He aha tēnei mamae tuara e puta mai ana i te tīmatanga o te wā pai rawa atu o tō oranga? Me kōrero tātou mō te Ankylosing Spondylitis (AS)

I te wā tino pai o tō oranga, ina kei te kura koe, kei te kāreti, kei te mahi pai, me te moemoeā kia whānau, kei te pāngia tonu koe e te mamae tuara e te mamae nui, kāore e mārama? Tērā pea ka tīmata tēnei mamae i ō hope, ka piki haere ki tō tuaiwi, ka pēhi i tō kaki? Koinei te tīmatanga o te mate e kiia nei ko te Ankylosing Spondylitis (AS). He maha ngā taiohi e tīmata ana ki te ao e pāngia ana e tēnei mate. Engari kei reira ētahi e whawhai ana, e kore e mutu te ora nā tēnei mamae, engari ka tutuki ā rātou moemoeā. I tēnei rā ka kōrero tātou mō ētahi o aua tāngata.

'E maioha ana ahau ki ngā mea iti ināianei' - te kōrero a Jake

He kaitākaro pai a Jake i te kura me te kāreti. Nō reira, i te tuatahi i whakapae ia i ōna whara hākinakina nā te mamae nui, mau tonu. Engari i tētahi rā, i whakarongo ia ki tētahi podcast mō ngā mate pūnaha ārai mate.

"He rite tonu ngā tohumate e whakahuatia ana i roto ki ērā kua pā mai ki ahau," te kī a Jake.

He māmā noa iho , ko te mate pūnaha ārai mate ko te wā e tīmata ai te pūnaha ārai mate, e tika ana kia tiaki i tō tātou tinana, ki te whakaeke hē i ngā pūtau o ō tātou ake tinana. Ko te Ankylosing Spondylitis tētahi o aua mate.

E rua wiki i muri mai, ka kitea te mate o Jake i te AS i tana kitenga i tētahi tākuta mate rumatiki. He mea whakaharikoa te mōhio ki te take o ōna tau maha e mamae ana, engari kei te mau tonu te mamae. I ētahi rā, he tino kino te mamae, ā, e rima, e ono rānei ngā wā i whakaurua ai ia ki te hōhipera i tana wāhanga tuatahi o te kura ture.

Engari kāore a Jake i tuku. I kī mai tētahi i runga i te podcast i tino marino ia i tana hurihanga ki te kai mīti anake. I whakatau a Jake ki te whakamātau.

"I tino whai ahau i te kai. Ko te mīti me te wai anake taku i kai ai. He mea whakamiharo, i muri i te wiki, kua iti haere te mamae i pā ki ahau. I whero tōku kiri i te mumura, ā, kua ngaro atu hoki," te kī a Jake.

I pā mai tētahi atu raruraru ki a Jake. I piki ake tōna mamae i a ia e noho ana i runga i te tūru i roto i te akomanga i te rā katoa. Nō reira i kitea e ia he otinga mō tēnā. He mahi whakakori tinana o ia rā i hangaia e ia māna ake.

• I ia ata, ka noho ahau mō te 15 meneti i roto i te kaukau matao me te wai matao e tae ana ki tōku kaki.
• Kātahi ka totoro ia i tōna uaua psoas, he uaua roa e toro atu ana i tōna tuara o raro ki tōna huha.
• Ka mahi yoga anō hoki ahau me ngā mahi manawa hōhonu.

"Kāore i taea e au te manawa tika mō tētahi wā. Nō te wā i taea ai e au te totoro i ōku uaua ka mōhio ahau," te kī a Jake. "He tino mamae ina mahi ahau i tēnei totoro. Engari he nui atu te pai o te whakamarie e pā ana ki ahau i muri mai."

E ai ki a Jake, ehara i te mea ngāwari te noho me te mamae. Engari nā te mea kua wikitoria ia i taua wero, kua rerekē tana whakaaro mō te ao. "Kei te maioha ahau inaianei ahakoa te iti o te wā ka taea e au te noho tahi me tōku whānau me te kore mamae. Kāore au e whakaaro noa ki tetahi mea."

