Ingabe ingane yakho ihlushwa yisisu njalo? Ake sifunde ngalokhu (i-Autoimmune Enteropathy)?

Ingabe indle yengane yakho ivuza njalo? Akukubi yini ukuthi sekuphele izinsuku ezimbili noma ezintathu iqhubeka? Ngezinye izikhathi, njengabazali, siyakhathazeka kancane uma sibona izinto ezinjengalezi? Ikakhulukazi uma kuyingane esanda kuzalwa, sikhathazeka kakhulu ngoshintsho ngalunye oluncane kuye. Ngakho-ke, namuhla sizokhuluma ngesimo esingavamile kakhulu esibonisa izimpawu ezifanayo.

Kuyini "i-Autoimmune Enteropathy"? Ake sikuqonde kalula, akunjalo?

Kalula nje, `(Autoimmune Enteropathy)` yisimo esingavamile lapho uhlelo lokuzivikela lomzimba wethu, okungukuthi, uhlelo lokuzivikela komzimba, luhlasela amathumbu ethu ngephutha . Cabanga ukuthi kwenzekani lapha, uma ibutho okufanele livikele izwe lethu, lihlasela indawo ebalulekile ezweni lakithi. Lokhu kuvame ukuthinta izingane ezincane kakhulu. Kodwa kungakhula nakubantu abadala ngezikhathi ezithile.

Uma izingane zithola lesi sifo, indle yazo iyamanzi futhi iyaqhubeka. Lesi sifo sohudo asipheli ngemva kwezinsuku ezimbili noma ezintathu. Lezi zimpawu zivame ukuqala ukuvela phakathi kwamasonto amabili kuya kwamane ngemva kokuzalwa komntwana.

Kwenzekani uma amasosha omzimba elimaza amathumbu ngale ndlela? Umzimba awukwazi ukumunca izakhamzimba ezivela ebisini lebele noma efomini eliphuza umntwana. Kunalokho, zonke lezo zakhamzimba zikhishwa emzimbeni njengesifo sohudo. Lokhu kungabangela ukuthi umntwana aphelelwe amanzi emzimbeni, okusho ukuthi akanawo amanzi. Futhi, umntwana angase angakhuluphali njengoba kulindelekile.

Uma uyisa ingane yakho ekuhlolweni njalo ukuze iphile kahle, udokotela wezingane angabona noma yiziphi izinkinga ngokukhula noma impilo yengane yakho. Kodwa-ke, uma ubona noma yiziphi izinguquko endle yengane yakho, ungalibali ukutshela udokotela.

Lesi simo, esaziwa ngokuthi "i-Autoimmune Enteropathy," selashwa ngemithi enciphisa noma evimba amasosha omzimba ekuhlaseleni amathumbu.

Sivame kangakanani lesi sifo?

I-Autoimmune Enteropathy empeleni iyisifo esingavamile kakhulu. Ochwepheshe bathi uma ubheka emhlabeni wonke, cishe ingane eyodwa kweziyikhulu eziyizinkulungwane iba nalesi sifo. Nakuba abantu abadala nabo bengasithola lesi sifo, asivamile kakhulu kunasezinganeni. Ngakho-ke ungesabi ngokungadingekile ngemva kokuzwa ngalokhu.

Ziyini izimpawu ze-`(Autoimmune Enteropathy)`?

Uphawu oluyinhloko ukuhamba kwamathumbu okungapheli, okunamanzi (uhudo) esikhundleni sendle ethambile evame ukukhishwa yizinsana ezisanda kuzalwa nezingane ezincane.

Esinye isibonakaliso ukungalawuleki komlomo (ukungachami). Ingane esanda kuzalwa kufanele ibe namanabukeni amanzi okungenani amahlanu kuya kwayisithupha ngosuku. Ukuba namanabukeni amanzi ambalwa kunalawo kungaba uphawu lokuthi ingane yakho iphelelwe amanzi emzimbeni.

Cabanga nje, ngokuvamile umntwana ukhipha indle izikhathi eziningana ngosuku, futhi iwugqinsi kancane futhi inombala. Kodwa kulokhu, indle imanzi nje. Futhi umntwana angase angakhululeki futhi akhale.

Yini ebangela `(Autoimmune Enteropathy)`?

Ochwepheshe abakayazi imbangela eqondile. Ngokuvamile, izingane ezine-autoimmune enteropathy zine -primary immunodeficiency elimaza i-villi emathunjini azo amancane.

