Yu dɔn ɛva gɛt bɛlɛ we bin so bad dat yu nɔ bin ebul fɔ bia? Sɔntɛnde, dis sik nɔr kin jɔs bi wae pɔrsin de fil na yu bɛlɛ. Di AHP we wi de tɔk bɔt tide, we tinap fɔ Acute Hepatic Porphyria, na siriɔs sik we kin mek yu bɛlɛ at bad bad wan ɛn ɔda sayn dɛm. Nɔto di sem tin fɔ ɔlman. Sɔm pipul dɛn kin gɛt bad bad atak ɔltɛm. Ɔda pipul dɛn kin jɔs gɛt sɔm pan dɛn atak ya na dɛn layf.
Di bɛst tin na dat wi kin kɔntrol dis sik we dɛn kɔl AHP fayn fayn wan wit mɛrɛsin ɛn chenj na layf . Bɔt i nɔ go ebul fɔ mɛn am kpatakpata. If di kayn tin we kin rili bad, dɛn kin nid fɔ transplant di liva . Bɔt nɔ panik. Di tin we impɔtant pas ɔl na fɔ no di sik kwik kwik wan, bigin di rayt tritmɛnt, ɛn nɔ de nia di tin dɛn we kin mek yu gɛt dis sik . If wi du dat, wi kin stɔp dɛn siriɔs sik ya fɔ mek wi nɔ apin ɛn avɔyd siriɔs prɔblɛm dɛn lɛk ay blɔd prɛshɔn , strok , ɛn kidni we nɔ de wok fayn .
Aw dɔktɔ dɛn kin trit AHP?
Fɔ tɔk am simpul wan, dɛn kin sheb di tritmɛnt fɔ AHP to tu pat. Di fɔs ɛn impɔtant tin na fɔ no di rayt tin we de mek yu gɛt di sik ɛn avɔyd dɛn as yu ebul. Di sɛkɔn wan na fɔ yuz di rayt mɛrɛsin fɔ ridyus di frɛkuɛns fɔ flawa ɛn kɔntrol di simptom dɛm we dɛn kin apin.
Fo men kayn AHP de. Yu dɔktɔ go gi yu tritmɛnt bay us kayn yu gɛt ɛn aw i bad.
| AHP tayp nem | Smɔl introdukshɔn |
|---|---|
| Akyu intamitεnt pɔfyuria (AIP) . | Dis na di kayn AHP we kɔmɔn pas ɔl. |
| Aminolevulinik asid dihaydratas dɛfisiɛns pɔfyuria (ALAD) . | Dis na wan spisis we rili rare. |
| Variegate porphyria (VP) we gɛt difrɛn difrɛn kɔlɔ dɛn. | Skin simptom kin apin bak pan dis kayn. |
| Hεriditary kכprכpכfyria (HCP) . | Dis kayn kin mek yu gɛt sayn dɛm bak na di nervɔs sistɛm ɛn di skin. |
Di tin we impɔtant pas ɔl na dat if yu gɛt siriɔs atak pan AHP, yu go mɔs nid fɔ go na ɔspitul ɛn trit yu. Bikɔs di bad bad pen , ay blɔd prɛshɔn , nɔs, vɔmit, ɛn ilɛktrɔlayt imbalans we kin apin da tɛm de nɔ kin ebul fɔ kɔntrol na os.
Aw wi kin de fa frɔm di tin dɛn we kin mek wi gɛt mɔ sik?
AHP kin kam bikɔs ɔf di chenj dɛn we de apin na wi jin dɛn. Bɔt sɔm tin dɛn we de apin na di say we wi de ɛn sɔm pan di abit dɛn we wi kin gɛt kin mek dɛn sik ya kin apin wantɛm wantɛm. Wi kin kɔl dɛn tin ya ‘trig’. If yu no gud gud wan wetin na dɛn tin ya ɛn nɔr de nia dɛm, yu kin mek de sik nɔr kam, ɔr kin ridyus de sik wae yu kin gɛt.
