Ingabe unalezi zimpawu? Ake sifunde ngesifo se-Adult-Onset Still's Disease (AOSD)!

Ingabe ngezinye izikhathi uzizwa ubuhlungu, umkhuhlane, futhi ubuhlungu emalungeni izinsuku eziningi? Mhlawumbe ubomvu esikhumbeni sakho. Uma unalezi zimpawu, ungase ube nalokho esikhuluma ngakho namuhla: Isifo Sokuqhubeka Kwabantu Abadala (AOSD). Lesi yisimo esingavamile, kodwa kubalulekile ukuqaphela.

Kuyini Isifo Sokuqhubeka Kwabantu Abadala (AOSD)?

Kalula nje, i-AOSD isifo samathambo esivuvukalayo esithinta umzimba wonke, sibangele ukuvuvukala nobuhlungu emalungeni . Singabangela ubuhlungu bamalunga, ubuhlungu bemisipha, umkhuhlane ofika futhi uphele usuku lonke, kanye nokuqubuka kwesikhumba. Ngaphezu kwalokho, ezinye izimpawu zomzimba nazo zingavela.

Lesi sifo, esibizwa ngokuthi i-'AOSD', uhlobo lwabantu abadala lwesifo i-'Still's disease' noma i-'(Juvenile Idiopathic Arthritis - JIA)' esenzeka ezinganeni. Sivame ukuthinta abantu abasha abaneminyaka ephakathi kuka-16 no-35. Njengesifo ezinganeni, ngezinye izikhathi singahlala isikhathi esingaphansi konyaka bese sinyamalala, noma singafika sidlule ngokuhamba kwesikhathi. Izimpawu "zokuqhuma" zingafika zidlule njalo, noma zingafika zidlule isikhathi eside. Futhi, lezi zimpawu ngezinye izikhathi zingaba zincane kakhulu, kanti ngezinye izikhathi zingaba zimbi kakhulu. Kodwa-ke, kunemithi emihle yokulawula izimpawu lapho zivela.

Yiziphi izinhlobo eziyinhloko zalesi sifo?

I-AOSD ithinta wonke umuntu ngendlela ehlukile. Kunzima ukusho ukuthi izokuthinta kanjani ngqo. Kodwa odokotela baqaphele ukuthi izimpawu zivame ukubonakala ngezindlela ezintathu eziyinhloko:

I-Monophasic AOSD `(Monophasic AOSD)`

"I-Monophasic" isho ukuthi izimpawu zivela kanye kuphela . Lokhu kungahlala amasonto noma izinyanga ezimbalwa, kodwa kungaphansi konyaka. Lolu hlobo lungaqala ngokuzumayo, futhi lunyamalale ngokushesha. Cabanga nje, umngane wethu uKasun wayenalezi zimpawu ezinomkhuhlane kanye nobuhlungu bamalunga, kwathi ngemva kwezinyanga ezintathu waba ngcono ngokuphelele ngemithi, futhi akaphindanga wabuya. Yilokho okubizwa ngakho le `(i-Monophasic AOSD)`.

I-Polyphasic AOSD `(Polyphasic AOSD)`

"I-Polyphasic" isho ukuthi izimpawu zenzeka izikhathi eziningi . Lezi zingavela ngezikhathi ezithile, ngezinye izikhathi njalo emavikini ambalwa, ezinyangeni, noma ngisho neminyaka. Kodwa-ke, ngokuhamba kwesikhathi, lezi zimpawu zivame ukuba zifushane futhi zingabi zimbi kakhulu.

I-AOSD Engapheli `(I-AOSD Engapheli)`

"Okungalapheki" kusho ukuthi unezimpawu eziqhubekayo, noma ukuthi lesi simo sivame ukuqubuka . Njengakwezifo ezifana ne-Rheumatoid Arthritis, lesi simo (i-Chronic AOSD) cishe singabangela umonakalo wesikhathi eside emalungeni akho.

