Ngesikhathi esihle kakhulu empilweni yakho, uma usesikoleni, ekhempasini, usemsebenzini omuhle, futhi uphupha ngokuba nomndeni, ingabe uhlala uzwa ubuhlungu obungapheli, obubuhlungu emhlane obungenangqondo? Mhlawumbe lobu buhlungu buqala ezinqeni zakho bese buhamba kancane kancane emgogodleni wakho, bucindezela intamo yakho? Lokhu kuvame ukuqala kwesimo esibizwa ngokuthi i-Ankylosing Spondylitis (AS). Buthinta abantu abaningi abasebasha abasaqala ukuphila. Kodwa kukhona labo, esikhundleni sokuyeka ukuphila ngenxa yalobu buhlungu, abalwa nabo futhi benze amaphupho abo afezeke. Namuhla sizokhuluma ngabantu abambalwa abanjalo.
'Ngiyabonga ngisho nezinto ezincane manje' - indaba kaJake
UJake wayengumdlali omuhle esikoleni nasekhempasini. Ngakho-ke ekuqaleni wasola ubuhlungu bakhe obukhulu nobungapheli ngenxa yokulimala kwezemidlalo. Kodwa ngolunye usuku, wayelalele i-podcast mayelana nezifo zokuzivikela komzimba.
“Izimpawu ezishiwoyo zifana ncamashi nalezo ebengilokhu nginazo,” kusho uJake.
Kalula nje , isifo sokuzivikela komzimba yilapho isimiso somzimba sokuzivikela, okufanele sivikele imizimba yethu, siqala ngephutha ukuhlasela amangqamuzana emizimba yethu. I-Ankylosing Spondylitis ingenye yezifo ezinjalo.
Ngemva kwamasonto amabili, uJake watholakala ene-AS lapho ebona udokotela wamathambo. Kwaba impumuzo ukwazi ukuthi yini eyabangela ukuhlupheka kwakhe iminyaka eminingi, kodwa ubuhlungu babusakhona. Ngezinye izinsuku, ubuhlungu babububi kangangokuthi kwadingeka alaliswe esibhedlela izikhathi ezinhlanu noma eziyisithupha ngesikhathi sesemester yakhe yokuqala yesikole somthetho.
Kodwa uJake akazange ayeke. Othile ku-podcast uthe wazizwa ekhululekile kakhulu lapho eshintshela ekudleni okudliwa inyama kuphela. UJake wanquma ukuzama.
"Ngalandela ukudla ngendlela efanele. Ngadla inyama namanzi kuphela. Okumangazayo ukuthi ngemva kwesonto, ubuhlungu engangibuzwa bancipha kakhulu. Isikhumba sami sasibomvu ngenxa yokuvuvukala, futhi lokho kwase kuphelile," kusho uJake.
Kodwa nansi into ebalulekile okudingeka siyiqonde sonke. Lolu hlobo lokudla alufanele wonke umuntu. Akuyona into enhle ukuzifaka entweni efana nale ngaphandle kokukhuluma nodokotela wakho. Ngoba ungase ugcine uncisha umzimba wakho izakhamzimba eziningi ozidingayo. Ngakho-ke , qiniseka ukuthi uthintana nodokotela wakho ngaphambi kokwenza noma yini.
UJake wayenenkinga enye. Ubuhlungu bakhe banda lapho ehlala esihlalweni ekilasini usuku lonke. Ngakho wathola ikhambi lalokho futhi. Kwakuyinqubo yokuzivocavoca yansuku zonke ayezenzela yona.
- Njalo ekuseni, ngichitha imizuzu eyi-15 echibini elibandayo elinamanzi abandayo afika entanyeni.
- Ngemuva kwalokho, welula imisipha yakhe ye-psoas, imisipha emide egijima kusukela emhlane wakhe ongezansi iye ethangeni lakhe.
