Ingabe ingane yakho inesifo esingavamile esinjengalesi? Ake sifunde nge-Rasmussen's Encephalitis!

Wake wezwa ngesifo esingajwayelekile esithinta uhlangothi olulodwa lobuchopho futhi siba sibi kakhulu ngokuhamba kwesikhathi? Mhlawumbe ingane yakho encane ivame ukuquleka, ubuthakathaka kolunye uhlangothi lomzimba, kanye nobunzima bokukhuluma? Kuyaqondakala ukwesaba uma uzwa ngento efana naleyo. Namuhla sizokhuluma ngesimo esingavamile kodwa esibalulekile. Sibizwa ngokuthi i-Rasmussen's Encephalitis.

Iyini i-Rasmussen's Encephalitis?

Kalula nje, i-Rasmussen's Encephalitis ukuvuvukala okuqhubekayo, okuhlala isikhathi eside kwenye yezingxenye ezimbili zobuchopho bethu, okungukuthi, kolunye uhlangothi lobuchopho . Ngokuqondile, amangqamuzana obuchopho ayavuvukala futhi abe bomvu. Lokhu kubizwa nangokuthi i-Rasmussen syndrome.

Uma uhlangothi olulodwa lobuchopho luvuvukala ngale ndlela, luqala ukubangela ukuquleka njalo. Ngokwezokwelapha, siphinde sibize lokhu ngokuthi isifo sokuwa. Lokhu akusikho nje ukuquleka, kuqala ukulimaza ubuchopho kancane kancane, futhi lowo monakalo kunzima ukuwulungisa. Ngokuhamba kwesikhathi, ukusebenza kolunye uhlangothi lomzimba kwehla uma kuqhathaniswa nohlangothi lobuchopho olonakele. Cabanga nje, lokhu kuthinte uhlangothi lwesokudla lobuchopho, bese uhlangothi lwesobunxele lomzimba lungase lulahlekelwe amandla alo, lube nobunzima bokukhuluma, futhi lulahlekelwe yinkumbulo.

Lesi sifo saqala ukutholwa ngudokotela ogama lakhe linguTheodore Rasmussen ngo-1958. Ngakho-ke, sabizwa ngokuthi i-Rasmussen encephalitis ukuze simhloniphe.

Kungavamile kangakanani lesi simo?

Empeleni lesi yisifo esingavamile kakhulu . Ngokusho kwabacwaningi, abantu ababili kuphela kwabayizinkulungwane eziyishumi abangase babe nalesi sifo. Lokho kusho ukuthi asivamile kakhulu.

Lesi sifo sithinta kakhulu izingane ezincane eziphakathi kweminyaka emi-2 neyi-10. Kodwa-ke, ngezinye izikhathi intsha kanye nabantu abadala nabo bangaba nalesi simo.

Ziyini izimpawu ze-Rasmussen's Encephalitis?

Uphawu lokuqala lwalesi sifo luvame ukuba ukulingana. Lokhu kulingana kungafika ngezindlela eziningi ezahlukene.

Izimpawu zokuqala

• Ukuquleka okukhulu, okujwayelekile kwe-tonic-clonic: Kulokhu, imisipha ezinhlangothini zombili zomzimba iyafinyela ngamandla, futhi kungase kube nokulahlekelwa ukwazi.
• Ukuquleka okuqaphelekile : Kulesi simo, uyazi ukuthi kwenzekani. Ungase uzizwe uthuthumela esandleni esisodwa noma onyaweni, noma uzizwe ungenamizwa endaweni eyodwa.
• Ukuquleka kokuqwashisa okuphazamisekile kwe-focal: Lokhu ukuquleka okuqala kolunye uhlangothi lobuchopho, okubangela ukulahlekelwa okuncane kokuqwashisa, noma ngisho nokulahlekelwa ngokuphelele kokuqwashisa.

Into ebalulekile ukuthi, uma wena noma ingane yakho ninesifo sokuwa esinjengalesi,Udinga ukubona udokotela ngokushesha okukhulu. Yilokho okufanele ukwenze nakanjani.

Enye into ukuthi ubuthakathaka obuncane engalweni noma emlenzeni wengane nakho kungaba uphawu lokuqala lwalesi sifo.

