Ingabe ingane yakho encane ivame ukuba nekhala eligobhozayo? Ayikwazi ukubona umzimba wayo ngemva kokudla? Ingabe yenza umsindo wokukhala uma iphefumula? Lokhu kungaba izimpawu zomkhuhlane ovamile, kodwa ngezinye izikhathi kungaba khona into engathi sína kakhulu ngemuva kwawo. Njengomama, kungokwemvelo ukuthi ukhathazeke ngalezi zinto. Namuhla, sizokhuluma ngesimo esingavamile kodwa esibalulekile kanye nokuhlolwa okukhethekile okungasetshenziswa ukusixilonga.
Okokuqala, ake sibone, iyini i-cystic fibrosis?
Kalula nje, i-Cystic Fibrosis (CF) yisimo sezakhi zofuzo esidluliselwa ngezakhi zofuzo zethu, okusho ukuthi sizuzwe njengefa kusukela ekuzalweni. Akusona isifo esithelelanayo. Amafinyila kanye nokunye ukukhishwa okukhiqizwa umuntu onalesi sifo kukhulu kakhulu futhi kunamathela kakhulu kunalokho okukhiqizwa umuntu ojwayelekile.
Cabanga ngakho, izindonga zamapayipi (njengamapayipi) emizimbeni yethu zivame ukuba nongqimba oluncane nolushelelayo lwe-mucus. Yilokhu okugcina izitho zethu zimanzi, zihlanzekile, futhi ziphephile. Kodwa kumuntu one-CF, le mucus iba nkulu, inamathele, futhi ibe yi-gummy. Le mucus ekhuluphele iqala ukuvimba amapayipi kanye nezindlela zokuhamba, ikakhulukazi emaphashini nasesimisweni sokugaya ukudla (ikakhulukazi i-pancreas).
Lokhu kungaholela ekubunzimeni bokuphefumula, ekuthelelekeni njalo kwamaphaphu, kanye nokunye ukuntuleka kokudla okunempilo ngoba umzimba awumunci ukudla okudlayo ngendlela efanele. Ngaphezu kwamaphaphu kanye ne-pancreas, lesi simo singathinta nesibindi, ama-sinuses, amathumbu, kanye nezitho zokuzala.
I-CF yisifo esingamahlalakhona. Lokhu kusho ukuthi ayinakwelapheka ngokuphelele, kodwa ngokwelashwa nokuphathwa okufanele, izimpawu zingalawulwa futhi abantu bangaphila impilo evamile. Futhi kuyisimo esiqhubekayo lapho izimpawu ziba zimbi kancane kancane ngokuhamba kwesikhathi.
Yiziphi izimpawu zomntwana one-CF?
Ingane ene-CF ingase ibonise eyodwa noma ngaphezulu yalezi zimpawu ngesikhathi esisodwa. Qaphela lezi zimpawu enganeni yakho. Kodwa khumbula, akuwona wonke umntwana onalezi zimpawu one-CF. Kodwa kubalulekile ukuzazi.
| Isibonakaliso | Incazelo Elula |
|---|---|
| Ukwehluleka ukuchuma | Ngisho noma umntwana ephuza ubisi oluningi futhi edla kahle, mncane futhi akakhuluphele ngendlela efanele iminyaka yakhe. Isizathu salokhu ukuthi imigudu ye-pancreatic ivinjiwe yi-mucus, okuvimbela ama-enzyme adingekayo ekugayeni ukudla ukuthi angafiki emathunjini. |
| Indle ekhululekile noma enamafutha | Indle ingase ibe mhlophe, ibe nephunga elibi, futhi ibonakale inamafutha. Lokhu kungenxa yokuthi amafutha avela ekudleni akhishwa engagayiwe. |
| Ubunzima bokuphefumula kanye nokuphefumula njalo | Uketshezi olujiyile lubhajwa emaphashini, okwenza kube nzima ukuphefumula. Uma uphefumula, ikakhulukazi uma ukhipha umoya, uzwa umsindo wokukhala uphuma esifubeni sakho. |
| Ukutheleleka kwamaphaphu okuvamile | Ngenxa yokuthi amabhaktheriya akhula kalula kuma-mucus ajiyile, izifo ezifana ne-pneumonia noma i-bronchitis zivame ukuvela. |
| Ukukhwehlela okungeke kuphele | Kungase kube nokukhwehlela okuqhubekayo, okunobuhlungu njengoba umzimba uzama ukususa ulwelwesi olunamathele emaphashini. |
| Ukuzwa ukunambitheka okunosawoti esikhumbeni sengane | Lesi yisici esikhethekile kakhulu. Abazali bathi uma beqabula ingane yabo, izwa ukunambitheka okunosawoti esikhumbeni sayo. Sizoxoxa ngesizathu salokhu ngokulandelayo. |
Odokotela basithola kanjani lesi sifo? - Ukuhlolwa Kokujuluka
Uma ingane inezimpawu ezingenhla, udokotela angase akusole lokhu futhi ancome ukuhlolwa okuningana. Lokhu kufaka phakathi ukuhlolwa kofuzo kanye ne-X-ray yesifuba. Kodwa-ke, ukuhlolwa okubaluleke kakhulu ukuqinisekisa ukutholakala kwe-CF ukuhlolwa kokujuluka.
Lokhu kulula kakhulu ukukwenza. Kalula nje, izithukuthuku zethu ziqukethe usawoti. Losawoti wenziwe nge-chloride.kanye ne-sodium. Ngenxa yokuthi i-chloride ayingeni futhi ayiphumi emangqamuzaneni omuntu one-CF kahle, izithukuthuku zakhe ziqukethe i-chloride eningi kakhulu kunomuntu ojwayelekile. Ukuhlolwa kwezithukuthuku kulinganisa inani le-chloride.
