Yu dɔn ɛva si pɔsin na yu famili, sɔntɛm yu mama, papa, grani ɔ granpa we yu lɛk, fɔgɛt ɔltin smɔl smɔl? Wi no aw i kin mek yu fil pen fɔ wach yu pikin dɛn we pipul dɛn nɔ kin no, fɔgɛt bɔt tin dɛn we dɔn apin dis biɛn tɛm, ɛn chenj di we aw dɛn de biev. Dis na wetin wi kin kɔl Alzheimer’s Disease. Dis na sik wae de ambɔg bɔrku bɔrku pipul dɛm ɔlsay na di wɔl ɛn stil nɔr gɛt kɔmplit mɛrɛsin. Bɔt we di sayɛns bɔt mɛrɛsin de go bifo, nyu op dɛn de kam. Dat na di kayn nyu op we wi go tɔk bɔt tide.
Fɔ tɔk am simpul wan, wetin na di sik we dɛn kɔl Alzaima?
Bifo wi tɔk bɔt dis nyu mɛrɛsin, lɛ wi ɔndastand smɔl bɔt Alzaima sik. Nɔto jɔs fɔ mɛmba tin we kin apin as yu de ol. Na sik we de pwɛl di bren sɛl dɛn smɔl smɔl.
Imajin se wi bren na bɔku bɔku smɔl smɔl sɛl dɛn we de wok togɛda. Wetin kin apin if di kɔmyunikeshɔn bitwin dɛn sɛl dɛn ya stɔp? Ɔltin frɔm mɛmori to tink to langwej to disizhɔn to malfunction. Dis na wae kin apun pan Alzaima sik.
spεshal wan, insay dis sik, wan kayn protin we dεn kכl `amyloid plaques` (amyloid plaque) de bigin fכ kכmכt bitwin di bren sεl dεm lεk dכti. Jɔs lɛk aw dɔti we de na wata paip kin mek wata nɔ flɔ, dɛn plek ya kin mek di kɔmyunikeshɔn bitwin di bren sɛl dɛn nɔ de igen, ɛn leta dɛn sɛl dɛn de day. Dis na di men rizin wae mek de sik kin kam tranga.
Mɛmba se nɔto ɔltin we pɔsin kin mɛmba na Alzaima, bɔt if yu gɛt ɛnitin fɔ wɔri bɔt pɔsin na yu famili, i go fayn fɔ tɔk to dɔktɔ bɔt am.
Leqembi - Wetin na dis nyu mɛrɛsin?
Okay, naw mek wi go to di men tɔpik fɔ di stori. `Leqembi` (Lek-em-bi) na nyu mɛrɛsin we di US Food and Drug Administration, ɔ FDA , dɔn gri fɔ i nɔ tu te yet. FDA na ɛjɛnshi we gɛt rili strikt lɔ dɛn we de disayd if wan mɛrɛsin fayn ɛn sef fɔ pipul dɛn fɔ gi am to.
Wetin spɛshal bɔt dis drɔg na dat i de tɔch di amyloid plek dɛm we wi bin dɔn tɔk bɔt bifo tɛm ɛn ɛp fɔ pul dɛn kɔmɔt na di bren. Bɔrku pan de drɔgs wae dɔn de fɔ lɔng tɛm dɔn ɔlrɛdi ebul fɔ kɔntrol de sik. Bɔt di tru tin we se dɛn mek dis mɛrɛsin fɔ trit ɔda tin pas di wan we de mek pɔsin gɛt di sik, na sɔntin we rili impɔtant.
Risach dɔn sho se di rit we di sik kin go bifo pan di wan dɛn we gɛt dis mɛrɛsin kin slo bay lɛk 27% insay 18 mɔnt.
Wetin na di rial bɛnifit we dis kin gɛt?
We wi se "di sik de slo bay 27%," sɔm pipul dɛn kin tink se, "O, na dat?" Bɔt i impɔtant fɔ ɔndastand aw dis big fɔ pɔrsin wae gɛt Alzaima sik ɛn fɔ de famili mɛmba dɛm wae de kia fɔ dɛm.
Dis nɔto mɛrɛsin fɔ di sik. Wi nid fɔ ɔndastand dat fɔs. Bɔt i kin gi di sikman "valyu tɛm" fɔ du dɛn ɛvride wok fɔ dɛnsɛf, fɔ kip in aydentiti fɔ sɔm tɛm mɔ, ɛn fɔ gɛt sɛns wit dɛn famili fɔ sɔm tɛm mɔ.
Imajin, aw i go fayn fɔ gi yu mama ɔ papa sɔm mɔnt fɔ it in wan, chenj klos, ɔ fɔ no yu ɛn tɔk to yu? Dat na di big bɛnifit we dis mɛrɛsin gɛt. Na rili fridɔm fɔ di pɔsin we sik ɛn di famili.
Yu tink se ɔltin fayn? Yu nɔ tink se risk de?
