Ectopia Cordis: Abin da ya kamata ku sani game da yanayin da ba kasafai ake samunsa ba a cikin zuciyar jariri a wajen jiki

Idan muka yi magana da likita a lokacin daukar ciki, wani lokacin mukan ci karo da kalmomin da ba mu taɓa ji ba, ko kuma yanayin rashin lafiya mai wuya. Abu ne na al'ada a ji tsoro da damuwa sosai a irin waɗannan lokutan. A yau za mu yi magana game da wata irin wannan nakasar haihuwa mai matuƙar wuya da tsanani. Muna kiran wannan yanayin Ectopia Cordis. Kada ku ji tsoro idan kun ji wannan. Bari mu fahimci komai game da wannan a sauƙaƙe, ɗaya bayan ɗaya.

Menene ainihin Ectopia Cordis?

A taƙaice dai, Ectopia Cordis yana faruwa ne lokacin da aka haifi jariri da dukkan zuciyarsa ko kuma wani ɓangare na zuciyarsa a wajen jikinsa. Wannan yanayi ne da ba kasafai ake samunsa ba. Ka yi tunanin, wannan yanayin yana faruwa ne a cikin jarirai takwas cikin miliyan ɗaya da aka haifa a duniya.

Domin wannan yanayi ne mai matuƙar tsanani, jarirai da yawa da aka haifa da Ectopia Cordis suna mutuwa a cikin mahaifa ko cikin kwana uku da haihuwa. Duk da haka, akwai wani ɓangare mai kyau a wannan labarin. Ƙwararrun likitocin likitoci, ma'aikatan jinya, likitocin motsa jiki da sauran ƙwararru sun sami damar kiyaye wasu jarirai da aka haifa da wannan yanayin na tsawon makonni, wani lokacin ma shekaru.

Menene dalilin hakan?

Gaskiya dai, masana har yanzu ba su sami wani dalili na musamman ba game da wannan, amma suna da wasu ra'ayoyi.

• Matsalolin Ci Gaba: Wata ka'ida ita ce yayin da jariri ke girma a cikin mahaifa , canje-canje na jiki suna faruwa waɗanda ke kawo cikas ga ci gaban jaririn na yau da kullun. Misali, madaurin fibrous suna samuwa a cikin jakar da ke cike da ruwa (jakar amniotic) da ke kewaye da jaririn, wanda zai iya takaita girman jaririn.
• Matsalar Ci gaban Kirji: Wata ka'ida kuma ita ce ƙirjin jariri ba ya girma yadda ya kamata. Wannan yana hana zuciya motsawa zuwa wurin da ya dace a cikin ƙirji. Wannan na iya haifar da Ectopia Cordis da sauran lahani na zuciya.
• Alaƙa da wasu matsaloli: Sau da yawa ana ganin Ectopia cordis tare da wasu lahani na haihuwa da ke faruwa a tsakiyar jiki. Misali, yana da alaƙa da lahani a cikin sternum, pericardium, da bangon ciki. Hakanan ana iya danganta shi da yanayin chromosomal kamar Trisomy 18 da Turner syndrome.
• Dalilan Halittar Halitta : Wata ka'ida ta baya-bayan nan ita ce wasu 'yan tayi ba su da wani takamaiman kwayar halitta da ake kira ''(BMP2)''. Wannan kwayar halitta tana da mahimmanci don ci gaban zuciya da gaban ƙirji yadda ya kamata. Don haka suna ganin cewa rashin ta na iya zama sanadin hakan.

Waɗanne alamomi ne za a iya gano su?

Babban kuma mafi bayyanannen alamar Ectopia Cordis shine cewa zuciya tana wajen jiki. Duk da haka, waɗannan jarirai na iya samun wasu lahani na tsakiya a tsakiyar jiki (layin daga kai zuwa ƙasa).

Ta yaya likitoci ke gano wannan?

A mafi yawan lokuta, idan jaririnku yana da Ectopia Cordis, ana iya gano shi a lokacin gwajin duban dan tayi na yau da kullun yayin daukar ciki. Ana iya gano shi tun farkon watanni uku na ciki. Kuna iya buƙatar sake yin gwajin duban dan tayi don tabbatar da ganewar asali. Sakamakon waɗannan gwaje-gwajen yana da matuƙar mahimmanci a gare ku don yanke shawara kan abin da za ku yi a gaba.

Idan kin yanke shawarar ci gaba da ɗaukar ciki, likitanki zai sa ido sosai kan ci gaban jaririnki. Wannan na iya haɗawa da hoton MRI ( magnetic resonance imaging).Za a yi amfani da gwaje-gwajen )` da `(Echocardiography)`. Echocardiography gwaji ne na musamman wanda ke amfani da raƙuman sauti don ɗaukar hotunan zuciya dalla-dalla.

Likitoci kuma suna rarraba wannan yanayin bisa ga inda zuciyar take.

Menene hanyoyin magance wannan?

Idan ana maganar hanyoyin magani , abu na farko da za a yi la'akari da shi shine lafiyar jaririn. Saboda haka, hanya ɗaya tilo ta haihuwar jariri ita ce ta hanyar tiyatar cesarean (C-section). Wannan ita ce hanya mafi kyau ta fitar da jaririn ba tare da lalata zuciya a waje ba.

Bayan haihuwa, jaririnka na iya buƙatar ƙarin taimako wajen numfashi. Domin yin haka, likitoci za su saka bututun filastik mai lanƙwasa a cikin bututun iska na jaririnka don tabbatar da iskar iska. Haka kuma za su iya saka wani ruwa na musamman ta cikin bututun da ke shafa wa huhun iska don taimaka musu su sha iskar oxygen sosai.

Babban burin maganin Ectopia Cordis shine a rufe ƙofar ƙirji ta hanyar tiyata, a sake saka zuciya a cikin ƙirji, sannan a gyara duk wani lahani na zuciya. Sau da yawa ba a yin waɗannan tiyatar a lokaci guda. Ana yin su a matakai da dama.

Babban ƙalubale na farko kuma mafi girma shine a sanya zuciya cikin ƙirji mai ƙanƙanta fiye da yadda aka saba. Bayan likita ya yi haka, sai ya sake sanya ƙashin ƙirji (sternum). A irin wannan yanayi, dashen zuciya yawanci ba zaɓi bane.

Menene "Kula da Jin Daɗi"?

A wasu lokuta, tiyata tana da haɗari sosai kuma damar samun nasara ba ta da yawa. A irin waɗannan yanayi, likitanka zai yi maka magana game da wani zaɓi da ake kira "Kula da Ta'aziyya."

Manufar ita ce a rage radadi da wahalar da jaririn ke fuskanta tare da ba shi damar rayuwa cikin kwanciyar hankali da kwanciyar hankali. Wannan wani nau'i ne na kulawa ta musamman da ke da nufin samar da jin daɗi ga jaririn da iyalinsa a wannan mawuyacin lokaci, maimakon a yi masa magani da warkar da shi.