Akukho ntlungu inkulu kumama okanye kutata njengokubona umntwana wakhe egula. Sikhathazeka kangakanani xa sinesifo somkhuhlane? Xa oko kusenzeka, intlungu umzali ayivayo xa efumanisa ukuba umntwana wakhe unesifo esinzulu njengomhlaza ayinakuchazwa. Namhlanje siza kuthetha ngohlobo lomhlaza wobuchopho olungaqhelekanga kodwa oluyingozi kakhulu oluvela ebantwaneni. Oku kubizwa ngokuba yiDIPG, okanye iDiffuse Intrinsic Pontine Glioma. Nangona igama lisenokubonakala liyinkimbinkimbi kancinci, masithethe ngalo ngokulula.
Kwenzeka ntoni ngokwenene engqondweni kwi-DIPG?
Kulungile, masiqale sijonge ukuba yintoni le. Ngamafutshane, i-DIPG sisimila esinomhlaza esikhula kwinxalenye yesiqu sobuchopho esidibana nengqondo yethu. Ngokukodwa, esi simila sikhula kwindawo yesiqu sobuchopho ebizwa ngokuba yi-"pons."
Khawucinge nje, ukuba umzimba wethu ubusisakhiwo esikhulu, le ndawo ibizwa ngokuba yi "pons" ibiya kuba njengegumbi lokulawula umbane eliphambili kweso sakhiwo. Kulapha apho imisebenzi ebalulekileyo nebalulekileyo yobomi bethu ilawulwa khona.
- Ukuphefumla
- Isantya sentliziyo (ukubetha kwentliziyo)
- Ifuthe legazi
- Ukuginya ukutya
- Ukubona kwamehlo kunye nokuhamba kwamehlo
- Ibhalansi yomzimba
Xa umhlaza uvela kwindawo apho izinto ezibalulekileyo zilawulwa khona, unokucinga ngempembelelo onayo emzimbeni.
Lo mhlaza ungoweqela elibizwa ngokuba yi-glioma, oko kuthetha ukuba uqala kwiiseli ze-glial ebuchotsheni. Yiyo loo nto ngamanye amaxesha ubizwa ngokuba yi-pontine glioma.
Ngubani onokuthi afumane esi sifo?
I-DIPG sisifo esichaphazela abantwana ngaphezu kwabantu abadala. Nangona singaqhelekanga, sidla ngokuchaphazela abantwana abaphakathi kweminyaka emi-4 neli-11 ubudala. Bangama-200 ukuya kuma-400 kuphela abantwana abafunyaniswa benaso esi sifo minyaka le kwihlabathi liphela. Sichaphazela abafana namantombazana ngokulinganayo.
Zithini iimpawu ze-DIPG?
Ezi thumba zikhula ngokukhawuleza kakhulu. Ngoko ke iimpawu zomntwana zinokuba mandundu ngexesha elifutshane kakhulu. Njengoko ithumba likhula, licinezela inxalenye "yeepons" zobuchopho. Oku kuphazamisa imisebenzi yomzimba elawulwa yiloo nxalenye. Lumka ezi mpawu kumntwana wakho.
| Udidi lweempawu | Indlela yokubonisa |
|---|---|
| Ukulinganisela nokuhamba | Ukuziva ungazinzi ngequbuliso xa uhamba, ngokungathi ulahlekelwa yibhalansi yakho. |
| Utshintsho ebusweni nasemlonyeni | Ubunzima bokuhlafuna nokuginya, utshintsho kwintetho, kunye nokugoba kwelinye icala lobuso. |
| Iingxaki zamehlo | Ukungakwazi ukulawula intshukumo yamehlo, ukubona kabini, ukugoba kwamehlo. |
| Iingxaki zokuva | Ukulahlekelwa kukuva ngokukhawuleza okanye ukulahlekelwa kukuva ngokupheleleyo. |
| Ezinye iimpawu eziqhelekileyo | Isicaphucaphu nokuhlanza, ingakumbi kusasa okanye emva kokuhlanza, intloko ebuhlungu, ubuthathaka kwiingalo nasemilenzeni. |
Ezi thumba zinokukhula zibe nkulu, zichaphazele kakhulu imisebenzi ebalulekileyo efana nokuphefumla kunye nokubetha kwentliziyo, kwaye zinokubeka ubomi esichengeni.
