Ngaba wena okanye umntu osapho lwakho unesifo esibizwa ngokuba yiPhenylketonuria? Ukuba kunjalo, ugqirha wakho usenokuba ukunike iyeza elibizwa ngokuba yiPegvaliase. Ekubeni eli liyeza elikhethekileyo, kuyinto eqhelekileyo ukuba nemibuzo kunye nokukhathazeka ngalo. Ngoko ke namhlanje, masithethe ngeli yeza kunye nezinto ekufuneka uzazi xa ulisebenzisa.
Yintoni le nto yokugonyela iPegvaliase?
Ngamafutshane, iPhenylketonuria (PKU) yimeko apho imizimba yethu ingakwaziyo ukuyigaya kakuhle i-amino acid ebizwa ngokuba yi-phenylalanine. Le yinto edla ngokufumaneka ekutyeni okuneproteni eninzi esikutyayo. Xa le phenylalanine iqokelelana emzimbeni womntu one-PKU, iqokelelana egazini kwaye inokubangela umonakalo, ingakumbi engqondweni, ngokuhamba kwexesha.
Ngoko ke, into eyenziwa yile injection yePegvaliase kukunciphisa amanqanaba e-phenylalanine engafunekiyo negqithisileyo egazini. Ihlala iphantsi kwegama lebrendi elithi Palynziq.
Kodwa kubalulekile ukukhumbula oku: Oku akuyonto yokuphelisa zonke izifo. Nangona kunjalo, kunokunceda ekulawuleni amanqanaba ayingozi egazini nasekunciphiseni umonakalo obangelwa sisifo.
Izinto ekufuneka uzixelele ugqirha wakho ngaphambi kokuba uthathe amayeza
Ngaphambi kokuba uqale eli yeza, kubaluleke kakhulu ukuthetha nogqirha wakho ngezi zinto ngokucacileyo nangokunyanisekileyo. Musa ukufihla nantoni na.
- Sixelele ukuba unayo nayiphi na i-allergies kwiPegvaliase okanye naliphi na elinye iyeza, ukutya, okanye idayi.
- Ukuba ukhulelwe okanye unethemba lokukhulelwa, qiniseka ukuba utsho njalo.
- Ukuba ungumama oncancisayo, yazisa ugqirha wakho ngaloo nto.
Ngokusekelwe kolu lwazi, kuya kuba lula kugqirha ukugqiba ukuba eli yeza lifanelekile kuwe okanye akunjalo.
Ungayisebenzisa njani i-vaccine ngokuchanekileyo?
Le yinaliti efakwa ngaphantsi kwesikhumba. Ugqirha okanye umongikazi wakho uhlala ekunika imiyalelo ecacileyo yokuba ungayinika njani ekhaya. Kubaluleke kakhulu ukulandela le miyalelo ngokuchanekileyo.
- Thatha idosi echanekileyo, ngexesha elifanelekileyo: Thatha iyeza kuphela xa kwaye ngomlinganiselo ofanelekileyo njengoko ugqirha wakho ekuyalele. Ungaze uthathe ngaphezu komlinganiselo omiselweyo.
- Lahla iinaliti kunye neesirinji ngendlela efanelekileyo: Ungaze ulahle iinaliti kunye neesirinji ezisetyenzisiweyo enkunkuma. Endaweni yoko, zibeke kwisikhongozeli esikhethekileyo se-sharps. Ukuba awunayo, cela ugqirha wakho akunike enye.
- Incwadana yolwazi olukhethekileyo (iMedGuide):Ngaphambi konyango ngalunye, uza kunikwa i-'MedGuide' ekhethekileyo, incwadana eneenkcukacha malunga namayeza. Soloko uyifunda ngononophelo.
Kuthekani ukuba ndiphoswa lidosi leyeza?
Ukuba ngequbuliso uphoswe yidosi, ungakhathazeki. Musa ukuyithatha idosi ephoswe yiyo. Thatha idosi elandelayo ngexesha lakho eliqhelekileyo. Ungaze uthathe idosi ephindwe kabini.
Kuthekani ukuba ndisebenzisa i-overdose?
Ukuba ucinga ukuba uthathe amayeza amaninzi kakhulu, fowunela iZiko loLwazi lweePoisons kwiSibhedlele sikaZwelonke saseColombo ngoko nangoko, okanye uye kwiCandelo loNyango oluNgxamisekileyo (ETU) lesibhedlele esikufutshane. Le yingxamiseko, ungalibazisi.
Izinto ekufuneka uzilumkele ngakumbi xa usebenzisa eli yeza:
Le nxalenye ibaluleke kakhulu. Kufuneka uzilumkele ezi zinto kulo lonke ixesha lokusebenzisa eli yeza.
Ukusabela Okubi Kakhulu Kwe-Allergy
Eyona ngozi inkulu neyona inzima yale mithi kukuba kungenzeka ukuba umntu abe ne-allergy enzima, okanye ngokwezonyango, i-anaphylaxis. Le yimeko engxamisekileyo esongela ubomi.
Ngenxa yesi sizathu, ugqirha wakho uhlala ekunika i-epinephrine auto-injector, inaliti ekhethekileyo engasetyenziswa kwiimeko ezingxamisekileyo. Kufuneka uhlale uyigcina nawe.
Khawuthelekelele ukuba ufumana inaliti kwaye ngexesha elifutshane, unobunzima bokuphefumla, ubuso nemilebe yakho idumbe, kwaye uzive unesiyezi. Oko kunokuthetha ukuba une-allergy enkulu. Ukuba oko kuyenzeka, kufuneka ufumane inaliti ye-epinephrine ngoko nangoko kwaye uye kwigumbi likaxakeka lesibhedlele (ETU) ngokukhawuleza.
