Wake wawabona amabala abomvu, amabala, noma anombala ongajwayelekile esikhumbeni somntwana wakho ngemva nje kokuzalwa, noma ngemva kwamasonto ambalwa? Ngezinye izikhathi, njengomama, ukubona lokhu kungaba yinto eyesabekayo. Namuhla, sizokhuluma ngesimo esibangela izimpawu ezifanayo, okuyinto engavamile kancane, kodwa okubalulekile ukwazi ngayo. Lokhu kubizwa ngokuthi i-Incontinentia Pigmenti, noma i-IP ngamafuphi.
Iyini ngempela i-Incontinentia Pigmenti (IP)?
Kalula nje, lesi yisimo sofuzo. Ngenxa yokuthi sithinta kakhulu amantombazane kunabafana, sithinta kakhulu amantombazane .
I-IP ingeyeqembu lezifo ezibizwa ngokuthi "izifo ze-neurocutaneous". Cabanga nje, lokhu kusho ukuthi lesi sifo singathinta uhlelo lwethu lwezinzwa (okungukuthi, ubuchopho nezinzwa) kanye nesikhumba ngesikhathi esisodwa. Akukhona lokho kuphela, kodwa ngezinye izikhathi kungathinta namehlo, amazinyo, kanye nohlelo lwamathambo.
Lesi sifo sibonakala kakhulu ekuzalweni noma emasontweni ambalwa okuqala ngemva kokuzalwa, lapho kuvela khona amabala ahlukahlukene kanye nama-blister esikhumbeni. Lokhu kubangelwa ukuguqulwa kwezakhi zofuzo okuthiwa i-NEMO (NF-kappaB essential modulator), okulawula ukusebenza nokukhula kwamaseli ethu. Kuze kube manje, akukho ukwelashwa okuphelele kwalokhu, kodwa kunezindlela zokwelapha ezinhle zokulawula izimpawu.
Yiziphi izinguquko esikhumbeni? Kunezigaba ezine!
Izinguquko zesikhumba ku-IP zingabonakala ngezigaba ezine eziyinhloko. Kodwa khumbula, lezi zigaba akudingeki zenzeke ngokulandelana. Ngezinye izikhathi zingashintshana, futhi izigaba ezimbili noma ezintathu zingabonakala ngesikhathi esisodwa.
| Isiteji | Ukubukeka Nencazelo |
|---|---|
| Isigaba 1: I-Vesicular | Lokhu kubonakala ngokubonakala kwama-blister abomvu, agcwele amanzi emzimbeni. Lawa avame ukubonakala ezandleni nasezinyaweni. |
| Isigaba 2: I-Verrucal | Izilonda ezintsha ezifana nezinsumpa ziyavela lapho kwakukhona khona amabhamuza. |
| Isigaba 3: Ukwanda kwe-Hyperpigmentation | Lesi yisici esivelele kakhulu salesi sifo. Isikhumba sibonakala njengemigqa empunga, eluhlaza okwesibhakabhaka, noma ensundu, enemibala noma enamagagasi. Lokhu kuvame ukubonakala emzimbeni nasemalungeni. |
| Isigaba 4: Ukwehla kombala wesikhumba | Ngokuhamba kwesikhathi, lawo mabala amnyama ayanyamalala, ashiye izilonda ezikhanyayo, ezifana nezibazi eziphaphathekile kunombala wesikhumba. |
Ingabe amabala esikhumba nje? Cha, kungase kube neminye imiphumela futhi
Lesi simo asigcini nje esikhumbeni. Ezinye izingane zingase zibe nezinye izinkinga. Kodwa-ke, kufanele uqonde ukuthi akuzona zonke lezi zimpawu ezizovela kuzo zonke izingane.
Izinkinga Zezinzwa
Cishe ama-20% ezingane ezine-IP zingase zibe nezinkinga zezinzwa.
- Ukubambezeleka kokukhula kwemisipha: Isibonelo, bangase bangakwazi ukujika izintamo zabo, ukugoqa, noma ukuhamba ngesivinini esifanayo nezinye izingane.
- Ukukhubazeka kwengqondo: Izinto ezifana nokukhubazeka kokufunda.
- Ubuthakathaka bemisipha: Ukuzizwa ubuthakathaka.