Uyazi ukuthi ziyini lezi `(villi)`? Ziyizinto ezincane ezifana nezinwele ezimboze izindonga zamathumbu amancane engane yakho. Zifana nemicu ekhaphethini elincane. Umsebenzi wazo oyinhloko ukumunca izakhamzimba ekudleni okudliwa yingane yakho (ubisi lwebele noma ifomula) bese zithumela lezo zakhamzimba egazini lengane yakho. Ngakho-ke uma lezi `(villi)` zonakele, izakhamzimba azifiki emzimbeni.

Yiziphi izinkinga ezingaba khona ngenxa yalesi sifo?

I-Autoimmune Enteropathy ingabangela izinkinga ezahlukahlukene. Ezinye zazo yilezi:

• Ukuphelelwa amanzi emzimbeni: Inani lamanzi emzimbeni liyancipha ngenxa yokuhlanza njalo. Lokhu kuyingozi kakhulu ezinganeni ezincane.
• I-Hypoproteinemia: Amazinga aphansi amaprotheni egazini ngenxa yokumuncwa kabi kwezakhamzimba.
• Ukutheleleka okuvamile: Ngenxa yokungasebenzi kahle kwesimiso somzimba sokuzivikela kanye nokuntuleka kokudla okunomsoco, izingane zinamathuba amaningi okugula.
• Ukungamuncwa: Lena inkinga enkulu. Ngenxa yomonakalo emathunjini, azikho izakhamzimba ezimuncwa emzimbeni.

Lezi zinkinga zingabangela ukuthi umntwana akhule kabi, anciphe isisindo, futhi agule njalo.

Odokotela bakuthola kanjani ukuthi i-Autoimmune Enteropathy ibangelwa yi-Autoimmune Enteropathy?

Udokotela wakho wezingane uzokubuza ngezimpawu zomntwana wakho bese enza ukuhlolwa ngokomzimba. Bangase bacele ukuhlolwa okufana nalokhu:

• Ukuhlolwa kwegazi: Ukuthola noma yikuphi ukukhubazeka okuthile ohlelweni lokuzivikela komzimba.
• I-Flow Cytometry: Lena indlela yokuhlola amasampula amangqamuzana omzimba asebenzisa imisebe ekhethekile ye-laser.

Ngaphezu kwalokho, udokotela wakho angakudlulisela kudokotela wezifo zamathumbu, ongenza izivivinyo ezifana nokuhlolwa kwamathumbu amancane . Udokotela wakho wezingane angakudlulisela nakuchwepheshe wezifo ezizimele.

Iphathwa kanjani i-`(Autoimmune Enteropathy)`?

Uma ingane yakho itholakala inalesi simo, cishe izonikezwa uketshezi kanye nokudla okunempilo ngemithambo yegazi (ngomthambo - ``IV``) . Lokhu kusho ukuyinika usawoti, ngoba umzimba awukwazi ukumunca noma yini enikezwa ngomlomo.

Ngaphezu kwalokho, kunikezwa imithi yokunciphisa ukuhlasela kwamasosha omzimba emathunjini amancane engane. Imithi ethile ihlanganisa:

• Ama-Corticosteroids:Lezi uhlobo lomuthi olunamandla olunciphisa ukusebenza kwesimiso somzimba sokuzivikela.
• Ama-immunomodulators: Lena imithi esiza ekunciphiseni umonakalo ngokushintsha ukusebenza kwesimiso somzimba sokuzivikela.

Kwezinye izimo, uma lokhu kwelashwa kungabi nemiphumela efiselekayo, odokotela bangase basebenzise izindlela zokwelapha eziyinkimbinkimbi kakhulu, njengokufakelwa i-stem cell . Kodwa-ke, lokhu kuncike kakhulu esimweni somntwana.

Yini okufanele ngiyilindele uma ingane yami ine-`(Autoimmune Enteropathy)`?

Akuwona wonke umntwana ofanayo, ngakho-ke lokho ongakulindela kuzohluka kuye ngesimo sakhe. Kwezinye izimo, imithi evikela amathumbu amancane engane ekuhlaselweni amasosha omzimba ingasiza imizimba yayo ukuthi imunce izakhamzimba.

Kodwa-ke, izingane ezinalesi simo zinenkinga eyisisekelo ngamasosha omzimba wazo. Uma ingane yakho inalesi simo, ingadinga izinhlobo ezahlukene zokwelashwa kanye nokunakekelwa kwezokwelapha kwesikhathi eside . Isibonelo, udokotela wengane yakho angancoma ukufakelwa i-stem cell.

Ngezikhathi ezinjengalezi, kubalulekile ukuthemba odokotela bakho nokulandela izeluleko zabo. Futhi, buza udokotela wakho noma yimiphi imibuzo noma ukukhathazeka ongase ube nakho.

