Ngaba wakha wambona umntwana wakho eqhaqhazela ngequbuliso, ngokungathi ubethwe ngumbane? Iingalo nemilenze yakhe iyazigoba ngequbuliso, okanye uziphosa ngasemva. Nokuba oku kuhlala imizuzwana embalwa kuphela, ukuba kwenzeka amaxesha amaninzi ngokulandelelana, kunokuba yinto eyoyikisayo kuye nawuphi na umzali oyibonayo. Siza kuthetha ngemeko eyoyikisayo, kodwa kubaluleke kakhulu ukuyiqonda ngokukhawuleza. Yiyo leyo iWest Syndrome.
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Ngamafutshane, yintoni iWest Syndrome?
I-West Syndrome luhlobo olungaqhelekanga lwesifo sokuwa esichaphazela abantwana abancinci, ingakumbi abo bangaphantsi konyaka omnye ubudala . Sithiywe ngogqirha owasifumanisa okokuqala.
Oku kunamagama aliqela koogqirha. Usenokuliva igama elithi Infantile Spasms (IS). Oko kuthetha baby spasms.'' Ikwabizwa ngokuba yi Epileptic Spasms.'' Nangona kukho amagama amaninzi, onke abhekisela kwimeko yezonyango efanayo.
Zithini iimpawu zale meko?
Eyona nto iphambili koku kukuxhuzula esithethe ngako ngaphambili. Oku kubizwa ngokuba yi-'spasms'. Ezi jerks zineempawu ezikhethekileyo ezahlukeneyo:
- Indlela eziqala ngayo iintlungu zokuqhina: Usana luthi gqi ngequbuliso lugobe phambili (njengaxa luqaqanjelwa sisisu) okanye lujike ngasemva. Iingalo nemilenze ziqina ngequbuliso zize ziqhaqhazele.
- Ixesha: Ukubetha kube kanye kuthatha imizuzwana embalwa kuphela.
- Iikluster: Ezi kluster azifiki kube kanye kwaye ziyeke. Ziza ngendlela eqhubekayo, edibeneyo . Ukukluster okunye kulandelwa kokunye, kuze kube kokunye, kuze kube kokunye, ukuya kuthi ga kwi-150 kwikluster. Kukho abantwana abanekluster ezinjalo ukuya kuthi ga kwi-60 ngosuku.
- Ixesha: Usenokuzibona ezi ntshukumo ngokukhawuleza nje emva kokuba umntwana evukile ebuthongweni.
Ukongeza kwezi nyikima, ezinye iimpawu zinokubonakala.
| Uphawu | Inkcazo |
|---|---|
| Ukukhala/ukuba nomsindo rhoqo (Ukucaphuka) | Usana luhlala lukhala ngaphandle kwesizathu kwaye kunzima ukuluthuthuzela. |
| Ukulahlekelwa ngumdla wokutya | Nciphisa okanye ungavumi ukusela ubisi. |
| Utshintsho ebuthongweni | Ukulala kancinci ebusuku, ukulala ngakumbi emini. |
| Ukuma okanye ukwehla kokukhula | Olu luphawu olubaluleke kakhulu. Usana, olwalusenza izinto ezinje ngokuncuma, ukudlala, nokuqaphela unina, luyeka kancinci kancinci ukwenza ezo zinto. Luyalibala izinto olwaluzifunde ngaphambili. |
Kutheni oku kusenzeka kubantwana abancinci?
I-West Syndrome yimeko engaqhelekanga kakhulu. Ichaphazela malunga neentsana ezi-6 kweziyi-10,000. Ihlala ichaphazela iintsana eziphakathi kweenyanga ezi-4 nezi-8 ubudala. Nangona unobangela ochanekileyo ungasoloko ungaziwa, kuye kwafunyanwa izizathu ezininzi eziphambili.
- Iingxaki zokwakheka kwengqondo: Naziphi na iingxaki ezenzeka ngexesha lophuhliso okanye ukwakheka kwengqondo.
- Utshintsho kwimfuza: Le meko inokubangelwa lutshintsho oluthile kwimfuza yomntwana.
- Ukonakala kwengqondo: Ngenxa yokunqongophala kweoksijini engqondweni ngexesha lokuzalwa okanye ngelinye ixesha, njengengozi.
- Iingxaki zemetabolism: Ngenxa yeengxaki ezithile kwiinkqubo zeekhemikhali zomzimba.
- Usulelo lobuchopho: Iimeko ezichaphazela ingqondo.
- I-Tuberous Sclerosis Complex: Yimeko yemfuza apho izimila ezingezizo umhlaza zikhula khona emzimbeni nasengqondweni.
Yenziwa njani le nto yokuxilonga?
Ukuba ubona umntwana wakho enesifo sokuxhuzula esinjalo, kufuneka ubone ugqirha wabantwana ngokukhawuleza .
Kubaluleke kakhulu: Ngaphambi kokuba uye kugqirha wakho, kuyanceda kakhulu ukuba ungarekhoda iintlungu zosana lwakho ngevidiyo. Oku kunokuphambaniswa ne-colic, ngoko ke kuyanceda kakhulu kugqirha ukubona ividiyo ukuze ancede ekuxilongeni imeko.
