⚡ Interactive Clinical Tool
Renal function (eGFR)
Measure kidney function based on creatinine value
Pehea e kōkua ai kēia lāʻau lapaʻau ʻo Jynarque i nā poʻe maʻi ADPKD?
I ka ʻōlelo maʻalahi, ʻo ADPKD kahi maʻi genetic i hoʻoili ʻia mai kēlā hanauna a i kēia hanauna . He ʻano kēia kahi e nui ai nā cysts i piha i ka wai (cysts) i loko o nā puʻupaʻa. I ka hala ʻana o ka manawa, ulu kēia mau cysts, e hoʻololi ana i ke ʻano o nā puʻupaʻa a lilo i mea nui loa ma mua o ka maʻamau. I ka hopena, ʻaʻole hiki i nā puʻupaʻa ke hana i kā lākou hana o ka kānana pono ʻana i ke koko. ʻO ka hapa nui, ʻaʻole ʻike ʻia kēia mau hōʻailona i nā poʻe ʻōpio, akā ma waena o 30 a me 50 mau makahiki. ʻO kahi hōʻailona maʻamau ka koko kiʻekiʻe . Hiki ke loaʻa ka ʻeha i nā puʻupaʻa. Hiki ke hana ʻia kēia e nā maʻi i loko o nā puʻupaʻa a i ʻole ke ala urinary, nā cysts i haki, a i ʻole nā pōhaku puʻupaʻa. ʻO ka hapa nui o nā mea me ADPKD e loaʻa i ka maʻi puʻupaʻa mau loa (CKD). He ʻano kēia e lilo mālie i mea ʻino. E nānā kākou i nā pae.| Kahua CKD | He maʻalahi ke kūlana. |
|---|---|
| Nā Pae 1 a me 2 | ʻO kēia ka manawa mua. Ke hana maikaʻi nei nā puʻupaʻa, no laila ʻaʻohe hōʻailona maʻamau. |
| Nā Pae 3 a me 4 | I kēia manawa, ua emi nui ka hana o nā puʻupaʻa. Hoʻomaka ka ʻike ʻia ʻana o nā hōʻailona no ka mea ʻaʻole hiki iā lākou ke kānana pono i ke koko. |
| Pae 5 | ʻO kēia ke kahua hope loa. ʻAʻole hiki ke hana ʻia nā puʻupaʻa (Kidney Failure). Me ka ʻole o ka dialysis a i ʻole ka hoʻoili puʻupaʻa, hiki ke hoʻoweliweli i ke ola. |
Hana ʻo Jynarque ma ke ʻano kū hoʻokahi. Loaʻa i ko mākou kino kahi hormone i kapa ʻia ʻo (vasopressin). I nā poʻe maʻi ADPKD , hoʻouna kēia hormone i nā hōʻailona i nā puʻupaʻa e hana i nā cysts hou aku. ʻO ka mea hana nui i loko o Jynarque, (tolvaptan), e ālai ana i kēlā hōʻailona mai ka hiki ʻana i nā puʻupaʻa. Hoʻemi kēia i ke kūkulu ʻia ʻana o nā cysts hou a me ka ulu ʻana o nā cysts kahiko. ʻAe kēia i nā puʻupaʻa e hana olakino no ka lōʻihi.
ʻAʻole anei kūpono kēia lāʻau lapaʻau no nā kānaka a pau?
ʻAe, ʻaʻole kūpono ʻo Jynarque no nā maʻi āpau. He mea nui e haʻi i kāu kauka e pili ana i kou mau kūlana olakino i hala a me kēia manawa , ʻoiai hoʻi:- Inā he mau pilikia kou i ke akepaʻa.
- Inā he haʻahaʻa a kiʻekiʻe paha kou mau pae sodium i loko o kou koko.
- Inā pilikia ʻoe i ka mimi ʻana (e like me nā pōhaku puʻupaʻa , ke ālai ʻana o ke ala mimi).
- Inā ʻaʻole ʻoe e make wai a pilikia paha i ka inu wai i ka lā a pau.
✨ Clinical nutrition
Verified Partner
Clinical vitamins and nutritional supplements
Clinically proven high quality vitamins, minerals and immune nutritional supplements.
Check Availability →Pehea e hoʻohana ai i ka lāʻau lapaʻau?
