Ngaba umntwana wakho uhlala ekhalaza ngokuba umlenze, ingalo, okanye umqolo wakhe uyabuhlungu? Ngamanye amaxesha sicinga ukuba yinto nje elula yokubaleka okanye "iintlungu zokukhula." Kodwa ukuba le ntlungu ihlala iintsuku okanye iiveki, iphele emva kweentsuku ezimbalwa, ize ibuye, sifanele sikhathazeke kancinci. Namhlanje siza kuthetha ngemeko engaqhelekanga kodwa ebalulekileyo enokubangela iintlungu zamathambo eziphindaphindayo.
Kalula nje, yintoni i-CRMO?
I-Chronic Recurrent Multifocal Osteomyelitis, eyaziwa ngokuba yi-CRMO, sisifo esihlasela amasosha omzimba . Ngoku usenokuba uzibuza ukuba yintoni na. Cinga ngenkqubo yomzimba wethu yokuzikhusela njengomkhosi okhusela ilizwe. Umsebenzi walo mkhosi kukusikhusela kwizifo ngokulwa neentshaba zasemzini, ezifana neentsholongwane kunye neebhaktheriya.
Kodwa kwisifo esibangelwa kukuzikhusela komzimba, inkqubo yethu yokuzikhusela yomzimba yenza impazamo ize ihlasele amalungu asempilweni omzimba wethu endaweni yabahlaseli bamanye amazwe. Kwi-CRMO, olu "hlaselo oluphosakeleyo" lujoliswe emathanjeni ethu. Inkqubo yokuzikhusela yomzimba, ngaphandle kwesizathu esicacileyo, ihlasela ithambo elinye okanye ngaphezulu emzimbeni, nto leyo ebangela ukudumba, okukudumba nentlungu.
Into ebalulekileyo kukuba le meko ayibangelwa yintsholongwane. Yiyo loo nto ikwabizwa ngokuba yiChronic Nonbacterial Osteomyelitis (CNO) . I-CRMO luhlobo lwe-CNO olubi kancinci.
Ngaba kukho isizathu esithile sokwenziwa kwe-CRMO?
Enyanisweni, oogqirha abakayazi kakuhle into ebangela i-CRMO. Ayibangelwa yintsholongwane okanye lusulelo lwebhaktiriya. Yinkqubo yomzimba yokuzikhusela esebenza ngaphandle kwesizathu esicacileyo.
Nangona kunjalo, kukho ukurhaneleka okuthile kokuba kunokubakho unxibelelwano lwemfuza noku. Ngamanye amaxesha, amalungu aliqela osapho olunye axelwe ukuba anale meko. Nangona kunjalo, kufuneka uphando olongezelelekileyo ngale nto.
Njengabazali, enye yezona zinto zixhalabisayo kukuba ezi mpawu zinxulumene nomhlaza na. I-CRMO ayingomhlaza . Nangona kunjalo, inokuba neempawu ezifanayo nezeminye imihlaza yamathambo, ngoko ke kubalulekile ukubona ugqirha ukuze ufumane ukuxilongwa ngokuchanekileyo.
Ngubani onokuthi afumane esi sifo?
I-CRMO ixhaphake kakhulu ebantwaneni nakubantu abadala abancinci.Esi sifo sidla ngokufunyaniswa siphakathi kweminyaka eli-9 ukuya kweli-10 ubudala. Esi sifo sixhaphake kancinci kumantombazana kunamakhwenkwe.
Esi asisosifo sixhaphakileyo, kodwa njengoko oogqirha kunye noluntu ngokubanzi besiya besazi ngakumbi ngesi sifo, inani labantu abafunyaniswa benaso liye landa kancinci.
Ziziphi iimpawu eziphambili ze-CRMO?
