Awukwazi ukulawula amehlo akho kahle kanti olunye uhlangothi lomzimba wakho lukhubazekile? Ake sixoxe nge-Weber Syndrome

Wake wacabanga ukuthi ungalahlekelwa ukulawula amehlo akho ngokuzumayo bese ngesikhathi esifanayo ulahlekelwa yilungu noma umlenze ngakolunye uhlangothi lomzimba wakho? Empeleni lokhu kuyinto eyesabekayo futhi enzima ukuyicabanga, kodwa yisimo okufanele sibhekane naso ngezinye izikhathi empilweni yethu. Namuhla sizokhuluma ngesimo esingavamile okubaluleke kakhulu ukuthi wonke umuntu asiqaphele. Yilokhu odokotela abakubiza ngokuthi i-Weber Syndrome .

Iyini ngempela i-Weber Syndrome?

Kalula nje, i-Weber Syndrome yisimo esibangelwa ukulimala kobuchopho bakho. Ubuchopho obuphakathi buyibhuloho elibalulekile elithwala imiyalezo esuka ebuchosheni bakho iye emgogodleni wakho. Yingxenye yesiqu sakho sobuchopho ephezu kobuchopho bakho. Izinzwa ezimbili ezibalulekile ze-cranial ezilawula izinto ezifana nokuhambisa amehlo akho nokuphakamisa amehlo akho —i-oculomotor nerve kanye ne-trochlear nerve —ziqala ebuchosheni obuphakathi.

Ngakho-ke, uma lobuchopho obuphakathi bonakalisiwe nganoma iyiphi indlela, uzoba ne -hemiplegia , okusho ukuthi uzolahlekelwa ukulawula uhlangothi olulodwa lomzimba wakho. Ngesikhathi esifanayo, uzoba nezinkinga ngeso kanye nokubona ngakolunye uhlangothi. Yilokhu okubonakala kakhulu ku-Weber Syndrome. Lokhu kubhekwa njengesimo esingavamile kakhulu .

Imbangela evame kakhulu yokulimala kobuchopho obuphakathi yisifo sohlangothi , okuwukuphazamiseka okungazelelwe kokugeleza kwegazi ebuchosheni. Kodwa-ke, kungenzeka nangezinye izizathu.

Ziyini izimpawu zalokhu? Sikubona kanjani?

Kunezimpawu eziningana eziyinhloko ezingabonakala ku-Weber Syndrome. Lezi yizi:

• Iso eligobile (i-ptosis) kwelinye iso . Kubukeka sengathi iso livalwe ingxenye.
• Iso elithintekile lingaphenduka liye phansi nangaphandle , okusho ukuthi iso alikwazi ukulawulwa kahle.
• Ukubona izinto ezimbili ngesikhathi esisodwa (i-diplopia) . Lokhu kubizwa ngokuthi ukubona okuphindwe kabili.
• Ukukhubazeka okuyingxenye noma okuphelele kwengalo nomlenze ohlangothini olulodwa lomzimba. Lokhu kwenzeka ohlangothini oluphambene lweso oluthintekile.

Kubaluleke kakhulu: Uma uhlangabezana nesinye noma ngaphezulu salezi zimpawu, noma ezinye izimpawu eziningi zesifo sohlangothi , njengokukhuluma okungaqondakali , ukulahlekelwa umuzwa , ukulahlekelwa umbono , izinkinga zokulinganisela , noma ukuwohloka kobuso , kufanele uye esibhedlela ngokushesha. Lokhu kungaba isimo sokuphila noma ukufa.

Ngezinye izikhathi abantu abane-Weber Syndrome banesifo sikashukela.Izinkinga zokulinganisela kanye nokuxhumana (i-ataxia) , okusho ubunzima bokuhamba nokubamba izinto, nazo zingase zibe khona.

Ngokuvamile, uma i-Weber Syndrome ikhona yodwa, ukucabanga kwakho (inkumbulo, ubuhlakani) akuthinteki. Kodwa-ke, uma umonakalo kwezinye izingxenye zobuchopho ususakazekile, kungase kuvele ezinye izimpawu. Isibonelo, i-Weber Syndrome ngezinye izikhathi ingahambisana nokukhubazeka kwama-pons, ingxenye yesiqu sobuchopho. Kuleso simo, kungase kubonakale izimpawu ezengeziwe.

