Yu want fɔ lan bɔt ALS (Amyotrophic Lateral Sclerosis), we na wan sik we kin afɛkt yu nervɔs sistɛm?

Sɔntɛnde, yu kin fil lɛk se yu de kray, yu an ɛn fut dɛn kin swɛ, ɔ yu wɔd dɛn kin slɔp we yu de tɔk? Dɛn tin ya kin bi nɔmal tin dɛn. Bɔt, nɔto ɔltɛm, dɛn kin bi sayn fɔ sɔntin we rili siriɔs. Tide wi go tɔk bɔt wan kɔndishɔn we kɔmplikt smɔl, bɔt i rili impɔtant fɔ no bɔt. Dat na ALS, ɔ Amyotrophic Lateral Sclerosis .

Wetin na ALS (Amyotrophic Lateral Sclerosis) we pɔsin kin gɛt? Lɛ wi ɔndastand am rili simpul wan!

Tink bɔt yu bren ɛn yu spɛnal kɔd (di nɛv kɔd we de insay yu spayna) as di men kɔntrol yunit fɔ kɔmpyuta. Na dɛn wan ya de kɔntrol ɔltin na yu bɔdi. insay dis sistεm, spεshal tכp sεl dεm de we dεn kכ l `nyuron` . Dɛn kin biev lɛk smɔl mɛsenja dɛn. Dɛn nɛv sɛl ya kin kɛr mɛsej frɔm di bren to wi an ɛn mɔsul dɛn, ɛn tɛl dɛn fɔ du dis.

naw, insay dis sik we dεn kכl ALS, wetin de apin na dat di nεv sεl dεm (`nyurכn`) we yu mεnshכn de pwεl . spεshal wan, di nεv sεl dεm we de kכntro di muvmεnt dεm na wi bכdi na dεn mεn tכk dεm ya. I tan lɛk se dɛn mɛsenja dɛn de nɔ ebul fɔ du dɛn wok. Wetin kin apin da tɛm de? di mεsej dεm we de kכmכt frכm di bren nכ de go na di mכsul dεm fayn fayn wan. Smɔl smɔl, dis tin kin wɔs .

fכs, yu kin fil wik sכ mtεm na yu limb dεm, lεk se yu mכsul dεm de twit (`mכsul dεm de twit`) . Sɔntɛm i nɔ kin izi fɔ yu fɔ waka yu wan, es yu an fɔ pik sɔntin, fɔ it it, ɔ fɔ tɔk klia wan. as tεm de go, di mכsul dεm, bikoz dεn nכ de yuz dεm, de bigin fכ atrofi (`atrophy`) . I tan lɛk mashin we dɛn nɔ de yuz ɛn we de rɔsti. As tɛm de go, dis sik kin afɛkt aw yu de blo. Sɔntɛnde, i kin mek pɔsin in layf de pan denja.

Yu go mɔs dɔn yɛri bɔt di sik we Lu Gehrig gɛt . Na dat ALS de tɔk bɔt. Lou Gehrig na bin wan big big besbɔl pleya insay di 1920 ɛn 1930 dɛn. I bin gɛt dis sik bak.

Ivin na kɔntri lɛk Amɛrika, sɔm statystik dɛn sho se na lɛk 5,000 pipul dɛn kin jɔs gɛt ALS ɛvri ia. So, pan ɔl we dis nɔ kin bɔku, dɛn fɔ tek am se na sik we kin kam pan ɛnibɔdi.

No mɛrɛsin nɔ de fɔ dis yet . Bɔt nɔ wɔri. Di tritmɛnt we dɛn kin pik de go bifo ɛvride. If dɛn jɔyn di tritmɛnt dɛn di rayt we, i pɔsibul fɔ kɔntrol di sik we de prɛd kwik kwik wan ɛn mek di kwaliti fɔ layf bɛtɛ to bɔku bɔku wan.

Tu men kayn ALS de.

Dɛn kin sheb ALS to tu men kayn dɛn bay aw i de divɛlɔp:

1. Sporadic ALS: Dis na di kayn we we pipul dɛn kin gɛt mɔ.. Na lɛk 90% pan di wan dɛn we gɛt ALS de pan dis kategori. Dis na jɔs wan tin we apin random wan. Dat min se i nɔ kɔmɔt frɔm dɛn mama ɛn papa. I nɔ kin izi fɔ tɔk klia wan wetin mek i kin apin.

