Ua ʻike paha ʻoe i kekahi poʻe e kulou ana ko lākou mau manamana lima i hope ma ke ʻano ʻē, a i ʻole e kulou ana ko lākou mau kuli i hope loa a hiki i ka hoʻi ʻana i hope. Ua kapa pū kekahi poʻe i kēia he 'hui pālua'. ʻO ka ʻoiaʻiʻo, ʻo ka hapa nui o ka manawa ʻaʻole kēia he pilikia koʻikoʻi. Akā inā loaʻa iā ʻoe kēia ʻano palupalu o nā hui, me ka ʻeha pinepine a me nā ʻeha o nā hui, loaʻa paha iā ʻoe kahi maʻi i kapa ʻia ʻo Joint Hypermobility Syndrome. E kamaʻilio kākou e pili ana i kēia me ka maʻalahi, ma ke ʻano hiki iā ʻoe ke hoʻomaopopo.
I ka ʻōlelo maʻalahi, he aha ka Joint Hypermobility Syndrome?
Ua hoʻopili ʻia ko kākou mau hono e kahi papa mānoanoa o nā ʻiʻo. Kāhea mākou i kēia mau ligaments . Ua like lākou me nā kaula laholio e hoʻopaʻa ana i ko kākou mau hono a pale iā lākou mai ka neʻe nui ʻana. I loko o ke kanaka me ka Joint Hypermobility Syndrome, ua nāwaliwali a palupalu paha kēia mau ligaments. Ua like lākou me kahi kaula laholio i kīkoʻo ʻia mai ka hoʻohana ʻana. No laila hiki i ko lākou mau hono ke kūlou ma mua o ka maʻamau. Ke hele pū kēia palupalu nui me ka ʻeha, kapa mākou i kēia ʻano Joint Hypermobility Syndrome. Ua hoʻokaʻawale ʻia ʻo ia he maʻi ʻiʻo pili .
He aha ka ʻokoʻa ma waena o ka 'shelling' a me ka 'syndrome'?
ʻO kēia kahi e huikau ai ka poʻe he nui. ʻO ka hypermobility hui, a i ʻole ka hiki ke kulou nui i nā hui, he mea maʻamau loa ia i ke kaiāulu. Inā hiki iā ʻoe ke kulou i nā hui e like me kou mau kuʻekuʻe lima, nā pulima lima, nā manamana lima, a me nā kuli ma mua o ko lākou pae maʻamau, ua kapa ʻia kēlā he hypermobility.
Akā no ka hapa nui o nā kānaka, ʻaʻole kēia e hōʻeha a i ʻole nā pilikia olakino ʻē aʻe. Akā no kekahi poʻe, ʻo kēia palupalu nui ke kumu o nā hōʻailona he nui e like me ka ʻeha o nā hono, nā ʻeha pinepine o nā hono a me nā ligament, ka luhi, a me nā pilikia me ka ʻōpū a me ka ʻōnaehana mimi . ʻO ia ka manawa a mākou e kapa ai iā ia ʻo Joint Hypermobility Syndrome . I ka ʻōlelo maʻalahi, palupalu nui + nā hōʻailona = syndrome.
ʻOi aku ka maʻamau o kēia maʻi i nā keiki a me nā ʻōpio. ʻOi aku ka maʻamau o ia i nā wahine a me nā poʻe o ka hanauna ʻAsia a me ʻApelika-Karipiano. Akā ʻo ka nūhou maikaʻi, e emi ana ke ʻano me ka ʻelemakule.
He hōʻailona paha kēia o kahi maʻi ʻē aʻe?
ʻAe, i kekahi manawa hiki i ka hypermobility hui ke lilo i hōʻailona o kahi kūlana genetic koʻikoʻi. Ua kapa ʻia kēia mau mea ʻo Heritable Disorders of Connective Tissue (HDCT). Eia kekahi o nā kūlana kakaikahi e pili pū ana me ka Joint Hypermobility Syndrome:
- ʻO Ehlers-Danlos Syndrome: He hui kēia o nā kūlana e hoʻopilikia ai i ko mākou cartilage, iwi, momona, a me ke koko. ʻO kā mākou mau ʻiʻo pili, ka mea e hāʻawi i ka ikaika a me ka maʻalahi,Hoʻokumu ʻia kēia kūlana e kahi hemahema i loko o ka protein collagen.