- Ngiphinde ngenze i-yoga kanye nokuzivocavoca ngokuphefumula okujulile.
"Bengingakwazi ukuphefumula kahle isikhashana. Kulapho kuphela lapho sengikwazi ukwelula imisipha yami kancane lapho ngaqaphela khona," kusho uJake. "Kubuhlungu kakhulu lapho ngenza lokhu kwelula. Kodwa impumuzo engiyizwayo ngemva kwalokho ibaluleke kakhulu."
UJake uthi ukuphila nobuhlungu akulula. Kodwa njengoba esenqobe leyo nselele, manje usecabanga ngendlela ehlukile ngokuphila. "Manje sengiyazisa ngisho nesikhathi esincane engingasichitha nomndeni wami ngaphandle kobuhlungu. Angisasithathi kalula."
'Kufanele ngiqhubekele phambili' - indaba kaJess
UJess ungowesifazane osemusha waseCanada. Wayeneminyaka eyi-18 ubudala lapho eqala ukuzwa ubuhlungu esinqeni sakhe sokudla kanye nasesinqeni ngesikhathi esohambweni nabangani. Ekuqaleni, wayecabanga ukuthi kungenxa yokuthi wayehlale isikhathi eside evenini. Kodwa ngemva kwezinsuku ezimbalwa, ubuhlungu baba bukhulu kangangokuthi wayengakwazi ngisho nokuvuka embhedeni.
Kwathatha odokotela iminyaka emine ukuthola ukuthi yini ngempela uJess ayenayo. Ngenxa yokuthi lesi simo asivamile kwabesifazane, ngezinye izikhathi singaba ukuxilongwa sekwephuzile. UJess wayecindezeleke kakhulu ngesikhathi ezama ukuthola ukuthi yini. Kodwa lapho ethola ukuthi yini ayenayo, uJess wazizwa ekhululekile kakhulu.
Namuhla, uJess uphuza umuthi onikezwe udokotela ukulawula ukuvuvukala kwakhe, ovimba iphrotheni ebizwa ngokuthi i-interleukin-17 (IL-17), ebangela ukuvuvukala emzimbeni.
"Lowo muthi uyamangalisa ngempela. Ngizwa ubuhlungu kuphela manje ngesonto ngaphambi komjovo wami olandelayo," kusho yena.
UJess useqaphele ukuthi indlela engcono kakhulu yokuphila nalolu buhlungu ukuzivocavoca umzimba.
"Ngilahlekelwe yiminyaka emine yokuphila kwami kobusha ngenxa yobuhlungu nokungakwazi ukuhamba. Ngakho ngazithembisa ukuthi yize ngisakwazi ukunyakaza, ngizokusebenzisa ngokugcwele lokho," kusho uJess.
Ujoyine uhlelo lokuzivocavoca nabelaphi bomzimba esibhedlela futhi manje useyakwazi ukuzivocavoca eyedwa.
- Uzivocavoca nsuku zonke ukuze aqinise umhlane wakhe ongezansi kanye nemisipha yomzimba.
- Ukwenza izivivinyo ze-yoga ezifana 'nesimo sengane', esilula umgogodla.
- Ukuzama ukugcina ukuma okufanele.
Usenqume nokudla ukudla okunciphisa ukuvuvukala (imifino, izithelo, izinhlanzi, amantongomane), ukugwema ukuba seduze nabantu ababhemayo, nokuyeka ukuphuza utshwala ngokuphelele.
"Ngiyazi ukuthi ngolunye usuku umgogodla wami ungase uhlangane ngokuphelele, futhi imithi yami ingase iyeke ukusebenza. Kodwa ngihlala ngizibuza, 'Yini enye engingayenza?' Ngizitshela ukuthi kufanele ngiqhubekele phambili, ngokoqobo, njalo ngiqhubekele phambili."
Yiziphi izindlela laba bantu abazisebenzisile ukulawula ubuhlungu?
