Ingabe ngezinye izikhathi uzizwa sengathi ulahlekelwa ukulawula umzimba wakho kancane kancane? Awulingani lapho uhamba, konke kuhamba kancane, izwi lakho libonakala lithuthumela... Nakuba lezi ziyizinto ezivamile ezenzeka njengoba ukhula, ngezinye izikhathi zingaba uphawu lwesimo esingakhulumi kakhulu ngaso, kodwa kubalulekile ukuqaphela. Namuhla sikhuluma ngesifo sesimiso sezinzwa esingavamile kodwa esibi kakhulu: i-Multiple System Atrophy, noma i-MSA.
Kalula nje, kuyini i-Multiple System Atrophy (MSA)?
I-Multiple System Atrophy (MSA) yisifo esithinta uhlelo lwethu lwezinzwa. Sithinta izinqubo ezizenzakalelayo zomzimba wethu, isibonelo, ukulawula ukunyakaza nokugcina ibhalansi . Yisifo esingavamile kakhulu.
Into edabukisayo ukuthi alikho ikhambi eliphelele lalesi sifo okwamanje. Kodwa ungakhathazeki, ngokwelashwa okufanele kanye nezinguquko ezincane endleleni yethu yokuphila , lezi zimpawu zingalawulwa futhi impilo ingenziwa ibe lula.
Ziyini izimpawu ze-MSA?
Izimpawu zalesi sifo zivame ukuqala ukuvela phakathi kweminyaka engama-50 nengama-60 . Abanye abantu badidanisa lezi zifo ezimbili ngoba izimpawu zokuqala zifana kancane nezesifo sikaParkinson .
| Izimpawu zokuqala eziyinhloko | |
|---|---|
| Izinkinga zokunyakaza | Ukunyakaza komzimba okuhamba kancane, ukuqina kwemisipha, kanye nokuthuthumela. |
| Ibhalansi | Ukulahlekelwa ibhalansi kanye nokungakhululeki lapho uhamba noma usebenza. |
| Ubunzima bokukhuluma | Izinto ezifana nezwi eliqhaqhazelayo kanye nokungaqondi kahle kwamagama. |
| Izinkinga zomfutho wegazi | Ukuquleka noma isiyezi, ikakhulukazi uma usukuma ngokuzumayo ngenxa yokuhlala. |
| Izinkinga zesistimu yomchamo | Isidingo esiphuthumayo sokuchama noma ukungakwazi ukukhipha ngokuphelele isinyi. |
Ngaphezu kwalokhu, kungase kube neminye imiphumela.
Ngaphezu kwalezi zimpawu eziyinhloko, ezinye izinqubo eziyisisekelo emzimbeni nazo zingathinteka.
- Ukwehla kokujuluka , izinyembezi , kanye nokuqunjelwa amathe.
- Ukuqunjelwa noma ukungakwazi ukulawula ukuhamba kwamathumbu .
- Ukungasebenzi kahle kwe-Erectile (ED).
- Ukuyeka ukuphefumula ngesikhathi sokulala (i-sleep apnea) noma ukwenza sengathi ulele, njengokumemeza noma ukukhuhla izingalo nemilenze.
- Ukuphefumula.
- Izandla nezinyawo ezibandayo noma ezishintsha umbala.
- Ubunzima bokulawula imizwa, ukukhathazeka, noma ukucindezeleka.
Kunezinhlobo ezimbili eziyinhloko zesifo se-MSA.
Ngokusekelwe ezimpawini zakho eziyinhloko, udokotela wakho uzonquma ukuthi uluhlobo luni lwe-MSA onalo.
| Uhlobo lwe-MSA | Izici eziyinhloko |
|---|---|
| Uhlobo lwe-Parkinsonian (MSA-P) | Lolu uhlobo oluvame kakhulu. Izimpawu eziyinhloko zifana kakhulu nesifo sikaParkinson. Ukuqina kwemisipha, ukuhamba kancane, ukuthuthumela, kanye nezinkinga zokulinganisela yizona eziyinhloko. |
| Uhlobo lwe-Cerebellar (MSA-C) | Uphawu oluyinhloko ukulahleka kokuxhumana kanye nokulinganisela. Kungabangela nobunzima bokukhuluma, ukugwinya, kanye nokungaboni kahle. |
Ungasithola kanjani lesi sifo?
I-MSA ingaba nzima ukuyixilonga ekuqaleni. Isizathu salokhu ukuthi, njengoba sishilo ngaphambili, izimpawu zayo zifana kakhulu nesifo sikaParkinson. Ngakho-ke, kuzodingeka ubone udokotela wezinzwa .
Udokotela wakho uzokuhlola, akhulume ngezimpawu zakho, futhi abheke izinguquko ebuchosheni bakho kanye nasesimisweni sezinzwa. Ukuqinisekisa ukuthi une-MSA noma i-Parkinson, bangenza lezi zivivinyo ezilandelayo:
- Ukuhlolwa kokuzimela: Ukuhlolwa okukhethekile okuhlola ukusebenza kwesimiso sezinzwa.
- I-MRI scan: Ukubona ukuthi kukhona yini izinguquko ebuchosheni.
