Bɔku tɛm yu pikin kin kɔmplen se in leg, in an, ɔ in bak de at? Sɔmtɛm wi kin tink se na jɔs wan simpul kes fɔ rɔn rawnd ɔ "grɔw pen." Bɔt if dis pen kin las fɔ sɔm dez ɔ wik, i kin stɔp afta sɔm dez, dɔn i kam bak, wi fɔ wɔri smɔl. Tide wi go tɔk bɔt wan rare bɔt impɔtant kɔndishɔn we kin mek yu bon pen bak.
Fɔ tɔk am simpul wan, wetin na CRMO?
Chronic Recurrent Multifocal Osteomyelitis, we dɛn kin kɔl bak CRMO, na wan sik we pɔsin kin gɛt we i de fɛt insɛf . Naw yu go de wɔnda wetin i bi. Tink bɔt wi bɔdi in imyun sistɛm lɛk ami we de protɛkt wan kɔntri. Di wok we dis ami de du na fɔ protɛkt wi frɔm sik dɛn bay we dɛn de fɛt fɔrina ɛnimi dɛn lɛk vayrɔs ɛn baktri.
Bɔt pan ɔtoimyun sik, wi yon imyun sistɛm kin mek mistek ɛn atak di pat dɛn we gɛt wɛlbɔdi na wi yon bɔdi instead fɔ atak fɔrina dɛn we de kam insay wi. insay CRMO, dis "mistaken attack" de dayrekt wi own bon dεm . di imyun sistεm, fכ nכ rizin, de atak wan כ mכr bon dεm na di bכdi, we de mek i inflameshn, we na swel εn pen.
De impɔtant tin na dat dis sik nɔr kin kam wit ɛni baktri infεkshɔn. Na dat mek dɛn kin kɔl am bak Chronic Nonbacterial Osteomyelitis (CNO) . CRMO na wan fכm we sכmtεm siriכs fכ CNO.
Wan patikyula rizin de fɔ mek dɛn mek CRMO?
Infakt, dɔktɔ dɛn stil nɔ no bɛtɛ bɛtɛ wan wetin kin mek pɔsin gɛt CRMO. Nɔto baktri ɔ vayral infɛkshɔn kin kam wit am. Na jɔs di imyun sistɛm we de akt fɔ no rizin.
Bɔt sɔm pipul dɛn de tink se sɔntɛm sɔntin de we gɛt fɔ du wit dis. Sɔntɛnde, dɛn kin ripɔt se sɔm pipul dɛn na di sem famili gɛt dis sik. Bɔt dɛn nid fɔ du mɔ risach bɔt dis.
As mama ɛn papa, wan pan de big tin wae yu kin frayd na if dɛn sik ya gɛt fɔ du wit kansa. CRMO nɔto kansa . Bɔt i kin gɛt di sem sayn dɛn lɛk sɔm bon kansa dɛn, so i impɔtant fɔ go to dɔktɔ fɔ no di kɔrɛkt tin bɔt am.
Udat kin gɛt dis sik pas ɔlman?
Dɛn kin si CRMO mɔ pan pikin ɛn yɔŋ pipul dɛn.Dɛn kin no bɔt dis sik arawnd di ej fɔ 9-10 ia. Dis sik kin bɔku smɔl pan gyal pikin dɛn pas bɔy pikin dɛn.
Dis nɔto bad bad sik, bɔt as dɔktɔ ɛn ɔlman de no bɔt dis sik, di nɔmba fɔ pipul dɛn we dɛn kin no se gɛt dis sik dɔn bɔku smɔl.
Wetin na di men sayn dɛm fɔ CRMO?
CRMO kin afɛkt ɛni bon na di bɔdi. Bɔt i kin afɛkt di lɔng bon dɛn we de na di pikin dɛn leg, dɛn hip, ɛn dɛn spayna . Di sayn dɛn kin kam wantɛm wantɛm, i kin stɔp afta sɔm dez, dɔn i kin kam bak. Dɛn kɔl dis flawa-ap ɛn rɛmishɔn.
Lɛ wi luk di men sayn dɛm lɛk dis.
| Di sayn we de sho se di sik de | Wan Simpul Ɛksplen |
|---|---|
| Pen | Dis na de sik wae kin kam pasmak ɛn wae de mɛk pɔrsin gɛt dis sik. Pen kin apin na di bon we afɛkt ɔ di say we de rawnd am. |
| Jɔyn inflamɛns | di joyn dεm we de nia di bon we afekt kin swεla εn kin fil pen, lεk at at. |
| Bɔn dɛn we nɔ fayn | Dis sik kin afɛkt di pikin in growth plet. di plet dεm we de gro na di ples dεm we di bon dεm de gro we pikin de gro. if dεn tin ya dεn dכn pwεl, di bon dεm kin gro abnכmal wan (fכ egzampl, wan leg kin sכt pas di כda wan). |
| Slowed growth | Sɔntɛnde, pan ɔl we i nɔ de fil pen, di pikin nɔ kin gro kwik lɛk aw dɛn bin de tink. |
| Fɔ taya ɔltɛm | Insay di tɛm dɛn we di sik kin wɔs, di pikin kin fil taya ɔltɛm ɛn i kin taya. |
| Risk fɔ fraktrɛshɔn kin bɔku | Di bon dɛm we wik bikɔs ɔf inflamɛns kin brok ivin wit smɔl trauma, mɔ if di spayna afɛkt. |
Aw fɔ no di CRMO sik kɔrɛkt wan?
Bikɔs dis na sik we nɔ kin bɔku, sɔntɛnde i nɔ kin izi fɔ no bɔt am. Di dɔktɔ go chɛk yu pikin gud gud wan ɛn aks yu bɔt di sik dɛn we yu gɛt. Bɔrku tɛm, i kin tek sɔm mɔnt ɔ ivin pas wan ia fɔ no di sik.