Ukuhlolwa kokujuluka kwenziwa kanjani? Ingabe kuzolimaza ingane?
Njengomama, kuyinto evamile ukuba ube nalo mbuzo. Kodwa asikho isizathu sokwesaba. Lokhu akulona neze isivivinyo esibuhlungu.
Lokhu kuhlolwa kungenziwa kunoma ubani wanoma yimuphi ubudala. Kodwa-ke, izinsana ezisanda kuzalwa zingase zingakwazi ukukhiqiza umjuluko owanele wokuhlolwa ezinsukwini zokuqala ezimbalwa zokuphila. Ngakho-ke, lokhu kuhlolwa kuvame ukwenziwa lapho umntwana enamasonto amabili kuya kwamane ubudala.
Nansi indlela yokuhlola eyenziwa ngayo:
1. Okokuqala, ilungu labasebenzi bezokwelapha lizohlanza kahle indawo encane engalweni noma emlenzeni wengane (ngokuvamile ebunzini).
2. Ngemuva kwalokho, ijeli equkethe ikhemikhali ebizwa ngokuthi i-pilocarpine ifakwa endaweni, bese kubekwa i-electrode encane phezu kwayo.
3. Manje kunikezwa ukuvuselelwa kukagesi okuncane kakhulu, okungabonakali kahle ngale electrode. Ungakhathazeki, lokhu akusebenzisi izinaliti, futhi ngeke kulimaze ingane nganoma iyiphi indlela. Ungase uzizwe umuzwa omncane wokukitaza. Lokhu kuvuselela izindlala zokujuluka futhi kusheshise ukukhiqizwa kokujuluka.
4. Ngemva kwemizuzu embalwa, indawo iyahlanzwa bese kufakwa idivayisi ekhethekile (njenge-coil yepulasitiki) eqoqa umjuluko bese iboshwa.
5. Uma ingane idlala cishe imizuzu engama-30, inani elidingekayo lomjuluko liyangezwa kulokhu.
6. Isampula yokujuluka eqoqwe ithunyelwa elabhorethri ukuze kulinganiswe inani le-chloride.
Uthini umbiko wokuhlolwa?
Uma umbiko wokuhlolwa usutholiwe, udokotela anganquma ukuthi ingane ine-CF noma cha ngokusekelwe kumanani. Amanani alinganiswa ngamayunithi abizwa ngokuthi `mmol/L` (ama-millimole ngelitha).
Khumbula, udokotela wakho kuphela ongachaza le miphumela futhi akunikeze iseluleko sokuthi yini okufanele uyenze ngokulandelayo. Ngakho-ke ungesabi futhi wenze izinqumo ngokusekelwe ezinombolweni ezisembikweni.
| Izinga le-Chloride | Kusho ukuthini lokho? (Kusho ukuthini lokho) |
|---|---|
| Uma kungaphezu kuka-60 mmol/L | Kungenzeka ukuthi ingane ine-CF. Udokotela angase acele ukuhlolwa okwengeziwe ukuqinisekisa lokhu. |
| Uma kungaphansi kuka-40 mmol/L | Ingane ayinayo i-CF. Udokotela uzobheka ezinye izimbangela zezimpawu. |
| Phakathi kuka-40 no-60 mmol/L | Lona umphumela ophakathi nendawo. Kungase kudingeke uphinde ukuhlolwa. Udokotela wakho angase futhi ancome ukuhlolwa okwengeziwe ukuze abheke izinhlobo ze-CF ezingavamile. |
Ungayilungiselela kanjani ingane ukuhlolwa?
Lena yingxenye elula kakhulu. Lokhu kuhlolwa akudingi noma yikuphi ukulungiselela okukhethekile.
- Asikho isidingo sokushintsha ukudla kwengane yakho, imithi, noma imisebenzi yayo ngaphambi kokuhlolwa. Ungaqhubeka nosuku lwakho njengokujwayelekile.
- Into ebaluleke kakhulu ukungafaki noma yimaphi amakhrimu noma ama-lotion emzimbeni wengane yakho ngosuku olwandulela ukuhlolwa. Ikakhulukazi hhayi engalweni noma emlenzeni ohlolwayo. Lokhu kungathinta imiphumela yokuhlolwa.
Uma ingane yakho inalezi zimpawu, ungesabi noma ukhathazeke, kodwa bona udokotela ofanelekayo ngokushesha ngangokunokwenzeka ukuze akunike iseluleko. Uma lesi sifo sisheshe sitholakale, amathuba okuqala ukwelashwa nokunikeza ingane impilo enempilo ayanda.
Umlayezo Wokuya Nawe Ekhaya
- I-cystic fibrosis yisifo esibangelwa izakhi zofuzo esizuzwa kusukela ekuzalweni futhi sibangela ukuqina kolwelwesi lomzimba, okuthinta izitho ezifana namaphaphu kanye ne-pancreas.
- Kubaluleke kakhulu ukubona udokotela uma ingane yakho inezimpawu ezifana nokungakhuli, ukuminyana kwesifuba njalo, ubunzima bokuphefumula, kanye nendle enamafutha.
- Ukuhlolwa kokujuluka kuyindlela ebaluleke kakhulu, engenabuhlungu, futhi ephephile yokuhlola lesi sifo.
- Lokhu kuhlolwa kulinganisa inani le-chloride (usawoti) ekujulukeni. Izingane ezine-CF zinamazinga aphezulu kakhulu e-chloride ekujulukeni kwazo.
- Ungesabi ngemiphumela yokuhlolwa, khuluma nodokotela wakho njalo ukuze uthole ukuqonda okucacile.
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