- ʻO Marfan Syndrome: He ʻano maʻi kēia e hoʻopilikia ai i nā ʻiʻo pili. Hoʻokumu ʻia ia e kahi kīnā i loko o kahi gene e hana ana i nā olonā fibrillin a me nā elastic, ʻo ia ka ʻāpana nui o kā mākou ʻiʻo pili.
- Down Syndrome: He ʻano hoʻoilina kēia e hoʻopilikia ai i ka ulu ʻana o ko kākou lolo a me ke kino. Hānau ʻia ka poʻe me Down Syndrome me kahi chromosome keu.
Loaʻa iā ʻoe kēia mau hōʻailona pū kekahi? E nānā...
ʻO ka hōʻailona nui a maʻamau o ka Joint Hypermobility Syndrome ka ʻeha ma nā hono a me nā ʻiʻo. Eia kekahi, e nānā inā loaʻa iā ʻoe kēia mau mea:
- Nā ʻeha pinepine i nā hono a me nā ligaments: No ka laʻana, he mea maʻamau nā dislocations poʻohiwi, nā dislocations kuli, a me nā sprains.
- ʻOʻoleʻa o ke kino a me nā hono: Manaʻo ʻoʻoleʻa i ke kino, i kou ala mua ʻana i ke kakahiaka a i ʻole ma hope o ke kū ʻana no kekahi manawa.
- Luhi: Manaʻo mau i ka luhi no ke kumu ʻole.
- ʻAʻohe kaulike i ke kino: Manaʻo e like me ʻoe e hāʻule mau ana a nalowale kou kaulike.
- Nā pilikia mimi a me nā fecal: Hiki i kekahi poʻe ke loaʻa ka ʻeha o ka ʻōpū a me ka pehu me kēia kūlana.
- Poniuniu a me ka māʻule ʻana: Manaʻo poniuniu a me ke poʻo māmā, me he mea lā ua kū koke ʻoe i luna.
- ʻO ka ʻili lahilahi a palupalu: ʻOi aku ka palupalu o ka ʻili o kekahi poʻe ma mua o ka maʻamau.
No ke aha lā e hana ʻia ai kekahi mea e like me kēia?
ʻAʻole i ʻike ʻia ke kumu kikoʻī o kēia maʻi. Eia nō naʻe, ua manaʻoʻiʻo ʻia ua hoʻoili ʻia mai kēlā hanauna a i kēia hanauna . ʻO ke ʻano kēia, inā loaʻa i kou makuahine, makuakāne, a i ʻole kekahi hoahānau pili kēia maʻi, ʻoi aku ka nui o ka loaʻa ʻana iā ʻoe.
Manaʻo nā kānaka ʻepekema ua hoʻokumu ʻia kēia e kahi loli i loko o nā genes e hana ana i kahi protein i kapa ʻia ʻo collagen i loko o ko mākou kino. E like me kā mākou i ʻōlelo ai ma mua, ʻo ka collagen ka mea e hāʻawi i ko mākou mau hono, ligaments, a me nā tendons i ko lākou ikaika a me ka maʻalahi. Loaʻa i ka poʻe me ka Joint Hypermobility Syndrome kēia kīnā i loko o ka collagen, ka mea e hoʻonāwaliwali ai ko lākou mau ligaments. Ke nāwaliwali nā ligaments, lilo nā hono i mea palupalu a hoʻomaka e kūlou ma mua o ka mea e pono ai.
Pehea ʻoe e ʻike ai i kēia, e Kauka?
Ke hele ʻoe e ʻike i ke kauka, ʻo ka mea mua āna e hana ai, ʻo ia ke hana i kahi hoʻokolohua kino e nānā i kou laulā o ka neʻe ʻana i kou mau hono. Hiki iā lākou ke hana i nā hoʻokolohua koko e nānā i nā kūlana genetic ʻē aʻe a mākou i kamaʻilio ai ma mua.
