Ukuba umntwana wakho unomhlaza obizwa ngokuba yiNeuroblastoma, ugqirha angagqiba ekubeni asebenzise iyeza elibizwa ngokuba yiNaxitamab. Xa usiva igama elinje, usenokuziva usoyika kwaye uxinezelekile. Yinto eqhelekileyo leyo. Yiyo loo nto namhlanje siza kuthetha ngale yeza, into eliyenzayo emzimbeni, kunye nento ekufuneka siyiqaphele. Kulula kakhulu, ukuze uyiqonde.
Loluphi uhlobo lonyango iNaxitamab?
Ngamafutshane, iNaxitamab (igama lophawu iDANYELZA) liyeza elikudidi olukhethekileyo lwamayeza abizwa ngokuba yi -monoclonal antibodies . Cinga ngalo njengejoni eliqeqeshiweyo elinceda amajoni ethu omzimba. Iiproteni ezikhethekileyo kweli yeza zinceda inkqubo yokuzikhusela yomzimba wethu ukuba ifumane kwaye ibone iiseli zomhlaza (ingakumbi iiseli zeNeuroblastoma), izihlasele, kwaye izitshabalalise.
Olu lunyango olujoliswe kulo olusebenza ngendlela eyahlukileyo kune-chemotherapy eqhelekileyo. Oko kuthetha ukuba lujolise kakhulu kwiiseli zomhlaza. Kodwa lungasetyenziswa nakwezinye izinto. Thetha nogqirha wakho ngalo mba.
Izinto ezibalulekileyo ekufuneka uzixelele ugqirha ngaphambi kokuba umnike amayeza
Ngaphambi kokuba umntwana wakho aqale olu nyango, kubaluleke kakhulu ukuxelela ugqirha izinto ezithile ngokucacileyo. Musa ukuzifihla ezi zinto, kuba olu lwazi lubalulekile kukhuseleko lomntwana.
- Uxinzelelo Lwegazi Oluphezulu: Ukuba umntwana wakho unexinzelelo lwegazi oluphezulu okanye usela amayeza alo, qiniseka ukuba uyamxelela.
- Ii-Allergy: Sixelele ukuba ukhe waba ne-allergy nakweyiphi na enye iyeza, ukutya, okanye idayi, kungekuphela nje kwi-Naxitamab.
- Ukukhulelwa: Xelela iqela lakho lonyango ukuba wena (umama womntwana okanye umgcini wakhe) ukhulelwe, uzama ukukhulelwa, okanye unesikrokro sokuba ukhulelwe. (Eli cebiso likwasebenza nakubantu abancinci abasebenzisa eli yeza).
- Ukuncancisa: Ukuba uncancisa umntwana wakho, kufuneka ukhankanye loo nto.
Umnika njani umntwana eli yeza?
Le ayisiyo pilisi okanye isiraphu yokusela ekhaya. I-Naxitamab yi -infusion emthanjeni . Inikwa umntwana wakho ngabasebenzi bezonyango abaqeqeshiweyo esibhedlele okanye eklinikhi, njengesisombululo se-saline.
Olu nyango ngamanye amaxesha lunikwa abantwana abaneminyaka eli-1 ubudala, kodwa kufuneka kulandelwe amanyathelo akhethekileyo okhuseleko. Ugqirha wakho uza kukuchazela oku.
Yintoni omawuyenze ukuba uphoswe yintlanganiso yamayeza?
Kukho iintsuku ezithile apho olu nyango lucwangcisiweyo. Kubaluleke kakhulu ukuza esibhedlele ngaloo mihla. Musa ukulibazisa eli xesha ngenxa yesizathu esithile.Ukuba awukwazi ukuya kwintlanganiso yakho ecwangcisiweyo, fowunela ugqirha wakho okanye isibhedlele ngokukhawuleza uze ubazise.
Kuthekani ukuba ndithatha amayeza amaninzi kakhulu?
Oku kunikwa esibhedlele, ngoko ke amathuba okuba oku kwenzeke mancinci kakhulu. Nangona kunjalo, ukuba ucinga ukuba umntwana wakho ufumene amayeza amaninzi, fowunela iZiko loLwazi lweePoison kwiSibhedlele sikaZwelonke saseColombo ngoko nangoko, okanye umse umntwana wakho kwiYunithi yoNyango oluNgxamisekileyo (ETU) yesibhedlele esikufutshane.
Izinto ekufuneka siziqwalasele ngokukodwa xa sisebenzisa iyeza
Oogqirha nabahlengikazi baza kuyijonga imeko yomntwana wakho ngokusondeleyo kulo lonke ixesha lokusebenzisa eli yeza, kodwa njengabazali, kubalulekile ukuba nizazi ezi zinto.
