Ngaba ngamanye amaxesha uziva ungenazimvakalelo, iintlungu, okanye ukurhawuzelela ezandleni nasezinyaweni zakho? Nangona abanye abantu becinga ukuba ezi zizinto eziqhelekileyo, ngamanye amaxesha kunokubakho imeko yemfuza enzulu nengaqhelekanga emva kwazo. Namhlanje sithetha ngenaliti ebizwa ngokuba yiVutrisiran, esetyenziselwa ukunyanga imeko ethile. Iqheleke kakhulu ngegama lophawu i-AMVUTTRA.
Loluphi uhlobo lonyango olu Vutrisiran?
Ngamafutshane, iVutrisiran liyeza elisetyenziselwa ukunyanga isifo esingaqhelekanga semfuza esibizwa ngokuba yi-hereditary transthyretin-mediated amyloidosis (hATTR) .
Kulungile, ngoku mhlawumbi uyazibuza ukuba esi sifo sinantoni na ngegama elide kangaka. Masichaze ngokulula.
Le yimeko esinokuyifumana njengelifa kwiijini zethu. Okwenzekayo koku kukuba iproteni ebizwa ngokuba yi-'transthyretin', eveliswa esibindini sethu, itshintsha imo yayo ngendlela engaqhelekanga, ize ihlangane ize yenze iidiphozithi ezibizwa ngokuba yi-'amyloid' kwiindawo ezahlukeneyo zomzimba, ingakumbi kwinkqubo yemithambo-luvo. Ezi diphozithi zeproteni ezingaqhelekanga zibangela umonakalo kwimithambo-luvo.
Kulapho ke iimpawu endizikhankanyileyo ngaphambili, ezifana neentlungu ezinxulumene nemithambo-luvo, ukungaziva kakuhle kwamalungu omzimba, ukujikeleza, ukulahlekelwa zimvakalelo kwamalungu omzimba, kunye nobuthathaka, zibonakala khona.
Eli yeza, elibizwa ngokuba yiVutrisiran, lisebenza ngokuthintela ukuveliswa kweproteni engaqhelekanga. Umsebenzi ophambili wale yeza kukunciphisa umonakalo kwimithambo-luvo nokulawula iimpawu.
Izinto ekufuneka uzixelele ugqirha wakho ngaphambi kokuba usebenzise iyeza
Ngaphambi kokuba ugqirha wakho agqibe ekubeni akunike eli yeza, uza kukubuza imibuzo embalwa. Ngelo xesha, ngokuqinisekileyo kufuneka umxelele ezi zinto ngaphandle kokuzifihla.
- Ii-Allergies: Sixelele ukuba unayo nayiphi na i-allergies kwi-Vutrisiran, nayiphi na enye iyeza, ukutya, iidayi, okanye izithinteli.
- Ukukhulelwa: Ukuba ukhulelwe, uzama ukukhulelwa, okanye ukrokrela ukuba ukhulelwe, qiniseka ukuba wazise ugqirha wakho.
- Ukuba ungumama oncancisayo: Ukuba ungumama oncancisayo, thetha nogqirha wakho ngaloo nto.
Ndingayifumana njani inaliti?
Eli asiloyeza onokulithatha ekhaya. Liyeza elifakwa ngaphantsi kwesikhumba . Ngokwesiqhelo kufuneka ulifumane rhoqo kwiinyanga ezintathu.
Oku kunikwa esibhedlele okanye ekliniki ngugqirha okanye abasebenzi bomongikazi abaqeqeshwe kuko, ngoko ke akukho nto unokukhathazeka ngayo.
Kuthekani ukuba ndiphoswa lidosi leyeza?
Kubaluleke kakhulu ukufumana inaliti yakho ngexesha lonyango. Ukuba ngesizathu esithile awukwazi ukuya kumhla ocwangcisiweyo, fowunela ugqirha wakho okanye ikliniki ngoko nangoko kwaye uhlengahlengise ixesha. Musa ukulibazisa amayeza akho.
Kuthekani ukuba iyeza lisetyenziswe kakhulu?
Oku kunikwa esibhedlele ngoko ke amathuba okuba oku kwenzeke aphantsi kakhulu . Nangona kunjalo, ukuba ukrokrela ukuba usele amayeza ngokugqithisileyo, qhagamshelana ngokukhawuleza neZiko loLwazi lweePoison kwiSibhedlele sikaZwelonke saseColombo okanye uye kwiSebe leNgxamiseko (ETU) lesibhedlele esikufutshane.