Eia kekahi, aia kekahi mau ʻano hana kūikawā i hoʻohana ʻia e ana i ka palupalu o kou mau hono.
Helu Beighton
He pālākiō 9-kiko kēia. Ana kēia hoʻāʻo i kou maʻalahi. Inā hiki iā ʻoe ke hana i kēia, e loaʻa iā ʻoe hoʻokahi kiko no kēlā me kēia.
| Ke hana o ka nānā ʻana | Nā helu i loaʻa |
|---|---|
| Hiki iā ʻoe ke kūlou i mua a kau i kou mau poho lima ma ka honua me ka ʻole o ke kūlou ʻana i kou mau kuli? | 1 helu |
| Hiki iā ʻoe ke kulou i kou mau kuʻekuʻe i hope? | 1 helu no kēlā me kēia kuʻekuʻe lima (huina 2) |
| Hiki iā ʻoe ke kulou i kou mau kuli i hope? | 1 helu no kēlā me kēia kuli (2 huina) |
| Hiki iā ʻoe ke kulou i kou manamana nui i hope a hamo iā ia ma ka lima hema? | 1 helu no kēlā me kēia manamana nui (huina 2) |
| Hiki iā ʻoe ke kulou i kou manamana lima liʻiliʻi i hope ma mua o 90 degere? | 1 helu no kēlā me kēia manamana lima liʻiliʻi (huina 2) |
Inā loaʻa iā ʻoe he 4 a ʻoi aku paha ma kēia hoʻokolohua a ua loaʻa iā ʻoe ka ʻeha ma ʻehā a ʻoi aku paha nā hono no ka liʻiliʻi he 3 mahina , manaʻo paha kāu kauka he Joint Hypermobility Syndrome paha kou.
Nīnau nīnau ʻelima
Eia kekahi, hiki i ke kauka ke nīnau iā ʻoe i kēia mau nīnau 5:
1. Ua hiki anei iā ʻoe ke kau i kou mau poho lima ma ka papahele me ka ʻole o ke kūlou ʻana i kou mau kuli?
2. Ua hiki anei iā ʻoe ke kulou i kou manamana nui a hamo iā ia ma lalo o kou lima?
3. I kou wā kamaliʻi, ua hoʻokipa anei ʻoe i kāu mau hoaaloha ma ke kūlou ʻana i kou kino ma nā ʻano ʻē? A i ʻole ua hiki iā ʻoe ke hana i nā māhele?
4. I kou wā kamaliʻi a ʻōpio paha, ua hemo anei kou poʻohiwi a kuli paha ma mua o hoʻokahi manawa?
5. Manaʻo ʻoe iā ʻoe iho he 'hui pālua'?
Inā ʻoe e pane "ʻae" i ʻelua a ʻoi aku paha o kēia mau nīnau, loaʻa paha iā ʻoe ka Joint Hypermobility Syndrome.
He aha nā lāʻau lapaʻau no kēia?
ʻAʻohe lāʻau lapaʻau no kēia maʻi i kēia manawa. Akā hiki iā ʻoe ke kāohi i kāu mau hōʻailona a ola i kahi ola maʻamau. ʻO nā pahuhopu nui o ka mālama ʻana, ʻo ia ka pale ʻana i kou mau hono a me ka mālama ʻana i kou ʻeha.
ʻO ka hoʻoikaika ʻana i nā ʻiʻo a puni kou mau hono e hiki ke kōkua i ka hoʻonui ʻana i ke kākoʻo a lākou e loaʻa ai a pale iā lākou. Eia kekahi mau mea hiki iā ʻoe ke hana e kōkua:
- E mālama i ke kūlana maikaʻi: Ke kū nei, e kulou iki i kou mau kuli. Mai kulou i kou mau kuli ma mua o ko lākou palena.
