Ngamanye amaxesha, inkqubo yokuzikhusela yomzimba ekhusela imizimba yethu iyasebenza kakhulu ize iqale ukuhlasela iiseli zethu ezilungileyo. Kufana nomkhosi okhusela ilizwe uhlasela abantu bawo. Esi sisifo esingaqhelekanga kodwa esibi kakhulu esibizwa ngokuba yiHemophagocytic Lymphohistiocytosis, okanye iHLH ngamafutshane. Ngoko ke, namhlanje sithetha ngamayeza akhethekileyo asetyenziswa ngoogqirha ukulawula inkqubo yokuzikhusela yomzimba esebenza kakhulu ngamaxesha anje.
Ngamafutshane, yintoni i-Emapalumab?
I-Emapalumab (igama lophawu iGamifant) liyeza elisetyenziselwa ukunyanga isifo iHemophagocytic Lymphohistiocytosis (HLH) , esinokubangela ukudumba okukhulu kunye nomonakalo wezicubu emzimbeni wonke.
Ngoko ke eli yeza lisebenza kukulawula oku kusebenza kakhulu kwenkqubo yethu yokuzikhusela komzimba kwaye liyenze isebenze kakuhle kancinci. Kufana nokulawula iibhuleki kwimoto ebaleka ngesantya esiphezulu. Xa inkqubo yokuzikhusela yomzimba incipha ngale ndlela, ukudumba kunye nomonakalo obangelwe emzimbeni kuyancitshiswa. Ngokwezonyango, oku kukwiklasi yamayeza abizwa ngokuba yi-monoclonal antibodies .
Eli yeza linokumiselwa ngugqirha wakho nakwezinye iimeko zonyango, ngoko ke ukuba unemibuzo, buza ugqirha wakho.
Izinto ekufuneka uzixelele ugqirha wakho ngaphambi kokuba uqale eli yeza
Ngaphambi kokuba uqalise olu nyango, kubaluleke kakhulu ukuxelela ugqirha wakho imbali yakho epheleleyo yempilo . Ingakumbi ukuba unenye yezi meko zilandelayo:
- Ukuba okwangoku unesifo: Xelela ugqirha wakho ngalo naluphi na usulelo onalo, njengomkhuhlane, ukukhwehlela, okanye umkhuhlane . Eli yeza linokunciphisa amandla omzimba okulwa nosulelo.
- Ukuba usandul’ ukufumana isitofu okanye ucwangciselwe ukusifumana kwixesha elizayo: Izitofu, ingakumbi izitofu zentsholongwane ephilayo, zisenokudibana nale mithi.
- Malunga nesifo sephepha (TB):Ukuba ukhe waba nesifo sephepha ngaphambili, ukhe wadibana nomntu onesifo sephepha, okanye ukhe wavavanywa ulusu ukuba unayo na i-TB, kufuneka uyityhile le nto.
- Ezinye ii-Allergies : Xelela ugqirha wakho ukuba unayo nayiphi na i-allergies kweli yeza, i-Emapalumab, okanye nayiphi na enye iyeza, ukutya, okanye idayi.
- Ukuba ukhulelwe okanye uzama ukukhulelwa: Thetha nogqirha wakho malunga nendlela eli yeza elinokuchaphazela ngayo ukukhulelwa.
- Ukuba ungumama oncancisayo: Funa ingcebiso kagqirha malunga nokuba eli yeza lidluliselwa na kumntwana wakho ngobisi lwebele.
Ulifumana njani eli yeza?
Eli asiloyeza onokulithatha ekhaya. I-Emapalumab yinaliti enikwa emzimbeni wakho ngemithambo ( infusion ). Oku kuthetha ukuba inikwa esibhedlele okanye ekliniki ngabasebenzi bezonyango abaqeqeshiweyo.
Kubalulekile: Eli yeza limiselwe wena kuphela. Musa ukwabelana ngalo nabanye abantu nangasiphi na isizathu.
Ngaba eli yeza linokunikwa abantwana abancinci?
Ewe, eli yeza linokumiselwa kwiimeko ezithile zonyango, kwanakwiintsana ezisandul’ ukuzalwa. Nangona kunjalo, isigqibo senziwa ngugqirha oyingcali emva kokuvavanya ngononophelo imeko yomntwana. Ke ngoko, ukuba unika umntwana eli yeza, thetha ngalo kakuhle nogqirha.
Ungenza ntoni ukuba uthatha amayeza amaninzi kakhulu?
Oku kunikwa esibhedlele, ngoko ke amathuba okuba oku kwenzeke aphantsi kakhulu. Nangona kunjalo, ukuba ucinga ukuba usenokuba usele kakhulu, fowunela iZiko loLwazi lweePoison kwiSibhedlele sikaZwelonke saseColombo ngoko nangoko. Okanye uye kwiYunithi yoNyango oluNgxamisekileyo (ETU) yesibhedlele esikufutshane.