I-CRMO inokuchaphazela naliphi na ithambo emzimbeni. Kodwa idla ngokuchaphazela amathambo amade emilenzeni yabantwana, ezinqeni, nasemgogodleni . Iimpawu zinokuvela ngequbuliso, ziphele emva kweentsuku ezimbalwa, zize zibuye. Oku kubizwa ngokuba yi-flare-up kunye ne-remission.
Makhe sijonge iimpawu eziphambili ezinje.
| Uphawu | Ingcaciso Elula |
|---|---|
| Intlungu | Olu lolona phawu luqhelekileyo noluphambili. Intlungu ibakho kwithambo elichaphazelekayo okanye kwindawo ejikelezileyo. |
| Ukudumba kwamalungu | Amalungu akufutshane nethambo elichaphazelekileyo ayadumba kwaye abe buhlungu, njengesifo samathambo. |
| Ukukhubazeka kwamathambo | Esi sifo sinokuchaphazela iipleyiti zokukhula komntwana. Iipleyiti zokukhula ziindawo apho amathambo akhula khona njengoko umntwana ekhula. Ukuba ezi zonakele, amathambo anokukhula ngendlela engaqhelekanga (umzekelo, omnye umlenze unokuba mfutshane kunomnye). |
| Ukukhula okucothayo | Ngamanye amaxesha, nangona kungekho ntlungu, ukukhula komntwana kusenokungabi ngokukhawuleza njengoko bekulindelwe. |
| Ukudinwa rhoqo | Ngexesha lokwanda kweempawu, umntwana unokuziva ediniwe kwaye ediniwe rhoqo. |
| Umngcipheko owandileyo wokuqhekeka kwamathambo | Amathambo abuthathaka ngenxa yokuvuvukala anokuba sengozini yokuphuka nangona kungenzakaliswa kancinci, ingakumbi ukuba umqolo uchaphazelekile. |
Indlela yokuxilonga ngokuchanekileyo isifo se-CRMO?
Ngenxa yokuba esi sisifo esingaqhelekanga, ukuxilonga ngamanye amaxesha kunokuba nzima. Ugqirha uza kumxilonga kakuhle umntwana wakho aze akubuze ngeempawu zakho. Kudla ngokuthatha iinyanga ezininzi okanye ngaphezulu konyaka ukufumanisa isifo.
Kwenziwa iimvavanyo ezininzi ukuqinisekisa ukuxilongwa.
- Uvavanyo lwemifanekiso: Uvavanyo olufana ne-X-ray kunye ne-MRI scans lunokubonisa ngokucacileyo ukudumba kunye nolunye utshintsho emathanjeni.
- Uvavanyo lwegazi: Olu vavanyo lunceda ukujonga inqanaba lokuvuvukala emzimbeni (njenge-ESR, i-CRP) kwaye luthintele ezinye izifo okanye izifo.
- Uvavanyo lwemfuza: Kwezinye iimeko, olu vavanyo lunokufuneka ukuze kuthintelwe ezinye izifo zemfuza.
Ziziphi iindlela zonyango ze-CRMO?
Okwangoku, akukho nyango lwe -CRMO. Kodwa ungakhathazeki. Unyango olufumanekayo lunokulawula iimpawu, lunciphise ukudumba, kwaye luncede umntwana wakho aphile ubomi obuqhelekileyo ngokupheleleyo .
Ugqirha angacebisa olu nyango lulandelayo:
- Amayeza angengowe-steroidal alwa nokuvuvukala (NSAIDs): La ngamayeza okuthomalalisa iintlungu kunye namayeza okuthomalalisa ukuvuvukala esiwaziyo sonke, njenge-Ibuprofen. Olu lolona nyango lokuqala oluzanywayo. Malunga nama-50% abantwana bayasabela kakuhle kwezi. Nangona kunjalo, ukuba uthatha la mayeza ixesha elide, ugqirha wakho uya kujonga rhoqo ukusebenza kwezintso kunye nesibindi sakho.
