Yu nɔ taya lɛk aw yu bin de taya, we yu de waka smɔl, we yu de klaym wan stej? Yu jɔs de fil se yu nɔ gɛt bɛtɛ briz? Sɔntɛm yu kin tink se, ‘Na dis kin apin we yu dɔn ol.’ Bɔt nɔto ɔl kɔf, nɔto ɔl kɔf na nɔmal tin. Tide wi de tɔk bɔt wan sik we kin mek pɔsin gɛt dɛn kayn sik ya, we kin siriɔs smɔl, bɔt i rili impɔtant fɔ no bɔt am. Dat na di sik we dɛn kɔl Pulmonary Fibrosis .
Wetin rili na Pulmonary Fibrosis (PF)?
Fɔ tɔk am simpul wan, dis na we di fayn fayn tin dɛn we de insay yu lɔng dɛn kin at smɔl smɔl, ɛn dɛn kin mek wan skata. Jɔs lɛk aw skata kin fɔm na wi skin we wi kɔt, na so sɔntin we fiba dis kin apin insay wi lɔng. Dis skata de mek di lכng dεm nכ de lכs dεn elasticity , we de mek dεn nכ ebul fכ inflate כ deflate fayn fayn wan.
we wi de blo, di כksijεn de kכmכt insay di sכm sכm εya sak dεm (alveoli) na di lכng. We di tisu we de rawnd dɛn ay sak dɛn ya at, ɔksijɛn nɔ de go insay di blɔd fayn fayn wan. Dis kin mek i nɔ izi fɔ wi fɔ blo fayn ɛn wi kin shɔt fɔ blo. Dis sik kin bi wan sik wae de go bifo ɛn de wɔs as tɛm de go.
Wetin na idiopatik pulmonari fibrosis (PF)?
Sɔntɛnde, dɔktɔ dɛn nɔ kin ebul fɔ fɛn wan patikyula tin we kin mek di lɔng dɛn at ɛn gɛt skata. Na dat wi kin kɔl Idiopathic Pulmonary Fibrosis . Di wɔd "idiopathic" min 'we dɛn nɔ no bɔt di rizin.' Infakt, di mɔtalman we gɛt Pulmonary Fibrosis gɛt dis idiopathic tayp.
Wetin na di sayn dɛm fɔ dis sik? Aw yu no am?
Dɛn sayn ya nɔr kin notis fɔs, bɔt smɔl smɔl dɛn kin bɔku as tɛm de go. Yu kin tink se dɛn tin ya na jɔs nɔmal chenj dɛn we kin kam we pɔsin de ol. Bɔt i impɔtant fɔ pe atɛnshɔn to dɛn sayn ya.
| Di sayn we de sho se di sik de | Tɔk bɔt |
|---|---|
| Shot we yu de blo | Yu kin fil smɔl fɔ blo, mɔ we yu de waka ɔ du simpul tin dɛn lɛk fɔ klaym stej. As di sik de go bifo, i nɔ kin izi fɔ yu fɔ blo ivin we yu tinap wansay. |
| Dray kɔf we de kɔntinyu fɔ kɔf | Wan kɔf we de kɔntinyu fɔ de, we de mek pɔsin vɛks, we dray, kin apin we yu nɔ gɛt mכkus. |
| Taya | Ilɛksɛf yu nɔ du ɛni wok, yu kin fil taya ɛn taya ɔltɛm. |
| We yu de lɔs yu wet wantɛm wantɛm | Yu kin lɔs yu wet we yu nɔ tray, fɔ no rizin. |
| Finga dɛn we gɛt klab | Di tip dɛn na di finga ɛn fut finga dɛn kin kam rawnd, ɛn di skin we de rawnd di nel dɛn kin swel. |
| Blu/grɛy skin (Cyanosis) . | As di ɔksijɛn lɛvɛl na di blɔd de go dɔŋ, di lip dɛn, rawnd di yay, ɔ di finga nel dɛn kin tɔn blu, grey, ɔ wayt. |
Wetin mek dis kayn sik kin apin? Wetin na di tin dɛn we kin mek i apin?
Dɔktɔ dɛn biliv se dɛn skata ya kin kam bikɔs di lɔng dɛn dɔn pwɛl ɔ inflamɛns we nɔ de wɛl. Bɔku tin dɛn de we kin mek i apin.
| Rizin | Ɛgzampul dɛn ɛn ɛksplen |
|---|---|
| Kɔnektiv tisu sik | Sik dɛm lɛk Rimatɔyd Atraytis (RA ), Lupus , ɛn Sklerodama kin afɛkt di lɔng dɛm bak. |
| Fɔ si tin dɛn we de na di envayrɔmɛnt | Fɔ lɔng tɛm we yu de gɛt dɔst lɛk asbest ɛn silika. I kin kam bak bikɔs yu gɛt alɛji ( Hypersensitivity Pneumonitis ) to sɔm kayn mold, baktri, bɔd dɛn dɔti, ɔ dander. |
| Sɔm mɛrɛsin ɛn tritmɛnt dɛn | Sɔm mɛrɛsin dɛn lɛk Amiodarone , we dɛn kin yuz fɔ at sik, Nitrofurantoin , we dɛn kin yuz fɔ infɛkshɔn, Methotrexate , we dɛn kin yuz fɔ kansa, ɛn redyushɔn tɛrapi kin pwɛl di lɔng dɛn bak. |
| Fɔ smok | Smok na big tin we kin mek pɔsin gɛt dis sik. |
Udat dɛn kin gɛt dis sik?
