Wi ɔl no se fɔ go tru tritmɛnt fɔ bɔdi kansa nɔto izi waka. I kin mek yu taya na yu bɔdi ɛn yu maynd. Sɔmtɛm, de sayd ɛfɛkt wae de tritmɛnt kin mek ɛvride layf tranga. Fɔ rizin dɛn lɛk dis, yu kin de tink tu tɛm fɔ kɔntinyu fɔ gɛt tritmɛnt. Pan ɔl we fɔ stɔp di tritmɛnt kin bi di rayt tin fɔ yu, i nɔ kin izi lɛk aw yu tink. Na disizhɔn we rili at ɛn we gɛt sɛns.
Dis nɔto fɛt, na yu layf.
Bɔku pipul dɛn kin tink se we dɛn stɔp fɔ trit dɛn, dat min se dɛn nɔ ebul fɔ du am ɔ dɛn dɔn du bad to pɔsin. Filin lɛk, "A dɔn fel," "A dɔn lɛf ɔlman dɔŋ," ɛn ɔda tin dɛn kin kam ɔp. Bɔt di tin we impɔtant pas ɔl we yu nid fɔ ɔndastand na dat yu fɔ disayd fɔ du sɔntin bay wetin bɛtɛ fɔ yu .
Dis nɔto wɔ. Dis na yu layf. Nɔbɔdi nɔ de ya we dɔn sayn fɔ bi ‘kɔmbatant’. Yu gɛt ɔl di rayt fɔ disayd bɔt yu layf, yu kɔmfɔt.
Bɔku tin dɛn de we yu fɔ tink bɔt if yu disayd fɔ stɔp fɔ trit yu bɔdi kansa . Bɔt ilɛk wetin yu disayd, mɛmba se yu mɛdikal tim go de wit yu ɔltɛm.
Mek shɔ se yu tɔk to yu dɔktɔ.
We dɛn de trit kansa, dɔktɔ dɛn kin lɛk fɔ yuz "shared decision-making" we. Dis min se di dɔktɔ go ɛksplen ɔltin to yu, bɔt na yu go disayd fɔ du di las tin. Di dɔktɔ go ɛksplen to yu di gud ɛn bad tin dɛn we yu go du if yu stɔp fɔ tek di tritmɛnt, ɛn i go ɛksplen bak wetin ɔda tin dɛn we yu go ebul fɔ du.
Wan dɔktɔ we nem Andria Silba we de stɔdi bɔt kansa bin tɔk se: “Nɔto mi wok fɔ tɛl ɛnibɔdi wetin fɔ du.” "Mi wok na to helep pesin to disayd wetin bes fo am."
Yu dɔktɔ go mɔs tink bɔt dɛn kayn tin ya we i de tɔk to yu.
| Tin dɛn we di dɔktɔ kin tink bɔt | Fɔ tɔk am simpul wan... |
|---|---|
| Yu tink se di kansa dɔn skata? (Advans kansa) . | Dis kansa we dɔn skata to ɔda pat dɛn na di bɔdi ɛn i nɔ izi fɔ trit? |
| Yu tink se kansa kin mɛn? (I kin ebul fɔ mɛn) | Dis na kansa we pɔsin kin mɛn ɔltogɛda? |
| Yu ej ɛn aw di kansa tan | Yu yɔŋ? Yu tink se di kansa de mek pɔsin vɛks? |
| Us tritmɛnt dɛn dɛn dɔn tek bifo? | Us kayn tritmɛnt yu dɔn ɔlrɛdi gɛt? |
| Yu de stɔp bikɔs ɔf di bad tin dɛn we kin apin to yu? | Yu tink se di men rizin fɔ stɔp di tritmɛnt jɔs bikɔs di bad tin dɛn we kin apin to pɔsin nɔ kin ebul fɔ bia? If na so i bi, wi go ebul fɔ ridyus dɛn bad bad tin dɛn de? |
| Ɛni ɔda sik dɛn de we pɔsin kin gɛt? | Yu gɛt ɛni ɔda mɛrɛsin we yu nid fɔ gɛt tritmɛnt apat frɔm kansa? |
Di rizin we mek yu de tink bɔt fɔ stɔp di tritmɛnt impɔtant bak . Sɔmtɛm pipul dɛn kin rɛdi fɔ tray ɔda tritmɛnt dɛn we sayɛns nɔ pruv instead fɔ yuz kɔmɔn mɛrɛsin. "Nɔto mi wok fɔ tɛl dɛn se dɛn aidia nɔ rayt. Bɔt na mi wok fɔ gi dɛn di sayɛns valid ɛn pruf-based ɛdyukeshɔn ɛn infɔmeshɔn we a gɛt," na so Dɔktɔ Silba tɔk.
Lɛ wi lan bɔt Palliative Care
Dis na savis we bɔku pipul dɛn nɔ no bɔt, bɔt i rili impɔtant. Palliative care na kia wae de aim fɔ impɔtant yu kwaliti layf fɔ di res ɔf yu layf wae yu nɔr kin ebul fɔ wɛl ɔl. Yu kin gɛt am frɔm di de we dɛn no se yu gɛt di sik.
We yu disayd fɔ stɔp tritmɛnt, yu go gɛt ɔda sɔpɔt frɔm palliativ kia savis dɛm. Dis savis kin ɛp yu fɔ manej de sik wae de mek yu fil pen ɛn nɔr de fil fayn, ɛn e kin mek yu gɛt trɛnk na yu maynd.