Zonke izinhlobo ezintathu zibonakala cishe ngesilinganiso esifanayo. Kodwa-ke, akunakwenzeka ukusho ngqo ukuthi hlobo luni ekuqaleni. Ngezinye izikhathi, noma ngabe kucatshangwa ukuthi "luyi-monophasic" noma "luyi-polyphasic", kamuva lungaba "i-AOSD" "engapheli".

Ziyini izimpawu ze-AOSD?

Ngaphezu kwezimpawu eziyinhloko ezibonakala kulesi sifo, kunezinye izimpawu ezivamile.

Izimpawu eziyinhloko

• Umkhuhlane: Uma izimpawu zibonakala, abantu abaningi baba nomkhuhlane kabili ngosuku , kanye ekuseni kanye nakusihlwa. Lo mkhuhlane uvame ukuba ngaphezu kwama-degree Celsius angu-39 (102 degrees Fahrenheit).
• Ukuqubuka kwesikhumba: Ukuqubuka okupinki, ngezinye izikhathi okunombala we-salmon kuvame ukuvela ngesikhathi somkhuhlane ophakeme . Kungase kuphele lapho umkhuhlane uphela. Ngokuvamile kuvela esifubeni, ezingalweni nasemilenzeni ekuqaleni, kodwa kungasakazeka emzimbeni wonke.
• Ubuhlungu bamalunga: Abantu abaningi bazwa ubuhlungu bamalunga , kanti abaningi bangase bazwe ukuvuvukala nokuqina. Ekuqaleni kungase kuthinte amalunga ambalwa, kodwa ngokuhamba kwesikhathi, lobu buhlungu bungathinta amalunga kuwo wonke umzimba.
• Ubuhlungu bemisipha: Imisipha yakho ingase izwakale ibuhlungu , ikakhulukazi uma umkhuhlane uphezulu kakhulu.

Ezinye izimpawu ezivamile

• Umphimbo obuhlungu.
• Isisu esibuhlungu.
• Ukuzizwa ukhathele kakhulu.
• I-Malaise umuzwa wokungaphatheki kahle, umuzwa wokungaphatheki kahle.

Kuzwakala kanjani ukuba ne-AOSD?

Eqinisweni, ekuqaleni, i-AOSD izwakala njengesifo esibangelwa yigciwane noma umkhuhlane ovamile . Izimpawu ezifana nomkhuhlane, izinhlungu zomzimba, nomphimbo obuhlungu zifana nezinye izifo eziningi ezivamile. Wena nodokotela wakho ningase niqale ukusola uma lezi zimpawu zingakapheli ngemva kwamasonto amabili kuya kwamathathu.

Kungani lesi sifo se-AOSD senzeka?

Ukuvuvukala emzimbeni wakho yikho okubangela izimpawu ze-AOSD . Ngokuvamile, amasosha omzimba wethu abangela lokhu kuvuvukala ukulwa nokutheleleka nokuphulukisa amanxeba. Kufanele kube okwesikhashana ngempela. Kodwa kwezinye izifo, njenge-AOSD, amasosha omzimba wakho anenkinga ngento ethile , futhi aqhubeka ebangela lokhu kuvuvukala ngisho noma kungekho gciwane lokulwa nalo noma ukulimala ukuze kuphole.

Abacwaningi abakakazi kahle ukuthi kungani lokhu kwenzeka. Njenge-Juvenile Idiopathic Arthritis, i-Adult Still's Disease ibizwa ngokuthi " idiopathic ." Lokho kusho ukuthi imbangela eqondile ayaziwa . Akubonakali kuyizakhi zofuzo.

I-AOSD itholakala kanjani?

Izimpawu ze-AOSD zifana nezinye izimo eziningi. Futhi ngenxa yokuthi kuyisimo esingavamile, odokotela bangase bangasoli ekuqaleni. Ngakho-ke kungathatha isikhathi ukuthola ukuxilongwa okunembile .

