: Eli yeza limiselwe wena wedwa. Musa ukwabelana ngeli yeza nabanye abantu nangasiphi na isizathu.
Ndenze ntoni ukuba ndiphoswe yidosi?
Kubaluleke kakhulu ukuya esibhedlele/eklinikhi ngemihla emiselweyo nangexesha elimiselweyo ukuze olu nyango luphumelele. Ungaphoswa nakweyiphi na kwezi seshoni zamayeza nangasiphi na isizathu. Ukuba awukwazi ukuya ngosuku olucwangcisiweyo, fowunela ugqirha wakho ngoko nangoko umxelele ngalo, kwaye ufumane ingcebiso ngosuku olulandelayo.
Amanye amayeza angafanele asetyenziswe kunye nale yeza
Kukho amayeza amaninzi angafanele asetyenziswe neBurosumab, ngoko ke kubaluleke kakhulu ukuxelela ugqirha wakho ngawo onke amayeza owasebenzisayo.
Ukuba uthatha la mayeza alandelayo, qiniseka ukuba uwakhankanya:
- ICalcitriol
- I-phosphate yomlomo
Olu luhlu aluphelelanga. Ngoko ke xelela ugqirha wakho ngawo onke amayeza owasebenzisayo (kuquka iivithamini, amayeza ezityalo, kunye nezongezo zesondlo). Kwakhona, thetha inyaniso malunga nokuba uyatshaya, uyasela utywala, okanye usebenzisa ezinye iziyobisi.
Izinto ekufuneka ziqwalaselwe ngexesha lonyango
Ukuba iimpawu zakho aziphucuki, okanye ukuba zibonakala zisiba mandundu, xelela ugqirha wakho. Ugqirha wakho uza kukujonga ngokusondeleyo ngelixa usela eli yeza. Kuya kufuneka naye enze uvavanyo lwegazi rhoqo ukuze ajonge izinto ezifana namanqanaba akho e-phosphate.
Zithini iziphumo ebezingalindelekanga ezinokubakho?
Njengalo naliphi na iyeza, iBurosumab inokubangela iziphumo ebezingalindelekanga kwabanye abantu. Ezinye zezi zinokuba yingozi, ngoko ke kubalulekile ukuba uzazi.
| Uhlobo lwesiphumo esibi | Inkcazo |
|---|---|
| Iziphumo ebezingalindelekanga ekufuneka zixelwe kugqirha ngoko nangoko | |
| Iimpendulo ze-allergy | Ukurhawuzelela kwesikhumba, ukurhawuzelela okanye ukurhawuzelela, ukudumba kobuso, imilebe okanye ulwimi. |
| Iingxaki kwindawo yokutofa | Intlungu, ukubomvu, okanye ukudumba kwindawo efakwe kuyo inaliti. |
| Izinto omele uzixelele ugqirha wakho ukuba ziyaqhubeka okanye ziyakukhathaza | |
| Iziphumo ebezingalindelekanga eziqhelekileyo | Intlungu yomqolo, ukuqhina, isiyezi, umkhuhlane, intloko ebuhlungu, iintlungu zemisipha, usulelo lwamazinyo, ukuhlanza. |
Olu luhlu aluzizo zonke iziphumo ebezingalindelekanga. Ukuba ufumana naziphi na iimpawu ezingaqhelekanga, nceda ucele ingcebiso kugqirha.
Umyalezo Wokuya Ekhaya
- I-Burosumab yinaliti ekhethekileyo elawula amanqanaba e-phosphate emzimbeni kwaye inikwa imeko ye-X-linked hypophosphatemia (XLH).
- Olu gonyo lunikwa yingcali yezonyango eqeqeshiweyo esibhedlele okanye ekliniki.
- Ngaphambi kokuba uqale unyango, xelela ugqirha wakho ngazo zonke iimeko zakho zempilo kunye namanye amayeza owasebenzisayo.
- Ungaze uphoswe kutyelelo lwakho lwamayeza olucwangcisiweyo. Ukuba awukwazi ukuya nangasiphi na isizathu, yazisa ugqirha wakho ngoko nangoko.
- Ukuba kukho iimpawu zokunganyamezelani komzimba (ezifana nokuba bomvu kolusu, ukudumba), funa ingcebiso kagqirha ngoko nangoko.
- Ukuba unemibuzo malunga nale yeza, ungoyiki ukubuza ugqirha wakho.
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