- Amayeza okulwa nesifo samathambo aguqula izifo (ii-DMARD): Ukuba ii-NSAID zodwa azilawuli esi sifo, olu didi lwamayeza liqela elilandelayo lamayeza asetyenziswayo. La mayeza asebenza ngokucinezela inkqubo yomzimba yokuzikhusela ukuya kuthi ga kwinqanaba elithile, enceda ekumiseni uhlaselo olungalunganga olubangela esi sifo. Ngaphambi kokuba aqalise la mayeza, ugqirha wakho uya kukuchazela zonke izinto ezilungileyo nezingalunganga.
- Utshintsho kwindlela yokuphila:Ngamaxesha entlungu, umntwana wakho unokufuna ukunciphisa imisebenzi yakhe yokubaleka nokutsiba. Ingcali yezonyango okanye ingcali yezonyango ingakunceda ufunde indlela yokwenza imisebenzi yemihla ngemihla xa unentlungu, kuquka nokuzilolonga.
Ngaba zikhona ezinye izifo ezinokwenzeka kunye ne-CRMO?
Ewe, abantwana abane-CRMO basengozini ethile yokuhlaselwa zezinye izifo ezininzi zokuzikhusela komzimba.
- Isifo samathumbu esivuthayo (IBD): Esi sisifo esibangelwa yinkqubo yomzimba yokuzikhusela ehlasela inkqubo yokugaya ukutya.
- I-Psoriasis: Esi sisifo esichaphazela ulusu.
- Intlungu yemisipha eyongeziweyo: Le yimeko enzima kancinci. Nokuba i-CRMO ipholile, kusenokubakho iintlungu zemisipha eziqhubekayo ngesizathu esingachazwanga. Le ntlungu ayipheli ngeentlungu zentlungu eziqhelekileyo.
Ithini ingxelo yokubikezela kwesi sifo?
Iindaba ezimnandi zezokuba malunga nama-40% ezigulana ziyafumana ukuphumla ngokupheleleyo kwiminyaka eyi-1-5 yokuqala yonyango. Oku kuthetha ukuba iintlungu kunye nezinye iimpawu ziphelile ngokupheleleyo, kungekho ukudumba okanye ukungasebenzi kakuhle kwenkqubo yomzimba yokuzikhusela. Umntwana unokuphila ubomi obuqhelekileyo, obusebenzayo.
Nangona kunjalo, nokuba isifo siphelile ngokupheleleyo, ukubekwa esweni rhoqo ngugqirha kubaluleke kakhulu. Kuya kufuneka uqhubeke uye ekliniki phantsi kweliso likagqirha wezifo zamathambo. Kusenokufuneka wenze iimvavanyo ezifana nee-MRI scans ukuze ubone ukuba isifo siphinde sabuya na. Oku kungenxa yokuba malunga nama-50% abantu baphinda babuye kwiminyaka emibini yokuqala emva kokuyeka unyango. Ukuba oko kuyenzeka, kuya kufuneka uqale unyango kwakhona.
Umyalezo Wokuya Ekhaya
- I-CRMO yimeko apho inkqubo yomzimba yokuzikhusela ihlasela amathambo omzimba ngempazamo. Ayisiyo intsholongwane okanye umhlaza.
- Ukuba umntwana unentlungu ephindaphindayo emathanjeni akhe, ingakumbi emilenzeni, ezinqeni, okanye emqolo, musa ukuyityeshela loo nto "njengesiqhelo."
- Nangona kungekho unyango olupheleleyo lwesi sifo, kukho unyango olusebenzayo kakhulu olunokulawula iimpawu kwaye luvumele umntwana ukuba aphile ubomi obuqhelekileyo nobusebenzayo.
- I-CRMO ingathatha ixesha ukuyixilonga, ngoko ke kubalulekile ukuba nomonde nokusebenzisana ngokusondeleyo nogqirha wakho.
- Ukuba unamathandabuzo malunga nentlungu yomntwana wakho okanye ezinye iimpawu zakhe, funa ingcebiso kagqirha ngokukhawuleza.
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