Ngemva kokubukeza izimpawu zakho kanye nomlando wezokwelapha, udokotela wakho uzoyala ukuhlolwa kwegazi kanye nokuhlolwa kwezithombe ukuze afunde kabanzi ngesimo sakho. Ukuhlolwa okufana ne-X-ray noma ukuskena kwe-ultrasound kungabheka ukuvuvukala nokuvuvukala emalungeni akho. Ukuhlolwa kwegazi kungavimbela ezinye izimo. Uma ukuhlolwa kwegazi lakho kubonisa izinga eliphezulu kakhulu le-ferritin, kanye nenani eliphezulu lamaseli amhlophe egazi , lezi zimpawu zingase zibonise i-AOSD.

Yiziphi izindlela zokwelapha i-AOSD?

Odokotela belapha i-AOSD ngemithi eyahlukahlukene yokulwa nokuvuvukala . Izinhlobo zemithi ezisebenza kahle kumuntu ngamunye zihlukile. Kungathatha ukuhlolwa okuthile ukuthola okusebenza kahle kakhulu ezimpawini zakho. Uma usuthole ofanele, kungadingeka uqhubeke nokuthatha umuthi isikhathi eside, noma ngabe awunazo izimpawu. Yilapho kuphela lapho ungavimba khona ukuvuvukala ukuthi kuqhubeke kubi kakhulu.

Eminye imithi ingabangela imiphumela emibi uma isetshenziswa isikhathi eside. Uma uthatha imithi enjalo, udokotela wakho uzoyishintsha ngezikhathi ezithile ukuze agweme imiphumela emibi.

Eminye yemithi esetshenziswa ekwelapheni yile:

• Imithi engeyona eye-steroidal yokulwa nokuvuvukala (ama-NSAID).
• Ama-Corticosteroids (ama-synthetic steroids) `(Ama-Corticosteroids - ama-synthetic steroids)`.
• Imithi yokulwa namathambo eguqula izifo (i-DMARD).
• Imithi yezinto eziphilayo `(Izinto eziphilayo)`.

I-AOSD ibaluleke kangakanani?

Ezimweni eziningi, i-AOSD ithinta ikhwalithi yempilo yakho ngaphezu kwempilo yakho yesikhathi eside . Okusho ukuthi, ingabangela ukungakhululeki futhi iphazamise imisebenzi yansuku zonke, kodwa akusho ukuthi ayilimazi umzimba wakho isikhathi eside.

Kodwa-ke, abanye abantu bangaba nohlobo lwe-arthritis oluqhubekayo noluwohlokayo . Lokhu kungenzeka kakhulu kwi-AOSD engapheli kunezinye izinhlobo. Uma ukuvuvukala kwamalunga akho kukhulu ngokwanele futhi kuhlala isikhathi eside, kungaphela kancane kancane. Njengoba i-cushion ezungeze amalunga akho iphela ngenxa yokuvuvukala, amalunga akho angaqala ukuhamba endaweni yawo. Lokhu kuvuvukala nokonakala kwamalunga kungaholela ekuwohlokeni okubuhlungu kwamalunga akho.

Akuvamile kakhulu, izimo zokuvuvukala ezihlobene ne-AOSD zingathinta nezitho zakho zangaphakathi, njengenhliziyo namaphaphu akho. Lokhu kungaholela ezinkingeni ezinkulu kakhulu. Nakuba i-AOSD ngokwayo ingase ingathinti isikhathi sakho sokuphila, lezi zimo zesibili azivamile ukuba yingozi.

Yiziphi izinkinga ezinkulu ezingaba khona?

Izinkinga ezingavamile kodwa ezinkulu zifaka:

• I-Pericarditis.
• I-Myocarditis.
• I-Disseminated intravascular coagulopathy (DIC).
• Umfutho wegazi ophezulu we-pulmonary arterial.
• Ukuphuma kwegazi emithanjeni.
• Isifo samaphaphu angaphakathi.
• I-Hemophagocytic lymphohistiocytosis (HLH).

Ingabe i-AOSD ingalapheka ngokuphelele?

