Uke waba nobuhlungu obuvamile emhlane wakho, ezinqeni, nakwezinye izindawo kusukela eminyakeni yakho yama-20 noma yama-30? Uma uvuka ekuseni, umzimba wakho uzizwa uqinile futhi uqinile, futhi awukwazi ngisho nokugoba isikhashana? Ungase ucabange ukuthi lokhu kumane kuyibuhlungu obujwayelekile emhlane, into eyenzekayo uma ulala kabi. Kodwa uma lezi zimpawu ziqhubeka, kungaba ukuqala kwesimo esibizwa ngokuthi i-Ankylosing Spondylitis (AS). Namuhla, sikhuluma ngalesi sifo kanye nokuhlangenwe nakho kwabantu ababili bangempela abashintshe izimpilo zabo ngokuphila naso.
Kalula nje, iyini i-Ankylosing Spondylitis (AS)?
Lokhu futhi uhlobo lwesifo samathambo. Kodwa kulokhu, kuthinta kakhulu amalunga omgogodla wethu . Kalula nje, lesi sifo sibangela ukuba amalunga aphakathi kwamathambo omgogodla avuvuke. Ngokuhamba kwesikhathi, lokhu kuvuvukala kubangela ukwakheka kwamathambo amasha, futhi amathambo angahlangana ndawonye. Lokhu kunganciphisa ukuguquguquka komgogodla futhi kubangele ukuma okugobile. Lobuhlungu abugcini nje emgogodleni, kodwa bungathinta nezindawo ezifana nezinqe, amahlombe, izimbambo, nezithende.
Lokhu kubangelwa yisifo sokuzivikela komzimba , okusho ukuthi isimiso somzimba sokuzivikela, okufanele sivikele imizimba yethu, sihlasela ngephutha amangqamuzana ethu aphilile, kulokhu amalunga.
Kulungile, manje ake sibheke izindaba zikaLovaine noDeverell, ababhekana nokuphila ngalesi sifo.
Indaba kaLoven: Kusukela ebuhlungwini kuya emsebenzini omusha
ULoven watholakala enalesi sifo eneminyaka engu-30. Kodwa izimpawu zaqala kusenesikhathi, ngemva kokubeletha ingane yakhe yokuqala. Waqala enobuhlungu emhlane ongezansi, futhi kancane kancane wangakwazi ukuhamba. Ekugcineni, kwadingeka asebenzise induku ukuze ahambe.
Watholakala ene-AS eneminyaka engu-31, ngemuva kokuba ubuhlungu busakazekele emhlane wakhe ongaphezulu. Ukuhlolwa kwegazi lakhe kwabonisa nesakhi sofuzo esihle (HLA-B27) . Lesi sakhi sofuzo sitholakala cishe kuwo wonke umuntu one-AS.
"Kwaba impumuzo yangempela lapho ngithola igama lokugula kwami. Okungenani ngangazi ukuthi kwenzekani emzimbeni wami," kusho uLoven.
Kodwa indaba ayiphelelanga lapho. Lapho esezohlanganisa iminyaka engama-30, ubuhlungu base bungasenakubekezeleleka. Kwadingeka aphuze imithi yokubulala izinhlungu enzima futhi ayeke umsebenzi wakhe. Udokotela wakhe wamathambo wamthumela ukuba ayohlolwa nge-X-ray. Kulapho athola khona ukuthi ingxenye enkulu ye-cartilage ethangeni lakhe lesokudla yayigugile, futhi i-cartilage ethangeni lakhe lesobunxele yayinyamalele ngokuphelele.
Ukuhlinzwa okushintsha impilo
Lapho eneminyaka engu-39 ubudala, kwadingeka ukuba ahlinzwe inqulu esikhundleni senqulu yakhe yesobunxele. Udokotela wakhe ohlinzayo wathi kwakuyisivuvu esibi kakhulu aseke wakubona.
"Lapho ngivuka ngemva kokuhlinzwa, kwenzeka into emangalisayo. Ubuhlungu obungabekezeleleki base buphelile . Kwashintsha impilo yami. Ngangicindezelekile iminyaka engu-4-5. Kodwa ngemva kokuhlinzwa, konke kwashintsha."
Isikhathi sokuvuselelwa sasingelula. Kwadingeka afunde ukuhamba futhi aqinise imisipha yakhe. Kwadingeka enze ukwelashwa ngokomzimba izinsuku ezintathu ngesonto izinyanga eziyisikhombisa. Ngemva konyaka, kwadingeka kushintshwe isihlanganisi sakhe sesinqe sangakwesokudla.