'Me haere tonu ahau ki mua' - te kōrero a Jess

He wahine rangatahi a Jess nō Kanata. Tekau mā waru ōna tau i te tīmatanga o tana mamae i tōna hope matau me tōna papa i a ia e haereere ana me ōna hoa. I te tīmatanga, i mahara ia nā te roa rawa o tana noho i roto i te waka. Engari i muri i ētahi rā, ka tino kaha te mamae, ā, kāore i taea e ia te ara ake i te moenga.

E whā tau te roa o te wā i rapua ai e ngā tākuta te take o Jess. Nā te mea he iti ake te kitea o tēnei mate i roto i ngā wāhine, i ētahi wā ka tōmuri pea te tātaritanga. I tino pouri a Jess i a ia e ngana ana ki te rapu he aha te take. Engari i tōna kitenga i tana mate, ka tino marino a Jess.

I tēnei rā, kei te tango a Jess i tētahi rongoā i tohua e te tākuta hei whakahaere i tōna mumura, e aukati ana i tētahi pūmua e kiia nei ko te interleukin-17 (IL-17), e puta ai te mumura i roto i te tinana.

"He tino mīharo taua rongoā. Ko te wiki i mua i taku werohanga e whai ake nei ka mamae ahau," tana kī.

Kua mōhio a Jess ko te huarahi pai ki te ora me tēnei mamae ko te whakakori tinana.

"E whā tau o tōku taitamarikitanga i ngaro i te mamae me te kore e taea te neke. Nō reira i oati ahau ki a au anō, ahakoa e taea tonu ana e au te neke, ka whakamahia e au te wā pai rawa atu," te kī a Jess.

I uru atu ia ki tētahi kaupapa whakakori tinana me ngā kaiwhakaora tinana i te hōhipera, ā, ka taea e ia te whakakori tinana ko ia anake.

• E mahi ana ia i ngā korikori tinana i ia rā, i ia rā, hei whakapakari i ngā uaua o tōna tuara o raro me ōna uaua o te puku.
• Te mahi i ngā mahi yoga pēnei i te 'tū a te tamaiti', e totoro ai te tuaiwi.
• E ngana ana ki te pupuri i te tū tika.

Kua whakatau hoki ia ki te kai i ngā kai hei whakaiti i te mumura (huawhenua, hua rākau, ika, nati), kia kaua e noho tahi me te hunga momi hikareti, ā, kia mutu rawa te inu waipiro.

"E mōhio ana ahau tērā pea ka honoa katoatia taku tuaiwi, ā, ka mutu pea te mahi a aku rongoā. Engari ka pātai tonu ahau ki a au anō, 'He aha atu anō tāku e taea ai?' Ka mea atu ahau ki a au anō me haere tonu ahau ki mua, me haere tonu, me haere tonu ki mua."

He aha ngā tikanga i whakamahia e ēnei tāngata hei whakahaere i te mamae?

He rerekē ngā tikanga i whakamahia e Jake rāua ko Jess hei whakahaere i tō rāua mamae. Me titiro tātou ki ētahi o aua tikanga i roto i tētahi ripanga.

Ngā mea ka taea e koe te mahi

Ki te pā mai ēnei tohu ki a koe, ko te mea tuatahi kia kaua e wehi, me toro atu ki tētahi tākuta mātau.He pai ake mēnā ka taea e koe te toro atu ki tētahi tākuta tohunga ki ngā mate wheua me ngā hononga (he tākuta rumatiki).

• Te tautuhi tika: Ko te mea nui ko te kimi tika he aha te mate.
• Maimoatanga hauora: Ka tohua e tō tākuta ngā rongoā whakamamae mamae, ngā rongoā ārai-mumura, ngā rongoā koiora rānei e tika ana māu.
• Whakaora tinana: Akohia ngā mahi whakakori tinana me ngā totoro tinana e tika ana māu mā te tohutohu a te kaiwhakaora tinana.
• Me kōrero tonu ki tō tākuta: I mua i te tīmatanga o tētahi mahi whakakori tinana hou, kai hou rānei, me kōrero ki tō tākuta kia mōhio ai koe he tika mōu. Ehara i te mea ko ngā mea katoa e kitea ana e koe i runga i te ipurangi he tika mōu.

He wero te Ankylosing Spondylitis. Engari ehara i te mutunga o te ora. Mā te maimoatanga tika, te whakakori tinana, me te waiaro pai, ka taea hoki e koe te whakahaere i tēnei mamae me te whai i ō moemoeā.