Qee zaum peb muaj qhov mob tingling hauv ib txhais tes lossis ko taw, thiab nws ploj mus nws tus kheej tom qab ib pliag, puas yog? Tab sis xav txog, yog tias koj txhais tes thiab ko taw maj mam poob zog, pib xav tias loog, thiab qhov mob maj mam nce ntxiv rau lub sijhawm ntau tshaj ob lub hlis? Qhov no yog ib qho ntawm cov tsos mob tseem ceeb ntawm tus mob neurological tsis tshua muaj hu ua CIDP (Chronic Inflammatory Demyelinating Polyneuropathy) . Txawm hais tias lub npe nyuaj me ntsis, cia peb nkag siab yooj yim. Txawm hais tias qhov no yog ib qho kab mob tsis tshua muaj, nws yog ib qho tseem ceeb heev rau txhua tus kom paub txog qhov no.
Hais yooj yim xwb, CIDP yog dab tsi?
CIDP yog ib qho mob ntev uas tshwm sim thaum peb lub cev tiv thaiv kab mob (lub cev uas tiv thaiv peb ntawm kab mob ) ua yuam kev tawm tsam peb cov hlab ntsha . Tshwj xeeb, nws ua rau lub plhaub tiv thaiv nyob ib puag ncig cov hlab ntsha puas tsuaj (hu ua myelin ). Xav txog qhov kev npog no ua lub plhaub yas nyob ib puag ncig cov xov hluav taws xob . Thaum lub plhaub no puas lawm, cov hlab ntsha tsis xa cov lus mus rau lub hlwb thiab lwm qhov ntawm lub cev kom raug. Qhov ntawd yog qhov ua rau muaj cov tsos mob xws li qaug zog thiab loog hauv cov ceg.
Txawm hais tias tus kab mob no tuaj yeem tshwm sim rau txhua lub hnub nyoog, nws feem ntau tshwm sim ntawm cov neeg laus thiab cov txiv neej.
Qhov txawv ntawm CIDP thiab Guillain-Barre syndrome (GBS) yog dab tsi?
Tej zaum koj twb tau hnov txog Guillain-Barre syndrome ( GBS ). Ob yam kab mob no cuam tshuam rau cov hlab ntsha thiab muaj cov tsos mob zoo sib xws. Tab sis muaj qhov sib txawv meej ntawm ob yam no.
- Guillain-Barre Syndrome (GBS): Qhov no feem ntau pib sai sai ob peb hnub tom qab muaj kev kis kab mob, xws li mob plab. Tab sis nrog kev kho mob, nws yuav zoo dua.
- CIDP: Qhov no yog ib qho mob uas mob mus ntev uas yuav mob mus ntev ntau lub hlis yam tsis muaj feem cuam tshuam nrog kev kis kab mob. GBS yeej tsis tshua mob mus rau CIDP yog tsis kho.
Cov tsos mob ntawm CIDP yog dab tsi?
Cov tsos mob ntawm CIDP tsis zoo ib yam rau txhua tus. Lawv tuaj yeem sib txawv nyob ntawm hom CIDP uas koj muaj. Feem ntau, koj yuav muaj kev qaug zog heev, loog, thiab mob. Qhov no tuaj yeem ua rau koj cov reflex qeeb thiab koj txhais tes thiab ceg tsis muaj zog.
Cov tsos mob tseem ceeb thiab thawj zaug pom tseeb yog qhov mob nqaij nce zuj zus mus rau lub sijhawm ob lub hlis lossis ntau dua.Cov leeg nqaij tsis muaj zog . Qhov tsis muaj zog no cuam tshuam rau ob sab ntawm lub cev. Tshwj xeeb:
- Lub duav thiab lub duav
- Xub pwg thiab caj npab sab saud
- Tes
- Taw
Ntxiv rau qhov tsos mob tseem ceeb no, lwm cov tsos mob kuj yuav pom tau:
- Cov leeg nqaij atrophy: Cov leeg nqaij ntsws thiab me dua.
- Paresthesia: Kev xav ntawm loog lossis tingling hauv cov ntiv tes.
- Kev nyuaj siab rau kev taug kev: Tsis muaj zog thiab tsis muaj peev xwm taug kev kom raug.
- Mob Neuropathic: Mob hnyav heev uas tshwm sim los ntawm teeb meem nrog lub paj hlwb.
- Cov lus teb tsis muaj zog (Teeb meem ntawm cov leeg nqaij tob): Thaum tus kws kho mob siv rab rauj me me los ntaus lub hauv caug, qhov kev teb ntawd ploj mus, zoo li nws tab tom ncab ceg.
Tsis tshua muaj, qhov nyuaj nqos (dysphagia) thiab pom ob sab ib ntus (diplopia) kuj tseem yuav tshwm sim.
Yuav kom xav tias muaj CIDP, cov tsos mob no yuav tsum muaj tsawg kawg yog 8 lub lis piam .
Puas muaj ntau hom CIDP sib txawv?