Ugqirha ubhekisa kakhulu kwezi mvavanyo:
- I-EEG (i-Electroencephalogram): Olu lolona vavanyo lubalulekileyo. Kalula nje, irekhoda umsebenzi wombane engqondweni njengepateni. Umntwana one-West Syndrome uya kubonisa ipateni engaqhelekanga kakhulu ebizwa ngokuba yi -'Hypsarrhythmia' kwi-EEG. Le yeyona nto iphambili ekuxilongweni kwesi sifo.
- I-MRI okanye i-CT scan:Ezi scan zinceda ekuboneni ukuba kukho naziphi na iingxaki, umonakalo, okanye iingxaki kwisakhiwo sobuchopho.
- Uvavanyo lwegazi, umchamo, kunye nolwelo lomgogodla (CSF): Olu vavanyo lunceda ekuqinisekiseni ukuba imbangela yokungcangcazela yingxaki yemfuza okanye ye-metabolic.
Zithini iindlela zonyango zoku?
Kubaluleke kakhulu ukuqala unyango ngokukhawuleza emva kokuba iWest Syndrome ifunyenwe, kuba ukulawula ukuxhuzula kunceda ekunciphiseni umonakalo ekuphuhlisweni kwengqondo yomntwana.
Amayeza
Unyango olusetyenziswa kakhulu koku ngamayeza.
- I-ACTH: Le yi-hormone. Inikwa njengenaliti. Isebenza kakuhle kakhulu ekulawuleni ukubetha kwentliziyo.
- IVigabatrin (Sabril): Eli liyeza lokuxhuzula. Lisebenza kakhulu kwiintsana ezine-West Syndrome, imeko ebangelwa yiTuberous Sclerosis.
- IiSteroids: IiSteroids ezifana ne-'Prednisone' nazo ziyasetyenziswa.
La mayeza anokuba nemiphumo emibi efana nokuncipha kwe-immune system, ukunyuka koxinzelelo lwegazi, kunye neengxaki zokubona. Ngoko ke, ugqirha uhlala ehlola umntwana aze amnyange ngokusekelwe kwiingenelo kunye neengozi.
Ukutya kweKetogenic
Kwabanye abantwana, ukuba amayeza awanelanga ukulawula urhudo lwabo, ugqirha angacebisa olu hlobo lotya lukhethekileyo. Olu lutya olunamafutha amaninzi, olune-carbohydrate encinci kakhulu .
Isilumkiso: Ungaze uzame ukwenza oku wedwa ekhaya. Oku kudla ngokuqaliswa esibhedlele, ngoncedo lukagqirha kunye nengcali yesondlo/ingcali yokutya.
Utyando
Ukuba i-MRI scan ibonisa ngokucacileyo ukuba istroke sibangelwa sisilonda esithile engqondweni, ugqirha angacebisa ukuba loo ndawo isuswe ngotyando. Oku akuyonto enokwenziwa ngumntu wonke. Igqitywa liqela lezonyango.
Ungathini ngekamva? (Imbono)
Nangona lo ngumbuzo onzima ukuwubuza, kubalulekile ukwazi inyaniso. Ikamva le-West Syndrome liza kuxhomekeka kwizinto ezininzi ezibalulekileyo.
- Unobangela: Yintoni unobangela wokuxhuzula? Ukuba kubangelwa kukwenzakala okukhulu kwengqondo, iziphumo zisenokuba zimbi. Ukuba kubangelwa ngaphandle kwesizathu esicacileyo (idiopathic), iziphumo zilungile kakhulu.
- Ixesha lokuqala unyango: Ukuba unyango lunokuqaliswa kwinyanga emva kokuba kufunyenwe isifo, ukukhula komntwana kunokwenzeka kakhulu ukuba abuyele kwisiqhelo.
- Impendulo kunyango: Indlela ekhawulezileyo yokulawula ukuxhuzula.
Olu hlobo lokuthetha ludla ngokuphela xa luneminyaka emi-4 ubudala. Nangona kunjalo,Abantwana abaninzi banokuba nezinye iintlobo zesifo sokuwa kamva.
Abantwana abaninzi baneengxaki ezithile zokufunda okanye zophuhliso lwengqondo. Nangona kunjalo, ngonyango olungcono olufumaneka kwangethuba, malunga ne-20%-25% yeentsana zinokuphila ubomi obuqhelekileyo nobukrelekrele obuqhelekileyo. Ke ngoko, ukuthatha inyathelo kwangethuba kubalulekile.
Umyalezo Wokuya Ekhaya
- Ukuba ubona ukuxhuzula okukhawulezileyo komntwana wakho (ingakumbi phakathi kweenyanga ezi-3-12), musa ukukutyeshela oko.
- Ukuba kunokwenzeka, bhala ngevidiyo ukudumba kwamathumbu. Kuya kuba luncedo kakhulu kugqirha.
- Bona ugqirha wabantwana ngoko nangoko. Ukuchitha ixesha kunokunyusa umonakalo engqondweni yomntwana.
- I-West Syndrome yimeko enokunyangeka. Unyango lwakwangoko lunokulawula imeko kwaye lunike umntwana ithuba elihle lokukhula kwixesha elizayo.
- Olu hambo lunzima. Kodwa awuwedwa. Thetha nogqirha wakho rhoqo uze ufumane inkxaso oyifunayo.
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