Ingaba izandla neenyawo zakho ziziva zingasasebenzi okanye zitshisa? Oku kusenokuba yiSmall Fiber Neuropathy!

Ngaba wakha waziva urhawuzelelwa ezandleni nasezinyaweni zakho, okanye ukuziva uvutha njengeembovane ezirhubuluzayo ezandleni nasezinyaweni zakho? Musa ukuzithatha nje ezi mpawu njengento eyenzeka nje, akunjalo? Kuba ngamanye amaxesha kunokubakho imeko emva kwezi mpawu efuna ingqalelo ethile. Namhlanje, siza kuthetha ngemeko ebizwa ngokuba yi- Small Fiber Neuropathy (SFN) , eyenzeka xa imicu emincinci yemithambo-luvo emzimbeni wethu yonakele.

Ngoko ke, yintoni i-Small Fiber Neuropathy?

Ngamafutshane, le yimeko yemithambo-luvo ekwicandelo le- peripheral neuropathy . Le meko yenzeka xa imisonto yemithambo-luvo emincinci ethambileyo eluswini lwethu yonakele ngesizathu esithile. Le misonto yemithambo-luvo emincinci yiyo ethumela imiqondiso engqondweni malunga nentlungu kunye nobushushu bomzimba wethu. Ngoko ke xa le misonto yonakele, njengoko bekutshiwo ngaphambili, ukungaziva mnandi kunye nentlungu yokutsha zinokwenzeka ezandleni nasezinyaweni.

Nangona kunjalo, oku akuchaphazeli izandla neenyawo kuphela. Kungachaphazela nezinye iintambo ezincinci zemithambo-luvo ezilawula imisebenzi ebalulekileyo emzimbeni wethu, njengoxinzelelo lwegazi kunye nesantya sentliziyo .

Ezi mpawu ze-SFN ngamanye amaxesha zinokuba nzima kakhulu, kwaye zinokuba nefuthe elikhulu kumgangatho wobomi bakho. Nangona le ingeyona imeko inzima, esongela ubomi, ngamanye amaxesha inokuba luphawu lwenye imeko enzulu. Yiyo loo nto oogqirha bezama ukufumana unobangela wale meko, bayinyange, kwaye banike amayeza okulawula ezi mpawu zibuhlungu.

Ixhaphake kangakanani le meko?

Enyanisweni, le asiyonto ixhaphakileyo. Ngokutsho kolunye uphando, malunga nabantu abangama-53 kubantu abayi-100,000 kwihlabathi liphela bane-small fiber neuropathy. Nangona kunjalo, abaphandi bakholelwa ukuba eli nani linokuba phezulu kakhulu. Bakholelwa ukuba ayinguye wonke umntu onesifo ochongiweyo ngokufanelekileyo. Ngoko ke, mhlawumbi abantu abaninzi banale ngxaki kunokuba sicinga.

Zithini iimpawu ze-small fiber neuropathy (SFN)?

Iimpawu zale meko zingahluka kumntu nomntu. Nangona kunjalo, iimpawu zokuqala eziqhelekileyo ziintlungu "ezinjengeenaliti" okanye ukutsha ezandleni nasezinyaweni. Ezi mpawu ngamanye amaxesha ziyafika ziphinde ziphele, ngamanye amaxesha zihlala zihleli, kwaye zihlala zisiba mandundu ngokuhamba kwexesha.

Ezinye iimpawu ezinokubonwa ziquka:

• Ukuziva unesizungu , okanye ngathi uza kufa isiqaqa.
• Ukuziva ngathi intliziyo yakho ibetha ngokukhawuleza (ukubetha kwentliziyo) .
• Ukuba ndindisholo .
• Ukungakwazi ukuziva iintlungu, ubushushu, okanye ukubanda kwindawo encinci yomzimba.
• Ukuqaqamba kwesisu , ukungagayi kakuhle kokutya.
• Ukubila ngaphezu kwesiqhelo.

Khawuthelekelele indlela ebekuya kuba nomsindo ngayo ukuba ubunokuziva ngathi izandla neenyawo zakho zihlatywa ngeentonga, okanye zitsha, nokuba umi apho nje.

Kutheni sifumana i-small fiber neuropathy (SFN)? Zithini izizathu?

Okumangalisayo kukuba, malunga nesiqingatha seemeko ze-small fiber neuropathy zenzeka ngaphandle kwesizathu esicacileyo . Oogqirha bakubiza oku ngokuthi " yi-idiopathic small fiber neuropathy." Oko kuthetha ukuba unobangela ochanekileyo awufumaneki.

Nangona kunjalo, uphando lufumanise ukuba izifo ezahlukeneyo, ezinye iimeko zofuzo, kunye nokuvezwa kwiityhefu ezithile nazo zinokubangela oku.

Le meko inokubangelwa nazizifo ezithile.

