Yu gɛt dɛn sayn ya? Lɛ wi lan bɔt Adult-Onset Still’s Disease (AOSD)!

Sɔntɛnde yu kin fil pen, fiva, ɛn yu jɔyn dɛn kin at fɔ sɔm dez? Sɔntɛm wit wan pink rash na yu skin. If yu gɛt dɛn sik ya, yu kin gɛt wetin wi de tɔk bɔt tide: Adult-Onset Still’s Disease (AOSD). Dis na wan sik wae nɔr kin bɔrku, bɔt e impɔtant fɔ no bɔt am.

Wetin na Adult-Onset Still Disease (AOSD)?

Fɔ tɔk am simpul wan, AOSD na wan inflammatory arthritis we kin afɛkt di wan ol bɔdi, we kin mek di jɔyn dɛn swel ɛn pen . I kin mek yu jɔyn dɛn pen, yu mɔsul dɛn kin fil pen, fiva we kin kam ɛn go ɔlsay na di de, ɛn yu skin kin gɛt rɔsh. Apat frɔm dat, ɔda sistɛm simptom dɛn kin apin bak.

Dis sik we dεn kכl `AOSD`, na big pipul fכm fכ di sik `Still's disease` כ `(Juvenile Idiopathic Arthritis - JIA)` we kin apin pan pikin dεm. Bɔrku tɛm, i kin ambɔg yɔŋ pipul dɛm wae ol bitwin 16 ɛn 35. Lɛk dis sik na pikin dɛm, sɔmtɛm i kin te pas wan ia ɛn afta dat i kin dɔn, ɔr e kin kam ɛn go as tɛm de go. Simptom dεm ``flares`` kin kam εn go bכku tεm, כ dεn kin kam εn go fכ lכng tεm. Dɔn bak, sɔm tɛm dɛn ya, dɛn sik ya kin rili smɔl, ɛn ɔda tɛm dɛn kin rili bad. Bɔt gud mɛrɛsin dɛn de fɔ kɔntrol di sayn dɛn we dɛn de sho.

Wetin na di men kayn dis sik?

AOSD kin afɛkt ɔlman difrɛn we. I at fɔ tɔk di rayt we aw i go afɛkt yu. Bɔt dɔktɔ dɛn dɔn si se bɔku tɛm, di sayn dɛn we pɔsin kin gɛt kin sho insɛf pan tri men we dɛn:

Monofasik AOSD `(Monofasik AOSD)`

"Monophasic" min se di simptom dεm de sho wan tεm nכmכ . Dis kin te fɔ sɔm wik ɔr mɔnt, bɔt i nɔr kin te fɔ wan ia. Dis kayn kin bigin wantɛm wantɛm, ɛn i kin dɔn bak kwik kwik wan. Imajin, wi padi Kasun bin gɛt dɛn sik ya wit fiva ɛn joyn pen, ɛn afta lɛk tri mɔnt so i bin wɛl ɔlsay wit mɛrɛsin, ɛn i nɔ bin ɛva kam bak. Na dat dɛn kɔl dis `(Monophasic AOSD)`.

Polifasik AOSD `(Polifasik AOSD)`

"Polyphasic" min se di simptom dεm kin apin bכku tεm . Dɛn tin ya kin apin wan wan tɛm, sɔm tɛm dɛn kin apin ɛvri sɔm wik, mɔnt, ɔ ivin sɔm ia. Bɔt as tɛm de go, bɔku tɛm dɛn sik ya kin shɔt ɛn nɔ kin rili bad.

Kronik AOSD `(Kronik AOSD)`

"Krכnik" min se yu gεt sik wae de go bifo, ɔr de kכndyushכn kin flay ɔltɛm . Jɔs lɛk sik dɛm lɛk Rimatɔyd Atraytis, dis sik (Chronic AOSD) kin mek yu jɔyn dɛm pwɛl fɔ lɔng tɛm.

Dɛn kin si ɔl di tri kayn dɛn insay mɔ ɔ smɔl di sem prɔpɔshɔn. Bɔt i nɔ pɔsibul fɔ tɔk ustɛm i bi di biginin. sכmtεm, ivin if dεn tink se i "monophasic" כ "polyphasic", leta i kin bi "krכnik" `AOSD`.

Wetin na di sayn dɛm fɔ AOSD?

