Loaʻa iā ʻoe kēia mau hōʻailona? E kamaʻilio kākou e pili ana i ka Multiple Sclerosis (MS)!

Ke manaʻo nei ʻoe i kekahi manawa e nalowale ana kou kaulike a i ʻole ua pōwehiwehi koke kou ʻike? A i ʻole ke manaʻo nei ʻoe e nalowale ana kou kaulike ke hele ʻoe? Aia kekahi mau manawa ke noʻonoʻo nei ʻoe inā e hala wale ana kēia mau mea, a inā paha he hoʻomaka lākou o kahi mea nui aʻe? I kēia lā e kamaʻilio mākou e pili ana i kahi maʻi i paʻakikī iki, akā he mea nui loa ia e makaʻala. ʻO ia ka Multiple Sclerosis , a i ʻole MS no ka pōkole.

He aha ka Sclerosis lehulehu?

I ka ʻōlelo maʻalahi, ʻo ka sclerosis maha (MS) kahi kūlana kahi e hoʻouka ai kāu ʻōnaehana pale ponoʻī i kou lolo a me ke kaula spinal , ʻo ia hoʻi kou ʻōnaehana nerve waena . Ua kapa ʻia kēia he kūlana autoimmune .

E noʻonoʻo i nā aʻalolo i loko o kou kino e like me nā uea uila. He ʻūpā pale ko kēia mau uea a puni lākou, ʻeā? Pēlā nō, he ʻūpā pale ko ko kākou mau hunaola aʻalolo i kapa ʻia ʻo myelin . Kōkua kēia mau ʻūpā myelin i nā hōʻailona e hele wikiwiki a pololei ma o nā aʻalolo. He mea nui kēia kamaʻilio ʻana no nā mea a pau a kākou e ʻike ai, e manaʻo ai, a e hoʻoneʻe ai i ko kākou kino.

I kēia manawa, ʻo ka mea e hana ʻia i kahi kanaka me MS, ʻo ia ka hoʻouka hewa ʻana o kā lākou ʻōnaehana pale ponoʻī i kēia mau pūnaewele myelin . Ua like ia me ko mākou pūʻali koa ponoʻī e hoʻouka ana i ko mākou ʻāina ponoʻī. Hōʻino kēia i nā ʻūpā myelin. A laila, ʻaʻole e hele pono kēlā mau leka aʻalolo, paʻa i waenakonu, a hele hewa paha. Hiki ke hana ʻia kēia hōʻino ma ka lolo, ke kaulahao iwi kuamoʻo, a i kekahi manawa ma nā aʻalolo e pili ana i nā maka.

ʻAʻohe lāʻau lapaʻau no MS i kēia manawa. Eia nō naʻe, he nui nā lāʻau lapaʻau kūpono e hōʻemi i ka pōʻino a kāohi i nā hōʻailona. No laila, mai hopohopo.

He aha nā ʻano nui o MS?

Hoʻopilikia ʻo MS i kēlā me kēia kanaka i kekahi ʻano like ʻole, no laila ua hoʻokaʻawale nā ​​​​kauka iā ia i kekahi mau ʻano ma muli o kāu mau hōʻailona. ʻAʻole kēia he mau maʻi like ʻole, ʻo ke ʻano wale nō o ka hōʻike ʻana o ka maʻi iā ia iho.

ʻEhā ʻano nui:

1. Clinically Isolated Syndrome (CIS): ʻO kēia ka manawa mua e ʻike ʻia ai nā hōʻailona MS. Akā, ʻaʻohe hōʻike lawa e hōʻoia pono ai he MS ia. Hoʻokumu ʻia kēia mau hōʻailona e ka hōʻino ʻia ʻana o ka myelin. ʻAʻole e loaʻa i nā kānaka a pau me CIS ka MS, akā hiki i kekahi ke loaʻa iā MS i ka wā e hiki mai ana.