- E komo i nā kāmaʻa me ke kākoʻo maikaʻi: E hoʻohana i nā insoles kūikawā (orthotics) i hana ʻia ma ke ʻōlelo aʻo a ke kauka, ʻoiai inā he mau wāwae pālahalaha kou.
- E ʻike i kahi Kauka Lapaʻau Kino: He mea nui loa e ʻimi i ke kōkua o kahi kauka lapaʻau kino e hōʻemi i ka ʻeha, hoʻonui i ka ikaika o nā ʻiʻo, a hoʻomaikaʻi i ke kūlana a me ke kaulike o ke kino.
No ka ʻeha, hiki i kāu kauka ke ʻōlelo aku i nā lāʻau hoʻopau ʻeha ma luna o ke kauka e like me ka acetaminophen a i ʻole ibuprofen . Akā, mai hoʻōla ponoʻī me ka ʻole o ke aʻo ʻana a ke kauka. Inā koʻikoʻi ka ʻeha, e kamaʻilio me kāu kauka e pili ana i nā koho lapaʻau kūpono.
Ke hoʻopilikia nei anei ka meaʻai a me ka mea inu i kēia?
Ua ʻike ʻia e ka noiʻi aia paha kahi pilina ma waena o ka Joint Hypermobility Syndrome a me nā maʻi gastrointestinal, ʻoiai ʻo Irritable Bowel Syndrome (IBS) . He mea maʻamau nā hōʻailona IBS (ʻeha ʻōpū, pehu, paʻa ʻōpū, a i ʻole ka maʻi diarrhea) i waena o ka poʻe me kēia maʻi.
No laila, e noi paha kāu kauka iā ʻoe e hoʻāʻo i kekahi mau meaʻai no kekahi manawa. Ua kapa ʻia kēia he ʻai hoʻokoe . Hiki i kēia ke kōkua iā ʻoe e ʻike inā he ʻano hoʻomanawanui ʻole ʻoe i ka meaʻai. ʻO nā hui meaʻai i hoʻāʻo pinepine ʻia ma kēia ʻano:
- ʻAi ʻole Gluten: Ke hōʻalo nei i nā meaʻai i loaʻa ka gluten, kahi protein i loaʻa i nā palaoa e like me ka palaoa a me ka bale.
- ʻAi lactose-free: Ke hōʻalo nei i nā meaʻai i loaʻa ka lactose, kahi ʻano kō i loaʻa i ka waiū a me nā huahana waiū.
- ʻAi Haʻahaʻa-FODMAP: Ka palena ʻana i nā meaʻai i loaʻa nā kō i maʻalahi ke hoʻoulu ʻia (lactose, fructose, fructans, galactans, polyols) i loaʻa i loko o kekahi mau meaʻai.
ʻO ka mea nui loa, ma mua o ka hana ʻana i kahi hoʻololi ʻai e like me kēia,Pono ʻoe e kamaʻilio me kāu kauka. ʻOi aku ka palekana o ka hana ʻana i kēia mau mea ma lalo o kāna alakaʻi ʻana.
Leka Lawe-Home
- He maʻi maʻamau ka hypermobility, akā inā hele pū ʻia me nā hōʻailona e like me ka ʻeha a me nā ʻeha pinepine, hiki ke kapa ʻia ʻo Joint Hypermobility Syndrome.
- ʻOiai ʻaʻohe lāʻau lapaʻau, hiki ke mālama ʻia nā hōʻailona. ʻO ka mea nui loa, ʻo ia ka hoʻoikaika ʻana i nā ʻiʻo a puni nā hono.
- Inā loaʻa iā ʻoe kēia mau hōʻailona, e ʻike pono i ke kauka no ka hōʻoia kūpono a me ka hoʻolālā lapaʻau.
- He maʻi hoʻoilina kēia a ʻaʻole hiki ke pale ʻia, akā me ka mālama pono ʻana, hiki ke pale ʻia nā hono.
- ʻO ka hapa nui o ka manawa, e emi ana ke koʻikoʻi o kēia mau hōʻailona i kou wā ʻelemakule, no laila mai hopohopo.
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