- Ukuquleka: Ukuvela kwezimo ezifana nokukhubazeka.
Lokhu kungabangelwa izinto ezifana nokushwabana kwezicubu zobuchopho (i-cerebral atrophy) kanye nokwakheka kwezimbobo ezincane endabeni emhlophe yobuchopho.
Imiphumela emehlweni nasemazinyweni
- Izinkinga zamehlo: Ezinye izingane zingase zibe nezimo ezifana ne-strabismus, i-cataracts, noma ukulahlekelwa umbono okukhulu.
- Izinkinga zamazinyo: Amazinyo angekho kanye namazinyo amise okwesigxobo angabonakala.
Into ebaluleke kakhulu ukungathuki ngokushesha nje lapho ubona uphawu olufana nalolu, kodwa ukubona udokotela wezingane ukuze akunike iseluleko.
Kuphathwa kanjani lokhu?
I-IP yelashwa ngokusekelwe ezimpawini zengane. Izindlela zokwelapha ezifanele ingane ngayinye zingahluka.
| Inkinga (Izimpawu) | Indlela Yokwelapha |
|---|---|
| Amabala esikhumba nama-blister | Izindaba ezinhle ukuthi la mabala esikhumba awadingi ukwelashwa okukhethekile. Azophela ngokwawo njengoba ingane ikhula noma iba mdala. |
| Izinkinga zesimiso sezinzwa (ukuquleka, ubuthakathaka bemisipha) | Ngezinto ezinjengalezi, kufanele ubonane nodokotela wezinzwa . Ngemuva kwalokho, lezi zimo zingalawulwa ngemithi noma, uma kudingeka, ngezinye izinto zokwelapha. |
| Ukukhubazeka kokubona | Uma unezinkinga zokubona, ungabonana nodokotela wamehlo bese uthola izibuko, imithi, noma, ezimweni ezimbi kakhulu, ukuhlinzwa. |
| Izinkinga zamazinyo | Uma kunezinkinga ngesimo noma inani lamazinyo, ungacela ukwelashwa okudingekayo kudokotela wamazinyo. |
Ngakho-ke, ingabe kufanele sesabe ikusasa?
Lona umbuzo abazali abaningi abanawo. Eqinisweni, ezimweni eziningi, uma kungekho zinkinga ezinkulu ngesikhathi sobuntwana, izingane ezine-IP zingaphila impilo ejwayelekile futhi ziphile impilo enempilo ngokuphelele, evamile . Ngokuhamba kwesikhathi, lawo mabala amnyama esikhumbeni angase anyamalale, futhi angase anyamalale ngokuphelele.
Kodwa-ke, njengoba kushiwo ngaphambili, kunezingane ezinezinkinga zezinzwa noma ezinye izinkinga zomzimba. Ngakho-ke, into engcono kakhulu ongayenza ukukhuluma nodokotela wakho ngesimo sengane yakho. Ngemuva kwalokho ungathola ukuqonda okucacile kokuthi yiluphi uhlelo lwezempilo olungcono kakhulu lwengane yakho nokuthi yini okufanele uyenze ngokulandelayo.
Umlayezo Wokuya Nawe Ekhaya
- I-Incontinentia Pigmenti (IP) yisifo esingavamile esithinta kakhulu amantombazane.
- Uphawu oluyinhloko uchungechunge lwezinguquko zesikhumba (ama-blisters, amabala amabi, amabala amnyama ashwabene, namabala akhanyayo).
- Ngaphezu kwezinkinga zesikhumba, ezinye izingane zingase zibe nezinkinga ezihlobene nesimiso sezinzwa, amehlo, namazinyo.
- Amabala esikhumba avame ukunyamalala ngokuhamba kwesikhathi ngaphandle kokwelashwa.
- Iningi lezingane lingaphila impilo evamile nenempilo ngaphandle kwezinkinga ezinkulu.
- Uma ingane yakho inalezi zimpawu, kubaluleke kakhulu ukungesabi futhi ubone udokotela wezingane ukuze uthole iseluleko esifanele.
💬 Comments (0)
Awekho amazwana athunyelwe okwamanje. Faka amazwana akho lapha okokuqala ngqa.
Engeza amazwana akho