Ingaba umama okanye utata angathini na xa ebona umntwana wakhe eqhaqhazela ngequbuliso, elahlekelwa zingqondo, aze awe phantsi emva kokudlala? Ngolwimi oluqhelekileyo, sibiza oku ngokuthi 'ukuxhuzula', 'ukuxhuzula', okanye 'ukuxhuzula'. Lo ngumbono owoyikisayo ngokwenene. Kodwa ngokwezonyango, siwubiza lo mbandela ngokuba yi-epilepsy. Eyona nto ibalulekileyo kukwazi ukuba yintoni, kutheni isenzeka, kunye nendlela yokunyamekela umntwana, kunokuba uyoyike. Ngoko ke ungoyiki. Le yimeko enokulawulwa ngokufanelekileyo. Masithethe ngayo yonke into ngendlela elula onokuyiqonda.
Yintoni kanye kanye isifo sokuwa ebantwaneni?
Ngamafutshane, isifo sokuwa sisifo esenzeka engqondweni yomntwana. Okwenzekayo kukuba kukho ukungahambelani ngequbuliso kokutshintshiselana kwemiqondiso yombane phakathi kweeseli zobuchopho, njenge-'short circuit'. Isiphumo salo msebenzi wombane ongaqhelekanga yinto esiyibiza ngokuba yi-'seizure'.
Uninzi lwethu lucinga ukuba ukuxhuzula yinto nje yokuxhuzula apho umzimba uxhuzula khona, umlomo uthule, aze umntwana alahlekelwe zingqondo. Kodwa ayizizo zonke izifo eziba njalo. Abanye abantwana banokujonga kwindawo enye okomzuzwana, ngokungathi abakho zingqondweni, okanye bangonwabi kakhulu.
Kukho into ebaluleke kakhulu ekufuneka uyikhumbule apha. Ukuba umntwana unesithuthwane esinye akuthethi ukuba unesithuthwane. Isithuthwane sinokubakho nangezinye izizathu, njengokuxhuzula okubangelwa yifiva okwenzeka xa umkhuhlane unyuka. Ugqirha uya kuyixilonga kuphela ukuba umntwana unesithuthwane esingaphezu kwesinye ngaphandle kwesizathu esicacileyo.
Ziziphi iintlobo zesifo sokuwa ezixhaphakileyo ebantwaneni?
Kukho iintlobo ezahlukeneyo zesifo sokuwa. Asizizo zonke ezifanayo. Makhe sijonge ezinye zezona ntlobo zixhaphakileyo ezibonwa ebantwaneni.
| Uhlobo lweSifo sokuwa | Kalula nje, kwenzeka ntoni apha? |
|---|---|
| Isifo sokuwa esingekhoyo | Kulapho umntwana ngequbuliso eyeka khona oko akwenzayo aze ajonge engenanto imizuzwana embalwa. Njengomntu olahlekileyo kwihlabathi lamaphupha. Ukuba uthetha naye ngelo xesha, umntwana akayi kuva okanye aphendule. Emva koko uya kuqhubeka esenza izinto ngendlela eqhelekileyo ngokungathi akukho nto yenzekileyo. |
| Isifo sokuwa iRolandic | Olu hlobo lubonakala kakhulu xa umntwana eza kulala okanye evuka kusasa. Xa oku kusenzeka, kunokubakho ukungakhululeki ebusweni, emlonyeni, naselulwimini, ukungcangcazela, kunye nobunzima bokuthetha. Ngamanye amaxesha elinye icala lomzimba liyashukuma. |
| Isifo sokuwa kwe-myoclonic yabantwana abancinci | Oku kudla ngokuqala xa umntwana efikelela kwinqanaba lokufikisa. Ingakumbi xa evuka kusasa, kukho ukushukuma ngequbuliso ezingalweni okanye emagxeni. Kuvakala ngathi kukuthuthumela ngombane. Ngamanye amaxesha, into efana nekomityi esandleni ingalahlwa. |
| Ukuqaqamba kwabantwana abancinci (i-West syndrome) | Le yimeko embi kakhulu echaphazela iintsana ezincinci kakhulu. Usana luthi ngequbuliso luguqe, luzolule, luze lushukume xa lulele okanye luvuka. Olu shukuma luhlala imizuzwana embalwa, kodwa lunokwenzeka amaxesha amaninzi ngokulandelelana kunye nekhefu elifutshane. Oku kunokuchaphazela uphuhliso lwengqondo yomntwana kwaye kufuna unyango olukhawulezileyo. |
| Isifo sikaLennox-Gastaut (LGS) | Olu luhlobo olubi kakhulu lwesifo sokuwa. Kule meko, umntwana unokuba neentlobo ezahlukeneyo zokuxhuzula. Ngamanye amaxesha izihlunu ziyaqina ngequbuliso zize ziwe, kwaye ngamanye amaxesha zibonakala ngathi azikho zingqondweni. Le meko inokuchaphazela ukufunda nophuhliso lomntwana. |
Ziziphi iimpawu ezinokubonakala ngaphambi nangexesha lokudibana?