Difrɛn spɛshal pipul dɛn de na di palliativ kia tim.
- Dɔktɔ dɛn
- Nɔs dɛn
- Soshal woka dɛn
- Sayɛnsman dɛn we de stɔdi bɔt pɔsin in maynd
- Chaplain dɛn
Dɛn pipul ya nɔ jɔs de luk yu kansa, dɛn de luk yu lɛk wan ol pɔsin .
Di ɛp we yu kin gɛt frɔm di palliativ kia savis:
- Fɔ pul pen ɔ ɔda sayn dɛm (e.g. nɔs, at fɔ blo ).
- Fɔ manej mɛntɛl hεlth εshyu lɛk pwɛl hat ɛn wɔri hat.
- Fɔ fɛn ɛp wit mɔni ɔ lɔ prɔblɛm dɛn.
- Fɔ gi sɔpɔt pan Gɔd biznɛs.
- Gayd fɔ aw fɔ tɔk to famili.
- Fɛn sɔpɔt grup wit pipul dɛm wae dɔn gɛt di sem kayn ɛkspiriɛns lɛk yu.
- Fɔ gi advays bɔt aw fɔ it ɛn ɛksesaiz.
- Ɛp yu fɔ gi nem to pɔsin we de kia fɔ yu wɛlbɔdi biznɛs fɔ mek yu disayd fɔ du mɛrɛsin if yu nɔ ebul fɔ disayd fɔ du sɔntin.
Dɛn kin ɛp yu bak wit "legacy work." Dat min se yu fɔ mek sɔntin we spɛshal fɔ mek di wan dɛn we yu lɛk mɛmba yu. I kin bi ɛnitin. I kin bi wan kɔlekɛshɔn fɔ di rɛsipɛkt dɛn we yu lɛk, wan ol foto albam, rayt lɛta to dɛn, ɔ ivin rikodin fɔ yu vɔys.
Aw fɔ kɔntinyu fɔ gɛt kwaliti layf?
Yuz tɛli wɛlbɔdi savis dɛn
Yu fɔ de tɔk to yu dɔktɔ ɔltɛm. Bɔt dat nɔ min se yu fɔ go na ɔspitul ɔltɛm. Aks yu dɔktɔ if yu kin tɔk to am pan vidio kɔl frɔm os ɛn sheb yu infɔmeshɔn.
Bring yu famili wit yu pan dis waka.
Di disayd we yu disayd fɔ stɔp di tritmɛnt kin at fɔ yu famili fɔ gri wit am. Ɔ dɛn nɔ go ɔndastand aw fɔ sɔpɔt yu naw. Aks yu dɔktɔ ɔr palliativ kia tim fɔ ɛp dɛn fɔ ɛksplen dis. If yu ɛksplen am smɔl, dat kin mek big difrɛns.
Gɛt sɔshal sɔpɔt.
Tɔk to padi dɛn, fambul dɛn, sɔpɔt grup dɛn. Tɔk to ɛnibɔdi we impɔtant to yu. Nɔ fred fɔ tɔk, ivin to pipul dɛn we yu nɔ tɔk to fɔ lɔng tɛm. If yu si se i nɔ izi fɔ bigin, yu kin aks yu palliativ kia tim fɔ ɛp yu wit dat bak.
Yu fɔ put di tin dɛn we impɔtant to yu fɔs.
Yu nɔ go ebul fɔ kɔntrol kansa, bɔt yu kin kɔntrol aw yu de spɛn di tɛm we lɛf . Plant sɔm flawa dɛn na di gadin, plan spɛshal ivin dɛn, du di tin dɛn we yu bin dɔn want fɔ du ɔltɛm. If yu sik de kam pan dɛn tin ya, tɛl yu dɔktɔ.
If i tan lɛk se sɔm plan dɛn tu fa fɔ ajɔst, di palliativ kia tim kin ɛp yu fɔ tɔk to dɛn wit sɛns. Fɔ ɛgzampul, wan dɔktɔ tɔk bɔt wan tɛm we wan uman bin ebul fɔ yɛri di at bit we in granpikin we nɔ bɔn yet. "Ivin as shi no fit mit di pikin we go born insaid siks mun, shi bi fit konekt wit dat pikin. I bin rili pawaful."
Mɛsej we dɛn kin kɛr go na os
- Fɔ tink bɔt fɔ stɔp kansa tritmɛnt nɔto fɔ fel ɔ fɔ win. Na yu yon tin we yu fɔ disayd fɔ du bɔt yu layf.
- Tɔk opin wan wit yu dɔktɔ we de mɛn kansa bifo yu disayd fɔ du ɛnitin. Dɛn kɔl dis ‘shɛri disizhɔn-mɛkin’.
- Palliative care na savis wae de ɛp fɔ mek yu kwaliti fɔ liv bɛtɛ, fɔ manej pen ɛn ɔda sayn dɛm, ɛn gi yu sɔpɔt pan saykilɔjik, sɔshal, ɛn spiritual.
- Tɔk to yu fambul ɛn padi dɛn bɔt dis. If i nɔ izi fɔ dɛn fɔ ɔndastand dis disayd, aks fɔ ɛp frɔm yu mɛdikal tim.
- Yuz di tɛm we lɛf fɔ du tin dɛn we yu lɛk ɛn we de mek yu gladi. Ivin di smɔl smɔl gladi-at dɛn we wi kin gɛt na layf gɛt valyu.
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