Apat frɔm di men sayn dɛm wae dɛn kin si pan dis sik, ɔda sayn dɛm de wae kin kam pan dis sik.

Di men sayn dɛn we de sho se i gɛt dis sik

• Fiva: We di sayn dɛm de aktif, bɔku pipul dɛn kin gɛt fiva tu tɛm insay di de , wan tɛm na mɔnin ɛn wan tɛm na ivintɛm. Dis fiva kin pas 39 digri sɛlshiɔs (102 digri Fahrenheit).
• Skin rash: Na pink, sɔm tɛm dɛn kin gɛt salmon kɔlɔ kin apin di tɛm we fiva kin bɔku . I kin dɔn we di fiva dɔn stɔp. I kin apin na di chɛst, an, ɛn leg fɔs, bɔt i kin skata ɔlsay na di bɔdi.
• Joyn pen: Bɔku pipul dɛn kin gɛt joyn pen , ɛn bɔku pipul dɛn kin gɛt swel ɛn stif bak. Fɔs, i kin afɛkt jɔs sɔm jɔyn dɛn, bɔt as tɛm de go, dis pen kin afɛkt di jɔyn dɛn ɔlsay na di bɔdi.
• Mɔsul dɛn pen: Yu mɔsul dɛn kin fil pen bak , mɔ we di fiva dɔn pas ɔl.

Ɔda sayn dɛn we kin apin

• Trot de at.
• Bɛlɛ de at.
• Fɔ fil se yu taya pasmak.
• Malaise na filin wae de fil bad, wae de fil wae yu nɔr gɛt wɛl bɔdi.

Aw e kin fil fɔ gɛt AOSD?

Infakt, fɔs, AOSD kin fil lɛk se na vayral sik ɔ na kɔmɔn kol . Di sayn dɛm lɛk fiva, bɔdi pen, ɛn trot wae de at kin tan lɛk bɔrku ɔda sik dɛm wae kin kam pan pɔrsin. Yu ɛn yu dɔktɔ kin bigin fɔ sɔprayz smɔl if dɛn sik ya nɔr dɔn stɔp afta tu to tri wik.

Wetin mek dis AOSD sik kin apin?

Inflameshɔn na yu bɔdi na in de mek yu gɛt di sayn dɛm fɔ AOSD . Nɔmal wan, wi imyun sistɛm kin mek dis inflamɛns fɔ fɛt infɛkshɔn ɛn mɛn wund dɛn. I fɔ rili bi fɔ shɔt tɛm nɔmɔ. Bɔt pan sɔm sik dɛn, lɛk AOSD, yu imyun sistɛm gɛt prɔblɛm wit sɔntin , ɛn i kin kɔntinyu fɔ mek dis inflamɛns ivin we nɔ infekshɔn nɔ de fɔ fɛt ɔ wund fɔ wɛl.

Risach pipul dɛn stil nɔ no bɛtɛ bɛtɛ wan wetin mek dis kin apin. Lɛk Juvenile Idiopathic Arthritis, dɛn kɔl Adult Still’s Disease “ idiopathic .” Dat min se wi nɔ no di rayt tin we mek i apin . I tan lɛk se i nɔ gɛt ɛnitin fɔ du wit in jɛnɛtiks.

Aw dɛn kin no se pɔsin gɛt AOSD?

De sayn dɛm fɔ AOSD kin fiba bɔrku ɔda sik dɛm. Ɛn bikɔs na sik we nɔ kin apin so ɔltɛm, dɔktɔ dɛn nɔ kin tink se i gɛt am fɔs. So i kin tek sɔm tɛm fɔ mek dɛn no di sik kɔrɛkt wan .

Afta yu dɔn rivyu yu sik ɛn mɛdikal histri, yu dɔktɔ go ɔda fɔ du blɔd tɛst ɛn imej tɛst fɔ no mɔ bɔt yu sik. Test lεk X-ray כ ultrasound skan kin luk fכ inflameshn εn swel na yu joyn dεm. Blɔd tɛst kin mek dɛn nɔ no ɔda tin dɛn we kin apin. If yu blɔd tɛst sho se yu gɛt bɔku bɔku fɛritin, wit ay wayt blɔd sɛl , dɛn sayn ya kin sho se yu gɛt AOSD.

Wetin na di tritmɛnt dɛm fɔ AOSD?