Ngamanye amaxesha ukujiya kungavela ngaphandle kwesilumkiso , kodwa abanye abantwana babonisa iimpawu ngaphambi kokuba kujiya.
Iimpawu zokuqala ezinokubonakala ngaphambi kokuba umntwana adibane:
- Ndiziva ndinesizungu.
- Ukungazi nto ngezinto ezikungqongileyo, ukudideka.
- Ukujonga ngasese kwindawo enye.
- Utshintsho kwindlela yokuva, yokubona, yokuvumba, neyokungcamla.
- Ukuziva unesicaphucaphu esiswini sakho, uzive unesicaphucaphu, okanye uzive ngathi ubushushu bomzimba wakho buyatshintsha.
Iimpawu ezibonakalayo ngexesha lokukhulelwa:
Ukuqina komzimba kudla ngokuthatha imizuzu embalwa kuphela. Ngeli xesha, izinto ezinje zinokwenzeka:
- Ukulahlekelwa ngokupheleleyo zingqondo aze awe phantsi.
- Ukushukuma kwemisipha okungalawulekiyo, ukuxhuzula, okanye intshukumo eqhubekayo yenxalenye ethile yomzimba ngendlela efanayo.
- Ukungakwazi ukuthetha, ukubetha imilebe, okanye ukwenza iintshukumo zokuhlafuna ngomlomo.
- Ukubetha kwentliziyo.
- Ukuphefumla ngokukhawuleza.
Into ebalulekileyo kukuba ayinguye wonke umntwana onesifo sokuwa. Ezinye izifo azibandakanyi ntshukumo konke konke. Kwakhona, kunokuba nzima ukubona isifo sokuwa kumntwana omncinci kunakumntwana omdala. Ngoko ke ukuba ubona nayiphi na indlela engaqhelekanga okanye engaqhelekanga emntwaneni wakho, bhala phantsi ukuba sele kudlule ixesha elingakanani kwaye uthethe nogqirha wakho.
Emva kokuxhuzula, umntwana usenokuziva ediniwe kakhulu kwaye edidekile . Usenokungakhumbuli ukuba kwenzeke ntoni ngelo xesha. Kuqhelekile nokuba nentloko ebuhlungu emva kokuxhuzula.
Kutheni abantwana benesifo sokuwa?
Njengoko besitshilo ngaphambili, isifo sokuwa sibangelwa kukungasebenzi kakuhle kombane engqondweni. Kodwa kutheni sisenzeka? Ngamanye amaxesha kunzima ukufumana unobangela ocacileyo. Kodwa kukho izizathu eziqhelekileyo ezinokubangela isifo sokuwa ebantwaneni.
- Ukwenzakala entloko : Ngenxa yokwenzakala entloko ngenxa yengozi embi kakhulu.
- Iingxaki ngexesha lokuzalwa: Izizathu ezifana nokunqongophala kweoksijini engqondweni ngexesha lokuzalwa.
- Iintsholongwane: Iintsholongwane ezichaphazela ingqondo, umzekelo i-meningitis okanye i-encephalitis.
- Ukuphazamiseka Kwengqondo: Isiphene ekukhuleni kwengqondo esenzeka ngelixa umntwana esakhula esibelekweni.
- Izizathu zofuzo: Ukuba kukho umntu kusapho onesifo sokuwa, kukho umngcipheko othile wokuba nomntwana uya kuba naso.
Ngamanye amaxesha isifo sokuwa singenzeka ngaphandle kwesizathu esibonakalayo. Uphando lusaqhubeka ngale nto.
Ngaba isifo sokuwa sinokubangela ezinye iingxaki kumntwana?
Ewe, isifo sokuwa sinokuchaphazela impilo yomzimba nengqondo yomntwana.
- Ukulimala emzimbeni: Ungenzakala ngokuwa ungazi nto ngexesha lokuhlaselwa sisifo.
- Uloyiko lokuba nolunye uloyiko: Olu loyiko lunokwenzeka kumntwana nakubazali.