Izimpawu ezibonakala ngokuhamba kwesikhathi

Ukuquleka kokuqala kuyanda kancane kancane. Cishe ingxenye yabantu abane-Rasmussen encephalitis iba nesifo esibizwa ngokuthi `(Epilepsia Partialis Continua - EPC)`. Lokhu kusho ukuthi ukuquleka kuqhubeka imizuzwana embalwa noma imizuzu embalwa. Lokhu kuquleka kunzima kakhulu ukukulawula ngemithi ejwayelekile (ayinakwelashwa).

Izimpawu ezilandelayo ziqala ukuvela zingakapheli izinyanga ezimbalwa, noma ngisho nonyaka noma emibili, ngemva kokufakwa kokuqala:

• Ukwehla kancane kancane kwamakhono engqondo : Lokhu kusho ukuthi izinto ezifana nokucabanga, ukuqonda, kanye nenkumbulo zingase zehle.
• Ukulahlekelwa kancane kancane kokunyakaza kolunye uhlangothi lomzimba (hemiparesis): Isibonelo, ingalo yesokudla nomlenze wesokudla kungase kube ndikindiki. Ngokuhamba kwesikhathi, lokhu kungaqhubekela phambili ekukhubazekeni okuphelele (hemiplegia).
• I-Aphasia : Lokhu kwenzeka lapho lesi sifo sithinta uhlangothi lobuchopho olunesibopho sokukhuluma (ngokuvamile uhlangothi lwesobunxele).
• Ukulahlekelwa umbono ngokuphelele ohlangothini olulodwa (i-hemianopsia): Kufana nokulahlekelwa umbono ohlangothini olulodwa lweso.

Kwabaningi, izinyanga zokuqala ezingu-8 kuya kwezingu-12 ngemva kokuqala kwe-Rasmussen encephalitis yizona ezimbi kakhulu . Ngemva kwalokho, lesi sifo singase sibonakale sehla noma siphela. Kodwa-ke, umonakalo ebuchosheni uhlala unomphela futhi awunakuguqulwa.

Iyini imbangela yalokhu?

Uma sikhuluma iqiniso, ososayensi abakakazi kahle ukuthi yini ebangela i-Rasmussen encephalitis . Kodwa banemibono emibili eyinhloko:

1. Isifo sokuzivikela komzimba : Yilapho isimiso sethu somzimba sokuzivikela komzimba, uhlelo olusivikela ezifweni, sihlasela ngephutha amangqamuzana ethu amahle. Ngakho-ke, i-Rasmussen encephalitis kucatshangwa ukuthi iyisifo esifanayo sokuzivikela komzimba esihlasela uhlangothi olulodwa lobuchopho.

2. Ukutheleleka : Kungenzeka ukuthi igciwane elingaziwa lingene ebuchosheni bese libangela lesi simo. Kodwa-ke, abacwaningi bahlole ubuchopho babantu abake baba nalesi sifo, kodwa abakakayitholi igciwane elithile.

Lesi sifo sitholakala kanjani? (Ukuxilongwa)

Odokotela baxilonga i-Rasmussen encephalitis ngokusekelwe ezimpawini zengane yakho kanye nemiphumela yokuhlolwa okukhethekile okuningana.

• Ukuskena kwe-MRI (I-Magnetic Resonance Imaging - i-MRI): Lokhu kungabonisa ukuthi izicubu zobuchopho ohlangothini olulodwa lobuchopho bengane ziye zaphela noma zancipha. Uma uhlangothi olulodwa lobuchopho luphela kancane kancane ezinyangeni noma eminyakeni embalwa, kuyisibonakaliso esikhulu salesi sifo.
• Ukuhlolwa kwe-EEGI-Electroencephalography (EEG): Lokhu kungasiza futhi ekuxilongeni lesi simo. Ukuhlolwa kwe-EEG kuqopha umsebenzi kagesi ebuchosheni. Lokhu kungasiza ekunqumeni ukuthi ukuquleka kwenzeka kanjani nokuthi ubuchopho busebenza ngendlela engajwayelekile yini.

Ngakho-ke, odokotela baqinisekisa i-Rasmussen encephalitis ngokuhlanganisa izimpawu kanye nokutholakele kokuskena, njengokuwohloka kohlangothi olulodwa lobuchopho .

Yiziphi izindlela zokwelapha i-Rasmussen's Encephalitis?

Ngeshwa, akukabikho ikhambi le-Rasmussen encephalitis, ngakho-ke umgomo oyinhloko wokwelapha ukulawula izimpawu nokunciphisa ukuvuvukala ebuchosheni.

