Ingabe iminwe yengane yakho imfushane noma ihlangene? Ake sixoxe nge-Symbrachydactyly.

O, ingabe ingane yakho yazalwa ineminwe emifushane noma ehlanganisiwe? Kujwayelekile ngawe njengomama ukuzizwa udabuke kakhulu futhi wesaba uma ubona lokhu. Ngokwezokwelapha lesi simo sisibiza ngokuthi `(Symbrachydactyly)`. Nakuba igama lingase lizwakale lingavamile, uma usukwazi kahle, ukwesaba kwakho kuzoncipha kakhulu. Ake sixoxe ngalokhu ngokuningiliziwe, akunjalo?

Kuyini lokhu (nge-Symbrachydactyly)? Masikuqonde kalula!

Kalula nje, `(Symbrachydactyly)` yisimo esiba khona lapho kuzalwa . Lokhu kwenzeka lapho iminwe yengane (futhi ngezinye izikhathi izinzwane, kodwa ngokuvamile izandla) ingakhuli kahle. Lokhu kusho ukuthi iminwe ingaba mifushane kunokujwayelekile, noma iminwe emibili noma emithathu ingahlanganiswa ndawonye, ​​noma ngezinye izikhathi eminye iminwe ingase ingabi khona nhlobo. Lokhu kungathinta ukubukeka kwesandla kanye nomsebenzi waso.

Cabanga nje ukuthi zingaki izinto iminwe yethu emihlanu esiza ngazo. Ukubamba into encane, ukubhala, ukudla, konke. Ngakho-ke, ingane ezelwe nalesi simo ingase ikuthole kunzima ukwenza lezo zinto. Kodwa ungakhathazeki, ngezokwelapha ezithuthukisiwe ezitholakala namuhla, lesi simo singalungiswa kakhulu.

Sivame kangakanani lesi simo (Symbrachydactyly)?

Empeleni lesi yisimo esingavamile kakhulu . Emhlabeni wonke, cishe ingane eyodwa kwezingu-32,000 ezizalwa minyaka yonke ithintwa yilesi simo (Symbrachydactyly). Ngakho-ke, lokhu akuyona inkinga yakho kuphela, futhi futhi akuvamile kakhulu.

I-Symbrachydactyly ithinta kanjani umzimba womntwana?

Umphumela oyinhloko ukhona ekusebenzeni nasekubukekeni kwesandla . Ngenxa yeziphambeko eminweni, kungaba nzima kancane ngengane ukubamba izinto nokwenza umsebenzi wezandla. Futhi, ukubukeka kwesandla kungase kuhluke kwesandla esivamile.

Kodwa kubalulekile ukuqaphela ukuthi isikhathi esiningi lesi simo sithinta isandla esisodwa kuphela (`(Unilateral)`) . Akuvamile ukuthi sithinte izandla zombili.

Odokotela bahlukanisa lesi simo (Symbrachydactyly) ngezinhlobo ezine eziyinhloko. Ake sixoxe kancane ngalezo zinhlobo.

Yiziphi izinhlobo eziyinhloko ze-Symbrachydactyly?

Lokhu kuhlukaniswa kusekelwe kuhlobo lomthelela eminweni.

1. Ukuhambisana kweminwe emifushane (Uhlobo 1):

Kulolu hlobo, umntwana angaba nesithupha kanye neminwe emine. Kodwa-ke, le minwe imfushane kunejwayelekile . Amanye amathambo asemajoyintini eminwe (`(Phalanges)`) nawo angase angabi khona.

2. Thayipha ngeminwe engekho (`(Oligodacylic symbrachydactyly - Uhlobo 2)`):

Kulesi simo, umntwana angase abe nesithupha nomunwe omncane opinki, kodwa umunwe ophakathi phakathi kwabo ungase ungabi khona noma ungakhuli kahle . Ngezinye izikhathi lokhu kungabukeka "njengesandla esiqhekekile esingavamile".