Yintoni ebangela i-DIPG? Ngaba inokuthintelwa?
Lo ngumbuzo omkhulu oza engqondweni yakho njengomzali. Usenokuba uzibuza, "Kutheni oku kwenzeke kumntwana wam? Ingaba yayiyimpazamo yam?"
Nceda ukhumbule into enye: I-DIPG ayisosifo esibangelwa yinto oyenzileyo ngendlela engafanelekanga.
Iithumba ze-DIPG zinokuba notshintsho oluthile kwizakhi zofuzo (oogqirha bazibiza ngokuba ziinguqu). Nangona kunjalo, asisosifo esidluliselwa kubazali ukuya ebantwaneni ngeezakhi zofuzo. Kwaye asibangelwa kukuchatshazelwa yinto ekwindalo esingqongileyo, njengomsi, iikhemikhali, okanye imitha. Ngoko ke , akukho nto sinokuyenza ukuthintela esi sifo okanye ukunciphisa umngcipheko wokuba abantwana bethu basifumane.
Oogqirha bakholelwa ukuba esi sifo sinokuba sinxulumene nendlela ingqondo yomntwana ekhula ngayo. Ezi thumba zinokwenzeka ngakumbi xa ingqondo itshintsha ngokukhawuleza.
Indlela yokuxilonga ngokuchanekileyo isifo? (Ukuxilongwa)
Ukuba umntwana wakho unezi mpawu, kufuneka uqale umse kugqirha wabantwana. Ugqirha uza kumhlola umntwana wakho aze abuze ngeempawu zakhe kunye nembali yakhe yezonyango. Emva koko, banokwenza uvavanyo oluthile ukuqinisekisa ukuba unesifo.
1. Ukuskena ubuchopho (Umfanekiso)
Iiskeni zobuchopho, ingakumbi iiskeni ze-CT kunye neeskeni ze-MRI, zinokunceda ukuqinisekisa i-DIPG. Ngamanye amaxesha, uvavanyo olukhethekileyo olubizwa ngokuba yi-magnetic resonance spectroscopy (MRS) lunokwenziwa. Ukubonisa ithumba ngokucacileyo, ulwelo olukhethekileyo olubizwa ngokuba yidayi yokungafani lunokufakwa ngaphambi kwe-MRI. Oogqirha banokukrokrela i-DIPG ngokujonga indawo yethumba kwisiqu sobuchopho kunye nendlela esasazeke ngayo kwizicubu ezingqongileyo.
2. Uvavanyo lwebhayoloji
Nangona i-MRI idla ngokuxilonga esi sifo, abanye abantwana abaneempawu ezingaqhelekanga banokufuna ukwenziwa i-biopsy ukuqinisekisa ukuxilongwa nge-100%. Oku kwenziwa ngugqirha wezifo zengqondo wabantwana. Oku kuquka ukwenza umngxuma omncinci kakhulu ekhayeni, ukufaka inaliti encinci ngaphakathi kuyo iye engqondweni, kunye nokuthatha iqhekeza elincinci kakhulu lesicubu esivela kwithumba. Le ndlela ibizwa ngokuba yi-"stereotactic biopsy". Emva koko ingcali yezifo ihlola isampuli yesicubu phantsi kwe-microscope ukuqinisekisa ukuba kukho iiseli zomhlaza.
Ziziphi iindlela zonyango ze-DIPG?