2. Relapsing-Remitting Multiple Sclerosis (RRMS): ʻO kēia ke ʻano maʻamau o MS . Ma kahi o 85% o ka poʻe me MS e hāʻule i loko o kēia māhele. ʻO ka mea e hana ʻia, ʻo ia ka ʻike koke ʻia ʻana o nā hōʻailona hou, a i ʻole e ʻoi aku ka ʻino o nā hōʻailona kahiko. Kāhea mākou i kēia he "relapse" a i ʻole he "hoʻouka ." A laila, i ka hala ʻana o ka manawa, e emi ana kēia mau hōʻailona a nalo loa paha. Ua kapa ʻia kēia he "remission."Ua hiki i ka manawa.

3. Secondary Progressive Multiple Sclerosis (SPMS): Nui ka poʻe me RRMS e loaʻa i ka SPMS. I kēia pae, hōʻiliʻili mālie ka hōʻino ʻana o ke aʻalolo a ʻoi aku ka ʻino o nā hōʻailona. Hiki ke loaʻa hou nā hōʻailona, ​​​​akā ʻoi aku ka pōkole o nā manawa o ka hoʻomaha ʻana, a i ʻole nā ​​​​manawa o ka hōʻoluʻolu ʻana i nā hōʻailona.

4. ʻO ka Sclerosis Multiple Progressive Primary (PPMS): I kēia ʻano, e ʻoi mālie ana nā hōʻailona mai ka hoʻomaka ʻana. ʻAʻohe relapses a me nā remissions maopopo e like me RRMS.

Ma waho aʻe o kēia mau ʻano nui ʻehā, aia kekahi mau ʻano like ʻole o MS:

• ʻO Tumefactive Multiple Sclerosis: He ʻano kēia o ka sclerosis maha e hoʻoulu ai i ka demyelination ma nā wahi nui o ka lolo. Hiki ke like kēia me nā ʻōpū. Pono paha kahi biopsy e hoʻoholo ai inā he ʻōpū lolo kēia.
• ʻO ka Balo's Concentric Sclerosis: Ma kēia ʻano, ʻike ʻia ka hōʻino ʻia o ka myelin e like me nā apo concentric ma kahi MRI scan, no laila ka inoa.
• ʻO Marburg Variant Multiple Sclerosis: He ʻano MS koʻikoʻi loa kēia a kakaikahi loa. Holo wikiwiki nā hōʻailona a hiki ke make inā ʻaʻole mālama ʻia.

Pehea ka maʻamau o MS?

Ua hōʻike ʻia nā haʻawina i mālama ʻia ma nā ʻāina e like me ʻAmelika Hui Pū ʻIa e kokoke ana i hoʻokahi miliona mau mākua e noho nei me MS. Aia kekahi poʻe me kēia maʻi ma Sri Lanka.

He aha nā hōʻailona mua o MS?

ʻO nā hōʻailona mua o MS hiki ke komo pū me:

• Nā loli o ka ʻike: Ka ʻike pōwehiwehi i kekahi maka, ka ʻeha (ua kapa ʻia kēia he optic neuritis ), ka ʻike pālua, a me ka nalowale paha o ka ʻike.
• Nāwaliwali o nā ʻiʻo: ʻO ka maʻamau ma kekahi ʻaoʻao o ka maka a i ʻole ke kino, a i ʻole ma lalo o ka pūhaka.
• ʻO ka mae a i ʻole nā ​​manaʻo ʻē: Hiki ke ʻike pinepine ʻia kēia ma kekahi ʻaoʻao o ka maka a i ʻole ke kino, a i ʻole ma lalo o ka pūhaka. Hiki ke manaʻo e like me ka ʻūlū ʻana, a i ʻole hiki ke manaʻo ʻia he mea ʻole.

He aha nā hōʻailona ʻē aʻe o MS?

Eia kekahi mau hōʻailona maʻamau ʻē aʻe i hiki ke hana ʻia e MS:

• Luhi: ʻAʻole wale ka luhi, akā, ka luhi hiki ʻole ke hoʻomanawanui, ke kaumaha nui.
• Ka palaualelo
• Pōʻino
• Paʻakikī ke kāohi ʻana i ka hana o ka ʻōpū mimi: mimi pinepine, hiki ʻole ke kāohi i ka mimi.
• Ka nalowale o ke kaulike a me ka hoʻonohonoho ʻana
• Nā pilikia o ka hana noʻonoʻo:ʻO ia hoʻi ka emi ʻana o ka noʻonoʻo, ka hoʻomanaʻo, ka nānā ʻana, ke aʻo ʻana, a me ka hoʻoholo ʻana.
• Nā loli o ke ʻano: huhū, kaumaha, hopohopo.
• ʻOʻoleʻa o nā ʻiʻo a me nā ʻūmiʻi ʻiʻo / haʻalulu

