Xa ugqirha wakho ekuxelela ukuba unesifo sesibindi esibizwa ngokuba yi-PBC, okanye i-'Primary Biliary Cholangitis', usenokuba uzive usoyika kakhulu kwaye uxhalabile. "Kuza kwenzeka ntoni kwisibindi sam? Ngaba kuya kufuneka ndifakelwe isibindi?" Usenokuba uzibuza. Kodwa ungakhathazeki. Enyanisweni, ayinguye wonke umntu one-PBC ofuna ukufakelwa isibindi. Kweli nqaku, siza kuthetha ngexesha ekufuneka ufakelwe isibindi ngalo, zithini izizathu, kunye nendlela ugqirha wakho asenza ngayo esi sigqibo.
Okokuqala, makhe sibone ukuba kutheni kungengabo bonke abaguli abane-PBC abadinga ukufakelwa isibindi.
Ngamafutshane, i-PBC sisifo esikhula kancinci . Ingakumbi ukuba usifumana kwangethuba kwaye ulandele imiyalelo kagqirha wakho, kungathatha iminyaka eli-15 ukuya kwengama-20 ukuba esi sifo siqhubekele kwinqanaba elibi. Abantu abaninzi banokulawula iimpawu zabo ngamayeza afanelekileyo baze baphile ubomi obuqhelekileyo iminyaka emininzi ngaphandle kwemiphumo emibi.
Oko kuthetha ukuba akukho sizathu sokoyika ukufakelwa isibindi kuba nje une-PBC. Ifuneka kuphela kubantu abambalwa abanesifo esibi kakhulu nesingapheliyo.
Khawucinge nje, ukuba ufunyaniswa unesifo emva kwexesha, okanye ukuba unesimo esibi kakhulu sesifo esisasazeka ngokukhawuleza, kulapho kufuneka ucinge ngokufakelwa isibindi.
Ngoko ke, nini ixesha ofanele ucinge ngokufakelwa isibindi?
Ugqirha wakho kunye neqela lezonyango baza kujonga izinto ezahlukeneyo ukuze bagqibe ekubeni ngaba udinga ukufakelwa isibindi. Esi asisosigqibo sexesha elinye. Baza kuqhubeka bejonga imeko yakho baze bafikelele kwisigqibo.
Makhe sibone ukuba zeziphi ezo zizathu ziphambili kwitheyibhile engezantsi.
| Isizathu sokudluliselwa kwi-hepato yokufakelwa isibindi | Ithetha ntoni le nto? |
|---|---|
| Ukungaphumeleli konyango | Ukuba isifo asinakulawulwa ngamayeza owanikiweyo, umzekelo , i-Ursodeoxycholic acid (UDCA) kunye ne -Obeticholic acid (OCA) , kwaye umonakalo esibindini uyaqhubeka usenzeka. |
| Ukusilela kwesibindi | Ukuba isibindi siba namanxeba amaninzi (oku kubizwa ngokuba yi-cirrhosis ) kwaye isibindi asikwazi ukwenza imisebenzi yaso ephambili, njengokucoca igazi nokwenza iiproteni ezifunekayo emzimbeni, |
| Ukuvela kwezinye iingxaki ezinzulu | Ukuba i-PBC ibangela ezinye iingxaki zempilo ezinzulu nezisongela ubomi, ezifana nokopha kwinkqubo yakho yokugaya ukutya (i-GI tract) okanye umhlaza wesibindi, kunokufuneka ucinge ngokufakelwa isidoda. |
| Iimpawu ezingenakunyamezeleka | Ngamanye amaxesha, nokuba isibindi asisebenzi kakuhle, ukuba iimpawu ezinje ngokurhawuzelelwa okunganyamezelekiyo okanye ukudinwa kakhulu azinakulawulwa ngamayeza, kunokucetyiswa ukuba utyando lokufakelwa isibindi ukuze kuphuculwe umgangatho wobomi. |
Iimpawu ugqirha azinika ingqalelo ngakumbi
Ukongeza kwezi zinto ziphambili, ugqirha wakho uza kukhangela ezinye izinto. Umzekelo:
- Ingaba amehlo nolusu lwakho luba tyheli (i-jaundice)?
- Ingaba isisu sizaliswa ngamanzi (ii-ascites)?
- Ingaba uhlanza igazi?
- Ngaba inkumbulo kunye nokuqonda kuyaphazamiseka (iHepatic encephalopathy)?