3.I-monodactyly symbrachydactyly (Uhlobo 3):

Njengoba igama lisho, kulolu hlobo lwesimo, umntwana unomunwe owodwa kuphela okhule ngokugcwele (ngokuvamile isithupha) . Eminye iminwe emine ingaba yizigaxa ezincane (`(Izinsalela noma ama-nubbin)`) noma izingxenye ezikhule kancane. Lokhu kusho ukuthi izinto ezifana namathambo nemisipha azakhekanga kahle.

4. Thayipha ngaphandle kweminwe (`(I-Peromelic symbrachydactyly - Uhlobo 4)`):

Lesi yisimo esinzima kakhulu. Kulesi simo , isithupha noma eminye iminwe ngeke kuthinteke .

Kungakhathaliseki ukuthi ingane yakho inaluphi uhlobo, odokotela bazoyixilonga lapho izalwa. Cishe bazokudlulisela kudokotela ohlinzayo wezandla wezingane .

Ziyini izimpawu ze-(Symbrachydactyly)?

Uphawu olulodwa noluyinhloko lwalesi simo ukuthi iminwe yengane ifinyeziwe, ihlanganiswe ndawonye, ​​noma ingekho lapho izalwa . Lokhu kuvame ukubonakala kolunye uhlangothi.

Ngenxa yalokhu kukhubazeka kweminwe, kungase kube nokuphazamiseka kwezicubu ezilandelayo ezingaphansi:

• Amathambo (`(Amathambo)`)
• Imisipha (`(Imisipha)`)
• Ama-Ligaments
• Ama-Tendon
• Imizwa (`(Imizwa)`)

Yini ebangela i-Symbrachydactyly?

Eqinisweni, imbangela eqondile ye-`(Symbrachydactyly)` ayikatholakali okwamanje. Abanye ochwepheshe bakholelwa ukuthi kungenzeka ukuthi ibangelwa yisimo esibizwa ngokuthi `(Vascular dysgenesis)` esiphazamisa ukuphakelwa kwegazi ezandleni zomntwana ngesikhathi umntwana esakhula esibelethweni. Lokhu kusho ukuthi lapho ukugeleza kwegazi kungalungile, izingxenye zezandla azikhuli kahle.

Into ebalulekile ukuthi lokhu akuyona inkinga yofuzo noma inkinga yofuzo. Lokhu kusho ukuthi ingane ingaba nayo noma ngabe akekho kubazali owayenayo, futhi umuntu onale nkinga ngeke ayidlulisele ezinganeni zakhe. Lokhu kuyinto eyenzeka ngokungahleliwe. Ngakho-ke, ungakhathazeki futhi ucabange, "Ingabe yiphutha lami?"

Indlela yokuxilonga (i-Symbrachydactyly)?

Esikhathini esiningi, odokotela bangakwazi ukuxilonga lesi simo ngokushesha nje lapho umntwana ezalwa . Bangabona ukuthi ``yi-Symbrachydactyly`` nokuthi, uma kunjalo, uhlobo luni, ngokubheka izinguquko ezandleni zomntwana.

Ngezinye izikhathi, lesi simo singatholakala kusenesikhathi ngesikhathi sokuhlolwa kwe-ultrasound (`(i-ultrasound yangaphambi kokubeletha)`) okuthola ngesikhathi sokukhulelwa.

Ngaphambi kokuba ukwelashwa kuqale, kungenziwa i-X-ray ukuhlola isimo samathambo angaphakathi kwesandla somntwana.

Yiziphi izindlela zokwelapha (i-Symbrachydactyly)?

Ezimweni eziningi, ukwelashwa okuyinhloko kwe-Symbrachydactyly ukuhlinzwa.Kodwa-ke, akuwona wonke umntwana odinga ukuhlinzwa, futhi uhlobo lokuhlinzwa oludingekayo luyahlukahluka kuye ngosana, kuye ngohlobo lwesimo.

Ukwelashwa ngokuhlinzwa

Ngokuvamile, odokotela abancomi ukuhlinzwa kuze kube yilapho ingane isinonyaka owodwa noma emibili ubudala , ngoba ngaleso sikhathi, izicubu zomntwana sezikhule kancane futhi sezikwazi ukumelana nokuhlinzwa.