ʻO ka mea nui, ʻokoʻa kēia mau hōʻailona mai kēlā kanaka a kēia kanaka. ʻOkoʻa paha ka mea i loaʻa iā ʻoe i kekahi lā mai ka mea i loaʻa iā ʻoe i kekahi lā. Loaʻa paha iā ʻoe kekahi o kēia mau hōʻailona, ​​akā ʻaʻole lākou a pau i ka manawa hoʻokahi.

Hiki ke ola maʻamau me MS?

He mea paʻakikī iki kēia e ʻōlelo aku, no ka mea, ʻokoʻa ka mea "maʻamau" mai kēlā kanaka a kēia kanaka. Me MS, hiki iā ʻoe ke loaʻa nā manawa o ka hoʻomaha ʻana . ʻO ia hoʻi nā manawa e nalowale ai kāu mau hōʻailona a hiki iā ʻoe ke like me ʻoe ma mua. Hiki paha iā ʻoe ke poina iā ʻoe he MS kou, a hiki i ka hoʻi ʻana mai o kāu mau hōʻailona. ʻO ke ʻano o kēia "maʻamau", a me ka nui o kona manaʻo, hiki ke ʻokoʻa ma muli o ke ʻano o MS a me ke kahua o ka maʻi.

He aha ke kumu o MS?

ʻO ke kumu nui o MS ka luku ʻia ʻana o ka myelin (demyelination) . E like me kā mākou i kūkākūkā ai ma mua, ʻo ka myelin ka uhi pale a puni nā pūnaewele nerve (neurons) i loko o kou lolo a me ke kaula spinal. ʻO ia ka mea e hoʻouna i nā leka ma waena o kou lolo a me ke koena o kou kino, e kaohi ana i nā mea e like me ka ʻike, ka manaʻo, a me ka neʻe ʻana.

ʻO ka hana a kou ʻōnaehana pale kino, ʻo ia ke pale aku iā ʻoe mai nā mea e hōʻino ai i kou kino, e like me ka bacteria a me nā virus. Akā i ka MS, lilo kou ʻōnaehana pale kino i mea hana nui a manaʻo hewa he mea hoʻoweliweli ka myelin olakino (a i kekahi manawa nā ʻaʻalolo ma lalo). Ke hoʻouka ka ʻōnaehana pale kino i kēia myelin olakino, hōʻino ia iā ia. Ua kapa ʻia kēia he demyelination .

Hiki i ke kauka ke hoʻohana i kahi hoʻāʻo kiʻi, e like me ka MRI, e ʻike i nā hōʻike o kēia hōʻino myelin. Hiki iā lākou ke kapa iā ia he ʻōpala, lesion, a i ʻole plaque . Ma kahi i hōʻino ʻia ai ka myelin, ʻaʻole hele pono nā leka ma waena o nā cell nerve. ʻO ia ke kumu o nā hōʻailona o MS.

ʻAʻole maopopo i nā loea ke kumu e ulu ai kekahi poʻe i ka MS, akā hōʻike ka noiʻi e hoʻonui paha kēia mau mea i ka pilikia o ka ulu ʻana o MS:

• Puhipaka
• Ka ʻike ʻia ʻana i nā mea ʻawahia: No ka laʻana, ka ʻike ʻia ʻana i ka uahi lua, nā pesticides.
• Nā pae haʻahaʻa o ka wikamina D
• Ka hōʻike ʻana i kahi maʻi: No ka laʻana, ka maʻi Epstein-Barr a i ʻole mononucleosis .
• Ka momona i ka wā kamaliʻi
• Ka maʻi hoʻoilina:ʻO ke ʻano kēia inā loaʻa i kekahi o kou ʻohana kēia maʻi, a i ʻole inā he mau genes kou e hoʻoikaika ai iā ʻoe e hoʻomohala i ka maʻi, ʻoi aku ka nui o kou loaʻa ʻana iā ia.