- Iingxaki zokulala: Ukuphazamiseka kokulala.
- Ukungazithembi: Kuba bazive bahlukile kwabanye abantwana.
- Ubunzima bokugxila: Ichaphazela ukufunda.
- Uxinzelelo kunye nokuxhalaba: Ukuba noxinzelelo lwengqondo.
Kubaluleke kakhulu ukukhusela umntwana wakho ngexesha lokuxhuzula. Ukuba uziva umntwana wakho exhuzula, mbeke phantsi ngoko nangoko. Ukuba usebunzimeni, beka into ethambileyo, njengelaphu, phantsi kwentloko yakhe. Musa ukuzama ukunqanda ukuxhuzula. Oku kunokumenzakalisa umntwana wakho. Musa ukufaka nantoni na emlonyeni wakhe. Ukuxhuzula kuya kuphela ngokwako kwimizuzu embalwa. Ukuba ukuxhuzula kuthatha imizuzu engaphezu kwemi-5, buza ugqirha wakho ukuba enze ntoni.
Ezinye iintlobo ezinzima zesifo sokuwa zinokuba yingozi ebomini. Umzekelo yimeko ebizwa ngokuba yi -status epilepticus . Oku kwenzeka xa unesithuthwane esinye ngokulandelelana okanye esinye ngaphambi kokuba uphile kwenye. Le yingxamiseko yezonyango.
Ugqirha ufumanisa njani ukuba esi sisifo sokuwa?
Ugqirha wenza iimvavanyo ezininzi ukuze afumanise esi sifo.
- Ukuqokelelwa kolwazi kunye nokuhlolwa komzimba: Uza kubuzwa zonke iinkcukacha, ezifana nokuba umntwana waqala njani ukuqina komzimba, ukuba kuthathe ixesha elingakanani, kunye nokuba kukho nabani na kusapho onale meko.
- Uvavanyo lwe-neurological: Kuhlolwa umsebenzi wengqondo yomntwana kunye nenkqubo ye-nervous.
- Uvavanyo lwegazi: Jonga naziphi na iimeko zempilo ezinokubangela ukuba umntwana angakwazi ukuthwala kakuhle.
- Uvavanyo lokufota: Uvavanyo oluthatha imifanekiso yobuchopho. Oku kungabandakanya i- MRI scan .
- Uvavanyo lwe-EEG (i-Electroencephalogram): Olu lolona vavanyo lubalulekileyo. Oku kuquka ukuncamathisela ii-sensors ezincinci entlokweni yomntwana ngaphandle kobuhlungu nokurekhoda iipateni zombane zengqondo. Kufana nokwenza i-ECG yentliziyo. Oku kunokufumanisa nawuphi na umsebenzi ongaqhelekanga wombane engqondweni.
Ziziphi iindlela zonyango zesifo sokuwa?
Ngethamsanqa, kukho unyango olufanelekileyo lokulawula isifo sokuwa.
- Amayeza okulwa nokuxhuzula: Olu lolona nyango lusetyenziswa kakhulu. La mayeza asebenza ngokulawula ukusebenza kombane okungaqhelekanga engqondweni nokuthintela ukuxhuzula. Eyona nto ibalulekileyo kukunika umntwana amayeza kanye njengoko ugqirha emyalele, ngexesha elifanelekileyo, nangomlinganiselo ofanelekileyo, ngaphandle kokuphoswa lusuku olunye.
- Utyando: Utyando ngamanye amaxesha luyacetyiswa kwisifo sokuwa esingenakulawulwa ngamayeza kwaye sivela kwindawo ethile yengqondo.
- Izixhobo zonyango ezifakelweyo: Isivuseleli semithambo-luvo yeVagus okanye isivuseleli sengqondo esinzulu ngamanye amaxesha sisetyenziswa kubantwana abangasabeliyo kumayeza.Izixhobo ezinje ngezi zifakwa emzimbeni. Ezi zithumela imiqondiso yombane engqondweni ukuze ilawule ukulingana.
- Ukutya okune-ketogenic: Olu lukutya okukhethekileyo olunamafutha amaninzi kunye neecarbohydrates eziphantsi. Olu hlobo lokutya lunokuba luncedo kwabanye abantwana abanesifo sokuwa esinzima ukulawula. Nangona kunjalo, oku kufanele kwenziwe kuphela phantsi kweliso elibukhali likagqirha kunye nengcali yesondlo.
Ndingamkhusela njani umntwana wam onesifo sokuwa?