Ezi mpawu zithetha ukuba isibindi sinobunzima bokwenza umsebenzi waso ngokufanelekileyo. Ngamaxesha anjalo, nokuba iimpawu zakho azikho mbi kakhulu, ugqirha wakho unokugqiba ekubeni akuthumelele ukufakelwa isibindi.
Yenzeka njani inkqubo yokuthunyelwa kwisibindi?
Ugqirha wakho uza kukuthumela kwi- hepatologist , ugqirha ogxile kwizifo zesibindi kunye ne-gallbladder. Ukuba uhlola imeko yakho kakuhle aze afumanise ukuba kuyimfuneko ukufakelwa utyando, uza kuthunyelwa kwiziko elikhethekileyo esibhedlele elenza utyando lokufakelwa utyando lwesibindi.
Le yinkqubo ende kancinci.
1. Ukudibana neqela leengcali: Uza kuhlolwa liqela elikhulu eliquka oogqirha botyando, iingcali zesibindi, abahlengikazi kunye nabasebenzi bezentlalo.
2. Uvavanyo: Izinto ezininzi ezifana novavanyo lwegazi kunye neeskeni zenziwa ukuze kubonwe ukuba umzimba wakho unako na ukumelana notyando olukhulu kangaka.
3. Ukubekwa kuluhlu lokulinda: Ukuba yonke into ifanelekile, uza kufakwa kuluhlu lokulinda lwesizwe ukuze ulinde isibindi.
Kungathatha iinyanga, ngamanye amaxesha ixesha elide, ukufumana isibindi. Isibindi sifunyanwa kulowo uswelekelweyo, okanye kumntu ophilayo, njengelungu losapho, onikela ngenxalenye yesibindi sakhe.
Into ebalulekileyo kukuba ukuba ugqirha wakho ukuthumelele utyando akuthethi ukuba uza kwenziwa utyando ngomso. Kuthetha nje ukuba uthathe inyathelo lokuqala lokuzilungiselela kwixesha elizayo, ukuba kuyimfuneko.
Ndingenza ntoni?
Eyona nto ibalulekileyo ekufuneka uyenze kukungaxhalabi kwaye uhlale unxibelelana rhoqo nogqirha wakho.
- Yiya kwiikliniki ngexesha: Musa ukungayi kwikliniki. Kubalulekile ukujonga imeko yakho.
- Sela amayeza akho kanye njengoko ugqirha wakho ekuyalele: Sela amayeza akho ngexesha elifanelekileyo nangedosi efanelekileyo.
- Indlela yokuphila esempilweni: Yeka ukusela utywala ngokupheleleyo. Yitya ukutya okunesondlo. Nxibelelana nogqirha wakho ukuze ufumane iingcebiso ezithe vetshe ngale nto.
- Buza imibuzo: Thetha ngokukhululekileyo nogqirha wakho malunga noloyiko lwakho, amathandabuzo, kunye nezinto ezikuxhalabisayo. Musa ukoyika ukubuza imibuzo efana nale, "Gqirha, zinjani iingxelo zam? Ngaba ndifanele ndicinge ngokufakelwa isibeleko?"
Ukuphila ne-PBC kunokuba nzima, kodwa khumbula, ngonyango oluphambili lwanamhlanje, abantu abaninzi banokulawula le meko ngempumelelo kwaye baphile ubomi obuhle.
Umyalezo Wokuya Ekhaya
- Ayinguye wonke umntu one-PBC oya kufuna ukufakelwa isibindi. Esi sisifo esihlala sikhula ngokukhawuleza.
- Ukufakelwa kwesibindi kufuneka kuqwalaselwe kuphela xa unyango lungaphumeleli, ukuba isibindi asisakwazi ukusebenza ngokupheleleyo (ukungasebenzi kwesibindi), okanye ukuba kukho ezinye iingxaki ezinkulu.
- Isigqibo sokugqibela sokuba uyayidinga na into yokufakelwa isibeleko senziwa ngugqirha wakho oyingcali, ngokusekelwe kuvavanyo lwakho lwegazi, iimpawu kunye nempilo yakho iyonke.
- Eyona nto ingcono onokuyenza kukulandela imiyalelo kagqirha wakho, usele amayeza akho njengoko uyalelwe, kwaye uye kwiikliniki.
- Thetha ngokukhululekileyo nogqirha wakho ngayo nayiphi na imibuzo okanye iinkxalabo onazo malunga nemeko yakho.
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