ʻO wai ka mea i ʻoi aku ka nui o ka pilikia o ka hoʻomohala ʻana i ka MS?

Aia paha ʻoe i kahi pilikia kiʻekiʻe o ka hoʻomohala ʻana i ka MS inā ʻoe:

• Inā ʻoe ma waena o 20 a me 40 mau makahiki.
• Inā he kūpuna ʻEulopa ʻĀkau kou.
• Inā he wahine ʻoe (ʻoi aku ka nui o ka loaʻa ʻana o MS i nā wahine).

Akā e hoʻomanaʻo, hiki i ka MS ke hoʻopilikia i kekahi. I nā hihia kakaikahi, hiki iā ia ke hoʻopilikia i nā keiki .

He aha nā pilikia e hiki ke hana ma muli o MS?

Inā ʻoi aku ka ʻino o nā hōʻailona MS a i ʻole e lilo i mea ʻino, nā pilikia e like me:

• Ka paʻakikī o ka hele wāwae me ke kōkua ʻole.
• Ka nalowale ʻana o ke kaohi ʻana i ka ʻōpū a i ʻole ka mimi .
• Ka nalowale o ka hoʻomanaʻo .
• Hana ʻino i ka moekolohe .
• Kaumaha a me ka hopohopo .

Pehea e ʻike ʻia ai ka MS?

ʻAʻohe hoʻokolohua hoʻokahi e hiki ke hōʻoia maopopo i ka MS. Akā, e hoʻoholo ke kauka he MS kou ma hope o ka hana ʻana i kahi hoʻokolohua kino, kahi hoʻokolohua neurological, a me kekahi mau hoʻokolohua ʻē aʻe .

I ka wā o ka hoʻokolokolo ʻana, e aʻo hou kāu kauka e pili ana i kāu mau hōʻailona a me ka mōʻaukala olakino. Hiki i nā hoʻokolohua ke komo pū me nā hoʻokolohua koko, nā scan MRI (Magnetic Resonance Imaging) o kou lolo a me ke kaula spinal, a me ka hoʻokolokolo ʻana i kou wai spinal .

Hiki ke lōʻihi ka manawa e loaʻa ai kahi hōʻoia paʻa o MS. Pono paha ʻoe e ʻike i kāu kauka i nā manawa he nui ma mua o kou ʻike maopopo ʻana. ʻO kēia no ka mea hiki ke like nā hōʻailona o MS me nā maʻi maʻamau ʻē aʻe. ʻOiai hiki ke hoʻonāukiuki ka lohi ʻana i ka hōʻoia ʻana, hiki i ka loaʻa ʻana o kahi hōʻoia pololei ke kōkua i kāu kauka e mālama pono i kāu mau hōʻailona.

He aha nā hoʻokolohua i hoʻohana ʻia e hōʻoia i ka MS?

Kōkua nā hoʻokolohua diagnostic i kāu kauka e kāpae i nā kūlana ʻē aʻe i loaʻa nā hōʻailona like me MS. Hiki i nā hoʻokolohua ke komo pū me:

• Nā hoʻāʻo koko a me nā hoʻāʻo mimi
• Hoʻāʻo Magnetic Resonance Imaging (MRI)
• Hoʻāʻo Optical Coherence Tomography (OCT): Nānā kēia no ka hōʻino ʻia ʻana o nā aʻalolo optic.
• Lumbar Puncture: Ma kēia, lawe ʻia kahi hāpana o ka wai o ka iwi kuamoʻo mai ka iwi kuamoʻo a nānā ʻia.
• Hoʻāʻo Evoked Potential (EP): Ke ana kēia i ka wikiwiki o ka holo ʻana o nā impulses nerve.

ʻO wai ka mea nāna e ʻike i ka MS?

Inā kānalua kāu mea mālama mua he loaʻa paha iā ʻoe ka MS, e kuhikuhi lākou iā ʻoe i kahi neurologist . ʻO ka neurologist he kauka loea i ka mālama ʻana i nā maʻi o ka ʻōnaehana nerve, ʻo ia hoʻi ka lolo a me ke kaula spinal.

Hiki ke ho'ōla loa ʻia ʻo MS?