Umgomo oyinhloko wokuhlinzwa ukubuyisela isandla somntwana ekusebenzeni nasekubukekeni kwaso okuvamile . Ngezinye izikhathi, ukuhlinzwa okukodwa kungase kungabi ngokwanele, futhi kungase kudingeke ukuhlinzwa kaningi.

Ngesikhathi sokuhlinzwa, odokotela bangase basebenzise izimbobo zesikhumba noma ezinye izicubu ezivela esandleni ukuvala izikhala phakathi kweminwe, noma ukuzama ukuhlukanisa iminwe. Lokhu kwenza kube lula ngengane ukubamba izinto nokusebenzisa izandla zayo.

Kwezinye izimo ezinzima, ikakhulukazi lapho iminwe ingekho nhlobo, kukhona nendlela ebizwa ngokuthi "ukudluliselwa kwenzwane" lapho uzwane luthathwa onyaweni lomntwana bese lufakwa esandleni . Uma uzwa lokhu, ungase wesabe, "O, kuzokwenzekani emlenzeni?" Kodwa, ungesabi. Ngisho noma uzwane lususwa onyaweni ngale ndlela, umntwana ngeke abe nobunzima bokuma, ukuhamba, ukugijima, noma ukugxuma. Kodwa-ke, ukusebenza kwesandla kuzothuthuka kakhulu.

Udokotela ohlinzayo uzokuchazela ngokuningiliziwe ukuthi hlobo luni lokuhlinzwa ingane yakho edingayo nokuthi yini ongayilindela ngemva kwalokho. Ezimweni ezinjalo, kubaluleke kakhulu ukwelapha ingane kusenesikhathi, ngaphambi kokuba ikhule ngokugcwele.

Ukwelashwa okungekona ukuhlinzwa

Ezinye izingane ziyazuza futhi ekwelashweni okungadingi ukuhlinzwa ngaphambi noma ngemva kokuhlinzwa.

• Ukugqoka i-brace noma i-splint: Ukugqoka lokhu kungasiza ekwandiseni nasekuqiniseni iminwe esandleni sakho.
• I-Prosthesis: Abanye abantwana bangasebenzisa ingalo yokufakelwa ukuze babasize babambe izinto futhi benze imisebenzi.
• Ukwelashwa ngokomzimba: Ngemva kokuhlinzwa, ukwelashwa ngokomzimba kubaluleke kakhulu ukufundisa ingane yakho ukusebenzisa isandla sayo ngangokunokwenzeka. Lokhu kuqinisa imisipha esandleni futhi kwandisa ububanzi bokunyakaza.

Khuluma nodokotela wakho ukuze unqume ukuthi yikuphi ukwelashwa okungcono kakhulu enganeni yakho.

Kuthatha isikhathi esingakanani ukululama ekuhlinzweni (kwe-Symbrachydactyly)?

Lokhu kuncike kakhulu ohlotsheni lokuhlinzwa ingane yakho eye yakwenza. Udokotela wakho noma udokotela ohlinzayo uzokunikeza imiyalelo yokuthi ungayinakekela kanjani isandla sengane yakho ngemva kokuhlinzwa. Kubaluleke kakhulu ukulandela leyo miyalelo ngqo.

Ngingakuvimbela kanjani i-Symbrachydactyly?

Ngempela, akukho ongakwenza ukuvimbela lesi simo (Symbrachydactyly) ukuthi singenzeki ngesikhathi sokukhulelwa kwakho. Ngoba, njengoba sesixoxile ngaphambili, akukho sizathu esithile esitholiwe saso.

Kodwa-ke, ngokuvamile, kunezinto ezithile ezandisa ingozi yokukhubazeka kokuzalwa. Kungcono ukugwema lezi zinto ngesikhathi sokukhulelwa:

• Ukuphuza utshwala.
• Ukubhema noma ukusebenzisa eminye imikhiqizo kagwayi.
• Ukusetshenziswa kwezidakamizwa ukuze uzijabulise.