- Iimpendulo zokufakwa kweyeza: Abanye abantwana banokuba neempendulo ezikhawulezileyo xa benikwa eli yeza . Umzekelo, uxinzelelo lwegazi oluphezulu, ubunzima bokuphefumla, okanye ukurhawuzelela. Ukunciphisa le ngozi, ugqirha wakho anganika umntwana wakho amanye amayeza (afana namayeza okudambisa iintlungu okanye awokungezwani komzimba) ngaphambi kokuba anike iNaxitamab. Ngoko ke landela imiyalelo kagqirha wakho ngokuchanekileyo.
- Ukukhulelwa nokuncancisa: Le yingxaki ebaluleke kakhulu.
Musa ukukhulelwa nangasiphi na isizathu ngelixa usebenzisa eli yeza kwaye kangangeenyanga ezi-2 emva kokuyeka unyango. Eli yeza linokulimaza kakhulu usana olungekazalwa. Kwakhona, kuphephe ukuncancisa umntwana wakho ngelixa usebenzisa eli yeza kwaye kangangeenyanga ezi-2 emva kokuyeka unyango.
- Amanye amayeza: Akukabikho lwazi lupheleleyo malunga nendlela amanye amayeza asebenzisana ngayo nale yeza. Ke ngoko, kubaluleke kakhulu ukuxelela ugqirha wakho ngayo yonke imithi oyinika umntwana wakho (kuquka iivithamini, amayeza emifuno, kunye nezongezo) . Kwakhona, musa ukuqala nayiphi na imithi emitsha ngaphandle kokubuza ugqirha wakho kuqala.
Zithini iziphumo ebezingalindelekanga ezinokubakho zale yeza?
Njengalo naliphi na iyeza, iNaxitamab inokubangela iziphumo ebezingalindelekanga. Nangona kunjalo, ayinguye wonke umntu ozifumanayo. Eyona nto ibalulekileyo kukwazi ezi mpawu kwaye wazise ugqirha wakho ngokukhawuleza ukuba kuyimfuneko.
| Iziphumo ebezingalindelekanga zeNaxitamab | |
|---|---|
| 🚨 Iziphumo ebezingalindelekanga ekufuneka zixelwe kugqirha okanye esibhedlele ngoko nangoko | |
| Iimpendulo ze-allergy | Ukurhawuzelela kwesikhumba, ukurhawuzelela okanye ukurhawuzelela, ukudumba kobuso, imilebe okanye ulwimi. |
| Ubunzima bokuphefumla | Ubunzima bokuphefumla, ukuphefumla kancinci. |
| Utshintsho kwinkqubo yeemvakalelo | Intloko ebuhlungu kakhulu, ukuxhuzula, ukudideka, ubunzima bokuthetha, ukubona izinto zingacacanga, ukuva ukukhanya, iintlungu, ukungaziva okanye ukuphelelwa zimvakalelo emalungeni, kunye nobuthathaka bemisipha. |
| Intliziyo kunye noxinzelelo lwegazi | Uxinzelelo lwegazi oluphezulu, iintlungu zesifuba, ukubetha kwentliziyo ngokukhawuleza, isiyezi, kunye nokuba buhlungu. |
| Ezinye iimpawu ezinzulu | Intlungu ebuhlungu esiswini, ubunzima bokuchama okanye utshintsho kubungakanani bomchamo, intlungu yamathambo. |
| 🩺 Iziphumo ebezingalindelekanga ezingaqhelekanga, kodwa kufuneka zixelwe kugqirha ukuba ziyaqhubeka | |
| Inkqubo yokugaya ukutya | Ukungabi namdla wokutya, isicaphucaphu, ukuhlanza, urhudo. |
| Ezinye iimpawu | Ukudinwa, ukuziva uxhalabile ngalo lonke ixesha, iintlungu, ukubomvu, okanye ukudumba kwindawo efakwe kuyo inaliti. |
Ukuba umntwana wakho ufumana ezinye iimpawu ezingaqhelekanga ezingakhankanywanga kolu luhlu, yazisa ugqirha wakho ngazo.
Umyalezo Wokuya Ekhaya
- I-Naxitamab lunyango oluthile, olujoliswe ngqo kumhlaza we-neuroblastoma. Liyeza elinikwa umthambo esibhedlele.
- Ngaphambi kokuba uqale unyango, xelela ugqirha ngazo zonke iimeko zempilo zomntwana wakho (ingakumbi uxinzelelo lwegazi oluphezulu), ii-allergies, kunye nawo onke amayeza awasebenzisayo.
- Qaphela iimpembelelo zokufakwa kweyeza kunye nemiphumo emibi kakhulu (intloko ebuhlungu, ukuxhuzula, ubunzima bokuphefumla) enokwenzeka xa unikwa iyeza.
- Kuphephe ukukhulelwa nokuncancisa ngokupheleleyo ngexesha lonyango kwaye kangangeenyanga ezimbini emva kokuba uyekile.
- Ukuba unemibuzo, iinkxalabo, okanye amathandabuzo, buza ugqirha wakho okanye umongikazi. Musa ukufihla nantoni na kuwe.
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