Lokhu okulandelayo kungenziwa njengokwelashwa:

Imithi yokulwa nokuquleka

Le mithi ingase ingakuvimbi ngokuphelele ukuxhuzula okubangelwa yi-Rasmussen encephalitis. Kodwa-ke, ingasiza ekunciphiseni ukuvama kanye nobukhali bokuxhuzula .

Ukwelashwa nge-immunotherapy

Ukwelashwa nge-immunotherapy, okuhilela ukunikeza imithi eshintsha ukusebenza kwesimiso sokuzivikela komzimba, kungasiza ekulawuleni ukuhlaselwa futhi kunciphise umonakalo ebuchosheni obuvela ohlelweni lokuzivikela komzimba ekuqaleni kwesifo.

Ukuhlinzwa kobuchopho

Indlela ephumelela kakhulu yokulawula ukufana kwe-Rasmussen encephalitis ukuhlinzwa kobuchopho . Lokhu kubizwa ngokuthi i-hemispherectomy. Lokhu kuhlinzwa kuhilela ukuhlukanisa ingxenye ethintekile yobuchopho bengane, okungukuthi, ukuhlukanisa lolo hlangothi lobuchopho kolunye uhlangothi, noma ukulususa ngokuphelele.

Ezimweni eziningi, izingane ezenza lokhu kuhlinzwa sezivele zilahlekelwe kakhulu ukusebenza kobuchopho ohlangothini oluthintekile. Ngakho-ke, ingozi yokulahlekelwa ukusebenza okwengeziwe ngemva kokuhlinzwa iphansi. Odokotela bacabangela ukuhlinzwa kuphela uma izinzuzo zidlula kakhulu izingozi .

Liyini ikusasa lalesi sifo? (Isibikezelo)

Isibikezelo se-Rasmussen encephalitis singahlukahluka kumuntu nomuntu . Kwabanye abantu, lesi sifo singase siyeke ukusabalala ngemva kokuhlinzwa futhi ukuvama kokuquleka kungase kuzinze.

Kodwa-ke, abantu abaningi bangase basale bekhubazekile, belahlekelwe ukuhlakanipha kanye nenkumbulo, kanye nobunzima bokukhuluma. Akuvamile kakhulu ukuthi lesi sifo sisabalale siye kwezinye izingxenye zobuchopho.

Ingabe i-Rasmussen's Encephalitis ingavinjelwa?

Ngenxa yokuthi i-Rasmussen encephalitis iyisifo esingavamile kakhulu futhi imbangela eqondile ayaziwa, akukho esingakwenza ukuyivimbela .

Ngenxa yokuthi kuyisimo esingavamile, kunzima kososayensi ukusicwaninga. Kodwa izindaba ezinhle ukuthi kunezindlela zokwelapha ezitholakalayo ezingasiza ekulawuleni ukuquleka nezinye izimpawu. Kungase kube nezivivinyo zemitholampilo ingane yakho engahlanganyela kuzo. Kuvamile ukuzizwa ukhungathekile uma uthola ukuxilongwa okufana nalokhu. Kodwa khumbula, ithimba lezokwelapha lengane yakho lilapha ukuzokusiza wena nengane yakho ngazo zonke izindlela ezingenzeka .

Masikhumbule (Umyalezo Wokuya Ekhaya)

I-Rasmussen's Encephalitis iyisifo sobuchopho esingavamile kakhulu, kodwa esingaba yingozi kakhulu.

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* Kulesi simo, ukuvuvukala kwenzeka ohlangothini olulodwa lobuchopho, okubangela ukuquleka njalo, ukukhubazeka kolunye uhlangothi lomzimba, kanye nobunzima bokukhuluma.

* Izingane ezincane yizo ezithinteka kakhulu.

* Uma ubona izimpawu, bona udokotela ngokushesha.

* Ukwelashwa kungalawula izimpawu.

* Awuwedwa ngesikhathi esinjengalesi, cela usizo kodokotela nakubantu abaseduze nawe.

Ngiyethemba ukuthi lolu lwazi luzokusiza. Uma unemibuzo, ungangabazi ukukhuluma nodokotela.

I- Rasmussen encephalitis, isifo sobuchopho, isifo sokuwa, ukuqina komzimba, izingane, ukuvuvukala kobuchopho, izifo zezinzwa