Kufanele ngixhumane nini nodokotela wezingane wengane yami?

Uma ingane yakho itholakala ine-Autoimmune Enteropathy, futhi ubona noma yiziphi izinguquko ekuchameni nasekuthuthweni - isibonelo, ukwehla kwenani lama-nappies amanzi - kufanele uxhumane nodokotela wezingane wengane yakho ngokushesha. Ukuphelelwa amanzi emzimbeni kuyingozi kakhulu ezinganeni ezincane. Futhi, uma isifo sohudo sikhula noma ingane yakho iba nezinye izimpawu, njengomkhuhlane, funa iseluleko sezokwelapha ngokushesha.

Yimiphi imibuzo okufanele ngiyibuze udokotela wezingane wengane yami?

Ngenxa yokuthi i-Autoimmune Enteropathy iyisifo esingavamile, ungase ungazi okuningi ngaso. Ngakho-ke, nansi eminye imibuzo ongayibuza udokotela wakho:

• Uyazi ukuthi kungani ingane yami inalesi sifo? (Mhlawumbe asazi isizathu esiqondile, kodwa kuhle ukusazi.)
• Hlobo luni lokwelashwa oludingwa yingane yami?
• Iyini imiphumela emibi yalezi zindlela zokwelapha? Ziphathwa kanjani?
• Umntwana wami uzodinga ukwelashwa isikhathi esingakanani?
• Yiziphi ezinye izinto okufanele ngiziqaphele kakhulu lapho nginakekela ingane yami ekhaya?
• Ingabe lesi simo singathinta ukukhula komntwana esikhathini esizayo?

Ngaphezu kwale mibuzo, ungesabi ukukhuluma nodokotela wakho nganoma yini ekukhathazayo.

I-Autoimmune Enteropathy ivame kangakanani kubantu abadala?

Akuvamile kakhulu ukuthi abantu abadala babe ne-"Autoimmune Enteropathy".Nokho, kunzima ukusho ukuthi bangaki ngempela. Odokotela esibhedlela esithile babike ukuthi esikhathini esiyiminyaka eyi-16, abantu abayi-13 kuphela abatholakale benesifo se-Autoimmune Enteropathy. Bonke abangu-13 babo babenesinye isifo sokuzivikela komzimba.

Ekugcineni, umyalezo omncane kubazali

Uma unengane encane, kuvamile ukukhathazeka uma ngelinye ilanga indle yengane yakho ikhululeka kunokujwayelekile, noma uma ingase ichame kakhulu. Ungesabi ngezikhathi ezinjengalezi.

Uhudo ngezikhathi ezithile noma ukuchama okuncane ngosuku olulodwa akuyona imbangela yokukhathazeka. Cishe, lezi zinguquko ezincane ohlelweni lokugaya ukudla kwengane yakho azilona uphawu lwesimo esibucayi njenge-"Autoimmune Enteropathy". Kodwa-ke, uma indle noma ushintsho lomchamo wengane yakho lungathuthuki ngemva kwezinsuku ezimbalwa, kungumqondo omuhle ukukhuluma nodokotela wezingane zakho. Lokho kuzokunikeza ukuthula kwengqondo. Khumbula, kuhlale kuwukuhlakanipha ukufuna iseluleko sezokwelapha.

Izinto ezibaluleke kakhulu okufanele uzikhumbule (Umyalezo Wokuya Ekhaya)

• I-Autoimmune Enteropathy yisifo esingavamile lapho amasosha omzimba ehlasela amathumbu.
• Uphawu oluyinhloko uhudo oluhlala lumanzi (uhudo), ikakhulukazi ezinganeni ezincane.
• Lokhu kungaholela ezinkingeni ezifana nokumuncwa kabi kwezakhamzimba, ukuphelelwa amanzi emzimbeni, kanye nokwehla kwesisindo.
• Ukuxilongwa kungadinga ukuhlolwa kwegazi, i-Flow Cytometry, kanye ne-Small Intestine Biopsy.
• Ukwelashwa kuhlanganisa ukudla okunomsoco ngemithambo yegazi kanye nemithi elawula amasosha omzimba (`ama-Corticosteroids`, `ama-Immunomodulators`).
• Uma indle noma umchamo wengane yakho uqhubeka nokukhombisa izinguquko ezingavamile, bona udokotela wezingane ngokushesha. Ungesabi, futhi ulandele iseluleko sezokwelapha esifanele.

I- Autoimmune enteropathy, ukucasuka kwesisu, ukuqunjelwa, isifo sohudo, izifo zasebuntwaneni, amasosha omzimba, ukuntuleka kokudla okunempilo