ʻO ka mea pōʻino, ʻaʻohe ala e ho'ōla loa ai iā MS i kēia manawa.

He aha nā lāʻau lapaʻau no MS?

ʻO nā pahuhopu nui o ka mālama ʻana i ka sclerosis maha, ʻo ia ka hōʻemi ʻana i ka pōʻino hou aʻe, kaohi ʻana i nā hōʻailona, ​​a me ka pale ʻana i nā pilikia . Hiki i kāu hoʻolālā lapaʻau ke komo pū me:

• Nā lāʻau lapaʻau
• Hoʻōla kino, hoʻōla hana, a i ʻole ka hoʻōla ʻōlelo
• ʻŌlelo aʻoaʻo olakino noʻonoʻo

ʻOkoʻa nā ʻano ʻē aʻe e mālama ai i nā hōʻailona ma muli o ke ʻano o ka maʻi e pili ana iā ʻoe. Hiki iā lākou ke komo pū me:

• Ke komo ʻana i nā aniani a i ʻole ka lawe ʻana i nā lāʻau lapaʻau no nā pilikia ʻike.
• Hoʻoulu hohonu i ka lolo no nā haʻalulu ʻiʻo.
• Ke hoʻohana nei i nā mea kōkua e like me ke koʻokoʻo, ka mea hele wāwae, a i ʻole ka noho huila no nā pilikia hele wāwae.
• Nā lāʻau antiseizure a i ʻole nā ​​​​lāʻau antispasmodic no ka ʻeha (e.g. , gabapentin a i ʻole nortriptyline ).
• Nā lāʻau lapaʻau e like me ka donepezil no nā hōʻailona ʻike.
• Nā lāʻau lapaʻau ʻē aʻe e like me ka acupuncture a me ka yoga .

Inā ʻaʻole pane maikaʻi kou kino i kekahi mau lāʻau lapaʻau i ka wā o ka hoʻouka kaua MS, hiki i kāu kauka ke ʻōlelo aku i ka hoʻololi plasma (plasmapheresis) . ʻOi aku ka maikaʻi o kēia i ka hōʻemi ʻana i ka pōʻino mai kahi hoʻouka kaua e kū nei ma mua o ka pale ʻana i nā hoʻouka kaua hou aʻe i ka wā lōʻihi.

Hiki iā ʻoe ke kamaʻilio me kāu kauka e pili ana inā he mau hoʻokolohua lapaʻau hiki iā ʻoe ke komo. ʻO nā hoʻokolohua lapaʻau he mau hoʻokolohua ma luna o ka poʻe e ʻike i nā lāʻau lapaʻau hou no MS a me nā maʻi ʻē aʻe, ʻo ia hoʻi nā lāʻau lapaʻau hou a i ʻole nā ​​​​ala hou e hoʻohana ai i nā lāʻau lapaʻau e kū nei.

Nā lāʻau lapaʻau no ka sclerosis maha

Hiki i nā lāʻau lapaʻau no ka sclerosis lehulehu ke hōʻemi i ke alapine o ka hoʻi hou ʻana, hōʻemi i ka ulu ʻana o nā ʻeha hou/ka ʻeha ma ka lolo a me ke kaula kuamoʻo, a hoʻolohi i ka holomua o ka maʻi. ʻO nā ʻano lāʻau lapaʻau maʻamau no MS:

1. Nā Lapaʻau Hoʻololi Maʻi (DMT):Hoʻemi nā DMT i ka nui o nā relapses i loaʻa iā ʻoe, hoʻolohi i ka holomua o MS, a pale i nā ʻeha hou mai ke kūkulu ʻana i loko o kou lolo a me ke kaula spinal. Aia kekahi mau lāʻau lapaʻau i ʻae ʻia e ka U.S. Food and Drug Administration (FDA) no ka mālama ʻana i ka MS lōʻihi.

