Ke manaʻo nei ʻoe i kekahi manawa i ka mae a me ka ʻeha nui ma kou ʻāʻī, poʻohiwi, a i ʻole nā lima? A i ʻole he nalowale kou ʻike ma nā ʻāpana o kou kino? Inā loaʻa iā ʻoe ma mua o hoʻokahi o kēia mau hōʻailona, hiki ke ma muli o kahi maʻi laha ʻole i kapa ʻia ʻo syringomyelia, a mākou e kamaʻilio nei. Mai hopohopo, ʻaʻole kēia he mea e hana ʻia i nā poʻe he nui. Akā he mea nui e mālama i kēia maʻalahi mai ka hoʻomaka.
He aha maoli kēia syringomyelia?
I ka ʻōlelo maʻalahi, ʻo kēia ka inoa i hāʻawi ʻia no ke kūkulu ʻia ʻana o kahi ʻeke piha wai, a i ʻole cyst, i loko o ko kākou iwi kuamoʻo. Kāhea nā kauka i kēia ʻeke piha wai he 'syrinx'. ʻO ia ke kumu e kapa ai kekahi poʻe i kēia maʻi ʻo Hydromyelia, Syringohydromyelia.
I ka hapa nui o ka manawa, ʻaʻole paha ʻoe e ʻike. Akā i kekahi manawa, inā ulu kēia cyst i ka hala ʻana o ka manawa, hiki iā ia ke hoʻomaka e kaomi a hōʻino i nā aʻalolo palupalu i loko o kou iwi kuamoʻo. I kēlā hihia, pono ka lāʻau lapaʻau.
ʻOi aku ka maʻamau o kēia ʻano ma waena o nā pākeke ma waena o 20 a me 40 mau makahiki. ʻOi aku ka maʻamau o nā kāne ma mua o nā wahine.
He aha nā hōʻailona?
Aia nā hōʻailona o kēia ma kahi o ka cyst ma ka iwi kuamoʻo a me kona nui. I ka hala ʻana o ka manawa, i ka ulu ʻana o ka cyst, hiki iā ia ke hōʻino i nā aʻalolo ma ka iwi kuamoʻo. ʻO ia ka manawa e hoʻomaka ai nā pilikia.
I ka manawa pinepine, ʻike lohi loa nā hōʻailona, i nā makahiki he nui. Eia nō naʻe, i kekahi manawa hiki ke ʻike koke ʻia nā hōʻailona ma hope o kahi ulia, e like me ka hāʻule ʻana.
Ua hōʻike ʻia ma ka papa ma lalo nei kekahi o nā hōʻailona nui e ʻike ʻia.
| Māhele hōʻailona | Nā mea e ʻike ai |
|---|---|
| ʻEha a me ke ʻano | ʻEha, mae wale, wela, a i ʻole he manaʻo hou ma ka ʻāʻī, nā poʻohiwi, nā lima, a me nā lima. Nalowale ka manaʻo o ka wela/anu, e like me ka wai wela a i ʻole ka hau, ma nā lima, nā manamana lima, a me ka umauma o luna. |
| Nāwaliwali o nā ʻiʻo | Ka nāwaliwali o nā ʻiʻo (ʻoi aku hoʻi ma nā lima a me nā poʻohiwi), ka paʻakikī i ka hele wāwae ma muli o ka ʻoʻoleʻa o nā ʻiʻo, a me ka nalowale o nā reflexes. |
| Nā loli kino | ʻO ke kūlou ʻana o ka iwi kuamoʻo, kahi kūlana a mākou e kapa nei he scoliosis . Nā loli a i ʻole nā pilikia i ka kaohi ʻana i ka lua a i ʻole ka mimi. |
| Nā hiʻohiʻona ʻē aʻe | ʻEha poʻo, hou nui, nā loli ʻē i ke koko, nā pilikia moekolohe, a me nā neʻe ʻana i hoʻonohonoho ʻole ʻia. |
I kekahi manawa, inā hōʻino kēia cyst i kahi aʻalolo e kaohi ana i nā ʻiʻo o ko mākou maka a me nā maka, hiki ke loaʻa kahi maʻi i kapa ʻia ʻo Horner syndrome . I kēia hihia, ʻike paha ʻoe i nā mea e like me ke kūlou ʻana o ka lihilihi maka ma ka ʻaoʻao i hoʻopilikia ʻia o ka maka, kahi haumāna liʻiliʻi, a me ka emi ʻana o ka hou ʻana ma kēlā ʻaoʻao.
