Cishe akukho sikhathi esihle empilweni kunesikhathi lapho ulindele ukuba ngumama. Wonke umama uphupha ngokuphupha ngomntwana okhula esibelethweni sakhe izinyanga eziyishumi futhi enethemba lokuthi konke kuzolunga. Kodwa-ke, ngezinye izikhathi sizwa izindaba ezingalindelekile ezivela kudokotela. Ikakhulukazi ngemva kokuhlolwa kwe-ultrasound ngesikhathi sokukhulelwa, uma kutholakala ukuthi umntwana unesici esithile sokuzalwa, ubuhlungu nokushaqeka abazali abakuzwayo kunzima ukukusho ngamazwi. Namuhla sizokhuluma nge-'Spina Bifida', isimo esibi kakhulu, kodwa manje ngemithi emisha, kunethemba elithile.
Kalula nje, iyini i-Spina Bifida?
I-spina bifida yisifo sokuzalwa esenzeka emavikini ambalwa okuqala empilo yengane. Cabanga ngomgogodla wethu njengesivikelo esivikela umgogodla, uhlelo lwezinzwa olubalulekile olulawula wonke umzimba wethu. Ku-spina bifida, amathambo omgogodla awavaleki kahle, okushiya isikhala noma imbobo emgogodleni.
Lo mgodi ubangela umonakalo emgogodleni kanye nasezinzweni ezixhumene nawo. Lo monakalo ungabangela izinkinga ezinkulu ezingathinta ingane impilo yayo yonke.
- Ukukhubazeka: Ukulahlekelwa umsebenzi ngokuphelele noma ingxenye yemilenze yomibili.
- Izinkinga zokulawula amathumbu nesinye: Ukungakwazi ukulawula amathumbu nesinye uma ufuna.
- Ukukhubazeka kokufunda: Ezinye izingane zingase zibe nobunzima bokufunda.
- I-Hydrocephalus : Lena inkinga evame kakhulu engathi sína. Kalula nje, ukunqwabelana koketshezi ebuchosheni okufaka ingcindezi ebuchosheni. Ukwelashwa kwalokhu kuvame ukuhilela ukufaka ipayipi elikhethekile elibizwa ngokuthi i-shunt ukuze kususwe uketshezi oluningi.
Ukuhlinzwa Kwengane Esanda Kuzalwa - Kuyini ngempela?
Ngokwesiko, lapho kuzalwa umntwana one-spina bifida, ukuhlinzwa kwenziwa zingakapheli amahora angu-48 ukuze kuvalwe inxeba elivulekile emhlane. Kodwa noma kunjalo, omunye umonakalo wemizwa kumelwe ukuba usuvele wenzekile.
Kodwa kusukela ngasekupheleni kweminyaka yama-1990, iqembu lodokotela ezibhedlela eziningana e-United States liqale ukuzama into ehlukile, into ethuthuke kakhulu. Okusho ukuthi, ngaphambi kokuba umntwana azalwe, ngesikhathi esesesibelethweni sikanina, benza ukuhlinzwa ukuze kuvalwe inxeba emhlane womntwana. Lokhu kubizwa ngokuthi 'ukuhlinzwa kwengane' noma 'ukuhlinzwa kwengane'.
Umgomo oyinhloko walokhu kuhlinzwa akukhona ukubuyisa umonakalo wezinzwa osuvele wenzeke. Lokho akunakwenziwa. Kodwa-ke, umgomo oyinhloko ukuvimba noma ukunciphisa umonakalo owengeziwe ongase wenzeke ngoba inxeba lihlala livulekile phakathi nesikhathi somntwana esibelethweni.
Cabanga nje, lezi zinzwa zonakala kakhulu ngokuchayeka ku-amniotic fluid ezungeze umntwana ngesikhathi esesibelethweni. Ngakho-ke, odokotela bakholelwa ukuthi uma lokhu kuvalwe kusenesikhathi, lowo monakalo ungancishiswa.
Lokhu akuwona 'umlingo' - ziyini izingozi nemiphumela?
Nakuba lokhu kuphakamisa amathemba amakhulu, kumelwe siqonde ukuthi lokhu akuwona 'umlingo' ozonikeza imiphumela efanayo kuwo wonke umuntu, ngaphandle kwezingozi. Lokhu ukuhlinzwa okuyinkimbinkimbi kakhulu futhi okuyingozi okusesesigabeni sokucwaninga.
Ezinye izingane zenza intuthuko emangalisayo ngemva kwalokhu kuhlinzwa. Isibonelo, uNicholas, owahlinzwa, uhamba engasizwa eneminyaka emibili futhi akadingi shunt ebuchosheni bakhe. Unina uthi ukube akazange ahlinzwe , indodana yakhe ngabe ayikaze ihambe kanje.