Ngokuhamba kwesikhathi, waqaphela ukuthi wayengowesifazane ophila nezinqe ezimbili zokwenziwa. Waqala ukufunda ngendlela yokuphatha ubuhlungu nokuphila nalesi sifo. Wagxila ezintweni ayengazilawula. Lokho kwakusho izinto ezifana nokudla, ukuzivocavoca umzimba, kanye nokucabanga okuhle . Namuhla, ungumeluleki wezempilo osiza abantu abanezifo ezifanayo.
Indaba KaDeverell: Ubuhlungu Ngisho Nodokotela Ababengabukholelwa
UDeverell wayeneminyaka engu-22 lapho lezi zimpawu ziqala. Wayengakwazi ngisho nokwenza izinto ezilula njengokukhuphuka izitebhisi noma ukuphakamisa ibhokisi lobisi. Lapho etshela udokotela wakhe ngobuhlungu obukhulu nokuvuvukala okuvela ngaphakathi emzimbeni wakhe, udokotela akazange akuthathe ngokungathi sína.
"Uma lokho kwenzeka, ulahlekelwa ukuzethemba. Ngiyazi ukuthi umzimba wami uzizwa ngendlela ehlukile, kodwa kwadingeka ngilalele lokho okushiwo udokotela wami."
Ngemva kweminyaka emibili, kungekho mpumuzo kunoma yimiphi imithi, udokotela wathi kuye, "Konke lokhu kusekhanda lakho, akukho engingakwenza."
Ukuxilongwa kutholakale ngaphandle kokuyeka
Kodwa uDeverell akazange ayeke. Wabona omunye udokotela. Wabona odokotela abaningana abangochwepheshe bomdlavuza, isifo samathambo, kanye nezifo zesisu. Ezinye izivivinyo zabonisa isifo esifana ne-muscular dystrophy, kodwa akukho lutho oluqinisekile olwatholakala.
Phakathi nalesi sikhathi, impilo yakhe yokuxhumana nabantu yema ngokuphelele. Wajoyina iqembu lokusekelana eliku-inthanethi futhi wabelana ngolwazi lwakhe. Kulapho-ke othile ameluleka khona ukuthi ayohlolwa (HLA-B27) .
Lapho ukuhlolwa kubuya kuqinisekile ngo-2010, uDeverell wajabula kakhulu. Ekugcineni wayeseyitholile impendulo yombuzo abelokhu elwa nawo iminyaka emine. Kodwa injabulo yakhe yayingeyesikhashana. Udokotela wakhe wamtshela ukuthi ayikho ikhambi nokuthi kwakuyisimo esibi kakhulu.
Ukushintsha indlela obheka ngayo ubuhlungu
Ngemva kwaleyo ndaba, uDeverell wenza isinqumo esimangalisayo. Wathengisa konke ayenakho wathuthela eKapa, eNingizimu Afrika. Lapho wachitha isikhathi sakhe ejabule, ebuka ulwandle, izintaba, futhi ebuka abantu bemomotheka. Esikhundleni sokuzizwa sengathi uyafa, waqala ukuzizwa sengathi ingqondo nomzimba wakhe kuyahlangana .
Lapho waqala khona ukwenza i-Hot Yoga futhi. Ukuzivocavoca kwe-yoga ekamelweni elifudumele kunciphisa ubuhlungu bakhe futhi kwaqinisa umhlane wakhe. Wayeka ukusebenzisa igama elithi 'ubuhlungu'. Kunalokho, wakubiza ngokuthi 'ukungakhululeki'.
"Unezinhlungu ezahlukahlukene. Ungasuka ekungakhululeki uye ekududuzeni."