UJake noJess basebenzise izindlela ezahlukene zokulawula ubuhlungu babo. Ake sibheke ezinye zazo etafuleni.
| Indlela/Isu | Lokho kusiza kanjani? | Ubani owayisebenzisa? |
|---|---|---|
| Imithi enqunywe udokotela | Ilawula izinqubo zamakhemikhali emzimbeni ezibangela ukuvuvukala nobuhlungu. | UJess |
| Ukuzivocavoca Nokwelula | Kunciphisa ukuqina kwamalunga nemisipha, kwandisa ukuguquguquka, futhi kwakha amandla. | UJake noJess |
| Ukwelashwa Komkhuhlane | Kunciphisa okwesikhashana ukuvuvukala kwemisipha nobuhlungu. | UJake |
| Izinguquko ekudleni | Kwabanye, izimpawu zingalawulwa ngokunciphisa ukudla okubangela ukuvuvukala ( kuphela ngaphansi kweseluleko sikadokotela ). | UJake noJess |
| Izinguquko zendlela yokuphila | Ukugwema izinto ezingabhebhethekisa lesi sifo, njengokubhema notshwala. | UJess |
Izinto ongazenza
Uma unalezi zimpawu, into yokuqala okufanele uyenze ukungesabi bese ubona udokotela onekhono.Kungaba ngcono uma ungabonana nodokotela ochwepheshe bezifo zamathambo namalunga (i-rheumatologist).
- Ukuxilongwa okulungile: Into ebaluleke kakhulu ukuthola kuqala ukuthi siyini ngempela isimo.
- Ukwelashwa: Udokotela wakho uzokunikeza imithi yokwelapha izinhlungu, imithi yokulwa nokuvuvukala, noma imithi yebhayoloji efanele wena.
- Ukwelapha ngokuzivocavoca: Funda ukuthi yikuphi ukuvivinya umzimba kanye nokwelula umzimba okufanele wena ngeseluleko sikadokotela wezokwelapha ngokuzivocavoca.
- Khuluma nodokotela wakho njalo: Ngaphambi kokuqala ukuzivocavoca okusha, ukudla okunempilo, noma yini, khuluma nodokotela wakho ukuqinisekisa ukuthi kukulungele. Akuzona zonke izinto ozibonayo ku-inthanethi ezingakufanelekela.
I-Ankylosing Spondylitis iyinselele. Kodwa akusikho ukuphela kokuphila. Ngokwelashwa okufanele, ukuzivocavoca, kanye nesimo sengqondo esihle, nawe ungalawula lobu buhlungu futhi uphishekele amaphupho akho.
Umlayezo Wokuya Nawe Ekhaya
- I-Ankylosing Spondylitis (AS) yisimo sangempela esithinta umgogodla kanye namalunga esemncane. Akuyona into obuyicabanga.
- Uma unezinhlungu zomhlane ezingachazeki njalo, ikakhulukazi uma uzizwa sengathi umhlane wakho uqinile lapho uvuka ekuseni, bona udokotela ngokushesha.
- Ukuthola ukuxilongwa okunembile kuyisinyathelo sokuqala nesibaluleke kakhulu ekwelashweni.
- Ukulawula ubuhlungu akuyona into eyodwa. Kuyinhlanganisela yemithi, ukwelashwa ngokomzimba, ukuvivinya umzimba, kanye nokushintsha indlela yokuphila.
- Ukuzivocavoca umzimba kubalulekile ukuze uphile nalesi sifo, kodwa qiniseka ukuthi ukhuluma nodokotela wakho ngaphambi kokuqala inqubo entsha yokuzivocavoca.
- Awuwedwa. Baningi abantu abaphila ngempumelelo nangenjabulo ngalesi simo. Ngakho hlala uqinile.
💬 Comments (0)
Awekho amazwana athunyelwe okwamanje. Faka amazwana akho lapha okokuqala ngqa.
Engeza amazwana akho