Dɛn kin du bɔku tɛst fɔ no if pɔsin gɛt di sik.
- Imej test: Test lεk X-ray εn MRI skan kin sho klia wan inflameshn εn כda chenj dεm na di bon dεm.
- Blɔd tɛst: Dɛn tin ya kin ɛp fɔ chɛk di lɛvɛl we di inflamɛns de na di bɔdi (lɛk ESR, CRP) ɛn fɔ pul ɔda infɛkshɔn ɔ sik dɛn.
- Jɛnɛtik tɛst: Sɔntɛnde, dɛn kin nid fɔ du dɛn tɛst ya bak fɔ mek dɛn nɔ gɛt ɔda sik dɛn we de na di jɛnɛtiks.
Wetin na di tritmɛnt dɛm fɔ CRMO?
Dis tɛm, no mɛrɛsin nɔ de fɔ CRMO. Bɔt nɔ wɔri. Di tritmɛnt dɛm we de kin kɔntrol di sayn dɛm, ridyus di inflamɛns, ɛn ɛp yu pikin fɔ liv in layf ɔltogɛda .
Di dɔktɔ kin tɛl yu fɔ du dɛn tritmɛnt ya:
- Nonsteroidal anti-inflammatory drugs (NSAID): Dis na di pen kil ɛn anti-inflammatory drɔgs we wi ɔl no, lɛk Ibuprofen. Dis na di fɔs tritmɛnt fɔ tray. Na lɛk 50% pan di pikin dɛn kin ansa dɛn tin ya fayn fayn wan. Bɔt if yu tek dɛn mɛrɛsin ya fɔ lɔng tɛm, yu dɔktɔ go de chɛk yu kidni ɛn yu liva ɔltɛm.
- Disease-modifying antirheumatic drugs (DMARD): If NSAID nɔmɔ nɔ de kɔntrol di sik, dis klas fɔ drɔgs na di nɛks grup fɔ drɔgs we dɛn kin yuz. Dɛn mɛrɛsin ya kin wok bay we dɛn kin stɔp di imyun sistɛm te to sɔm mak, ɛn dɛn kin ɛp fɔ stɔp di rɔng atak dɛn we kin mek pɔsin gɛt di sik. Bifo yu bigin fɔ tek dɛn mɛrɛsin ya, yu dɔktɔ go ɛksplen to yu ɔl di gud ɛn bad tin dɛn.
- Di chenj dɛn we pɔsin kin chenj di we aw pɔsin de liv in layf:We yu pikin de fil pen, i go nid fɔ stɔp fɔ rɔn ɛn jomp. Wan dɔktɔ we de mɛn yu bɔdi ɔ pɔsin we de mɛn yu wok kin ɛp yu fɔ lan aw fɔ du tin dɛn we yu kin du ɛvride wit pen, ivin fɔ du ɛksɛsayz.
Ɔda sik dɛn de we kin apin togɛda wit CRMO?
Yes, pikin dεm we gεt CRMO de pan sכm risk fכ gεt sεvεra כda כtoimyun sik dεm.
- Inflammatory Bowel Disease (IBD): Dis na kכndyushכn bak we di imyun sistεm de atak di dijestiv sistεm.
- Psoriasis: Dis na wan sik we de ambɔg di skin.
- Amplified musculoskeletal pain: Dis na wan sik we kin kɔmplikt smɔl. Ivin we CRMO de insay rεmishכn, i kin gεt mכsul pen we de kכntinyu fכ rizin we dεn nכ εksplen. Dis pen nɔ kin kɔmɔt wit ɔdinari pen kil.
Wetin na di prɔgnosis fɔ dis sik?
Di gud nyus na dat lɛk 40% pan di sik pipul dɛn kin gɛt kɔmplit rɛmishɔn insay di fɔs 1-5 ia we dɛn dɔn tek di tritmɛnt. Dis min se di pen ɛn ɔda sayn dɛm dɔn go ɔlsay, wit nɔ inflamɛns ɔ imyun sistɛm nɔ de wok fayn. Dɔn di pikin kin liv nɔmal, aktif layf.
Bɔt ivin if di sik dɔn wɛl ɔltogɛda, i rili impɔtant fɔ de wach di sik ɔltɛm . Yu go gɛt fɔ kɔntinyu fɔ go na di klinik ɔnda di sɔpɔtishɔn fɔ wan rεumatɔlɔjis. Yu kin nid fɔ du tɛst bak lɛk MRI skan fɔ si if di sik dɔn kam bak. Dis na bikɔs lɛk 50% pan pipul dɛm kin gɛt dis sik bak insay di fɔs tu ia afta dɛn dɔn stɔp di tritmɛnt. If dat apin, yu go gɛt fɔ bigin tritmɛnt bak.
Mɛsej we dɛn kin kɛr go na os
- CRMO na wan kכndyushכn we di imyun sistεm de mistek atak di bכdi in bon dεm. I nɔto baktri infekshɔn ɔ kansa.
- If pikin gɛt pen we de kam bak na in bon, mɔ na in leg, hip, ɔ bak, nɔ ignore am as "nɔmal."
- Pan ɔl we no kɔmplit mɛrɛsin nɔ de fɔ dis sik, tritmɛnt dɛn de we rili fayn we go ebul fɔ kɔntrol di sik dɛn ɛn alaw di pikin fɔ liv nɔmal, aktif layf.
- CRMO kin tek tɛm fɔ no di sik, so i impɔtant fɔ peshɛnt ɛn wok klos wit yu dɔktɔ .
- If yu gɛt ɛni dawt bɔt yu pikin in pen ɔ ɔda sayn dɛn, go to dɔktɔ wantɛm wantɛm.
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