Apat frɔm di rizin dɛn we wi dɔn tɔk bɔt, sɔm ɔda tin dɛn kin mek pɔsin gɛt dis sik mɔ ɛn mɔ:
- Bikɔs i dɔn pas 65 ia.
- Fɔ bi man.
- Fɔ gɛt pɔsin we de nia yu fambul (mama ɛn papa, brɔda ɛn sista) we gɛt dis sik.
- Fɔ gɛt sɔm sik dɛn we pɔsin kin gɛt we i de chenj in jɛnɛtiks ( DNA ).
Wetin na di prɔblɛm dɛn we kin apin we pɔsin gɛt Pulmonary Fibrosis?
we di lכng dεm nכ de wok fayn, i de afekt di כl bכdi. Di at mɔ gɛt fɔ wok tranga wan. Dis kin mek yu gɛt difrɛn prɔblɛm dɛn.
Di tin we impɔtant pas ɔl na fɔ no di sik kwik kwik wan ɛn bigin fɔ trit am. Dis kin ridyus di risk fɔ gɛt kɔmplikeshɔn lɛk dis.
- Hypoxemia: di bכdi in tisu dεm nכ de gεt di כksijεn we dεn nid.
- Pulmonary Hypertension : Di prɛshɔn we de na di blɔd vesel dɛm we de kɛr blɔd go na di lכng de go ɔp. Dis kin put ebi lod pan di at.
- Infεkshכn na di lכng εn di lכng we kכlaps.
- Di sistɛm we de mek pɔsin ebul fɔ bloRespiratory Failure: Di lכng dεm nכ de ebul fכ gi di bכdi di כksijεn we i nid igen.
- Hat Failure : Hat fεil kin apin wae dεn fos di hat fכ wok tu tranga wan fכ lכng tεm.
Aw fɔ no di sik kɔrɛkt wan? (Diagnosis) .
Dis nɔto sik we pɔsin kin no if i gɛt wan tɛst. Yu dɔktɔ go tek tɛm lisin to yu sik dɛn, lisin to yu chɛst wit stetɔskɔp, dɔn i go tɛl yu fɔ du sɔm tɛst dɛn.
Di men tɛst dɛn we dɛn kin du na:
- Chɛst X-ray: Na ɛkstrem rayt fɔ chɛk di chɛst.
- High-resolution CT (HRCT) scan: Dis na spɛshal skan we de sho fayn fayn tin dɛn bɔt di lɔng dɛn pas CT skan we dɛn kin du ɔltɛm.
- Pulmonary (lung) function tests: Dis kin min se yu de blo insay mashin, we de mɛzhɔ ɔmɔs briz yu lɔng dɛn kin tek ɛn aw yu kin blo kwik kwik wan.
- Blɔd tɛst: Dɛn kin du blɔd tɛst fɔ chɛk tin dɛn lɛk di ɔksijɛn we de na di blɔd.
- Bronchoscopy: Na tin we dɛn kin put wan tin tiub wit kamɛra tru di nos ɔ mɔt fɔ chɛk di insay pat pan di lɔng dɛn.
- Bayopsi: Sɔntɛnde, dɛn kin pul wan rili smɔl tisu na di lɔng ɛn chɛk am fɔ no if di sik de.
Wetin na di tritmɛnt dɛm fɔ dis? Yu tink se dɛn go ebul fɔ mɛn am kpatakpata?
Wan kwɛstyɔn we bɔku pipul dɛn kin aks na if dɛn go ebul fɔ mɛn am kpatakpata. Fɔ tɔk tru, di skata we dis sik kin mek na di lɔng dɛn nɔ kin ebul fɔ chenj.