Izinto ekufuneka uzikhumbule xa usebenzisa eli yeza
Ugqirha wakho uza kujonga imeko yakho rhoqo ngelixa usebenzisa la mayeza, ngoko ke kubaluleke kakhulu ukuya kwiindibano zakho ngexesha.
- Amanqanaba eVithamini A: Amanqanaba akho eVithamini A anokwehla ngelixa usebenzisa eli yeza. Ke ngoko, ugqirha wakho uya kukunika isongezelelo seVithamini A omele usithathe imihla ngemihla. Kubalulekile ukusisebenzisa kanye njengoko ugqirha wakho ecebisa. Kwakhona, thetha nogqirha wakho malunga nokutya okuqulethe iVithamini A (umz., iminqathe, iibhatata ezimnandi, ispinatshi, amaqanda).
- Utshintsho embonweni: Ukuba ubona naluphi na utshintsho embonweni wakho, njengokubona okufipheleyo okanye ukubona okunciphileyo ebusuku, musa ukulibazisa. Xela ugqirha wakho ngoko nangoko .
- Amanye amayeza: Xelela ugqirha wakho ngawo onke amanye amayeza owasebenzisayo (kuquka iivithamini, amayeza esintu, kunye nezongezo). Eli yeza alinakwenzeka ukuba lisebenzisane namanye amayeza, kodwa kungcono ukuxelela ugqirha wakho.
Zithini iziphumo ebezingalindelekanga ezinokubakho?
Njengayo nayiphi na iyeza, abanye abantu banokufumana iziphumo ebezingalindelekanga. Ayingabo bonke abantu abaya kuzifumana. Nangona kunjalo, kubalulekile ukuzazi ezi zinto.
| Iziphumo ebezingalindelekanga zeVutrisiran | |
|---|---|
| Iziphumo ebezingalindelekanga ezinzulu ekufuneka uzixele kugqirha wakho ngoko nangoko | |
| Iimpendulo ze-Allergic | Ukurhawuzelela kwesikhumba, ukurhawuzelela, ukudumba kobuso, imilebe, ulwimi okanye umqala. |
| Utshintsho lombono | Naluphi na utshintsho embonweni, olufana nombono ofipheleyo okanye umbono onciphileyo. |
| Ubunzima bokuphefumla | Ukuphefumla nzima, ubunzima bokuphefumla. |
| Ukwehla kwesantya sentliziyo | Ukudinwa, ukuziva unesizungu, ukuphelelwa ngamandla, ukudinwa kakhulu. |
| Iziphumo ebezingalindelekanga ezingaqhelekanga, kodwa kufuneka zixelwe kugqirha wakho ukuba ziyaqhubeka | |
| Intlungu yamalungu | Intlungu yamalungu. |
| Ukungonwabi kwindawo yokufaka inaliti | Ububomvu, iintlungu, okanye ukudumba apho kufakwe khona inaliti. |
Olu luhlu alubandakanyi zonke iziphumo ebezingalindelekanga. Ukuba ubona enye into, thetha nogqirha wakho ngayo.
Umyalezo Wokuya Ekhaya
- I-Vutrisiran yinaliti ekhethekileyo enyanga imeko engaqhelekanga, yemfuza ye-neurological ebizwa ngokuba yi-hATTR .
- Eli yeza linikwa ngabasebenzi bezonyango abaqeqeshiweyo esibhedlele okanye eklinikhi. Awunakuligcina okanye ukulisebenzisa ekhaya.
- Kubaluleke kakhulu ukuxelela ugqirha wakho ngazo zonke izinto ezikubangela ukuba ungabi naso isifo sengqondo, nokuba ukhulelwe okanye uzama ukukhulelwa ngaphambi kokuba uqale unyango.
- Ngelixa usela eli yeza, thatha izongezo zevithamini A njengoko ugqirha wakho ekuyalele kwaye uxele naluphi na utshintsho ekuboneni kwakho.Ukuba oku kuyenzeka, kubalulekile ukwazisa ngoko nangoko.
- Ukuba ufumana naziphi na iziphumo ebezingalindelekanga ezinje ngokudumba kobuso okanye ubunzima bokuphefumla, funa ingcebiso kagqirha ngokukhawuleza.
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