Yog, CIDP muaj peev xwm muab faib ua ntau hom tseem ceeb raws li cov tsos mob. Cov ntaub ntawv no yuav muab lub tswv yim meej rau koj.
| Hom CIDP | Cov yam ntxwv tseem ceeb |
|---|---|
| CIDP ib txwm muaj | Feem ntau cov neeg muaj hom mob no, uas ua rau muaj teeb meem kev xav xws li cov leeg tsis muaj zog thiab loog uas cuam tshuam rau ob sab ntawm lub cev. |
| Multifocal motor neuropathy | Cov leeg nqaij tsis muaj zog tshwm sim rau ib sab ntawm lub cev lossis rau qee qhov chaw (asymmetric). |
| Lewis-Sumner syndrome | Ob qho tib si cov leeg nqaij tsis muaj zog thiab cov teeb meem kev hnov lus tshwm sim rau ib sab ntawm lub cev. |
| CIDP uas muaj kev xav paub tseeb | Cov leeg tsis qaug zog, tab sis muaj qhov loog, mob, thiab nyuaj rau taug kev. |
| Lub cev muaj zog ntshiab CIDP | Tsis muaj teeb meem kev hnov lus, tab sis cov leeg nqaij tsis muaj zog thiab tsis teb tau rau ob sab ntawm lub cev. |
Tsis tas li ntawd xwb, cov kws kho mob faib cov kab mob ua peb pawg raws li nws tus cwj pwm:
- Kev mob zuj zus: Cov tsos mob maj mam zuj zus tuaj raws sijhawm.
- Rov tshwm sim: Cov tsos mob tshwm sim, ploj mus, thiab rov tshwm sim.
- Mob ib theem xwb: Tus kab mob no tsuas tshwm sim ib zaug hauv ib sim neej xwb. Nws ploj mus tom qab li 1-3 xyoos.
Dab tsi ua rau CIDP? Puas yog nws kis tau?
Qhov ua rau CIDP tseem tsis tau paub meej, tab sis peb paub tias nws yog los ntawm kev o ntawm cov hlab ntsha thiab cov hauv paus hlab ntsha. Raws li tau hais ua ntej, qhov no ua rau lub myelin sheath nyob ib puag ncig cov hlab ntsha puas tsuaj.
Qhov tseem ceeb tshaj plaws yog CIDP tsis yog ib yam kab mob sib kis tau. Koj yuav kis tsis tau los ntawm lwm tus, thiab koj yuav kis tsis tau los ntawm lwm tus.
Yuav kuaj mob li cas?
Tsis muaj kev kuaj tshwj xeeb rau CIDP. Yog li, koj tus kws kho mob yuav nug txog koj cov tsos mob ua ntej (thaum twg lawv pib, koj xav li cas), tom qab ntawd ua qhov kev kuaj lub cev thiab pom zoo ob peb qhov kev kuaj kom paub tseeb tias muaj teeb meem dab tsi rau koj cov hlab ntsha thiab tshem tawm lwm yam mob.
Cov kev ntsuam xyuas no yuav suav nrog:
- Kev kuaj ntshav thiab zis.
- Kev kawm txog kev xa xov ntawm cov hlab ntsha thiab Electromyogram (EMG): Cov no nrhiav kev puas tsuaj rau cov hlab ntsha thiab myelin sheath.
- Kev tho qhov ntawm lub duav: Muab ib qho kua me me ntawm cov hlab ntsha hauv qab caj dab los xyuas seb puas muaj cov protein ntau, uas feem ntau pom muaj nyob rau hauv CIDP.
- Kev kuaj mob ntawm cov hlab ntsha: Ib daim ntaub me me raug coj los ntawm cov hlab ntsha thiab kuaj xyuas hauv qab lub tshuab microscope.
- Kev kuaj MRI: Tuaj yeem kuaj xyuas seb cov hauv paus hlab ntsha puas o.
Tseem Ceeb Heev: Nws yog ib qho tseem ceeb kom kuaj mob no thaum ntxov thiab pib kho.Nws yog ib qho tseem ceeb. Nws tuaj yeem tiv thaiv kev puas tsuaj rau cov hlab ntsha. Yog tias tsis kho, cov tsos mob tuaj yeem hnyav zuj zus, qee zaum mus txog rau qhov yuav tsum tau siv lub rooj zaum muaj log.
Cov kev xaiv kho mob yog dab tsi?
Muaj coob tus neeg xav tau kev kho mob. Thaum pib kho sai npaum li cas, ces yuav muaj feem zoo dua uas yuav rov zoo tag nrho.
Hom tshuaj
- Corticosteroids: Cov no yog cov tshuaj steroid uas txo qhov o thiab tswj kev ua haujlwm ntawm lub cev tiv thaiv kab mob.
- Kev kho mob tiv thaiv kab mob: Cov tshuaj no tiv thaiv lub cev tiv thaiv kab mob kom tsis txhob tawm tsam myelin.