Kuthekani ukuba ndiphoswa lidosi leyeza?
Kubaluleke kakhulu ukuthatha amayeza akho ngexesha nangeentsuku ezicwangcisiweyo ngeli xesha lonyango. Ngoko ke, ungaphoswa ziintlanganiso zikagqirha wakho. Ukuba ngesizathu esithile awukwazi ukuya ngosuku olucwangcisiweyo, fowunela ugqirha wakho okanye iqela lezonyango ngokukhawuleza uze ubazise.
Izinto ekufuneka zikhunjulwe ngexesha lonyango
Ugqirha wakho uza kukujonga rhoqo ngelixa usela eli yeza.
- Uvavanyo lweTB: Ngaphambi kokuba uqale olu nyango, uza kuvavanywa isifo sephepha. Ukuba ugqirha wakho ukunike amayeza esifo sephepha, kufuneka uqale ukuwasela ngaphambi kokuba uqale i-Emapalumab uze uyigqibe yonke ixesha elimiselweyo.
- Umngcipheko wosulelo:Eli yeza linokunciphisa ukusebenza kwenkqubo yakho yokuzikhusela komzimba, nto leyo enokunyusa umngcipheko wokufumana usulelo. Ke ngoko, ukuba unesicaphucaphu , ukubanda, umphimbo obuhlungu, okanye ezinye iimpawu ezifana nomkhuhlane , musa ukuzenza unyango kwaye utsalele umnxeba ugqirha wakho ngokukhawuleza ukuze akunike ingcebiso. Zama ukuhlala kude nabantu abagulayo.
Iziphumo ebezingalindelekanga ezinokubakho ngenxa yamayeza
Njengalo naliphi na iyeza, eli yeza linokubangela iziphumo ebezingalindelekanga. Nangona kunjalo, ayinguye wonke umntu ozifumanayo. Abanye abantu banokuzifumana, kwaye abanye basenokungazifumani kwaphela. Apha ngezantsi kukho ezinye zeziphumo ebezingalindelekanga.
| Uhlobo lwesiphumo esibi | Inkcazo |
|---|---|
| Izinto omele uzixelele ugqirha wakho ngoko nangoko | |
| Iimpendulo ze-Allergic | Ukurhawuzelela kwesikhumba, ukurhawuzelela, ukudumba kobuso, imilebe, ulwimi okanye umqala. |
| Iimpawu zosulelo | Umkhuhlane, ukubanda, ukukhohlela, umphimbo obuhlungu, amanxeba angapholiyo, iintlungu xa uchama, kunye nokungonwabi ngokubanzi. |
| Iimpendulo zokungenisa | Intlungu esifubeni, ubunzima bokuphefumla, ukuquleka, okanye ukuziva unesizungu. |
| Ezinye iimpawu ezinzulu | Intlungu yesisu, ukuziva udiniwe okanye ubuthathaka ngendlela engaqhelekanga, isicaphucaphu, ukuhlanza, urhudo, okanye umkhuhlane ongapheliyo. |
| Ngokwesiqhelo ayisiyongxaki inzulu (kodwa xelela ugqirha wakho ukuba iyaqhubeka) | |
| Iziphumo ebezingalindelekanga ezincinci | Ukuqhinwa, ukukhohlela, urhudo, iintlungu zesisu. |
Olu luhlu alubandakanyi zonke iziphumo ebezingalindelekanga. Ukuba ubona nantoni na engaqhelekanga ukongeza kwezi, thetha nogqirha wakho ngayo.
Umyalezo Wokuya Ekhaya
- I-Emapalumab liyeza elikhethekileyo elinikwa ukunyanga i-HLH, imeko enzulu ebangelwa kukusebenza kakhulu kwenkqubo yomzimba yokuzikhusela.
- Ngaphambi kokuba uqalise olu nyango, xelela ugqirha wakho lonke ulwazi lwakho lwempilo, ingakumbi nayiphi na imbali yosulelo, i-allergies, kunye nesifo sephepha.
- Ngexesha lonyango, lumka kakhulu malunga neempawu zosulelo, ezinje ngomkhuhlane kunye nokubanda. Ukuba ufumana nayiphi na kwezi, yazisa ugqirha wakho ngoko nangoko.
- Musa ukulibazisa ixesha lokubonana nogqirha wakho. Kubaluleke kakhulu ukuthatha amayeza akho ngexesha.
- Eli yeza linikwa esibhedlele okanye ekliniki kuphela kwaye alinakuyiswa ekhaya.
- Ukuba unemibuzo okanye amathandabuzo malunga nale yeza, cela ugqirha wakho akucacisele.
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