Le yeyona nxalenye inzima ukuthetha ngayo. Kuba i-DIPG luhlobo lomhlaza olunzima kakhulu ukunyanga. Unyango lwangoku alunakuyinyanga ngokupheleleyo le sifo. Nangona kunjalo, kukho unyango olunokunceda ukunciphisa iimpawu zomntwana kwaye lwandise ubomi bakhe.
- Unyango lweMisebe: Olu lolona nyango luphambili lwe-DIPG. Lubandakanya ukusetyenziswa kwee-X-ray ezinamandla aphezulu ezijoliswe kwithumba. Oku kwenziwa kwiiseshoni ezininzi imihla ngemihla, ngamanye amaxesha ukuya kuthi ga kwiiseshoni ezingama-30 zizonke. Kuninzi lwabantwana, olu nyango luyanciphisa ithumba, lunciphise uxinzelelo engqondweni kwaye lunciphise iimpawu. Oku kunokwandisa ubomi bomntwana ngeenyanga ezimbalwa. Nangona kunjalo, isiphumo sesokwexeshana. Ithumba liya kuqala ukukhula kwakhona kwiinyanga ezimbalwa.
- Unyango lweKhemotherapy: Amayeza amatsha ekhemotherapy avavanywayo ngoku anikwa kunye nonyango lwemitha. Nangona kunjalo, akukho nyango lusebenzayo olufunyenweyo kolu hlobo lomhlaza. Njengendlela entsha, ngamanye amaxesha unyango oluhambisa amayeza omhlaza ngqo kwithumba nalo luyavavanywa.
- Utyando: Utyando aluqhelekanga ukuba lwenzeke kwi-DIPG. Oku kungenxa yokuba ithumba lifana nebhotolo kwisilayi sesonka. Oko kukuthi, lisasazeke laza lakhula laba ziiseli zobuchopho eziphilileyo. Ngoko ke asilothumba liqinileyo elinokususwa ngokulula. Ukuba utyando lwenziwe, umngcipheko wokonakalisa iindawo eziphilileyo nezibalulekileyo zobuchopho uphezulu kakhulu. Linokuba yingozi nakubomi bomntwana.
Imbono ye-DIPG
Inyaniso kukuba, imbono yomntwana one-DIPG ayilunganga kangako. Ndiyazi ukuba oku kubuhlungu kakhulu ukukuva. Injongo ephambili yoogqirha kukwenza umntwana akhululeke kwaye angabi nantlungu kangangoko kunokwenzeka. Unyango lwangoku lujolise ekulawuleni iimpawu endaweni yokunyanga isifo.
Ngokwezibalo, yi-10% kuphela yabantwana abasindayo emva kweminyaka emi-2 emva kokuba bexilongiwe. Ngaphantsi kwe-2% abasindayo emva kweminyaka emi-5. Ndiyaqonda indlela oziva ngayo xa usiva la manani. Kodwa kubalulekile ukuba uqaphele le meko.
Umyalezo Wokuya Ekhaya
- I-DIPG luhlobo lomhlaza wesiqu sobuchopho olungaqhelekanga kodwa oluyingozi kakhulu ebantwaneni.
- Esi sifo asibangelwanga yimpazamo yabazali okanye yimpembelelo yendalo engaphandle. Musa ukuzisola.
- Ukuba ubona utshintsho olukhawulezileyo kwindlela umntwana wakho ahamba ngayo, alungelelanise ngayo, ashukume ngayo amehlo, athethe ngayo, okanye aginye ngayo, bonana nogqirha ngoko nangoko .
- Utyando alusebenzi kwesi sifo. Unyango oluphambili lunyango lwemitha ukuze kuthomalaliswe iimpawu.
- Eli lixesha elinzima kakhulu kumntwana nakusapho. Kubaluleke kakhulu ukufuna inkxaso koogqirha, kubahlobo nakubacebisi.
💬 Comments (0)
Akukho zimvo zithunyelweyo okwangoku. Faka uluvo lwakho apha okokuqala.
Faka uluvo lwakho