Dɔktɔ dɛn kin trit AOSD wit difrɛn kayn mɛrɛsin dɛn we de mek pɔsin nɔ gɛt inflammatory . Di kayn drɔgs wae kin woke fayn fɔ ɛnibɔdi kin difrɛn. I kin tek sɔm tɛm fɔ tray fɔ fɛn di wan we go wok fayn fɔ yu sik dɛn. Wae yu dɔn fɛn di rayt wan, yu kin nid fɔ kɔntinyu fɔ tek di mɛrɛsin fɔ lɔng tɛm, ivin we yu nɔr gɛt di sik. Na da tɛm de nɔmɔ yu go ebul fɔ stɔp di inflamɛns fɔ mek i nɔ wɔs.

Sɔm mɛrɛsin dɛn kin gɛt bad bad tin dɛn if yu yuz am fɔ lɔng tɛm. If yu de tek dɛn kayn mɛrɛsin ya, yu dɔktɔ go chenj di mɛrɛsin wan wan tɛm fɔ mek yu nɔ gɛt ɛni bad bad tin we go apin to yu.

Sɔm pan di mɛrɛsin dɛm wae dɛn kin yuse fɔ tritmɛnt na:

• Nɔn-stɛroyd anti-inflammatory drɔgs (NSAID dɛn).
• Kכtikostεroyd (sεntetik stεroyd) `(Kכtikostεroyd - sεntetik stεroyd)`.
• Di sik-modifying anti-rheumatik drɔgs (DMARDs).
• Bayolojikal drɔgs `(Biologics)`.

Aw siriɔs AOSD de?

Bɔrku tɛm, AOSD kin afɛkt yu kwaliti fɔ liv pas yu wɛl bɔdi fɔ lɔng tɛm . Dat min se, i kin mek yu nɔ fil fayn ɛn ambɔg di tin dɛn we yu de du ɛvride, bɔt i nɔ kin rili ambɔg yu bɔdi fɔ lɔng tɛm.

Bɔt sɔm pipul dɛn kin gɛt wan sik we dɛn kɔl at at sik we de go bifo ɛn we de pwɛl . Dis kin apin mɔ pan AOSD we nɔ de mɛn pas ɔda kayn dɛn. If di inflamɛns na yu jɔyn dɛn rili bad ɛn i kin te, dɛn kin west smɔl smɔl. As di kusɛns we de rawnd yu jɔyn dɛn de west bikɔs ɔf inflamɛns, yu jɔyn dɛn kin bigin fɔ muf kɔmɔt na dɛn ples. Dis swel ɛn jɔyn dɛn we de pwɛl kin mek yu jɔyn dɛn nɔ fayn we de mek yu fil pen.

Na smɔl tɛm nɔmɔ, di inflammatory kɔndishɔn dɛn we gɛt fɔ du wit AOSD kin afɛkt yu insay ɔgan dɛn bak, lɛk yu at ɛn yu lɔng. Dis kin mek yu gɛt mɔ siriɔs prɔblɛm dɛn. Pan ɔl we AOSD insɛf nɔ kin afɛkt yu layf, dɛn sɛkɔndari tin ya nɔ kin rili kil pɔsin.

Us siriɔs prɔblɛm dɛn kin apin?

Di prɔblɛm dɛn we nɔ kin apin so ɔltɛm bɔt we kin rili siriɔs na:

• Pɛrikarditis we gɛt di sik.
• Mayokarditis we gɛt di sik.
• Disseminated intravaskulεr kכagulopati (DIC).
• Pulmonary arterial haypatɛnshɔn.
• Pleural efyushɔn we de kɔmɔt na di bɔdi.
• Intastitial lכng sik.
• Ɛmofagosaytik limfohistiɔsaytɔsis (HLH).

Yu tink se AOSD kin wɛl ɔltogɛda?

Mɛrɛsin nɔ kin ebul fɔ mɛn AOSD, bɔt dɛn kin ɛp fɔ stɔp di sik. Fɔ sɔm pipul dɛm, de sik kin dɔn kpatakpata as tɛm de go ɛn nɔr kin ɛva kam bak. Dɛn kɔl dis fɔ go insay "rɛmishɔn," ɔr di sik de kwayɛt. If yu go insay "remission," yu kin stɔp fɔ tek yu mɛrɛsin. Bɔt fɔ sɔm pipul dɛn, AOSD nɔ kin ɛva rili go. Dɛn kin nid fɔ tek mɛrɛsin fɔ lɔng tɛm fɔ kɔntrol di inflamɛns.