Yu nid fɔ rili tek tɛm wit dɛn tin ya.
| Wetin fɔ avɔyd/wetin fɔ fala | Wetin fɔ du? |
|---|---|
| Sɔm mɛrɛsin dɛn | Sɔm mɛrɛsin dɛn de we kin mek yu gɛt AHP simptom. Sɔm ɛgzampul dɛn na kabamazɛpin (Tegretol), fenobarbital, ɛn fenitoin (Dilantin).ɛn sɔlfonamid antibayɔtiks. Aks yu dɔktɔ fɔ wan kɔmplit list fɔ dɛn mɛrɛsin ya. Bifo yu tek ɛni ɔda mɛrɛsin, mek shɔ se yu tɛl yu dɔktɔ se yu gɛt AHP. |
| Bad abit dɛn | I bɛtɛ fɔ lɛ yu lɛf fɔ drink rɔm kpatakpata. If dat nɔ pɔsibul, limit am bad bad wan (nɔ pas wan drink fɔ wan de fɔ uman ɛn nɔ pas tu fɔ man). Nɔ yuz drɔgs lɛk marijuana ɔltogɛda. If yu de smok, tɔk to yu dɔktɔ bɔt aw fɔ ɛp yu fɔ lɛf fɔ smok (lɛk fɔ tek nikotin riplesmɛnt tritmɛnt). |
| Di it we nɔ balans | It di it we balans. Nɔ it we fɔ it pasmak lɛk fɔ it krash ɔ fɔ kɔt di kabɔhaydrɛt ɔltogɛda, bikɔs if yu ridyus di kalori dɛn wantɛm wantɛm, dat kin mek di sik wɔs. |
| Infɛkshɔn ɛn vaysin dɛn | Gɛt yu vaysin dɛn di rayt tɛm. Aks yu dɔktɔ bɔt dis. If yu gɛt infekshɔn, mek dɛn trit am wantɛm wantɛm. |
| Strɛs | Stret na wan men tin wae kin mek yu gɛt AHP, so fɛn we fɔ rilaks yu maynd ɛn bɔdi. I kin bi fɔ tink gud wan, fɔ du yoga, fɔ lisin to myuzik, ɔ ɛnitin we yu lɛk. |
| We yu de na di san | pan sɔm kayn AHP (especially VP ɛn HCP), di skin kin rili sɛnsitiv to san layt. So, de insay os as yu ebul bitwin 10 a.m. ɛn 4 p.m. , we di ɔltra vayolɛt rayt dɛn strɔng pas ɔl. If yu fɔ go na do, wɛr klos we de protɛkt yu frɔm di san, hat we gɛt wayd brim, ɛn yuz gud tin fɔ protɛkt yusɛf frɔm di san we gɛt SPF we na 30 ɔ pas dat. |
Fɔs, i kin tan lɛk se i nɔ izi fɔ ajɔst yu layf dis kayn we. Bɔt wit dɛn smɔl chenj ya, yu kin kɔntrol di AHP simptom dɛm we kin apin bad bad wan. I bɛtɛ fɔ tɔk to yu dɔktɔ ɔltɛm ɛn disayd us tritmɛnt ɛn layf we go fayn fɔ yu.
Mɛsej we dɛn kin kɛr go na os
- AHP na siriɔs bɔt yu kin ebul fɔ kɔntrol yu jɛnɛtik kɔndishɔn, so nɔr fɔ fred am we nɔr nid fɔ bi.
- Di tu men pat dɛm fɔ tritmɛnt na fɔ avɔyd di trig dɛm ɛn fɔ tek di mɛrɛsin dɛm wae yu dɔktɔ gi yu.
- Bifo yu tek mɛrɛsin fɔ ɛni ɔda sik, i impɔtant fɔ tɛl yu dɔktɔ se yu gɛt AHP.
- Fɔ it fayn fayn it, fɔ avɔyd fɔ tek drɔgs, ɛn fɔ kɔntrol strɛs kin ɛp fɔ mek di sik nɔ bigin.
- If de sik kam tranga, lɛk wae yu nɔr kin ebul fɔ bia wit yu bɛlɛ, nɔr de na os ɛn go na ɔspitul kwik kwik wan fɔ gɛt tritmɛnt.
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