Nokho, akuzona zonke izindaba ezijabulisa kangaka. Enye ingane, u-'Nathan', kwadingeka ifakelwe i-shunt ebuchosheni bayo lapho inamaviki ayi-7 ubudala, kanti eneminyaka emibili ubudala ayikahambi. Kodwa-ke, ukukhula kwengqondo yayo kanye nobuhlakani bayo kusezingeni elihle ngokweminyaka yayo.
Uyabona-ke, akunjalo? Imiphumela iyahlukahluka kakhulu kumuntu nomuntu. Yingakho kufanele wazi kahle izingozi ngaphambi kokuhlinzwa.
| Izingozi ezinkulu zokuhlinzwa komntwana osanda kuzalwa | |
|---|---|
| Izingozi kumama | Izingozi ezingaba khona enganeni |
| Ukuhlinzwa kungalimaza isibeletho futhi kubangele ukopha ngokweqile. | Ukuvuthwa ngaphambi kwesikhathi. Lena ingozi enkulu kunazo zonke. Izingane eziningi zizalwa ngaphambi kwesikhathi, okungaholela kwezinye izinkinga zempilo. |
| Ukuvela kwezifo ezithathelwanayo. | Kunethuba elincane kakhulu lokuthi izinkinga ngesikhathi noma ngemva kokuhlinzwa zingalimaza ngisho nokuphila kwengane. |
| Imiphumela emibi yemithi enikezwa ukulawula ukuzalwa ngaphambi kwesikhathi. | |
| Kubaluleke kakhulu: Ngemva kwalokhu kuhlinzwa, zonke izingane zesikhathi esizayo kuzodingeka zibelethwe ngesigaba sokuhlinzwa . | |
Leso sinqumo esinzima abazali abasenzayo
Njengoba bekwazi konke lokhu, abazali basenza kanjani isinqumo esinjalo? Ake sibheke indaba kaKelly, esikhulume ngaye ngaphambilini. Lapho ezwa ekuhlolweni kwengane yakhe emavikini angu-17 ukuthi ine-spina bifida, "okwesikhashana" wacabanga ukukhipha isisu, kodwa lapho ethola ngalokhu kuhlinzwa, wanquma ukuthatha zonke izingozi futhi wakwenza lokho.
Emasontweni amabili ngemva kokuhlinzwa, izingozi zaqala ukubonakala ngempela. Isibeletho sakhe saqala ukuvuza uketshezi lwe-amniotic. Ngakho kwadingeka ahlale esibhedlela kuze kube yilapho umntwana ezalwa. Wayekwazi ukubona umyeni wakhe nendodakazi yakhe eneminyaka engu-7 kuphela ekhaya ngezimpelasonto.
Kodwa phakathi kwalo lonke lolu sizi, ulandisa indaba enamandla kakhulu. "Ngiyajabula ukuthi ngenze lokhu kuhlinzwa. Ngoba manje akudingeki ngicabange ukuthi, 'O, kuthiwani ukube ngangikwenzile lokho ngaleso sikhathi?'"
Lokhu kukhombisa ukuthi lesi yisinqumo esisuka enhliziyweni kakhulu kunesezokwelapha. Bayazi ukuthi lokhu ngeke kumenze umntwana aphile kahle ngokuphelele. Kodwa uma kungathuthukisa ikhwalithi yempilo yengane, kunciphise ukuhlupheka ebhekene nakho, labo bazali ngeke bacabange kabili ngokumnika ithuba.
Umlayezo Wokuya Nawe Ekhaya
- I-Spine Bifida iyisifo esibi kakhulu sokuzalwa, kodwa ngokunakekelwa okufanele kwezokwelapha kanye nokwelashwa ngokomzimba, ingane ingasizwa ukuba iphile impilo enhle.
- Ukuhlinzwa kombungu kuyindlela yokwelapha esezingeni eliphezulu kakhulu esesesigabeni sokucwaninga. Umgomo wayo awukona ukwelapha lesi sifo, kodwa ukunciphisa umonakalo obangelwe.
- Lokhu kuhlinzwa kuyingozi kakhulu kumama kanye nengane. Ikakhulukazi, ukubeletha ngaphambi kwesikhathi kuyingozi enkulu.
- Imiphumela yokuhlinzwa iyahlukahluka kakhulu kumuntu nomuntu. Nakuba ezinye izingane zibonisa ukuthuthuka okukhulu, akubona bonke abantu abathola imiphumela efanayo.
- Uma wena noma othile omaziyo ebhekene nalesi simo, into engcono kakhulu ongayenza ukuba nengxoxo evulekile nende nodokotela wakho. Kubalulekile ukuqonda kahle izinzuzo, izinkinga, izingozi, kanye nanoma yiziphi izinto ezikhethekile eziphathelene nawe.
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