2. Famili ALS: Dis nɔ kin bɔku smɔl, i kin mek lɛk 10% pan di kes dɛm. Na di chenj dɛn we de apin na di jɛnɛtiks kin mek i apin . dis min se di kכndyushכn de kכz fכ difεkt na di jin dεm we dεn gεt frכm di mama כ di papa.

Wetin na di sayn dɛm fɔ ALS? Mek wi tek wan luk.

Di sayn dɛm fɔ ALS kin difrɛn smɔl frɔm wan pɔrsin to ɔda pɔrsin, ɛn dɛn kin chenj as tɛm de go. Fɔs, sɔm sayn dɛm kin so klia dat yu nɔr kin notis.

• Di mɔsul dɛn we wik na yu an, yu fut, ɛn yu nɛk: Fɔ fil lɛk se yu jɔs nɔ de alayv. I at fɔ es ɔ ol sɔntin.
• Mɔsul kramp: Na we di mɔsul dɛn tayt wantɛm wantɛm ɛn we kin mek yu fil pen.
• fכ fil fכ twitch na di mכsul dεm na di an, leg, sכlda εn/כ tכng: lεk se sכm sכm twitch de kכmכt frכm insay.
• di mכsul stiffness (`spasticity`): Na filin fכ stiff, lεk wan stif, wud limb, lεk se i at fכ bεnd כ strεt am.
• I nɔ izi fɔ tɔk: I nɔ kin tɔk fayn, i nɔ kin izi fɔ kɔl di wɔd dɛn kɔrɛkt wan, ɛn i kin chenj in vɔys.
• I nɔ kin izi fɔ swɛla ɔ fɔ drɔl ɔltɛm.
• Fɔ fil taya ɔltɛm (taya).
• I nɔ izi fɔ swɛla it ɔ wata (dysphagia): Na filin se it dɔn stɔp ɔ i at fɔ swɛla.
• Fɔ fil bad wantɛm wantɛm, lɛk fɔ laf ɔ kray, we yu nɔ ebul fɔ kɔntrol: Yu kin kray we yu nɔ fil bad, ɔ yu kin laf fɔ natin. dεn kכl dis bak `Pseudobulbar affect` insay mεdikal tεm dεm.

Na di fɔs tɛm, di sayn dɛm wae kin mɔna yu na wae yu kin wik ɛn stif na yu an ɛn fut, i nɔ kin izi fɔ tɔk, ɛn i nɔ kin izi fɔ swɛla. Dis kin mek i nɔ izi fɔ du ɛvride wok lɛk fɔ rayt ɛn it. As tɛm de go, dɛn sik ya kin go ɔlsay na di bɔdi. Bɔt aw dɛn sik ya kin go bifo kwik kwik wan kin difrɛn frɔm wan pɔsin to ɔda pɔsin.

As de sik de wɔs , i kin at fɔ blo, tinap, ɔr waka. Yu kin gɛt bak we yu de lɔs yu wet wantɛm wantɛm. If yu gɛt dɛn sik ya ɛn i tan lɛk se dɛn de wɔs, mek shɔ se yu go to dɔktɔ . If yu gɛt prɔblɛm fɔ blo , na imejensi ɛn yu fɔ go na ɔspitul wantɛm wantɛm.

Wetin mek dis sik we dɛn kɔl ALS kin apin? Wetin na di kɔz?

Infakt, di wan dɛn we de stɔdi bɔt dis nɔ stil no di rayt tin we kin mek pɔsin gɛt ALS, bɔt dɛn biliv se i kin bi wan tin dɛn we dɛn jɔyn togɛda.

• Jɛnɛtiks:Wi dɔn tɔk bɔt ALS we pɔsin kin gɛt frɔm in mama ɛn papa bifo. So, sɔm jin chenj dɛn de insay. Dɛn kin si dɛn jɛnɛtik chenj ya pan lɛk 70% pan di wan dɛn we gɛt ALS we dɛn kin gɛt frɔm dɛn mama ɛn papa ɛn bitwin 5% ɛn 10% pan di wan dɛn we gɛt ALS we kin apin wan wan tɛm. in patikyula, chenj dεm na di jin dεm `C9orf72`, `SOD1`, `TARDBP` εn `FUS` na dεn wan dεm we dεn kin ripot mכst. Dɛn dɔn si se i pas 40 jin dɛn we gɛt fɔ du wit dis.
• Di tin dɛn we de apin na di envayrɔmɛnt: Sɔntɛnde, dɛn kin tink se pɔyzin (lɛk lid ɔ mɛkuri ), sɔm vayrɔs, ɔ trauma to di bɔdi kin ɛp, bɔt dɛn stil de du risach bɔt dɛn tin ya.