No ke aha lā e hana ʻia ai kekahi mea e like me kēia?
E noʻonoʻo ua hoʻopuni ʻia ko kākou lolo a me ke kaula iwi kuamoʻo e kahi wai kūikawā i kapa ʻia ʻo ka wai cerebrospinal. Ke holo maʻamau kēia wai, ʻaʻohe pilikia. Akā inā no kekahi kumu i ālai ʻia ai ke ala o kēia wai, hiki i kēlā wai ke hōʻiliʻili i loko o ke kaula iwi kuamoʻo a hana i ka cyst a mākou i ʻōlelo ai. ʻElua mau ʻano nui o nā kumu no kēia.
Nā kumu hānau
ʻO kēia ke kumu maʻamau. Ke hānau ʻia kekahi mau pēpē, hiki ke hoʻokuʻi ʻia ka ʻaoʻao haʻahaʻa o ko lākou lolo (cerebellum) i lalo i ka iwi kuamoʻo. Ua kapa ʻia kēia e nā kauka he malformation Chiari I. Ke ālai nei kēia i ke kahe o ka wai a hoʻoulu i ka hoʻokumu ʻana o kahi cyst. Eia naʻe, ʻaʻole nā kānaka a pau me kēia malformation Chiari I e loaʻa i ka syringomyelia . ʻIke pinepine ʻia nā hōʻailona ma waena o 25 a me 40 mau makahiki.
Nā Kumu i Loaʻa
I kekahi manawa hiki ke hana ʻia kēia ʻano e ka hōʻino ʻana i ka iwi kuamoʻo, ʻo ia hoʻi kahi mea e hana ʻia ma hope o ka hānau ʻana.
- ʻEha o ke kaula iwi kuamoʻo
- Nā maʻi e like me ka meningitis
- ʻO ka puʻupuʻu kuamoʻo
- Ka pehu ʻana o nā membrane e uhi ana i ka iwi kuamoʻo
- Hoʻopaʻa ʻiaʻO ke kūlana o ke kaula kuamoʻo (kahi i kīkoʻo ʻia ai ka ʻaoʻao haʻahaʻa o ke kaula kuamoʻo me ke ʻano ʻē).
He mea kākaʻikahi loa, hiki ke ulu aʻe me ke kumu ʻole. Ua kapa ʻia ia he idiopathic syringomyelia e nā kauka.
Pehea lā ʻoe e ʻike ai i kēia?
ʻO ke ala maikaʻi loa a maopopo loa e ʻike ai i kēia kūlana, ʻo ia ka loaʻa ʻana o kahi scan MRI (Magnetic Resonance Imaging) . Ke nānā nei kēia i kou lolo a me ka iwi kuamoʻo holoʻokoʻa. Hiki i kēia ke hōʻike maopopo inā aia ka cyst, pehea kona nui, a me ke kumu (e laʻa, he malformation Chiari).
I kekahi manawa, ʻike ʻia kēia ʻano ma ke ʻano ulia i ka wā o ka MRI no kekahi kumu ʻē aʻe. I kekahi mau hihia, hiki i kāu kauka ke paipai i kahi scan CT (Computed Tomography) .
Pehea e mālama ʻia ai?
ʻO ka lāʻau lapaʻau āu e loaʻa ai e pili ana i ka loaʻa ʻana o nā hōʻailona a me ke koʻikoʻi o lākou. ʻAʻole hāʻawi ʻia nā kānaka a pau i ka lāʻau like.