Ngenxa yale ngozi, ugqirha wakho uya kukuxelela rhoqo ukuba ube nomntu oza kuhamba nawe ngexesha lotyando nangeyure emva kotyando. Oku kwenzelwa ukuba ukuba une-allergy enkulu, loo mntu akwazi ukukunceda aze akuse esibhedlele ngokukhawuleza.
Ukuhlolwa rhoqo kwezonyango kunye nokulawula ukutya
- Uvavanyo lwezonyango: Ugqirha wakho uza kukujonga rhoqo ngelixa usela eli yeza. Uza kuyalela novavanyo lwegazi rhoqo (umsebenzi wegazi) ukujonga inqanaba le-phenylalanine egazini lakho. Musa ukulibaleka eli yeza.
- Ukutya: Uyakhumbula xa besithetha ngokutya okukhethekileyo ekufuneka ukulandele kwi-PKU? Ngelixa usela la mayeza, kufuneka ulandele ukutya okukhethekileyo okumiselweyo kuwe. Musa ukwenza naluphi na utshintsho kwindlela otya ngayo ngaphandle kokubonisana nogqirha wakho.
Iziphumo ebezingalindelekanga zeyeza
Njengayo nayiphi na imithi, le inokuba nemiphumo emibi. Ungakhathazeki, kodwa kubalulekile ukuba uzazi ezi zinto.
| Isiphumo/impawu | Inkcazo |
|---|---|
| Ukuba ufumana ezi mpawu, xelela ugqirha wakho ngoko nangoko. | |
| Ukwaliwa kakhulu | Ukurhawuzelela kwesikhumba, ukurhawuzelela okukhulu, ukudumba kwemilebe, ulwimi, ubuso, ubunzima bokuphefumla. |
| Intlungu yesifuba okanye ukuxinana | Ukuziva ngathi isifuba sakho siyancipha xa uphefumla. |
| Ukubetha kwentliziyo | Ukuziva ngathi intliziyo yakho ibetha ngokukhawuleza okanye isantya sentliziyo yakho siyatshintsha. |
| Iimpawu zoxinzelelo lwegazi oluphantsi | Ukuziva unesizungu, unentloko ebuhlungu, uphelelwa ngamandla, uzive udiniwe ngendlela engaqhelekanga. |
| Ezinye iimpawu ezinzulu | Ukugabha, iintlungu zamalungu, ukudumba okanye ukuxobuka kolusu, kunye nokudideka. |
| Ukuba ezi mpawu ziyaqhubeka okanye ziyakukhathaza, xelela ugqirha wakho. | |
| Iimpendulo kwindawo yokujova | Ububomvu, ukurhawuzelela, iintlungu, okanye ukudumba apho kufakwe khona inaliti. |
| Iziphumo ebezingalindelekanga eziqhelekileyo | Intloko ebuhlungu, isicaphucaphu, isisu esibuhlungu, urhudo, ukukhohlela, umphimbo obuhlungu, ukulahleka kweenwele, ukudinwa. |
Ngaba kukho iingxaki ngamanye amayeza?
Ewe, amanye amayeza anokusebenzisana nalo mgomo. Umzekelo, izinto ezifana nogonyo lwe-medroxyprogesterone acetate, olusetyenziselwa ukuthintela ukukhulelwa okanye unyango lweehomoni.
Olu luhlu aluphelelanga. Ngoko ke, xelela ugqirha wakho ngawo onke amayeza owasebenzisayo (kuquka iivithamini, amayeza esintu, kunye nezongezo). Kwakhona, xelela ugqirha wakho ukuba uyatshaya okanye usela utywala.
Indlela yokugcina amayeza ngokufanelekileyo?
Oku kubaluleke kakhulu. Ukuze amayeza agcinwe kakuhle, kufuneka agcinwe kakuhle.
- Faka efrijini: Gcina amayeza efrijini kubushushu obuphakathi kwe-2 kunye ne-8 degrees Celsius. Ungaze uwagcine efrijini.
- Ubushushu begumbi: Ukuba kuyimfuneko, ungagcina eli yeza kubushushu begumbi (20-25 degrees Celsius) ukuya kuthi ga kwiintsuku ezingama-30.
- Okubaluleke kakhulu: Kubaluleke kakhulu ukuba ungaphindi ubeke amayeza efrijini emva kokuba ekhutshiwe efrijini. Ukuba agcinwe kubushushu begumbi, kufuneka asetyenziswe zingadlulanga iintsuku ezingama-30. Emva kweentsuku ezingama-30, lahla naliphi na iyeza eliseleyo ngokukhuselekileyo.
- Musa ukusebenzisa amayeza aphelelwe lixesha.
Umyalezo Wokuya Ekhaya
- Isitofu sokugonya sePegvaliase sisebenza ngokunciphisa amanqanaba e-phenylalanine egazini labantu abane-PKU. Asisinyangi ngokupheleleyo esi sifo.
- Eyona ngozi iphambili yale mithi kukusabela okukhulu kwe-allergy (i-anaphylaxis). Soloko ugcina inaliti ye-epinephrine emiselweyo ikufutshane.
- Landela ukutya okukhethekileyo okuchazwe ngugqirha wakho ngelixa usela eli yeza.
- Yazisa ugqirha wakho ngazo zonke ezinye iindlela zonyango, iivithamini, kunye namayeza esintu owasebenzisayo.
- Gcina iyeza ngokufanelekileyo efrijini. Musa ukulibuyisela efrijini xa sele likhutshiwe.
- Ukuba unemibuzo okanye izinto ezikuxhalabisayo, ungoyiki kwaye thetha nogqirha wakho rhoqo.
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