Wetin di wan dɛn we de stɔdi bɔt dis dɔn ebul fɔ kɔnfirm na dat di sik de pwɛl wi motoka nyuron dɛn . dis mכtal nyuron dεm na di nεv sεl dεm we de kכntro di tin dεm we wi de du wit kכnsεns, lεk fכ tכk, it it, fכ muv wi an εn an, εn fכ brith.

Imajin se yu bren ɛn yu mɔsul dɛn gɛt kɔnekshɔn lɛk tɛlifon layn. di nεv sεl dεm de sεnd mεsej to di mכsul dεm tru dis layn, de tεl dεm fכ du dis, fכ du dat. Insay ALS, di signal we de na dis tɛlifon layn kin chenj . I tan lɛk se yu lɔs risepshɔn na fon. di mɛsej dεm we de kכmכt na di bren to di mכsul dεm dεn brok, dεn nכ de kam tru klia wan. Afta sɔm tɛm, dis kɔnɛkshɔn kin lɔs kpatakpata, lɛk se dɛn kin kɔt di kɔl. Dɔn, dɛn nɛv sɛl dɛn de nɔ kin ebul fɔ sɛn nyu mɛsej. Na dat mek yu kin gɛt dɛn sayn dɛn we a bin dɔn tɔk bɔt.

Yu tink se ALS na sik we pɔsin kin gɛt frɔm in mama ɛn papa?

Sɔm kayn ALS na jenɛtik, we min se dɛn kin pas frɔm wan jɛnɛreshɔn to ɔda jɛnɛreshɔn. Yu kin gɛt di chenj dɛn we de apin na yu jɛnɛtiks we kin mek yu gɛt ALS frɔm yu mama ɛn papa. Bɔt dis kayn ALS (`inherited ALS`) nɔ kin rili kɔmɔn . Bɔrku tɛm, de chenj na yu jɛnɛtiks kin apin randomly, dat min se dɛn kin apin ivin if nɔbɔdi na yu famili nɔr dɔn gɛt dis sik bifo.

Udat dɛn gɛt mɔ risk fɔ gɛt ALS?

Pan ɔl we ɛnibɔdi kin gɛt ALS, dɛn dɔn si se sɔm pipul dɛn kin gɛt prɔblɛm smɔl pas ɔda pipul dɛn.

• Ej: Pipul wae de bitwin 55 ɛn 75 ia kin gɛt dis sik.
• Ras ɛn etnik grup: Data sho se wayt pipul (nɔto Hispanik) pipul dɛn kin gɛt ALS mɔ.
• Sεks: Na di ej grup we nɔ rich 55 ia, man dɛn kin gɛt dis sik pas uman dɛn.
• Veterans: Sɔm stɔdi dɛn dɔn sho se di wan dɛn we de wok na di sojaman dɛn kin gɛt di risk smɔl. Risach pipul dɛm biliv se dis kin bi bikɔs ɔf di tin dɛm we de na di envayrɔmɛnt (lɛk pɔyzin ɔ peshɛnt sayd).) ɔ aksidɛnt dɛn we kin apin we pɔsin de wok.

Wetin na di prɔblɛm dɛn we kin apin we pɔsin gɛt ALS?

As di sayn dɛm fɔ dis sik de kam tranga, i sɔri fɔ no se di tɛm fɔ liv kin shɔt . Fɔ lan bɔt dis sik ɛn fɔ dil wit am ɛvride kin rili tranga na yu maynd. Yu kin fil se yu at pwɛl, yu dɔn lɔs, yu nɔ gɛt op, ɛn yu kin strɛs. Dis kin mek bɔku pipul dɛn we dɛn kin no se gɛt ALS kin gɛt prɔblɛm dɛn bak wit dɛn maynd lɛk pwɛl hat ɛn wɔri .

Bɔku dɔktɔ ɛn nɔs dɛn de we go ɛp yu fɔ kia fɔ yu bɔdi. Bɔt i impɔtant bak fɔ tek kia ɔf yu maynd wɛlbɔdi . If yu nid ɛp, tɔk to yu mɛdikal tim ɔr pɔsin we de advays yu bɔt mental wɛlbɔdi biznɛs .

Aw dɔktɔ dɛn kin no di kɔrɛkt wan bɔt ALS?