Namuhla, uDeveral ungumqeqeshi we-Hot Yoga. Akasebenzisi noma yimiphi imithi. Ukwelashwa kwakhe kuphela i-yoga nokudla okunempilo.
| Isici | Okuhlangenwe nakho komhlaba | Okuhlangenwe nakho kukaDeverell |
|---|---|---|
| Izimpawu zokuqala | Ubuhlungu emhlane nasesinqeni, ubunzima bokuhamba. | Ubuthakathaka bomzimba, ubunzima bokukhuphuka izitebhisi, ubuhlungu obukhulu kanye nokuvuvukala. |
| Ukuxilongwa | Ngatholakala ukuthi nginalesi sifo ngokushesha nje ngemva kokuqala kwezimpawu, ngineminyaka engu-31. | Ngemva kwempi ende yeminyaka emine, phakathi kokungakholwa kodokotela, ngatholakala ukuthi nginesifo. |
| Inselele enkulu | Ubuhlungu obungabekezeleleki bomzimba kanye nokubhujiswa kwamalunga. | Odokotela abazethembi futhi bawela ekucindezelekeni. |
| Yini eyashintsha impilo yami | Ukuhlinzwa kokufakelwa inqulu kanye nokucabanga okuhle. | Ukushintsha indawo, i-Hot Yoga, nokushintsha indlela obona ngayo ubuhlungu. |
| Yini elandelayo njengamanje | Imithi (i-TNF-inhibitor), ukudla okunempilo, ukuvivinya umzimba okulula, kanye nokwelulekwa. | Ukuzivocavoca okunamandla kwe-yoga, ukulawula ukudla (akukho mithi). |
Yini esingayifunda kulezi zindaba ezimbili?
Khuluma nawe ngomzimba wakho.
Njengoba indaba kaDeverell ibonisa, ngisho nodokotela bangaba nephutha ngezinye izikhathi. Uma uqiniseka ngalokho umzimba wakho okuzwayo, ungesabi ukukhuluma ngakho. Ungayeki uze uthole impendulo. Ungumngane wakho omkhulu .
Ingqondo iyinto enamandla.
Bobabili uLoven noDeverell bashintshe indlela ababebheka ngayo ubuhlungu. Baqaphela ukuthi ubuhlungu abusona isiphetho sempilo, kodwa ukuthi bungaphilwa futhi bulawulwe. Ukucabanga okuhle kufana nokuwina ingxenye yempi.
Asikho ikhambi elifanela bonke.
Ukuhlinzwa kanye nemithi kwasiza uLoven. I-yoga kanye nokushintsha indlela yokuphila kwasiza uDeverell. Ngakho-ke uma unalesi simo, kubalulekile ukukhuluma nodokotela wakho bese uthola ukwelashwa kanye nendlela yokuphila efanele wena.
Ukudla kanye nokuzivocavoca
Bobabili babenakekela ukudla kwabo. ULowen uthi ukunciphisa ushukela, ufulawa, kanye nezinhlobo ezithile zenyama kungasiza ekunciphiseni ubuhlungu nokuvuvukala. Futhi, ukwenza izivivinyo ezithinta kancane, njengokuhamba kanye ne-yoga, nsuku zonke kungasiza ekugcineni umgogodla uqinile futhi ugobeka kalula.
"Impi enkulu onayo lapho ubhekene nobuhlungu bakho obungapheli ukuqondisa ingqondo yakho endaweni lapho ungabekezelela khona ubuhlungu nokucindezeleka." - Loven
Uma unezinye zalezi zimpawu, sicela ungazinaki. Bona udokotela ofanelekayo ngokushesha ukuze uthole ukuxilongwa okufanele kanye nokwelashwa. Uma uqala ukwelashwa ngokushesha, kulapho unganciphisa khona umonakalo emalungeni akho.
Umlayezo Wokuya Nawe Ekhaya
- I-Ankylosing Spondylitis (AS) yisifo samathambo esithinta umgogodla, esingaqala esemncane. Ungawunaki ubuhlungu obuvamile bomhlane kanye nokuqina kwasekuseni.
- Lalela umzimba wakho. Uma ungaqiniseki ngesibonakaliso, funa iseluleko sezokwelapha uze uthole impendulo eqondile.
- Nakuba kungekho ikhambi eliqondile lalesi sifo, ubuhlungu bungalawulwa futhi impilo enhle ingaphilwa ngemithi, ukwelashwa ngokomzimba, ukuvivinya umzimba kanye nokushintsha indlela yokuphila.
- Isimo sakho sengqondo ngobuhlungu sibaluleke kakhulu. Ukucabanga okuhle kanye nokulawula ukucindezeleka kungandisa ikhono lakho lokubekezelela ubuhlungu.
- Thola ukuthi yini ekusebenzela kahle. Nakuba imithi isebenza kahle kwabanye abantu, i-yoga noma ezinye izindlela zokuzivocavoca zingase zisebenze kangcono kwabanye. Khuluma nodokotela wakho bese udala uhlelo olukusebenzela kahle.
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