Inā ʻaʻohe a he liʻiliʻi paha nā hōʻailona: nānā ʻana
Inā ʻaʻohe ou hōʻailona a i ʻole he mau hōʻailona iki wale nō, ʻaʻole paha ʻoe e pono i kekahi lāʻau lapaʻau nui. Akā e nānā pinepine kāu kauka iā ʻoe . E hana lākou i nā scan MRI i nā manawa maʻamau e nānā i nā hōʻailona hou a i ʻole e ʻike inā e nui ana ka cyst. E aʻo pū lākou iā ʻoe e pale i nā hana ikaika, e like me ka hāpai ʻana i nā mea kaumaha. Hiki iā lākou ke kuhikuhi i ka lāʻau ʻeha a kuhikuhi iā ʻoe i ka hoʻōla kino.
Inā koʻikoʻi nā hōʻailona: ʻoki kino
Inā koʻikoʻi loa kāu mau hōʻailona e hoʻopilikia i kou ola o kēlā me kēia lā, pono paha ʻoe i ke ʻoki ʻana. ʻO ka pahuhopu nui o ke ʻoki ʻana, ʻo ia ke hoʻihoʻi i ke kahe wai i ālai ʻia.
ʻO ke ʻano o ke ʻoki kino āu e hana ai e pili ana i ke kumu o kou kūlana. No ka laʻana, inā ʻo ke kumu ʻo Chiari I malformation, hiki i kāu kauka ke hana i kahi kaʻina hana i kapa ʻia ʻo posterior fossa decompression . Pili kēia i ka wehe ʻana i kahi ʻāpana iwi liʻiliʻi mai ke kua o ke poʻo a me ka piko o ka iwi kuamoʻo e hana i kahi ākea no ka lolo a me nā aʻalolo. Hoʻomaha kēia i ke kaomi a ʻae i ka wai e kahe maʻamau.
He mea nui loa e kūkākūkā i nā pilikia a me nā pono o ke ʻoki kino me kāu kauka ma mua o ka hoʻoholo ʻana.
He aha ka mea e hana ʻia ma hope o ka lāʻau lapaʻau?
He mea maikaʻi hoʻi ke ʻike i kēia. I kekahi manawa, ʻoiai ma hope o ke ʻoki kino, ʻaʻole i hoʻoponopono piha ʻia ka pilikia. Hiki ke hōʻiliʻili hou ʻia ka wai. Eia kekahi, hiki i ka hōʻino ʻana i nā aʻalolo ke mau loa i kekahi manawa.
No laila, ʻoiai ma hope o ke ʻoki ʻana, ʻo kāuHe mea nui e mālama mau i ka launa pū ʻana me kāu kauka. Pono ʻoe e hana i nā scan MRI maʻamau e nānā inā ua hoʻi hou mai ka cyst. He kūlana kēia e pono ai ka mālama lōʻihi. No laila, he mea nui loa e hahai i nā ʻōlelo a kāu kauka.
Leka Lawe-Home
- He ʻano laha ʻole ka Syringomyelia kahi e hoʻokumu ʻia ai kahi cyst i piha i ka wai i loko o ke kaula iwi kuamoʻo.
- ʻO ka ʻeha ma ka ʻāʻī, nā lima, ka maneʻo, a me ka nalowale ʻana o ka ʻike i ka wela/anu paha nā hōʻailona nui.
- ʻO ke kumu nui o kēia, he ālai ʻia ke kahe ʻana o ke wai i loko o ka lolo a me ke kaula kuamoʻo. ʻO ka hemahema hānau maʻamau ka maʻi Chiari I.
- He mea nui ka MRI scan no ka ʻike pololei.
- ʻO nā koho lapaʻau e komo pū me ka nānā ʻana inā ʻaʻohe hōʻailona, a me ke ʻoki ʻana inā koʻikoʻi nā hōʻailona. E kamaʻilio me kāu kauka e pili ana i kekahi mau hōʻailona āu e loaʻa ai.
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