Dɔktɔ go fɔs chɛk yu bɔdi (`fyzikal ɛgzam`) , dɔn i go du `nyurolɔjik ɛgzam` . Apat frɔm dat, dɛn kin du bɔku ɔda tɛst dɛn fɔ no if yu gɛt ALS.

Sɔntɛm yu nɔ go ebul fɔ no wantɛm wantɛm se yu gɛt ALS. Yu kin gɛt fɔ go to yu dɔktɔ bɔku tɛm, ɔ yu kin gɛt fɔ go to sɔm spɛshal dɔktɔ dɛn. Yu dɔktɔ go ɔda fɔ du difrɛn tɛst fɔ no mɔ bɔt yu sik ɛn si aw dɛn de afɛkt yu bɔdi. Dis na bikɔs bɔku ɔda sik dɛn de we gɛt sayn dɛn we fiba ALS. So, i impɔtant fɔ du ɔl dɛn difrɛn tɛst ya fɔ no di sik kɔrɛkt wan .

Us tɛst dɛn kin yuz fɔ no if pɔsin gɛt ALS?

Fɔ mek yu no se yu gɛt di sik, yu kin nid fɔ du sɔm tɛst dɛn, lɛk:

• Blɔd tɛst: Fɔ mek shɔ se no ɔda mɛrɛsin nɔ de.
• Yurin tɛst: Dɛn kin du dɛn tin ya bak fɔ mek dɛn nɔ no ɔda tin dɛn we kin mek pɔsin gɛt urine.
• Ilɛktromayogram (EMG): Dɛn kin yuz dis fɔ chɛk aw di mɔsul dɛn de wok. I de chɛk if di mɛsej dɛn de sɛn frɔm di nɛv dɛn to di mɔsul dɛn fayn fayn wan.
• Nεv kכndukshכn stכdi: Dis de tεst aw di nεv dεm kin sεnd signal dεm fayn fayn wan.
• Magnetic Resonance Imaging (MRI): Dis kin tek pikchɔ fɔ yu bren ɔ yu spɛnal kɔd fɔ si if ɛnitin dɔn pwɛl. I kin chɛk bak if ɔda tin dɛn (lɛk tumbu) de mek yu gɛt di sik.

Wetin na di tritmɛnt fɔ ALS? Pan ɔl we no mɛrɛsin nɔ de, yu tink se ɛni rilif de?

Bɔt i sɔri fɔ no se, no mɛrɛsin nɔ de yet we go ebul fɔ rivɛns di damej we di nerve sɛl dɛn kin gɛt we ALS kin du. Bɔt nɔ wɔri. Tritmɛnt kin mek yu nɔr de fil fayn ɛn ɛp yu fɔ de fil fayn as yu ebul.

Yu mɛdikal tim kin tɛl yu fɔ du tritmɛnt lɛk:

• Mɛrɛsin dɛn we dɛn kin yuz
• Difrɛn we dɛn fɔ mɛn pipul dɛn ɔ fɔ mek dɛn gɛt rihabiliteshɔn
• Sɔpɔt we gɛt fɔ du wit nyutrishɔn
• Sɔpɔt fɔ di prɔblɛm dɛn we pɔsin kin gɛt we i de blo

As de sik de go bifo, yu kin nid difrɛn kayn tritmɛnt ɔr mɔr tritmɛnt. Apat frɔm dat, dɛn kin gɛt sɔpɔt kia fɔ ɛp yu fɔ liv yusɛf ɛn fayn fɔ lɔng tɛm.

Di mɛrɛsin dɛn we dɛn kin gi fɔ ALS

Fo kayn mɛrɛsin de we di United States Food and Drug Administration (FDA) dɔn gri fɔ fɔ mɛn ALS:

• Riluzole: Dɛn biliv se dis kin ridyus di damej we di moto nyuron dɛn kin gɛt. I kin ɛp bak fɔ mek pɔsin liv lɔng fɔ sɔm mɔnt.
• Edaravone: Dis mɛrɛsin kin slo di rit we di mɔsul dɛn kin lɔs.
• Sodium phenylbutyrate/taursodiol: Dis kin kɔntrol di rεt we di simptom dεm de go bifo.
• Tofersen: Dis mɛrɛsin kin ridyus sɔm pan di damej we de pan di nerve cells. Dis kin ɛp if yu dɔktɔ dɔn fɛn chenj na wan jin we dɛn kɔl SOD1.