Isifo seswekile i-Mellitus sesona sifo siphambili nesixhaphakileyo esichaphazela oku. Ngaphandle koko, ezi zifo zilandelayo zinokubangela i-SFN:

• Ingxaki yokusebenzisa utywala .
• Izifo ezibangelwa kukungasebenzi kakuhle kwenkqubo yomzimba yokuzikhusela, umzekelo , isifo seCeliac , iSarcoidosis , okanye iSjögren's syndrome .
• Ukuphazamiseka kwemetabolism yeswekile (Ukunganyamezelani kweswekile) .
• Ezinye izifo ezisulelayo, umzekelo iHepatitis C okanye iHIV (iHuman Immunodeficiency Virus) .
• Isifo seMetabolic .
• Isifo se-thyroid .
• I-Sepsis sisifo esibi kakhulu.
• Ukunqongophala kweVithamin B.

Isenokuba ibangelwa ziimeko ezithile zofuzo.

Utshintsho lwemfuza kwiijini ezinceda iiseli zethu ukuvelisa nokuthumela imiqondiso yombane kwinkqubo yemithambo-luvo lunokubangela i-SFN. Ezinye izifo ezizuzwa njengelifa ziquka:

• Isifo sika-Ehlers-Danlos
• Isifo sikaFabry
• I-amyloidosis yosapho
• Isifo sePompe
• I-Porphyria
• Isifo sikaWilson

Amanye amayeza kunye neetyhefu...

Umngcipheko wokuba ne-small fiber neuropathy unokwanda xa kusetyenziswa amayeza athile. Imizekelo:

• Amanye amayeza okubulala iintsholongwane , umzekelo , iMetronidazole , iNitrofurantoinkunye neLinezolid .
• Amayeza e-chemotherapy , anjengeBortezomib , iThalidomide , kunye neVincristine (Oncovin) .
• Izithinteli ze-tumor necrosis factor , umzekelo , i-etanercept .

Zeziphi izinto ezenza iimpawu zibe zimbi ngakumbi? (Izinto ezibangela oku)

Ngokwesiqhelo, izinto ezinokubangela ezi mpawu kukubetha komoya obandayo eluswini , okanye ilaphu elikhuhla ulusu . Khawuthelekelele, ukuba ubulele ebusuku kwaye amalaphu ebhedi ekhuhla emilenzeni yakho, ubuya kuziva ungenamxhelo kwaye unentlungu... Nokuba yinto encinci kangaka inokubangela intlungu enkulu kwaba bantu.

Zithini iingxaki zale meko? Ngaba kufuneka ndixhalabe?

I-small fiber neuropathy inokunciphisa amandla akho okuva iintlungu. Umzekelo, ukuba uchukumisa into eshushu ngengozi, usenokuba sengozini yokutsha ungaqondanga. Inokukwenza ube nesiyezi kwaye ichaphazele indlela ohamba ngayo . Ngoko ke, usenokuba sengozini yokuwa, akunjalo? Ngoko ke kufuneka uzilumkele ezi zinto.

Ugqirha uyixilonga njani le nto? (Uxilongo)

Ugqirha uza kuqala enze uvavanyo lomzimba aze akubuze ngembali yakho yezonyango . Akukho vavanyo lunye olunokuchonga ngokuchanekileyo i-small fiber neuropathy. Nangona kunjalo, kukho iimvavanyo ezininzi ezenziwa rhoqo:

• I-Electromyography (EMG) : Oku kuvavanya umsebenzi wombane wemithambo-luvo kunye nemisipha.
• Uvavanyo lwemfuza : Jonga izizathu zemfuza.
• Uvavanyo lokufota : Izinto ezifana ne -CT scans okanye i-MRI scans .
• Izifundo zokuqhuba imithambo-luvo : Jonga isantya ezihamba ngaso iimpawu kwimithambo-luvo.
• I-biopsy yolusu - uvavanyo loxinano lwe-nerve fiber : Kuthathwa isampulu encinci yolusu ize ihlolwe phantsi kwemakroskopu ukuze kubonwe ukuba zingaphi ii-nerve fibers ezikhoyo.
• Uvavanyo lwe-Quantitative Sudomotor Axon Reflex (QSART) : Olu vavanyo luvavanya umsebenzi wemithambo-luvo elawula ukubila.

Ukongeza, oogqirha banokuvavanya nezinye iimeko, ezifana nesifo seswekile, ezinokubangela i-small fiber neuropathy.

Zithini iindlela zokunyanga oku? Ngaba kunokunyangwa?

Xa benyanga le meko, oogqirha bagxila kakhulu ekunciphiseni iintlungu ezibangelwa yiyo.Amayeza kunye nolunye unyango luyafumaneka. I-small fiber neuropathy idla ngokuba yingxaki yesinye isifo, ngoko ke kubalulekile ukunyanga imeko esisiseko .