Khuluma nodokotela wakho ukuze uthole iseluleko ngalokho okufanele ukudle noma ukuphuze ngesikhathi sokukhulelwa.

Uma ingane yami ine-Symbrachydactyly, yini okufanele ngiyilindele?

Ngisho noma ingane yakho itholakale ine-`(Symbrachydactyly)` lesi simo ngeke sithinte ukukhula okuvamile kwengane noma intuthuko yengqondo . Lokho kusho ukuthi, ingane yakho izokhula kahle futhi ijabule njengabanye abantwana.

Kodwa-ke, uma kutholakala esinye isici sokuzalwa noma isimo sezokwelapha kanye ne-Symbrachydactyly, ingane yakho ingadinga ukwelashwa noma ukunakekelwa okunye. Udokotela wakho uzokuchazela lokhu.

Kufanele ngimbone nini udokotela?

Uma ubona noma yiziphi izinguquko ezandleni zengane yakho, khuluma nodokotela wakho ngakho. Ikakhulukazi uma ike yahlinzwa, bheka noma yiziphi izimpawu ezilandelayo endaweni yokuhlinzwa:

• Ukopha.
• Ukushintsha kombala (ukuluhlaza okwesibhakabhaka, ukubomvu).
• Ukuvuvukala.
• Ukukhishwa kobomvu noma olunye uketshezi.
• Uma umntwana ebonakala ezwa ubuhlungu noma engaphumuli ngendlela engavamile.

Uma ubona into efana nale, bona udokotela ngokushesha.

Yimiphi imibuzo okufanele ngiyibuze udokotela?

Buza udokotela wakho nganoma yimiphi imibuzo noma ukukhathazeka ongase ube nakho. Isibonelo:

• Hlobo luni lwe-Symbrachydactyly ingane yami enalo?
• Hlobo luni lokuhlinzwa aludingayo?
• Kuzodinga ukuhlinzwa okungaki?
• Kufanele ahlinzwe eneminyaka emingaki?
• Ingabe ingane yami izodinga ukwelashwa ngokomzimba noma ezinye izindlela zokwelapha ezingadingi ukuhlinzwa?

Kubaluleke kakhulu kuwe kanye nomntwana wakho ukubuza imibuzo efana nale futhi niqonde konke ngokucacile.

Okokugcina, izinto okufanele uzikhumbule (Umyalezo Wokuya Ekhaya)

I-Symbrachydactyly yisimo lapho iminwe yengane ifinyezwa khona noma ihlanganiswa ndawonye lapho izalwa. Lokhu kungathinta ikhono lengane lokusebenzisa izandla zayo impilo yayo yonke. Kodwa-ke, ukuzalwa unokukhubazeka kwesandla akusho ukuthi ingane yakho ngeke ijabule futhi iphile kahle.

Ukuhlinzwa kuvame ukudingwa ukuze kuthuthukiswe ukusebenza kwesandla. Ngemva kwalokho, izinto ezifana nokwelashwa ngokomzimba zingase zidingeke ukuze kuthuthukiswe ukusebenza kwesandla. Kodwa-ke, lesi simo `(Symbrachydactyly)` asithinti ukukhula noma ukukhula kwengqondo kwanoma iyiphi enye ingxenye yomzimba womntwana.

Ingane yakho izofunda ukubhekana nomhlaba ngendlela yayo, njenganoma yimuphi omunye umntwana. Uthando lwakho, ukwesekwa kwakho, kanye nesikhuthazo sakho yikona okubaluleke kakhulu kuyo.

Uma ufuna ukwazi okwengeziwe ngalokhu, ungesabi ukukhuluma nodokotela wakho. Bazokusiza kuzo zonke izinyathelo.

'I-Symbrachydactyly, ukukhubazeka kokuzalwa, ukukhubazeka kwezandla, ukugoba iminwe, ukugoba iminwe, impilo yengane, ukuhlinzwa