Imithi ayikwazi ukwelapha i-AOSD, kodwa ingasiza ekucindezeleni izimpawu. Kwabanye abantu, izimpawu zingase ziphele ngokuphelele ngokuhamba kwesikhathi futhi zingaphinde zibuye. Lokhu kubizwa ngokuthi ukuya "ekuxolelweni," noma isifo esiba buthule. Uma ungena "ekuxolelweni," ungayeka ukuphuza imithi yakho. Kodwa kwabanye abantu, i-AOSD ayipheli ngempela. Kungase kudingeke baphuze imithi unomphela ukuze balawule ukuvuvukala.

Kunzima ukusho ngqo ukuthi hlobo luni lwesimo ongalulindela. Kodwa-ke, abanye odokotela bakholelwa ukuthi izimpawu zakho zokuqala zingakunikeza inkomba . Uma unobuhlungu nokuvuvukala emalungeni akho ekuqaleni, kungenzeka ukuthi kuhlale isikhathi eside.

Kufanele sizinakekele kanjani ngenkathi siphila ne-AOSD?

Abantu abaningi abaphila ne-AOSD bangaphila impilo evamile nekhululekile ngemithi efanele . Kwabanye, balwa nobuhlungu obungapheli ngezikhathi ezithile kanye nokukhathala okungapheli, okungathinta impilo yabo yansuku zonke. Kungakhathaliseki ukuthi izimpawu ze-AOSD ziyaqhubeka zikukhathaza noma cha, ungase ube nemiphumela emibi evela emithini oyiphuzayo, njengokukhuluphala kanye nokushintshashintsha kwemizwelo.

Uma impilo ihlala icindezela ngenxa yezinto ongakwazi ukuzilawula, kubaluleke kakhulu ukunakekela ukuzinakekela okuyisisekelo . Ukulala okuhle, ukudla okunomsoco, kanye nokuzivocavoca okuvamile, okungenamthelela omkhulu kungakusiza uzizwe ungcono ngokuphelele.

I-AOSD yisimo esiyimfihlakalo esivele ngokuzumayo ngaphandle kwesizathu esaziwayo. Uma kwenzeka okokuqala, ungase uzizwe ugula ngendlela engavamile isikhathi eside. Kungathatha udokotela wakho isikhathi nomzamo ukuthola ukuthi kwenzekani. Ngenhlanhla, uma usuxilongiwe, ungaqala ukwelashwa futhi kancane kancane uqale ukuba ngcono.

Nakuba kungathatha ukuzama namaphutha ukuthola ukwelashwa okusebenza kahle kuwe, abantu abaningi bangakwazi ukulawula izimpawu zabo futhi bavimbele izinkinga ezinkulu ngemithi . Kungakhathaliseki ukuthi une-AOSD isikhathi esingakanani, udokotela wakho uzoba umlingani wakho omkhulu ekulawuleni lokhu.

Ekugcineni, umyalezo okufanele uwuthathe uye nawo ekhaya

• I-AOSD yisifo samalunga esingavamile esivuvukalayo esithinta umzimba wonke futhi senzeka nakubantu abadala.
• Umkhuhlane ovamile, ukuqubuka kwesikhumba, kanye nobuhlungu bamalunga nemisipha yizimpawu eziyinhloko.
• Imbangela eqondile yalokhu ayaziwa, kodwa ngokuyinhloko ibangelwa ukuvuvukala okubangelwa izinguquko ekusebenzeni kwesimiso somzimba sokuzivikela.
• Kungathatha isikhathi ukuxilonga, ngoba izimpawu zifana nezinye izifo.
• Imithi ingasiza ekulawuleni izimpawu futhi , kwabanye, ikwazi ngisho nokuyelapha ngokuphelele leso sifo.
• Ngokwelashwa okufanele kanye nokuzinakekela okuhle, abantu abaningi bangaphila impilo evamile.
• Uma unalezi zimpawu, qiniseka ukuthi ubona udokotela bese uthola iseluleko . Ungakhathazeki, kunezixazululo zakho konke.

Ngikufisela impilo enhle!

Isifo sika- Adult Still, i-AOSD, isifo samathambo, umkhuhlane, ukuqubuka kwesikhumba, izifo ezizimele, ukwelashwa