Yiziphi izimbangela ze-Weber Syndrome?

I-Weber Syndrome ibangelwa ukuphuka kwengxenye ethile yobuchopho bakho. Izimbangela eziyinhloko zalolu hlobo lomonakalo yilezi:

• Isifo sohlangothi: Lesi yimbangela evame kakhulu. Singabangelwa ukuvaleka noma ukuqhekeka komthambo wegazi ohlinzeka ngegazi kuleyo ngxenye yobuchopho.
• I-aneurysm yobuchopho (ukuvuvuka nokuqhuma komthambo wegazi ebuchosheni).
• Ukopha ebuchosheni.
• Isimila sobuchopho.
• Izifo ezisusa i-myelin , njenge- Multiple Sclerosis, zilimaza i-myelin sheath ezungeze izinzwa.

Ubani onamathuba amaningi okuthuthukisa lokhu? (Izici eziyingozi)

Njengoba sesixoxile ngaphambili, imbangela eyinhloko ye-Weber Syndrome isifo sohlangothi, ngakho-ke izici ezifanayo eziyingozi ezithinta isifo sohlangothi nazo ziyasithinta.

• Umfutho wegazi ophezulu (Umfutho wegazi ophezulu / Umfutho wegazi ophakeme).
• Izinga le-cholesterol ephezulu egazini (i-cholesterol ephezulu / i-Hyperlipidemia).
• Isifo sikashukela.
• Ukubhema.

Uma unesinye noma ngaphezulu salezi zici eziyingozi, kubaluleke kakhulu ukuthola iseluleko sezokwelapha njalo nokuzilawula. Ukwenza kanjalo kunganciphisa ingozi yokuthuthukisa izimo ezifana nokukhubazeka kanye ne-Weber Syndrome.

Odokotela bakuthola kanjani lokhu? (Ukuxilongwa)

Uma unezimpawu ezihlobene ne-Weber Syndrome, odokotela bazoqala bazame ukuqinisekisa ukuthi unesifo sohlangothi yini. Lokhu kungenxa yokuthi ukwelashwa okusheshayo kuyinto ebaluleke kakhulu. Ukuze wenze lokhu:

• Kuzohlolwa ngokuphelele izinzwa ohlelweni lwakho lwezinzwa .
• Kwenziwa ukuhlolwa kwe-CT yobuchopho ngokushesha.
• Ngezinye izikhathi kunganconywa ukuskena okuhlukile ukuhlola imithambo yegazi ekhanda nasentanyeni kanye nokuskena kobuchopho nge-MRI .

Uma izimpawu zakho kanye nalezi zithombe ziqinisekisa ukuthi unomonakalo ebuchosheni obuphakathi, odokotela bazophetha ngokuthi une-Weber Syndrome.

Iyini indlela yokwelapha lokhu?

Lapho welapha i-Weber Syndrome, ukugxila kokuqala kusekwelapha imbangela eyisisekelo (ngokuvamile isifo sohlangothi). Ithimba lakho lezokwelapha lizophatha ngokushesha indlela yakho yokuphefumula futhi libuyisele ukujikeleza kwegazi ebuchosheni bakho. Kwezinye izimo , ukuhlinzwa kobuchopho (ukuhlinzwa kwe-neuro) nakho kungadingeka.

Amasu okuvuselela ayindlela yokwelapha eyinhloko esetshenziswa ngqo kwi-Weber Syndrome.

Kuyini ukuvuselelwa? Kubaluleke kangakanani?

Ukuvuselelwa kuyingxenye ebalulekile yenqubo yokululama kubantu abaningi abake baba nesifo sohlangothi. Kuhilela ukukusiza ukuthi uphinde uthole amakhono owalahlekela ngenxa yezinguquko ebuchosheni bakho, noma ukukusiza ufunde ukuphila nezinguquko. Ithimba lokuvuselelwa kwesifo sohlangothi eliqeqeshwe ngokukhethekile noma uchwepheshe wezokwelapha ngokomzimba lingakusiza ngalokhu. Kungcono ukuqala lolu hlelo lokuvuselelwa ngokushesha okukhulu.