2. Nā lāʻau lapaʻau hoʻihoʻi hou: No nā hoʻouka kaua koʻikoʻi, nā lāʻau lapaʻau e like me corticosteroids (e like me methylprednisolone ) e kāohi i kāu ʻōnaehana pale a hōʻemi koke i ka pehu. Hiki i kēia mau lāʻau lapaʻau ke wikiwiki i kou manawa hoʻōla ma hope o kahi hoʻouka kaua. Hoʻemi pū lākou i ka hōʻino ʻana i ka ʻōpū myelin a puni kāu mau hunaola nerve. Hiki i kāu kauka ke hāʻawi iā ʻoe i kēia mau lāʻau lapaʻau ma o ka IV (intravenously) . ʻO nā lāʻau lapaʻau pōkole ʻē aʻe no nā hoʻouka kaua koʻikoʻi e komo pū me ka IV immunoglobulin therapy a i ʻole ka hoʻololi plasma .

Nā DMT no MS

Eia nā DMT i hoʻohana pinepine ʻia no MS a me kā lākou mau ʻano lawelawe:

• Nā inikini i loko o kou ʻili: Beta interferon, glatiramer acetate, a i ʻole ofatumumab.
• Nā hoʻokomo ʻana i loko o kahi aʻa (IV): Alemtuzumab, natalizumab, rituximab, ocrelizumab, a i ʻole ublituximab.
• Nā lāʻau lapaʻau waha: Cladribine, dimethyl fumarate, diroximel fumarate, monomethyl fumarate, fingolimod, siponimod, ponesimod, ozanimod, a i ʻole teriflunomide.
• Hoʻoili pūnaewele kumu

Hiki ke pale ʻia ka sclerosis lehulehu?

ʻAʻohe ala i ʻike ʻia e pale aku ai iā MS i kēia manawa.

Pehea e hoʻemi ai i ka hoʻoulu ʻana o nā hōʻailona MS?

ʻO ke ala kūpono loa e hōʻemi ai i ka nui o nā flare-up, relapses, a me nā hoʻouka ʻana āu e loaʻa ai, ʻo ia ka lawe ʻana i nā lāʻau hoʻololi maʻi (DMT) .

He mea nui nō hoʻi ke ola i kahi nohona olakino . Hiki i nā hoʻoholo āu e hana ai ke kōkua i ka lohi ʻana o ka holomua o ka maʻi. I mea e noho olakino ai, hiki i kāu kauka ke ʻōlelo i kēia mau mea:

• Ka ʻai ʻana i ka meaʻai momona.
• Ka lawa ʻana o ka hiamoe.
• Ke komo ʻana i ka hana kino maʻamau.
• ʻAʻole hoʻohana i nā huahana paka.

Hiki i ka hoʻoponopono ʻana i kahi maʻi mau ke paʻakikī i ka noʻonoʻo. Hiki i ka MS ke hoʻopilikia i kou ʻano a me kou hoʻomanaʻo i kekahi manawa. He neuropsychologist a he kākā'ōlelo olakino noʻonoʻo pahaHe mea nui ka hana pū ʻana no ka mālama ʻana i ka maʻi i ka wā lōʻihi.

He aha ka manaʻolana no MS?

He maʻi ola ka sclerosis lehulehu ʻaʻohe ona lāʻau lapaʻau . Eia nō naʻe, he kūpono loa nā koho lapaʻau o kēia manawa i ka mālama ʻana i nā hōʻailona a me ka hōʻemi ʻana i ke alapine o ka flare-ups. Me ka lāʻau lapaʻau a i ʻole me ka ʻole o ka lāʻau, hiki i ka MS ke lilo i mea kīnā i ka hala ʻana o ka manawa, e paʻakikī ai ka hana ʻana i nā hana o kēlā me kēia lā me ke kōkua ʻole. Aia kāu hui mālama ma laila e kākoʻo iā ʻoe ma kāu huakaʻi MS, e hana ana i nā hana e pale aku ai i nā pilikia a hoʻomaikaʻi i kou ʻano ola.

Ke hoʻopilikia nei ka sclerosis maha i kou ola?

Hiki iā ʻoe ke manaʻo e ola i kahi ola maʻamau me MS. ʻOiai ua hōʻike nā haʻawina kahiko e hiki i ka MS ke hoʻopōkole i kou manaʻolana ola ma kahi o 10 mau makahiki, ua hoʻomaikaʻi nui ʻia kēia me ka holomua ʻana i nā koho lapaʻau. I nā hihia kakaikahi loa wale nō ka make ʻana o MS.

