Mhlawumbe wena noma othile emndenini wakho utshelwe udokotela wakho ngomuthi omusha ongajwayelekile. Ungabizwa ngokuthi i-Olipudase Alfa (Xenpozyme). Lona akusiwo umuthi ovamile, osetshenziswa kakhulu esivame ukuzwa ngawo. Lona umuthi onikezwa isimo esithile sezokwelapha. Yingakho kuyinto evamile ukuba nemibuzo eminingi ngawo. Ungase ube nemibuzo efana nokuthi "Kuzokwenzekani ngalokhu?", "Ingabe lokhu kuphephile?", "Yiziphi izinto okufanele uziqaphele?" Ungakhathazeki, sizokhuluma ngokucacile nangokulula ngalo muthi, ukuthi wenzani, nezinto okufanele uziqaphele.
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Kwenzekani ngempela ngalo muthi?
Lo muthi usetshenziselwa ukwelapha isifo esingavamile kakhulu sofuzo. Ngokwezokwelapha, ubizwa ngokuthi i-Acid Sphingomyelinase Deficiency , noma (ASMD) ngamafuphi.
Kalula nje, abantu abane-ASMD abakhiqizi i-enzyme ekhiqizwa ngokwemvelo emizimbeni yabo. I-enzyme uhlobo lweprotheni olusiza ngezinqubo ezahlukahlukene zamakhemikhali emizimbeni yethu. Uma le enzyme ethile ingekho, uhlobo olukhethekile lwe-lipid olubizwa ngokuthi i-sphingomyelin luqala ukwakheka ezithweni ezibalulekile njengesibindi sethu, udende, namaphaphu. Cabanga ngakho njengepayipi lamanzi elivalekile ngothuli bese ekugcineni livaleka ngokuphelele.
Yilapho umuthi obizwa ngokuthi i-Olipudase Alfa usiza khona. Lo muthi okwenziwa yilo ukuhlinzeka nge-enzyme engekho emzimbeni evela ngaphandle. Lokhu kubizwa ngokuthi ukwelashwa kokufaka ama-enzyme esikhundleni . Khona-ke inani lamafutha aqongelelwa ngokungadingekile liyancipha kancane kancane, umonakalo ezithweni zomzimba uyalawulwa, futhi izimpawu ziyaphela.
Izinto okudingeka uzitshele udokotela wakho ngaphambi kokusebenzisa lo muthi
Ngaphambi kokuthi uqale ukuthatha lo muthi, kubalulekile ukwazisa udokotela wakho ngezinto ezilandelayo. Ungazifihli lezi zinto, ngoba zibaluleke kakhulu ekuphepheni kwakho.
- Uma une -allergy kulo muthi, i-Olipudase alfa, noma yimuphi omunye umuthi, ukudla, udayi noma izithasiselo ezingeziwe ekudleni.
- Uma ukhulelwe, noma ulindele umntwana maduze nje , leli yiphuzu elibaluleke kakhulu. Ake sixoxe ngalo kabanzi.
- Uma ungumama oncelisayo.
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Check Availability →Indlela yokunikeza umuthi nokuthi yini okufanele uyazi
Lo muthi unikezwa njengomjovo emthanjeni. Uma sikhuluma iqiniso, ufakwa emzimbeni ngomthambo, njengesixazululo sikasawoti. Le nqubo ivame ukwenziwa esibhedlela noma emtholampilo, ngaphansi kokuqondisa kukadokotela noma abasebenzi abaqeqeshiwe bobuhlengikazi.
Kodwa-ke, kwezinye izimo, ungase ukwazi ukuyithola ekhaya. Uma kunjalo, uzoqeqeshwa kahle ngendlela yokuyilungiselela kahle nokuthi ungayinika kanjani umjovo. Kufanele ulandele imiyalelo njengoba nje udokotela ekutshelile.
Ukulahla izinaliti kanye nesirinji
Ungalokothi uphonse izinaliti namasirinji owasebenzisa ekhaya emgqonyeni kadoti ojwayelekile . Kukhona isitsha esikhethekile sokuhlaba. Uma ungenaso, buza udokotela wakho noma isibhedlela ngaso.
Ingabe lokhu nikunikeza izingane ezincane?
Yebo, lo muthi unganikezwa izinsana nezingane ngenxa yezimo ezithile zezokwelapha. Kodwa-ke, kunezinto ezimbalwa okufanele uziqaphele. Ngakho-ke, uma unikeza ingane lo muthi, khuluma nodokotela ngawo ngokuphelele bese uchaza konke.
Yini okufanele uyenze uma umthamo wemithi ukhushuliwe?
Uma ucabanga ukuthi ususebenzise izidakamizwa ngokweqile, ungesabi futhi ngokushesha shayela iNational Poisons Information Centre eNational Hospital , noma uye e-Emergency Treatment Unit (ETU) yesibhedlela esiseduze.