Ukuvuselelwa kwe-Weber Syndrome kanye ne-midbrain palsy kungafaka:

• Ukuzivocavoca okusiza ekushukumiseni isitho esikhubazekile (ukuzivocavoca kokuhamba okuhlukahlukene) .
• Ukuzivocavoca ukuthuthukisa ibhalansi nokuxhumana.
• Hlola amehlo akho bese wenza izivivinyo ezifanele ukuze unciphise ukubona okukabili.
• Abanye abantu bangase bangakwazi ukulawula umchamo wabo (ukungakwazi ukuzibamba ngomchamo). Kudingeka ukuqeqeshwa okukhethekile ngalokho (ukuqeqeshwa kwesinye) .
• Kudingeka imithi kanye nezinye izindlela zokungenelela ukulawula izici ezikhona zengozi yesifo sohlangothi nokuvimbela isifo sohlangothi esikhathini esizayo.

Kuzothatha isikhathi esingakanani ukululama kulesi simo? (Ukulindela ukululama)

Kunezici eziningana ezithonya ukubikezelwa komuntu one-Weber Syndrome, okuhlanganisa:

• Iyini imbangela yalokhu?
• Ukuthi washeshe wathola ukwelashwa .
• Ingabe une-Weber Syndrome kuphela, noma ezinye izingxenye zobuchopho nazo zilimele ?
• Indlela osebenza kahle ngayo ukuvimbela ukukhubazeka esikhathini esizayo .

Abantu abane-Weber Syndrome bodwa, ngaphandle kokunye ukulimala kobuchopho, ngokuvamile banesimo esihle sokubikezela . Futhi, ukuqala ukuvuselelwa kusenesikhathi kubaluleke kakhulu enkambisweni yokululama.

Ngokululama, abanye abantu bangase baphinde basebenze kahle ezithweni nasemehlweni abo athintekile. Kodwa-ke, abanye bangase babe nezinkinga zokunyakaza ezingapheli kanye nezinye izinkinga zezinzwa.

Ithimba lakho lezokwelapha lizokwazi ukukunikeza umbono ocacile walokho ongakulindela ngokusekelwe esimweni sakho.

Yiziphi ezinye izinkinga ezingase zivele ngenxa ye-Weber Syndrome?

I-Weber Syndrome ingase ibangele izinkinga, ikakhulukazi uma ulele embhedeni. Yingakho ithimba lakho lezokwelapha lizozama ukukusiza ukuthi uthuthe ngokushesha nangokuphepha ngangokunokwenzeka. Ezinye zezinkinga ezingase zenzeke zifaka:

• Ukuqina kwemisipha kanye nokugoba .
• Izilonda zombhede .
• I-pneumonia yokuphefumula yenzeka lapho ukudla noma isiphuzo kungena emigudwini yomoya futhi kubangele ukutheleleka kwamaphaphu.
• Amahlule egazi emithanjeni ejulile yemilenze (i-Deep vein thrombosis - DVT) .
• Lelo qhubu legazi liya emaphashini (pulmonary embolism) .
• Ukutheleleka komgudu womchamo (UTIs) .

Okokugcina, into ebaluleke kakhulu okufanele uyikhumbule

Isifo sohlangothi singaguqula impilo yakho ngokushesha. Ngakho-ke, kubaluleke kakhulu ukuqaphela izimpawu zaso nokuya esibhedlela ngokushesha uma wena noma othile oseduze nawe eba nezimpawu ezinjalo. I-Weber Syndrome ingaba yisimo esingavamile, futhi ungase uzizwe wesaba futhi ukhathazekile uma uzwa ngakho. Kodwa khumbula into eyodwa, ithimba lakho lezokwelapha lihlala likulungele ukukusiza futhi libe nawe ohambweni lwakho lokululama. Ngakho-ke gcina ingqondo yakho iqinile futhi ulandele iseluleko esinikeziwe.

I- Weber Syndrome, ukukhubazeka, ukukhubazeka kobuchopho, ubuchopho obuphakathi, izimpawu zamehlo, izifo zemizwa, ukuvuselelwa