Hiki i kekahi me MS ke ola i kahi ola maʻamau?

ʻAe. Hiki i ka MS ke lilo i kūlana paʻakikī e ʻike a mālama, akā e kōkua kāu hui mālama iā ʻoe i kēlā me kēia ʻanuʻu o ke ala. ʻOiai ʻaʻohe lāʻau lapaʻau, hiki iā ʻoe ke ola i kahi ola piha a hana me MS. Mai nā lāʻau lapaʻau a hiki i ka therapy, aia nā ala e kōkua iā ʻoe e hoʻonui i kāu hana kino a me ka noʻonoʻo. Aia kekahi mau hui kākoʻo e hiki ke kōkua iā ʻoe e hoʻopili me nā poʻe ʻē aʻe i loaʻa nā ʻike like.

Āhea ʻoe e ʻike ai i ke kauka?

Pono ʻoe e ʻike i ke kauka inā ʻike ʻoe i nā hōʻailona e like me kēia:

• Manaʻo nui loa i ka wela.
• Inā manaʻo ʻoe ua paʻa ʻole a ua kaulike ʻole paha.
• Ka paʻakikī e hoʻomanaʻo i nā mea.
• ʻOi loa aku inā he ʻeha a he ʻūlū paha kou mau lima a mau wāwae paha.
• Nā loli koke o ka ʻike.
• Inā ʻoe e manaʻo i ka nāwaliwali ma kou mau lima a i ʻole kou mau wāwae.

Inā loaʻa iā ʻoe ka MS a hoʻomohala i nā hōʻailona hou, a i ʻole inā e ʻoi aku ka ʻino o nā hōʻailona e kū nei, e haʻi i kāu kauka.

He aha nā nīnau āu e nīnau ai i kāu kauka?

Hiki paha iā ʻoe ke nīnau i kāu kauka i kēia mau nīnau:

• He aha ke ʻano o ka lāʻau lapaʻau āu e paipai nei?
• ʻEhia pinepine e pono ai iaʻu ke hele i ka hoʻoikaika kino?
• Aia kekahi hopena ʻaoʻao i nā lāʻau lapaʻau āu i kuhikuhi ai?
• Āhea a pehea ka pinepine e pono ai iaʻu e lawe i ka lāʻau lapaʻau?
• He aha nā hōʻailona e pono iaʻu e makaʻala?
• Hiki iā ʻoe ke hāʻawi mai iaʻu i ka ʻōlelo aʻoaʻo no ka mālama ʻana i ke olakino maikaʻi?
• Aia kekahi mau hui kākoʻo hiki iā ʻoe ke paipai mai?

Leka Lawe-Home

He maʻi hoʻonāukiuki a hoʻoweliweli hoʻi ka sclerosis maha (MS). Hiki ke hele koke mai nā hōʻailona a ʻoi aku ka ʻino. Hiki iā MS ke hoʻonui i kou pilikia i nā ulia inā nalowale kou kaulike.

Akā, ʻaʻole ʻoe hoʻokahi. Hiki i ke kauka ke kōkua iā ʻoe e hoʻokele i ke kūlana a hoʻomau i kāu mau hana o kēlā me kēia lā me ka palekana. I ka holomua ʻana o ka maʻi, pono paha ʻoe e hana i nā hoʻololi liʻiliʻi i kou nohona, e like me ka hoʻohana ʻana i kahi mea kōkua hele wāwae a i ʻole ke kau ʻana i nā aniani. Akā, nui ka poʻe me MS e ola piha a hana me ke kōkua o kā lākou hui mālama. Inā he mau nīnau kāu e pili ana i kāu mau koho lapaʻau, nā hōʻailona a i ʻole nā ​​​​pilikia e makaʻala ai, mai kānalua e nīnau i kāu mau kauka. ʻO ka ʻike a me ka loaʻa ʻana o ke kākoʻo kūpono ke ala maikaʻi loa e ola kūleʻa ai me MS.

ʻO ka Sclerosis Multiple, MS, Maʻi Neurological, Myelin, Lolo, Spinal Cord, Nā Hōʻailona, ​​Lapaʻau, Maʻi Autoimmune, Multiple Sclerosis