We di dɔktɔ tɛl yu se yu pikin we yu jɔs bɔn gɛt at prɔblɛm, i nɔmal fɔ mek yu, as mama ɔ papa, fil bad ɛn shɔk. Ɛspɛshali if na kɔndishɔn wit nem we yu nɔ sabi lɛk ‘Tricuspid Atresia’, bɔku kwɛstyɔn dɛn de we kin kam na yu maynd. "Wetin bi dis? Mi pikin go bi okay? Wetin mek dis hapun?" I go mɔs bi se tin dɛn lɛk dat de rɔn na yu maynd. Nɔ wɔri. Tide, wi go tɔk bɔt dis insay wan rili simpul we we yu go ɔndastand.
Fɔ tɔk am simpul wan, wetin na Tricuspid Atresia?
Fɔ ɔndastand dis, lɛ wi fɔs luk aw di at we gɛt wɛlbɔdi de wok. Wi at gɛt 4 men rum dɛn. Tu chɛmba dɛn we de ɔp ɛn tu chɛmba dɛn we de dɔŋ. di bכdi we di bכdi dכn yuz εn we nכ gεt כksijεn fכs de go insay di כp chεmba na di rayt say na di at (Right Atrium). frכm de, wan valv we de wok lεk doa de opin, εn da bכdi de go na di lכw chεmba na di rayt say (Right Ventricle). Dɛn kɔl dis domɔt
di Tricuspid Valve . Dɔn, di ɔda chɛmba we de dɔŋ kin kɔntrakt ɛn sɛn da blɔd de to di lɔng dɛn fɔ mek i gɛt ɔksijɛn. Bɔt pan pikin we gɛt prɔblɛm we dɛn bɔn we dɛn kɔl
Tricuspid Atresia , dis we dɛn kɔl Tricuspid Valve nɔ de
fɔm fayn . Dat min se, insted of dat doa, somtin de laik tik membran.
Imajin if wɔl bin de bitwin tu rum dɛn instead fɔ gɛt domɔt. Dɔn yu nɔ bin ebul fɔ kɔmɔt na wan rum to di ɔda wan, nɔto so? Na dat de apin ya.
dis de mek di bכdi we nכ gεt כksijεn we de go insay di כp rayt vεntrikl nכ gεt nכ we fכ go na di lכw chεmba. biכs dis rod de blok, di lכw rayt vεntrikl we nכ ebul fכ pכmp bכdi igen, nכ de divεlכp fayn, εn bכku tεm i kin rili sכm. So, no we nɔ de fɔ sɛn di blɔd we nid fɔ sɛn to di lɔng dɛn fɔ gɛt ɔksijɛn. Dis kin mek di ɔksijɛn we di wan ol bɔdi kin gɛt kin ridyus
bad bad wan .
Yu tink se dis na siriɔs tin?
Yɛs, dis na rili siriɔs at prɔblɛm we dɛn bɔn wit we dɔktɔ dɛn kin tek as impɔtant at prɔblɛm we dɛn bɔn wit. Bebi we gɛt dis sik nid fɔ gɛt tritmɛnt na wan intensiv kia yunit (ICU) we spɛshal pan kɔmpleks at sik dɛn jɔs afta dɛn bɔn am. Bɔku tɛm, dɛn kin nid fɔ du ɔpreshɔn kwik kwik wan fɔ sev di pikin in layf bifo dɛn go na os. If dɛn nɔ no dis ɛn trit am fayn, i kin rili afɛkt di pikin in layf. Yu tink se men kayn dis sik de?
Dɔktɔ dɛn kin klas dis sik mɔ ditayli. di rizin fכ dis na biכs כda chenj dεm kin de na di pikin in at apat frכm dis men dεfεkt. Di we aw dɛn plan di tritmɛnt plan go difrɛn difrɛn wan bay dɛn chenj dɛn de. Tri men kayn dɛn de (Tayp I, II, III).- Tayp I: Dis na di kayn we we pipul dɛn kin yuz mɔ. na ya, di men bכdi we de kכmכt na di at (di pulmonary artery εn aorta) de na dεn rayt ples. כltu, i kin bi se wan ol de bitwin di lכw chεmba dεm na di at (wan ventricular septal defect) כ prכblεm de wit di valv we de kכri bכdi to di lכng .
- Tayp II: Na ya, di tu men blɔd vesel dɛn de na wan pozishɔn we de chenj chenj. wan ol de bak bitwin di lכw chεmba dεm (Ventricular Septal Defect).