Apat frɔm dɛn men mɛrɛsin ya, ɔda mɛrɛsin dɛn de we kin ɛp fɔ kɔntrol yu sik dɛn. Fɔ ɛgzampul, yu kin yuz mɛrɛsin fɔ mek yu mɔsul dɛn swɛt, yu kin stif, yu kin gɛt bɔku saliva, yu kin fil pen, ɛn yu kin gɛt prɔblɛm wit yu maynd.

Difrɛn tritmɛnt dɛn (`Tɛrapi dɛn`) .

Yu dɔktɔ kin tɛl yu difrɛn we dɛn fɔ mɛn yu ɔ fɔ mek yu gɛt wɛlbɔdi, lɛk:

• Fizik tritmɛnt: Dis kin ɛp yu fɔ de indipɛndɛnt ɛn sef fɔ lɔng tɛm. I de tich yu simpul ɛgzampul dɛn we de mek yu mɔsul dɛn strɔng ɛn mek yu gɛt wɛlbɔdi.
• Occupational therapy: Dis de tich strateji fɔ du ɛvride wok we yu nɔ go taya, yuz tin dɛn we de ɛp yu lɛk wilchia ɔ bres.
• Spich therapy: Dis kin ɛp yu fɔ swɛla ɛn tɔk to pipul dɛn fayn fayn wan. I de tich yu bak di we aw yu de tɔk to pipul dɛn we yu nɔ de tɔk (e.g., sayn, raytin) fɔ ɛp yu fɔ tɔk lɔng as yu ebul ɛn sev yu ɛnaji.

Sɔpɔt we gɛt fɔ du wit nyutrishɔn

Fɔ pɔsin we gɛt ALS, sɔntɛnde i kin at fɔ gɛt di it we i nid. If i nɔ izi fɔ swɛla, i kin mek i nɔ gɛt bɔku bɔku bɔdi ɛn i kin mek i nɔ izi fɔ gɛt di vaytamɛn ɛn minral dɛn we dɛn nid.

Di pɔsin we sabi bɔt itƐp yu fɔ avɔyd it dɛn we at fɔ swɛla ɛn mek wan plan fɔ it we go gi yu di rayt kalori, fayv, ɛn wata. If yu gɛt advays bɔt aw fɔ it fayn, dat kin ɛp yu fɔ it fayn it. As i de at fɔ swɛla, pɔsin we sabi bɔt it kin tɔk bak bɔt ɔda we dɛn fɔ it we fayn.

If nid de, dɛn kin yuz tyub fɔ gi tin fɔ it . Dis kin ridyus di risk fɔ mek it ɔ wata go insay di lɔng ɛn mek yu gɛt tin dɛn lɛk fɔ chok ɔ nyumonia .

Sɔpɔt fɔ blo

As ALS de go bifo, i kin at fɔ blo. Wan we de we dɛn kɔl noninvasive ventilation (NIV) . Dis min se yu fɔ yuz mask we de kɔba yu nos ɛn yu mɔt fɔ ɛp yu fɔ blo. Dɛn kin yuz am nɔmɔ na nɛt fɔs, bɔt leta dɛn kin nid fɔ yuz am ɔl di de.

As tɛm de go, yu kin nid mashin fɔ mek briz, we na wan mashin fɔ blo we dɛn kɔl respirator, fɔ ɛp yu fɔ blo insay ɛn kɔmɔt na yu lɔng. If yu gɛt prɔblɛm fɔ blo, mɔ we yu de ledɔm ɔ du ɛnitin, tɛl yu wɛlbɔdi tim. Dɛn kin tɔk to yu bɔt di tin dɛn we yu go ebul fɔ du fɔ ɛp yu fɔ blo izi wan.

Ustɛm yu fɔ go to dɔktɔ? Una fɔ no bɔt dɛn tin ya

If yu gɛt ɛni wan pan dɛn sik ya, go to dɔktɔ:

• If yu fil se yu de gɛt prɔblɛm fɔ du yu wok dɛn we yu de du ɛvride .
• If i tan lɛk se di sayn dɛn de wɔs .
• If yu de na say we yu nɔ go ebul fɔ muv yu wan.
• If di tritmɛnt kɔz sayd ɛfɛkt .

Wi dɔn tɔk bɔt aw ALS kin mek i nɔ izi fɔ blo. Na sɔm sayn dɛm fɔ mek yu nɔ ebul fɔ blo fayn we fɔ mek yu go to dɔktɔ:

• If yu fil se yu nɔ de blo fayn , ivin we yu de rɛst.
• If i tan lɛk se di kɔf wik .
• If dɛn nɔ ebul fɔ klin di trot ɛn di lɔng dɛn izi wan .
• If bɔku bɔku saliva gɛda.
• If yu nɔ ebul fɔ ledɔm na bed (bikɔs yu fil se yu dɔn swɛla).
• If yu kin gɛt infɛkshɔn na yu chɛst bɔku tɛm (nyumonia) .