He pila ʻo Jynarque i lawe ʻia i ʻelua manawa i ka lā. Hiki ke lawe ʻia ma mua a ma hope paha o ka ʻai ʻana. He mea nui loa ka manawa e lawe ai i kēia.| Ka nui o ka lāʻau | Ka manawa i lawe ʻia |
|---|---|
| Ka mahele mua (kakahiaka) | E lawe iā ia i kou ala ʻana i ke kakahiaka. ʻO kēia ka mahele kiʻekiʻe loa. |
| ʻO ka lua o ka mahele lāʻau (auinalā) | E lawe i ka mahele mua ma hope pono o 8 mau hola ma hope o ka mahele hope loa. (No ka laʻana, inā ʻoe e lawe iā ia i ka hola 8 am, e lawe i ka mea aʻe i ka hola 4 pm). He mahele haʻahaʻa kēia. |
He mea nui loa: ʻOiai e lawe ana i kēia lāʻau lapaʻau, e noi aku kāu kauka iā ʻoe e hana i nā hoʻokolohua koko (nā hoʻokolohua hana ate) i nā manawa maʻamau e nānā i ka hana o kou ake . He mea nui e hele ʻoe i kēia mau hoʻokolohua i nā lā i hoʻonohonoho ʻia. Ma muli o nā hopena, pono paha e hoʻemi ʻia kāu mahele lāʻau, hoʻōki no kekahi mau lā, a hoʻōki loa paha.Inā ʻoe e poina i kahi mahele lāʻau, mai lawe. E hōʻalo i ka mahele lāʻau i poina a lawe i kāu mahele lāʻau aʻe i ka manawa i hoʻonohonoho ʻia. He mea nui e hahai pololei i ka papa kuhikuhi, i kou ala ʻana i ke kakahiaka a ma hope o 8 mau hola. He manaʻo maikaʻi e hoʻonohonoho i kahi alarm ma kāu kelepona e hoʻomanaʻo i ka lua o ka mahele lāʻau.
He aha ka ʻōlelo a nā hoʻokolohua e pili ana i ka holomua o kēia lāʻau lapaʻau?
Ua mālama ʻia ʻelua mau haʻawina nui e nānā i ka palekana a me ka pono o ka lāʻau lapaʻau ʻo Jynarque.Nā poʻe maʻi CKD pae mua (pae 1 a i ʻole 2)
Ma kēia noiʻi, ua emi nui ka nui o ka hoʻonui ʻia ʻana o nā puʻupaʻa i ka poʻe i lawe iā Jynarque i hoʻohālikelike ʻia me ka poʻe i lawe i ka placebo. I ka pololei, ua emi ka nui o ka hoʻonui ʻia ʻana o nā puʻupaʻa i ka poʻe i lawe iā Jynarque ma kahi o 49% i hoʻohālikelike ʻia me ka poʻe i lawe i ka placebo. ʻO ke ʻano kēia ua kāohi nui ʻia ka hōʻino ʻana i nā puʻupaʻa. Eia kekahi, ua emi pū ka ʻeha o ka poʻe i lawe iā Jynarque.Nā poʻe maʻi CKD pae hope loa (pae 3 a i ʻole 4)
I loko o kēia hui o nā maʻi, ua lohi iki ka nui o ka hōʻino ʻana o ka hana o nā puʻupaʻa i ka poʻe i lawe iā Jynarque ma mua o nā poʻe ʻē aʻe. ʻO ke ʻano kēia, hiki i kēia lāʻau ke kōkua i ka mālama ʻana i ka hana o ko lākou mau puʻupaʻa no kekahi manawa lōʻihi, ʻoiai i ka poʻe i lilo i mea koʻikoʻi.Nā hopena ʻaoʻao a pehea e mālama ai iā lākou?
Aia kekahi mau hopena ʻaoʻao i ka wā e hoʻohana ai iā Jynarque, a he mea nui e ʻike iā lākou.- Ka mimi pinepine ʻana: ʻO kēia ka hopena ʻaoʻao maʻamau. Hiki i kēia ke kumu iā ʻoe e pono ai e hele pinepine i ka lua, i ke ao a me ka pō. No ka hōʻemi ʻana i ka ʻeha i ka pō, e lawe i ka lua o ka mahele i ka manawa like, ʻaʻole ma hope o ke ahiahi.