- Tayp III: Dis na wan kayn we we nɔ kin apin so ɔltɛm. Na ya, sɔm kɔmpleks chenj dɛn de na di men blɔd vesel ɛn chɛmba dɛn.
Yu nɔ nid fɔ wɔri tumɔs bɔt dɛn kayn tin ya. Di dɔktɔ dɛn we de trit yu pikin go chɛk ɔl dɛn tin ya ɛn ɛksplen to yu di tritmɛnt plan we bɛtɛ fɔ yu pikin. Us sayn dɛn di pikin gɛt?
Bɔrku tɛm, pikin dɛm wae gɛt dis sik kin sho sɔm sayn dɛm insay di fɔs wik we dɛn bɔn dɛn. Yu go notis dɛn tin ya. | Di sayn we de sho se di sik de | Fɔ ɛksplen am simpul wan |
|---|
| Blu we di skin ɛn di lip dɛn de blu (Cyanosis) . | Di men sayn na we di skin, di lip, ɛn di nel dɛn kin chenj di kɔlɔ we blu ɔ pepul, bikɔs di bɔdi nɔ kin gɛt bɛtɛ blɔd we gɛt ɔksijɛn. |
| I nɔ izi fɔ blo (Dyspnea) . | Di pikin de blo fast fast ɛn i tan lɛk se i de tray tranga wan fɔ blo. |
| I nɔ izi ɛn taya we i de gi pikin in bɛlɛ | Di pikin kin taya afta i dɔn drink smɔl milk, i kin stɔp fɔ drink af-af, ɔ i kin swet we i de drink. |
| Di we aw pɔsin nɔ de gro fayn | Ivin if di pikin drink bɔku milk, i nɔ go gɛt wet fayn. |
| Abnɔmal at sawnd (Hat Murmur) . | We di dɔktɔ de chɛk di at wit stetɔskɔp, i yɛri wan ɛkstra at sawnd. |
Wetin mek dis bin apin to mi pikin?
I go mɔs bi se yu dɔn aks yusɛf dis kwɛstyɔn bɔku tɛm. Di fɔs tin we yu fɔ ɔndastand na dat nɔto yu fɔlt dis . Dɔktɔ dɛn nɔ dɔn fɛn yet di rayt tin we kin mek pɔsin gɛt dis kayn at sik we dɛn kin bɔn wit. i kin apin insay di fכs 6 wik dεm we di pikin de divεlכp na di bכdi, we di at de fכm. Bɔt dɛn dɔn no sɔm tin dɛn we kin mek pɔsin gɛt dis sik. Dɛn tin ya kin afɛkt di mama we i gɛt bɛlɛ: Aw dɔktɔ dɛn kin no dis?
Bɔrku tɛm, dɛn kin no dis sik bifo dɛn bɔn di pikin.- Bifo dεn bכn di pikin: We yu de du yu bεlε skan (ultrasound), yu dכkta kin si wan abnכmal tin na yu pikin in at. If ɛni dawt de, dɛn go rifer yu fɔ wan spɛshal skan we de pe atɛnshɔn pan di pikin in at nɔmɔ, we dɛn kɔl fetal echocardiogram .
- Afta di pikin bɔn: If di pikin blu jɔs afta dɛn bɔn am, dɔktɔ dɛn go sɔprayz wantɛm wantɛm se i gɛt at prɔblɛm. If yu yɛri at sawnd we nɔrmal (at de grɔmbul) we yu de chɛk di at wit stetɔskɔp, dat na big sayn bak. Di men tɛst fɔ no di sik klia wan na ɛkokadiogram . Dis bak tan lɛk skan. Dis kin si klia wan if di at valv dɛn nɔ de, di sayz fɔ di chɛmba dɛn, di we aw blɔd de flɔ, ɛn if ɛni ɔda ol de.
Apat frɔm dat, dɛn kin du ɛkstrem rayt na di chɛst, ECG tɛst, ɛn puls ɔksimɛtri tɛst fɔ chɛk di ɔksijɛn lɛvɛl na di blɔd bak. Wetin na di tritmɛnt dɛn? Yu tink se dɛn go ebul fɔ mɛn dis?