- Cov tshuaj Biologics: Cov tshuaj xws li Vyvgart, uas yog ib hom tshuaj tshiab uas nyuam qhuav tau txais kev pom zoo, kuj siv rau lub hom phiaj no.
Kev kho mob tshwj xeeb
- Tshuaj immunoglobulin txhaj rau hauv cov hlab ntsha (IVIG): Koj yuav tau txhaj tshuaj uas muaj cov tshuaj tua kab mob sib xyaw ua ke los ntawm cov ntshav ntawm cov neeg noj qab nyob zoo. Qhov no pab tswj qhov ua haujlwm tsis zoo ntawm koj lub cev tiv thaiv kab mob.
- Kev pauv ntshav hauv cov ntshav (PE): Qhov no suav nrog kev coj koj cov ntshav, xa nws mus rau hauv lub tshuab tshwj xeeb, tshem tawm cov ntshav plasma uas muaj cov tshuaj tua kab mob, thiab tom qab ntawd rov txhaj cov ntshav huv rov qab rau hauv koj lub cev.
- Kev hloov hlwb: Hauv kev kho mob tsis tshua muaj no, cov hlwb noj qab haus huv raug hloov mus rau "pib dua" lub cev tiv thaiv kab mob.
Lwm yam kev kho mob txhawb nqa
- Kev Kho Mob Lub Cev: Qhov no pab tau zoo heev rau kev rov qab tau lub zog uas ploj lawm, kev taug kev, thiab kev txhim kho kev sib npaug.
- Kev kho mob ua haujlwm: Qhia koj yuav ua li cas ua cov haujlwm txhua hnub yooj yim dua txawm tias koj muaj mob los xij.
- Kev tawm dag zog thiab kev noj zaub mov: Kev tawm dag zog nruab nrab tuaj yeem pab koj kom koj lub cev muaj zog. Tab sis kev tawm dag zog tsuas yog yuav tsum ua nyob rau hauv kev saib xyuas ntawm koj tus kws kho mob lossis tus kws kho lub cev. Kev noj zaub mov kom sib npaug tuaj yeem pab tiv thaiv kom tsis txhob hnyav nce ntxiv yam tsis tsim nyog.
Nyob nrog CIDP thiab qhov kev xav
Thaum koj tau txais kev kuaj mob CIDP, koj yuav xav tias ntxhov siab heev. Qhov ntawd yog ib txwm muaj. Nws yog ib qho tseem ceeb uas yuav tsum sib txuas lus nrog koj tus kws kho mob thiab tham txog koj cov tsos mob thiab kev kho mob.
Ceeb Toom Thaum Muaj Xwm Ceev: Yog tias koj ua pa nyuaj, mus rau Chav Kho Mob Thaum Muaj Xwm Ceev (ETU) ntawm lub tsev kho mob ze tshaj plaws tam sim ntawd.
Nws tseem ceeb heev rau koj nrhiav kev pab los ntawm cov kws tshaj lij kom tswj tau qhov mob thiab nrhiav kev pab kom koj lub siab tus. Koj tsev neeg, cov phooj ywg, thiab koj pab neeg kho mob yuav yog lub hauv paus zoo rau koj txoj kev taug kev no.
Hais txog qhov kev cia siab, nws nyob ntawm koj lub hnub nyoog, hom kab mob, pib kho mob thaum ntxov li cas, thiab koj lub cev teb li cas rau kev kho mob.Qhov xov xwm zoo yog tias nrog kev kho mob, kwv yees li 90% ntawm cov neeg rov zoo. Ib txhia neeg yuav rov qab muaj cov tsos mob. Txawm li cas los xij, CIDP feem ntau tsis ua rau lub neej luv dua.
Cov Lus Qhia Txog Kev Coj Mus Tsev
- CIDP yog ib qho mob tsis tshua muaj, ntev ntev uas lub cev tiv thaiv kab mob tawm tsam nws cov hlab ntsha.
- Cov tsos mob tseem ceeb yog cov leeg nqaij tsis muaj zog thiab loog uas maj mam nce ntxiv mus rau ob peb lub hlis.
- Qhov no tsis yog ib yam kab mob sib kis tau, thiab tseem tsis tau pom qhov ua rau muaj qhov no.
- Yog koj muaj cov tsos mob no, nws yog ib qho tseem ceeb uas yuav tsum mus ntsib kws kho mob tam sim ntawd. Kev kuaj mob thaum ntxov thiab kev kho mob tuaj yeem tiv thaiv kev puas tsuaj rau cov hlab ntsha.
- Yog tias muaj kev kho mob zoo, ntau tus neeg tuaj yeem ua neej zoo, thiab qhov no feem ntau tsis yog kab mob uas hem txoj sia.
CIDP, neuropathy, loog, cov leeg tsis muaj zog, myelin, Guillain-Barre syndrome, immunotherapy, autoimmune kab mob, CIDP sinhala
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Tsis muaj lus teb tau muab tso tawm. Ntxiv koj cov lus tawm ntawm no thawj zaug.
Ntxiv koj cov lus