- Ka maloʻo ʻana o ka wai: Aia kahi pilikia o ka maloʻo ʻana o ka wai no ka mea ua nalowale ke kino i ka nui o ka wai. No ka pale ʻana i kēia, e inu i ka wai nui i ka lā a pau, me ke kali ʻole a hiki i kou make wai ʻana . E inu koke i ka wai ke make wai ʻoe. Hiki i ka maloʻo ʻana ke hoʻonui i nā pae sodium i loko o ke koko. Inā ʻike ʻoe i nā hōʻailona e like me ka poniuniu, ka nāwaliwali , ka luhi nui, ka hāʻule ʻana, a i ʻole ka puʻuwai puʻuwai kūpono ʻole , e hoʻomaopopo koke i kāu kauka.
Hiki paha ke loaʻa nā pilikia me nā lāʻau lapaʻau a meaʻai ʻē aʻe?
ʻAe, he mea nui loa nō hoʻi kēia.- Nā lāʻau lapaʻau ʻē aʻe: Hiki iā Jynarque ke launa pū me kekahi mau lāʻau lapaʻau ʻē aʻe. Hiki i kekahi mau lāʻau lapaʻau ke hoʻonui i nā hopena ʻaoʻao o Jynarque, aʻo kekahi e hōʻemi paha i ka pono o Jynarque. No laila, e hōʻoia e haʻi i kāu kauka e pili ana i nā lāʻau lapaʻau āpau āu e lawe nei (me nā huaora a me nā lāʻau lapaʻau lāʻau).
- ʻAi: Mai ʻai i ka pomelo a inu paha i ka wai pomelo i ka wā e lawe ana i kēia lāʻau lapaʻau. Hoʻonui ka pomelo i ka pae o Jynarque i loko o ke kino, e hoʻonui ana i ka pilikia o nā hopena ʻaoʻao. Hiki ke hana ʻia kēia hopena ʻoiai inā ʻoe e ʻai i ka pomelo i kekahi manawa ʻē aʻe o ka lā, ʻaʻole i ka wā e lawe ana i ka lāʻau lapaʻau, no laila e pale loa i ka pomelo.
Aia kekahi ala kūikawā e loaʻa ai kēia lāʻau lapaʻau?
He lāʻau lapaʻau ʻo Jynarque nona ka hiki ke hōʻino i ke akepaʻa. Ma muli o kēia pilikia, loaʻa wale kēia lāʻau lapaʻau ma lalo o kahi papahana kūikawā i kapa ʻia ʻo REMS Program . Pono ʻoe e kākau inoa i kēia papahana ma mua o kou hoʻomaka ʻana e lawe i ka lāʻau lapaʻau. Pono nō hoʻi ʻoe e loaʻa nā hoʻāʻo koko e nānā i ka hana o kou akepaʻa. Pono ʻoe e hoʻomau i ka loaʻa ʻana o kēia mau hoʻāʻo koko i nā manawa maʻamau ma hope o kou hoʻomaka ʻana e lawe i ka lāʻau lapaʻau. He mea nui e hoʻomau ʻoe i ka lawe ʻana i kēia mau hoʻāʻo inā makemake ʻoe e hoʻomau i ka lawe ʻana i ka lāʻau lapaʻau. E wehewehe hou aku kāu kauka e pili ana i kēia.Leka Lawe-Home
- ʻO ADPKD kahi maʻi hoʻoilina e hoʻoulu ai i nā pōhaku puʻupaʻa, a hiki i ka hopena ke alakaʻi i ka hāʻule ʻana o ka puʻupaʻa.
- He lāʻau lapaʻau kūikawā ʻo Jynarque (Tolvaptan) e kōkua ai i ka lohi o ka ulu ʻana o kēia mau ʻōpū puʻupaʻa.
- ʻAʻole kūpono kēia lāʻau lapaʻau no nā kānaka a pau. E haʻi i kāu kauka e pili ana i kou mau kūlana olakino a pau.
- E lawe i ka lāʻau lapaʻau i ka manawa kūpono, ma ka nui kūpono. Mai hōʻole i nā hoʻāʻo koko e nānā i ka hana o kou ake.
- E inu i ka wai he nui i ka lā a pau. E pale i ka ʻai ʻana a me ka inu ʻana i ka pomelo a pau loa.
- ʻOiai inā ʻaʻole ʻoe e ʻike i kekahi ʻokoʻa, e pale i ka hoʻōki ʻana i kēia lāʻau lapaʻau a i ʻole kekahi lāʻau lapaʻau ʻē aʻe me ka ʻole o ke aʻo ʻana a kāu kauka.
No comments yet. Be the first to share your question or experience below.