Pan ɔl we dɛn nɔ go ebul fɔ “krɔs am” ɔl, we dɛn du sɔm ɔpreshɔn dɛn, dat kin mek di pikin in blɔd go bak ɛn mek i liv nɔmal layf. Dɛn kin sheb di tritmɛnt to tu pat. 1. Mɛrɛsin
As soon as di pikin bɔn, dɛn kin gi dɛn mɛrɛsin fɔ mek di pikin stebul te di fɔs ɔpreshɔn. Di men mɛrɛsin we dɛn gi ya na Alprostadil . dis mεdikal de opin wan spεshal blכd vesel (Ductus Arteriosus) fכ sכm tεm we כl pikin gεt we i bכn εn we de kכloz fכ de afta dεn bכn am. Dis kin mek wan ɔda rod fɔ mek blɔd go na di lɔng dɛn. Dis na tin we go sev pipul dɛn layf.2. Ɔpreshɔn
Dɛn nɔ kin ebul fɔ trit trikuspid atresia wit wan ɔpreshɔn. As di pikin de gro, i nid fɔ du sɔm ɔpreshɔn dɛn insay difrɛn stej dɛn. Dis tan lɛk fɔ bil wan big bildin wan bay wan.- Stej 1 (insay di fכs wik dεm we i de liv): Dis involv fכ mek di bכdi fכ fכlכ stebul to di lכng dεm. dis kin bi tru wan prosidur we dεn k כl BTT shunt . Dis min se dɛn fɔ put wan smɔl tiub bitwin wan men blɔd vesel ɛn di blɔd vesel we de kɛr blɔd go na di lɔng dɛn.
- Stej 2 – Glεn di we aw dεn kin du am: dεn kin du dis we di pikin ol arawnd 4-6 mכnt. Na ya, di blɔd we nɔ gɛt ɔksijɛn we kɔmɔt na di ɔp pat na di bɔdi kin go dairekt to di lɔng dɛn, ɛn i kin pas di at.
- stej 3 – di fכntan prosidכs: dεn kin du dis fainal prosidכs we di pikin ol arawnd 2-4 ia. na ya, di blכd we nכ gεt כksijεn we de kכmכt na di lכw bכdi de kכmכt dairekt to di lכng dεm. Afta dis prosidur, di miks we di blɔd we gɛt ɔksijɛn ɛn we nɔ gɛt ɔksijɛn de miks na di at kin stɔp ɔlmost.
If dɛn ɔpreshɔn ya nɔ wok ɔ if di at wik as tɛm de go, dɛn kin tek at transplant as las tin fɔ du. Aw mi pikin in fiuja go tan lɛk wit dis sityueshɔn?
Dis na di big prɔblɛm fɔ ɛni mama ɛn papa. If dɛn nɔ gɛt tritmɛnt, bɔku pan di pikin dɛn we gɛt dis sik kin day bifo dɛn fɔs batde. Bɔt if dɛn du ɔpreshɔn di rayt tɛm, bɔku pan dɛn pikin ya kin liv te dɛn big.
- Ɛksesaiz: Bɔku pikin dɛn kin du tin dɛn we nɔmal. Bɔt, spɔt dɛn we gɛt bɔku kɔmpitishɔn ɛn we gɛt bɔku pawa kin nid fɔ gɛt smɔl smɔl spɔt dɛn. Tɔk to yu dɔktɔ bɔt dis.
- Ɔda wɛlbɔdi prɔblɛm dɛn: Bifo yu du sɔm mɛrɛsin, lɛk fɔ pul yu tut, yu go nid fɔ tek antibayɔtik fɔ mek yu nɔ gɛt at infɛkshɔn.
- Lanin: Sɔm pikin dɛn kin gɛt disabiliti fɔ lan ɔr kin gɛt atɛnshɔn dɛfisit haypa aktiviti disɔda (ADHD). I impɔtant fɔ no bɔt dis bak.
Mɛsej we dɛn kin kɛr go na os
- Tricuspid atresia na wan siriɔs at sik we dɛn kin bɔn wit we dɛn kin mɛn. Nɔto yu fɔlt.
- Fɔ no di sik kwik kwik wan ɛn fɔ du ɔpreshɔn we dɛn go du am di rayt tɛm, fɔ mek dɛn du am stej, impɔtant fɔ di pikin in layf.
- Dɛn pikin ya nid fɔ gɛt fɔ fala dɛn ɔl dɛn layf wit dɔktɔ we de mɛn dɛn at.
- Bɔku pikin dɛn kin liv gud, aktif layf afta dɛn dɔn du dɛn ɔpreshɔn. Nɔ giv ɔp fɔ op.
- Tɔk opin wan wit yu pikin in dɔktɔ bɔt ɛni kwɛstyɔn ɔ tin we de mɔna yu. Dɛn kin rɛdi ɔltɛm fɔ ɛp yu.
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