- Ukulinganiswa komfutho wegazi: Ukucindezeleka kwegazi kulinganiswa ngesikhathi uhleli futhi umile.
- Ukuhlolwa kwe-ECG: Ukuhlola izimpawu zikagesi zenhliziyo.
- Ukuhlolwa kokujuluka: Ukuhlola ukuthi umzimba ujuluka kanjani.
Yini ebangela i-MSA?
Kalula nje, umuntu one-MSA uba nokwakheka kweprotheni ekhethekile emaseli asekela amangqamuzana ezinzwa ebuchosheni. Lokhu kubangela ukuthi izingxenye zobuchopho nomgogodla ziphele kancane kancane noma zife. Ochwepheshe bathi imbangela eqondile yalesi simo ayikakaziwa.
Izinkinga ezingase zivele ngenxa yesifo
Kwabaningi, izimpawu zingaba izinkinga ezinkulu phakathi neminyaka embalwa, ngakho-ke kubalulekile ukuqaphela lezi zinto futhi.
- Ubunzima bokwenza imisebenzi yansuku zonke.
- Ubunzima bokuphefumula, ikakhulukazi izimo ezifana ne-'Sleep apnea'.
- Ukuwa njalo.
- Ubunzima bokuhamba buyanda kancane kancane, okudinga ukusebenzisa isihlalo sabakhubazekile futhi ekugcineni singakwazi ukuvuka embhedeni.
- Ukukhubazeka kwezintambo zezwi.
- Ukungakwazi ukugwinya ukudla.
- Izifo zamaphaphu ezifana ne-pneumonia.
- Ukutheleleka komgudu womchamo.
- Amahlule egazi.
Ubude besikhathi umuntu angaphila nalesi sifo buyahlukahluka kuye ngomuntu nomuntu. Abanye abantu bangaphila iminyaka eyi-15 noma ngaphezulu. Ukufa kuvame ukubangelwa izinkinga ezibangelwa ubunzima bokuphefumula.
Indlela yokwelapha nokuphatha
Njengoba kungekho ukwelashwa okuqondile kwe-MSA, umgomo oyinhloko wokwelashwa ukulawula izimpawu nokwenza impilo ibe ntofontofo ngangokunokwenzeka.
Imithi kanye nokwelashwa kwezokwelapha
- Imithi efana ne-levodopa, esetshenziselwa ukwelapha isifo sikaParkinson, ngezinye izikhathi ingasiza ekulawuleni ukuthuthumela, ukuqina, kanye nokunyakaza okuhamba kancane.
- Udokotela angase anikeze imithi efana ne-`droxidopa`, `fludrocortisone`, noma `midodrine` ukulawula umfutho wegazi.
- Ngezinye izikhathi kungadingeka i-pacemaker ukuze kulawulwe izinga lokushaya kwenhliziyo.
- Imithi efana ne-mirabegron noma i-oxybutynin ingasiza ekulawuleni umchamo. Ngezinye izikhathi kungadingeka i-catheter ukuze ikusize ukhiphe umchamo.
- Imithi iyatholakala futhi yokungasebenzi kahle kocansi.
Ukwelashwa
- Ukwelashwa ngokomzimba kanye nokuzivocavoca kungagcina imisipha iqinile futhi iguquguquka.
- Ukwelashwa emsebenzini kungakusiza ukuthi ufunde ukwenza imisebenzi yansuku zonke kalula.
- Ukwelashwa ngenkulumo kusiza ngezinkinga zokuhamba nokukhuluma.
Izinto ongazenza ekhaya
Lezi zinto zingasiza ekwenzeni impilo yakho ibe lula kancane, kodwa ungakhohlwa ukukhuluma nodokotela wakho ngaphambi kokwenza noma yini.
- Ukuze wandise umfutho wegazi, engeza usawoti omncane ekudleni kwakho bese uphuza amanzi amaningi.
- Ukugqoka amasokisi akhethekile okucindezela ukuze kusize ekujikelezeni kwegazi.
- Gwema ukuvuka ngokuzumayo lapho uhleli noma ulele phansi. Vuka kancane.
- Ukugcina ikhanda lombhede liphakeme kancane uma ulele.
- Yidla ukudla okucebile nge-fiber, imifino, nezithelo ukuze unciphise ukuqunjelwa.
- Gwema ukushisa umzimba ngokweqile.
- Hamba ngangokunokwenzeka ukuze uvimbele ukuqhekeka kwegazi.
Umlayezo Wokuya Nawe Ekhaya
- I-Multiple System Atrophy (MSA) yisifo esibi nesiqhubekayo esithinta uhlelo lwezinzwa.
- Ngenxa yokuthi izimpawu zokuqala zifana nesifo sikaParkinson, kubalulekile ukubona udokotela wezinzwa ukuze athole lesi sifo ngokunembile.
- Nakuba kungekho ikhambi eliphelele lalesi sifo, imithi, ukwelashwa, kanye nokushintsha indlela yokuphila kungalawula izimpawu futhi kwenze impilo ibe lula.
- Uma wena noma othile omaziyo enalezi zimpawu, ungesabi futhi ufune iseluleko sezokwelapha ngokushesha okukhulu. Ukusekelwa nothando lwamalungu omndeni kubaluleke kakhulu esigulini ngalesi sikhathi.
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