Amayeza entlungu

Kukho iintlobo ezahlukeneyo zamayeza anokusetyenziswa ukulawula iintlungu:

• Amanye amayeza okuthintela ukuxhuzula , anje ngeGabapentin , iPregabalin , kunye neTopiramate , anokunceda ukunciphisa iintlungu zemithambo-luvo.
• Ezinye izinto ezibangela uxinezeleko , ezifana ne -amitriptyline , i-nortriptyline , kunye ne -desipramine , nazo zilungile kwiintlungu zemithambo-luvo.
• Ii-anesthetics zangaphandle : Umzekelo , iikhrimu ze-lidocaine okanye iikhrimu ze -capsaicin . Ezi zinika isiqabu xa zisetyenziswa kwindawo ebuhlungu.

Khumbula, kubaluleke kakhulu ukusebenzisa amayeza kanye njengoko ugqirha ewayalele.

Yintoni onokuyilindela xa uphila nale meko?

I-small fiber neuropathy ikhula kancinci kakhulu . Ngamanye amaxesha iimpawu zinokuba mandundu zize zihlale zinjalo iminyaka. Olunye uphando lufumanise ukuba phakathi kwe-13% kunye ne-36% yabantu abane-small fiber neuropathy ekugqibeleni baba ne -large fiber neuropathy, imeko echaphazela i-large nerve fibers . Oku kunokubangela ukulahleka kwemvakalelo, njengokuziva uchukunyiswa kunye nokungcangcazela, ngokungathi unxibe iiglavu.

Uqikelelo lwakho emva konyango luxhomekeke kwisizathu se-SFN yakho. Umzekelo, ukuba unesifo seswekile, kuya kufuneka uthathe amayeza eswekile ubomi bakho bonke. Ngoko ke, thetha nogqirha wakho malunga nemeko yakho kunye nendlela unyango olunokukunceda ngayo ukulawula iintlungu zakho kunye nezinye iimpawu.

Ingaba oku kunefuthe kubomi bomntu?

Hayi, i-small fiber neuropathy ngokwayo ayizukunciphisa ixesha lokuphila kwakho. Nangona kunjalo, ukuba kukho imeko ebangela oku, njengesifo seswekile okanye i-HIV, inokuchaphazela ixesha ophila ngalo.

Ndingazinyamekela njani?

Enye yezona zinto zibalulekileyo onokuzenza ukuze uzinyamekele kukulawula iintlungu ezibangelwa yi-small fiber neuropathy. Ugqirha wakho usenokukunika amayeza eentlungu, kodwa ungafuna nokuqwalasela iinkqubo zokulawula iintlungu . Ezi zinokubandakanya iingcebiso kunye nonyango, umthambo, kunye nokuphulula okanye unyango lomzimba.

Ndifanele ndiphinde ndimbone ugqirha kwakhona?

Iimpawu ze-fiber neuropathy ezincinci zinokutshintsha kwaye zibe mandundu ngokuhamba kwexesha. Ukuba une-SFN, xelela ugqirha wakho ukuba ubona iimpawu eziqale kwenye inxalenye yomzimba wakho zize zivele kwenye inxalenye. Umzekelo:

• Akwaba nje intlungu "efana nenduku" emilenzeni yam ngoku ibinokuvakala nasezandleni zam.
• Ukuba ukuhlaselwa ziintlungu kuyanda rhoqo, okanye ukuba iintlungu ziye zaba nzima ngakumbi.
• Ukuba kuvele iimpawu ezintsha, ezinje ngokuba nesiyezi okanye ubunzima bokuhamba.

Kulungile ukubona ugqirha ngokukhawuleza ngamaxesha anje.

Yeyiphi imibuzo ebalulekileyo ekufuneka uyibuze ugqirha?

Xa usiya kugqirha, khumbula ukubuza le mibuzo:

• Yintoni unobangela weempawu zam?
• Ngaba iimpawu zam ziya kuba mandundu?
• Zeziphi iindlela zonyango ezicetyiswayo kum?
• Ngaba ndiza kuba nale meko ngonaphakade?

Ukwazi iimpendulo zale mibuzo kuya kukunika ingcaciso ecacileyo.

Ngoko ke, yintoni esifanele siyikhumbule koku? (Umyalezo Wokubuyela Ekhaya)

I-Small fiber neuropathy (SFN) yimeko engapheliyo ebangela ukungaziva, ukutsha, kunye nentlungu emalungeni enokuchaphazela umgangatho wobomi bakho. Ihlala ibonakala njengophawu lwenye imeko efihlakeleyo, enokuba yingozi.

Oogqirha banyanga i-SFN ngokulawula imeko engaphantsi. Kukwakho nonyango kunye neenkqubo zokunceda ukulawula iintlungu kunye nezinye iimpawu ezihambisana nayo. Ukuba uziva ungenazimvakalelo okanye utshile ezandleni nasezinyaweni zakho, musa ukuyityeshela loo nto kwaye ubone ugqirha. Ezi mpawu zinokuba ziimpawu zokuqala zesifo esinzulu. Ungakhathazeki, ukuba uxilongiwe kwaye unyangwe kwangethuba, unokulawula imeko.

I- Small Fiber Neuropathy, i-SFN, iintlungu zemithambo-luvo, ukurhawuzelela, ukuba ndindisholo, isifo seswekile, i-neuropathy