Dɛn sayn ya kin mek yu gɛt wan sik we dɛn kɔl respiratory failure . Dis min se yu nɔ go ebul fɔ blo bɛtɛ ɔksijɛn fɔ gɛt di ɔksijɛn we yu bɔdi nid. Dis kin mek pɔsin in layf de pan denja . So, if yu gɛt prɔblɛm fɔ blo, go na di imejensi rum wantɛm wantɛm .

Wan we de fɔ mek yu nɔ gɛt ALS?

Infakt, pɔsin kin ebul fɔ avɔyd ALS.No pruf nɔ de fɔ mɛn am yet. Risach de go bifo fɔ ɔndastand mɔ bɔt di tin dɛn we kin mek dis apin ɛn di tin dɛn we kin mek dɛn nɔ gɛt dis sik, ɛn fɔ mek dɛn ebul fɔ mek dɛn nɔ gɛt dis sik tumara bambay.

Aw lɔng yu kin liv wit ALS? Wetin na di tin dɛn we wi go si?

Di avrej layf we pɔsin kin liv fɔ ALS na tri to fayv ia afta dɛn dɔn no se i gɛt am. Bɔt dɛn se lɛk 30% pan pipul dɛn kin liv fɔ fayv ia ɔ mɔ, ɛn bitwin 10% ɛn 20% kin liv fɔ at le tɛn ia. Yu sityueshɔn kin difrɛn frɔm dɛn statystik ya . So, tɔk to yu dɔktɔ fɔ no mɔ bɔt di tin we de apin to yu.

di prכgnosis fכ ALS nכ rili gud, biכs fכ di we aw i de afekt di fכnshכn fכ di mכtal nyuron dεm. Di we aw yu de si tin dipen pan aw di damej pan di nerve cells kin apin kwik kwik wan. Pan ɔl we no tritmɛnt nɔ go ebul fɔ rivɛns dis damej, yu dɔktɔ kin gi yu opshɔn fɔ mek di sayn dɛn nɔ go bifo kwik kwik wan.

Naw, no mɛrɛsin nɔ de fɔ ALS.

If yu gɛt ALS, yu go want fɔ tek pat pan wan klinik trial . Dɛn stɔdi ya kin ɛp pipul dɛm wae de du risach fɔ mek nyu tritmɛnt dɛm ɛn ɔndastand dis sik fayn fayn wan.

Fɔ dɔn, di tin we impɔtant pas ɔl fɔ mɛmba!

We yu kam fɔ no se yu gɛt amyotrophic lateral sclerosis, ɔ ALS, yu kin gɛt bɔku kwɛstyɔn ɛn filin.

Sɔntɛm yu go de wɔnda, ‘Wetin mek dis apin to mi? Wetin mek dis?’ Yu kin fil bad, fil bad, ɛn pwɛl at we yu nɔ ebul fɔ du tin dɛn we bin de kam izi fɔ yu igen, lɛk fɔ kɔm yu ia, it fayn it, ɔ fɔ tɔk to pipul dɛn we yu lɛk. Dis kin mek yu gɛt pwɛl hat ɛn wɔri, mɔr lɛk wae yu de fil de wɔs.

I nɔ mata usay yu de ɔ aw yu de fil, yu mɛdikal tim de fɔ ɛp yu . Di tritmɛnt fɔ ALS de bɛtɛ ɛvride, ɛn dɛn de du risach ɛn tɛst nyu tritmɛnt dɛn. Pan ɔl we dɛn nɔ gɛt ɛni mɛrɛsin naw, di tritmɛnt dɛn we de kin mek di sayn dɛn nɔ de go bifo kwik kwik wan ɛn mek yu spɛn mɔ tɛm wit di wan dɛn we yu lɛk. Nɔ ɛva fil se na yu wangren de. Aks fɔ ɛp ɛn sɔpɔt. Yu trɛnk na di tin we yu gɛt pas ɔl.

` ALS, Amyotrophic Lateral Sclerosis, Nyuropati, Mכskul Dystrofi, Lu Gehrig in, Nyuron dεm, Mכtal Nyuron dεm, Respiratory Distress