Bɔt nɔ wɔri. Di tritmɛnt kin mek di sik nɔ go bifo kwik kwik wan, i kin kɔntrol di sayn dɛm, ɛn i kin mek yu liv bɛtɛ layf .
| Di we aw dɛn kin trit am | Wetin kin apin? |
|---|---|
| Antifibrotik drɔgs dɛn | Drug dεm lεk Nintedanib εn Pirfenidone de slo dכn di rεt fכ di lכng skata. |
| Kɔtikosterɔyd dɛn | Sɔntɛnde dɛn kin yuz dɛn tin ya fɔ ridyus di inflamɛns na di lɔng dɛn. |
| Ɔksijɛn Tɛrapi | If di ɔksijɛn lɛvɛl na di blɔd nɔ bɔku, dɛn kin gi ɛkstra ɔksijɛn tru wan smɔl tiub we dɛn put na di nos. |
| Pulmonari Rihabiliteshɔn | Dis na spɛshal program wae de ɛp yu fɔ gɛt trɛnk ɛn kwaliti layf tru ɛksesaiz fɔ blo, ɛksesaiz fɔ yu bɔdi, ɛn fɔ no bɔt sik. |
| Transplant fɔ di Lɔng | Sɔm pasɛnt dɛn we gɛt rili siriɔs sik kin fit fɔ gɛt lɔng transplant if dɛn mit di krayteria. |
Ustɛm yu fɔ go to dɔktɔ? Ustɛm yu fɔ go na di Imejɛnsi Dipatmɛnt (ETU)?
If yu tɔk klia wan bɔt dis, dat go ɛp fɔ sev yu layf.
Si to dɔktɔ ɔltɛm.
If yu gɛt ɛni wan pan di sayn dɛn we wi dɔn tɔk bɔt, lɛk we yu de blo shɔt, we yu de kɔf ɔltɛm, ɔ we i nɔ izi fɔ du ivin di simpul wok dɛn, duya nɔ ignore am . Si yu dɔktɔ kwik kwik wan ɛn tɔk bɔt dis. Di kwik we dɛn no di sik, na di mɔ i izi fɔ trit.
We yu nid fɔ go na ETU wantɛm wantɛm
If yu gɛt ɛni wan pan dɛn sik ya, nɔ west tɛm ɛn go na ɔspitul in Imejɛnsi Tritmɛnt Yunit (ETU) wantɛm wantɛm ɔ kɔl 1990.
| Sɔntin yu nɔ plan! Go na ɔspitul wantɛm wantɛm. | |
|---|---|
| 🚨 I kin tranga fɔ blo bad bad wan ɔ wantɛm wantɛm | |
| 🚨 Chɛst de pen | |
| 🚨 Kɔnfyushɔn ɔ chenj kɔnshɛns | |
| 🚨 Blu diskɔla na di skin, lip, ɔ nel | |
Wetin go apin tumara bambay wit dis sik?
Na nɔmal tin fɔ fil frayd ɛn nɔr shɔ bɔt tumara bambay wae dɛn no se yu gɛt dis sik. I nɔmal bak fɔ de wɔnda se, ‘Aw lɔng a go gɛt fɔ liv?’
Bɔt mɛmba se nɔto ɔl di wan dɛn we sik na di sem. Fɔ sɔm, dis sik kin go bifo smɔl smɔl, fɔ lɔng tɛm. Fɔ ɔda pipul dɛn, i kin go bifo smɔl, fɔ sɔm mɔnt. Nɔbɔdi nɔ go ebul fɔ tɔk fɔ tru.
Di tin we impɔtant pas ɔl na fɔ tɔk to yu dɔktɔ opin wan, gɛt di rayt tritmɛnt, ɛn fɔ fes dis wit trɛnk ɛn sɔpɔt frɔm yu famili. Di tritmɛnt dɛn we dɛn de yuz tide dɔn mek di sikman dɛn layf ɛn di kwaliti fɔ layf bɛtɛ bad bad wan.
Yu kin jɔyn sɔpɔt grup fɔ gɛt trɛnk frɔm de ɛkspiriɛns wae ɔda pipul dɛm wae gɛt dis sik kin gɛt.
Mɛsej we dɛn kin kɛr go na os
- Pulmonary Fibrosis na sik we di tisu dɛm na di lɔng dɛn kin stif ɛn gɛt skata, we kin mek i nɔ izi fɔ blo.
- I nɔ kin izi fɔ yu fɔ blo, yu kin kɔf we yu de kɔf we yu de drɛb ɔltɛm, ɛn yu taya pasmak na di men sayn dɛm. Nɔ ignore dɛn tin ya.
- Pan ɔl we dɛn nɔ go ebul fɔ mɛn dis sik ɔltogɛda, gud tritmɛnt kin kɔntrol aw di sik de go bifo ɛn mek yu liv gud layf.
- If yu de smok, i impɔtant fɔ lɛ yu stɔp wantɛm wantɛm . I rili impɔtant bak fɔ protɛkt yusɛf frɔm dɔst ɛn kemikal dɛn we de ambɔg di lɔng dɛn.
- If yu ɔ pɔsin we yu sabi gɛt dɛn sik ya, go to dɔktɔ ɛn nɔ de te . I impɔtant fɔ no di sik kwik kwik wan fɔ tritmɛnt.
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