Njengomzali, kuyinto eqhelekileyo ukuxhalabela ukhuseleko lomntwana wakho. Ingxaki inokwenzeka nangaliphi na ixesha, ngoko ke ziqaphele ezi zinto ukuze umntwana wakho akhuseleke.
Amanyathelo okhuseleko aqhelekileyo
- Qiniseka ukuba unxiba izixhobo zokuzikhusela, ezifana nesigcina-ntloko , xa udlala imidlalo okanye ukhwela ibhayisekile.
- Gcina umntwana wakho ejongiwe ngumntu omdala xa edlala kwaye eqeqesha. Yazisa ngokucacileyo abanakekeli kunye nootitshala besikolo ngemeko yomntwana wakho kunye nento ekufuneka bayenze ukuba banesifo sokuwa.
- Ukuba umntwana wakho uselula, thetha nogqirha wakho kwaye ufumane iingcebiso ngaphambi kokuba ufumane ilayisenisi yokuqhuba .
- Musa ukumenza umntwana wakho alale kumgangatho ophezulu webhedi ebhedini .
- Nika ingqalelo engakumbi xa usenza imisebenzi kwiindawo eziphakamileyo, njengokunyuka imithi neentaba.
Khumbula ezi zinto ukuze uphephe iingozi ezinokubakho emanzini
Kukho umngcipheko omkhulu weengozi ezinxulumene namanzi.
- Shiya iingcango zegumbi lokuhlambela zingatshixwanga .
- Ungaze umshiye umntwana wakho eyedwa ebhafini, ebhafini, okanye kufutshane nedama lokudada. Soloko umjonga umntwana wakho.
- Musa ukuvumela umntwana abhukude yedwa.
- Gcina amanzi ebhafini esezantsi.
- Gcina izixhobo zombane kude nebhafu kunye nesinki.
Ndifanele ndimbone nini ugqirha? Ndifanele ndiye nini kwi-ETU?
Kubaluleke kakhulu ukwazi ngqo lo mahluko.
| Bona ugqirha ngexesha elinje. | Kwimeko enjalo, yiya kwi-ETU (iYunithi yoNyango oluNgxamisekileyo) ngoko nangoko. |
|---|---|
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Ngaba umntwana wam angaphila ubomi obuqhelekileyo enesifo sokuwa?
Ewe ngokwenene. Malunga nama-70% abantwana abanesifo sokuwa, okanye abasixhenxe kwabalishumi, banokuphila ubomi obuqhelekileyo, obonwabisayo njengabanye abantwana abaneminyaka yabo. Uphuhliso lwabo kunye nemisebenzi yabo yemihla ngemihla ayichaphazeleki kakhulu. Mhlawumbi umahluko kuphela kukuba kufuneka bathathe amayeza abo ngexesha elifanayo yonke imihla.
Kwakhona, ngaphezu kwama-60% abantwana abanesifo sokuwa, okanye abathandathu kwabalishumi, baya kukhula ngokupheleleyo xa sele bekhulile . Oku kuthetha ukuba kuya kuphucuka ngokupheleleyo njengoko bekhula.
Kodwa abanye abantwana banokufumana ubunzima bengqondo ngenxa yale meko. Basenokuziva beneentloni, bedanile, kwaye bebuhlungu kuba beziva behlukile kwabanye. Ngamaxesha anjalo, uthando lwakho kunye nenkxaso yakho zibaluleke kakhulu kumntwana. Ukuba kuyimfuneko, ukufuna uncedo kumcebisi wezempilo yengqondo kuya kuba namandla amakhulu kumntwana.
Umyalezo Wokuya Ekhaya
- Isifo sokuwa sisifo sengqondo esilawulekayo. Asinto yokuba neentloni okanye ufihle.
- Ayizizo zonke iimpawu ezifanayo. Qaphela iimpawu zomntwana wakho ezikhethekileyo.
- Nika umntwana wakho amayeza anikwe ngugqirha, kanye njengoko eyalelwe, ungaphoswa lusuku olunye.
- Funda indlela yokukhusela umntwana wakho xa enesifo sokuwa. Musa ukoyika kwaye uhlale uzolile.
- Ukuba ukuxhuzula kuthatha imizuzu engaphezu kwemi-5 okanye umntwana enengxaki yokubuyela ezingqondweni, yingxamiseko leyo. Mse umntwana kwi-ETU ngoko nangoko.
- Awuwedwa kolu hambo. Hlala unxibelelene nogqirha wakho, ubuze imibuzo, kwaye ufumane inkxaso oyifunayo.
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