Izinto ezikhethekile okufanele uziqaphele kanye nemiphumela emibi
Ngesikhathi uthatha lo muthi, udokotela wakho uzokucela ukuthi uze uzohlolwa njalo ukuze aqaphe isimo sakho. Kuzodingeka futhi enze izinto ezifana nokuhlolwa kwegazi. Kungathatha isikhathi ukuthi uzizwe izinzuzo ezigcwele zalo muthi, ngakho-ke kubalulekile ukuba nesineke ngokwelashwa kwakho.
Abanye abantu bangase babe nokusabela okukhulu kokungezwani komzimba noma ukusabela kokumpontshelwa uma benikwa lo muthi. Ukuze kuncishiswe le ngozi, udokotela wakho angakunika eminye imithi (njenge-piritan) ngaphambi kokukunikeza lo muthi. Landela imiyalelo kahle.
Ukukhulelwa kanye nokulawula ukubeletha: Leli iphuzu elibaluleke kakhulu. Ukuthatha lo muthi ngesikhathi sokukhulelwa kungabangela izinkinga ezinkulu zokuzalwa enganeni. Ngakho-ke, kubalulekile ukusebenzisa uhlobo olufanele lokulawula ukubeletha ngenkathi uthatha lo muthi kanye nezinsuku ezingu-14 ngemva kokuyeka umuthi. Khuluma nodokotela wakho ngalokhu bese ukhetha indlela engcono kakhulu kuwe.
Ithebula elingezansi libonisa izinhlobo eziyinhloko zemiphumela emibi engenzeka ngalo muthi.
| Imiphumela Engemihle Yomuthi Wokugomela i-Olipudase Alfa | |
|---|---|
| Imiphumela emibi kakhulu okufanele uyibike kudokotela wakho ngokushesha | |
| Ukusabela kwe-allergic noma i-Angioedema | Ukuqubuka kwesikhumba, ukulunywa, ukuvuvukala kobuso, amehlo, izindebe, ulimi, izandla noma izinyawo, ubunzima bokugwinya noma ukuphefumula. |
| Ukusabela kokumnika | Ubuhlungu esifubeni, ubunzima bokuphefumula, ukuquleka, ukuzizwa unesizungu. |
| Izimpawu zokulimala kwesibindi | Ubuhlungu engxenyeni engenhla kwesokudla yesisu, ukulahlekelwa yisifiso sokudla, isicanucanu, indle enombala okhanyayo, umchamo ophuzi noma onsundu omnyama, ukuphuzi kwamehlo noma isikhumba, ukukhathala okungavamile. |
| Imiphumela emibi evame ukungabi mibi kakhulu, kodwa okufanele ibikwe kudokotela uma iqhubeka | |
| Ezinye izici | Ukukhwehlela, isifo sohudo (ukuhlanza), umkhuhlane, ikhanda elibuhlungu, ubuhlungu bamalunga, isicanucanu, ukuhlanza. |
Ingabe zikhona izinkinga ngeminye imithi?
Ngokwazi kwethu, lo muthi awukabikwa ukuthi ubangela noma yikuphi ukusebenzelana okukhulu neminye imithi. Kodwa-ke, ungacabangi ukuthi kunjalo. Nikeza udokotela wakho uhlu oluphelele lwazo zonke imithi oyithathayo (kufaka phakathi amavithamini, amakhambi, kanye nezithasiselo). Futhi, qiniseka ukuthi uyamtshela udokotela wakho uma ubhema noma uphuza utshwala.
Umlayezo Wokuya Nawe Ekhaya
- I-Olipudase Alfa iyindlela ethile yokwelapha esikhundleni sama-enzyme yesifo esingavamile sofuzo esibizwa ngokuthi i-ASMD.
- Lokhu kunikezwa njengomjovo emthanjeni, ngokuvamile esibhedlela.
- Ngaphambi kokuqala ukwelashwa, tshela udokotela wakho ngakho konke ukungezwani komzimba kwakho, izinhlelo zokukhulelwa, kanye nayo yonke eminye imithi oyithathayo.
- Ngesikhathi uthatha lo muthi, qaphela izimpawu zokusabela okukhulu kokungezwani komzimba, ukusabela ngomjovo, noma ukulimala kwesibindi (isb., ukuphuzi kwesikhumba, umchamo omnyama). Tshela udokotela wakho ngokushesha uma ubona noma yiziphi zalezi zimpawu.
- Gwema ukukhulelwa ngenkathi uthatha lo muthi. Khuluma nodokotela wakho mayelana nokuvimbela inzalo okufanele.
- Landela imiyalelo kadokotela wakho ngqo futhi ube khona kuzo zonke izikhathi zokubonana ezihleliwe.
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