Lɛk ɛni mɛrɛsin, dis `Leqembi` mɛrɛsin gɛt sɔm risk ɛn sayd ɛfɛkt bak. Wi fɔ no bɔt dɛn tin ya bak. Ivin di FDA dɔn tɔk mɔ bɔt dis.
Di tu men tin dɛn we kin mek yu gɛt prɔblɛm na we yu bren kin swel ɛn we yu kin gɛt smɔl smɔl blɔd na yu bren . Sɔntɛnde, dɛn tin ya kin siriɔs ɛn, nɔr kin bɔrku, kin kil pɔrsin.
Fɔ dis rizin, dɛn kin gi dis mɛrɛsin to pipul dɛn nɔmɔ we di sik dɔn bigin . Dɔn bak, di pɔsin fɔ de ɔnda di dɔktɔ we de kia fɔ am gud gud wan ɔl di tɛm we dɛn de trit am. I impɔtant fɔ mek dɛn du tɛst ɔltɛm, lɛk fɔ du MRI skan na di bren, fɔ chɛk fɔ si if i gɛt bad bad tin dɛn fɔ du.
Lɛ wi tek wan simpul luk pan di bɛnifit ɛn risk dɛm fɔ dis mɛrɛsin na di tebul we de dɔŋ ya.
| Bɛnifit dɛn | Risk & Daunsayd dɛn |
|---|---|
| I de ridyus di sik we de prɛd bay lɛk 27%. | Risk de fɔ mek yu bren swel ɛn blɔd. |
| I de gi valyu tɛm fɔ di pɔsin we sik ɛn in famili. | Dɛn fɔ gi am ɔnda strikt mɛdikal sɔpɔtishɔn nɔmɔ. |
| Na wan pan di fɔs mɛrɛsin dɛm fɔ tɔch di ɔndalayn kɔz fɔ di sik (amyloid). | I rili dia (lɛk $26,500 fɔ wan ia). |
| I de kip di pɔsin in indipɛndɛns fɔ lɔng tɛm. | Na fɔ di wan dɛn nɔmɔ we de na di fɔs stej fɔ di sik. |
Aw dis kin afɛkt wi na Sri Lanka?
Dis na di kwɛstyɔn we impɔtant pas ɔl. Pan ɔl we dɛn dɔn gri fɔ dis mɛrɛsin na Amɛrika, naw i nɔ de na Sri Lanka. Di men rizin fɔ dis na di prayz . Insay Amɛrika, dis mɛrɛsin de kɔst lɛk 26,500 dɔla ɛvri ia. Dat na pas 8 milyɔn rup insay Sri Lanka mɔni. I go tek lɔng tɛm bifo dis kayn dia dia mɛrɛsin go izi fɔ di wan dɛn we sik na wi kɔntri.
Bɔt wi nɔ fɔ luk dis di we we nɔ gɛt op. Fɔ mek wan drɔg lɛk dis na big tin we yu dɔn du. Dis sho se sayɛnsman dɛn dɔn tek big step fɔ fɛn mɛrɛsin fɔ Alzaima sik. Sɔntɛm tumara bambay, dɛn kin yuz dis no fɔ mek mɛrɛsin dɛn we nɔ dia ɛn we go wok fayn.
So, dis na nyus we de gi wi op fɔ tumara bambay. Naw, tritmɛnt ɛn advays de fɔ di wan dɛn we gɛt Alzaima na Sri Lanka fɔ ɛp fɔ mɛn di sik dɛn ɛn fɔ mek dɛn liv bɛtɛ layf. If pɔrsin na yu famili de sɔfa wit dis sik, tɔk to yu famili dɔktɔ (dɔkta) bɔt am ɛn gɛt advays bɔt de bɛst tin fɔ du rayt naw.
Mɛsej we dɛn kin kɛr go na os
- `Leqembi` na nyu mɛrɛsin we dɛn dɔn gri fɔ di fɔs stej dɛm fɔ Alzaima, we de slo di sik fɔ go bifo.
- dis de wok bay we i de pul di bad bad protin dεm we dεn kכl ‘amyloid plaques’ we de kכmכt na di bren.
- Pan ɔl we dis nɔto mɛrɛsin fɔ ɔlman, di men bɛnifit we i gɛt na dat i de gi di pɔsin ɛn in famili valyu tɛm.
- I impɔtant fɔ mek di dɔktɔ de wach am gud gud wan, bikɔs i kin mek yu gɛt siriɔs sayd ɛfɛkt lɛk fɔ swel na yu bren ɛn fɔ mek yu blɔd kɔmɔt.
- Dis drɔg de rili dia naw ɛn i nɔ de na Sri Lanka. Bɔt wi kin tek dis as impɔtant tin fɔ du pan Alzaima risach.
- If yu notis se sɔmbɔdi na yu famili chenj pan mɛmori ɔ bihayvya, i rili impɔtant fɔ tɔk bɔt am wit yu dɔktɔ.
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