I nɔ kin izi fɔ tɔk ustɛm yu go gɛt fɔ gɛt prɔblɛm. Bɔt sɔm dɔktɔ dɛn biliv se di sayn dɛn we yu kin gɛt fɔs kin mek yu no . If yu gɛt pen ɛn swel na yu jɔyn dɛn kwik kwik wan, i go mɔs bi se i go las fɔ lɔng tɛm.

Aw wi fɔ tek kia ɔf wisɛf we wi de liv wit AOSD?

Bɔrku pipul dɛm wae gɛt AOSD kin liv nɔrmal, kɔmfyut layf wit di rayt mɛrɛsin . Fɔ ɔda pipul dɛn, dɛn kin gɛt prɔblɛm wit pen we nɔ de dɔn wan wan tɛm ɛn taya fɔ lɔng tɛm, we kin afɛkt dɛn layf ɛvride. Ilɛksɛf di sayn dɛm fɔ AOSD kɔntinyu fɔ mɔna yu ɔ nɔr de mɔna yu, yu kin gɛt sɔm kayn sayd ɛfɛkt dɛm frɔm di mɛrɛsin wae yu de tek, lɛk fɔ gɛt bɔku bɔku bɔdi ɛn fɔ chenj yu maynd.

Wae layf kin strɛs ɔltɛm bikɔs ɔf tin dɛm wae yu nɔr kin ebul fɔ kɔntrol, e kin ivin impɔtant fɔ tek kia ɔf di bɛsis sɛlf-kea . Gud kwaliti slip, it we gɛt fayn fayn tin dɛn fɔ it, ɛn ɛksesaiz ɔltɛm we nɔ go ambɔg yu, kin ɛp yu fɔ fil fayn ɔltogɛda.

AOSD na wan sik we nɔ izi fɔ ɔndastand ɛn we kin kam wantɛm wantɛm ɛn fɔ no rizin. We i fɔs apin, yu kin fil lɛk se yu sik fɔ lɔng tɛm. I kin tek yu dɔktɔ sɔm tɛm ɛn tray fɔ no wetin de apin. Laki, we dɛn dɔn no se yu gɛt di sik, yu kin bigin fɔ trit yu ɛn smɔl smɔl yu kin bigin fɔ wɛl.

Pan ɔl we i kin tek sɔm tɛm fɔ tray ɛn mek mistek fɔ fɛn di tritmɛnt we go wok fɔ yu, bɔku pipul dɛn kin ebul fɔ kɔntrol dɛn sik dɛn ɛn mek dɛn nɔ gɛt siriɔs prɔblɛm wit mɛrɛsin . I nɔ mata aw lɔng yu gɛt AOSD, yu dɔktɔ go bi yu bɛst patna fɔ manej am.

Fɔ dɔn, mɛsej we yu kin kɛr go na os

• AOSD na wan sik we nɔ kin apin so ɔltɛm we kin afɛkt di wan ol bɔdi ɛn i kin apin to big pipul dɛn.
• Fiva ɔltɛm, skin rɔsh, ɛn joyn ɛn mɔsul pen na di men sayn dɛm.
• wi nכ no di εksakεt kכz fכ dis, bכt i fכs fכ inflameshn we de kכz fכ chenj dεm na di fכnshכn na di imyun sistεm.
• I kin tek sɔm tɛm fɔ no di sik, bikɔs di sayn dɛm kin tan lɛk ɔda sik dɛm.
• Mɛrɛsin kin ɛp fɔ kɔntrol di sik ɛn , fɔ sɔm, kin ivin mɛn di sik kpatakpata.
• If di rayt tritmɛnt ɛn kia fɔ dɛnsɛf fayn, bɔku pipul dɛn kin liv nɔmal layf.
• If yu gɛt dɛn sik ya, yu go mɔs go to dɔktɔ ɛn gɛt advays . Nɔ wɔri, sɔlv de fɔ ɔltin.

Wi de wish yu gud wɛlbɔdi!

` Adult Still’s disease, AOSD, at at sik, fiva, skin rash, ɔtoimyun sik, tritmɛnt