Kei te wiriwiri haere ngā uaua o ō ringaringa me tō kaki, ā, kāore e taea te whakahaere? Me kōrero tātou mō te Focal Dystonia!

Kua rongo koe i te tīmatanga o te tuhituhi i tētahi mea, ka tīmata te wiri, te oho rānei o ō maihao? Mēnā rānei ka takaro koe i tētahi taonga puoro pērā i te kitā, ka rongo koe i te wiri, te oho rānei o ō maihao, me te kore e taea te whakahaere? Tērā pea ka piko tō kaki ki tētahi taha, ka rerekē, ka wiri rānei tō reo ina kōrero koe? Ehara ēnei i te mea noa iho. He tohu pea ēnei o tētahi mate e kiia nei ko te Focal Dystonia . Ahakoa he ahua whakamataku te ingoa, i tēnei rā ka kōrerohia tēnei mea i roto i tētahi huarahi māmā ka taea e koe te mārama.

He aha te Dystonia Focal?

Ki te kī ngāwari, he mate pūnaha io te focal dystonia. I roto i tēnei mate, ka tīmata ngā uaua o tētahi wāhanga motuhake o tō tinana ki te kōpeke noa iho, me te kore e taea e koe te whakahaere. Arā, ka tīmata ngā uaua ki te kōpeke ahakoa kāore koe e hiahia ana. Ko te tikanga o te kupu "focal" he "rohe". Ko te tikanga o tēnei, ka herea te mate ki tētahi wāhi anake, kaua ki te tinana katoa.

Ka pā pea tēnei ki ngā uaua o tō kaki (cervical dystonia, spasmodic torticollis rānei), ō kanohi (blepharospasm), tō kauae (oromandibular dystonia), ō taura reo rānei (laryngeal dystonia, spasmodic dysphonia rānei). Ka pā hoki te focal dystonia ki ngā wāhi o tō ringaringa, pērā i tō ringaringa, tō nikau, me ō maihao.

Ko te Dystonia he kupu whānui mō ngā āhuatanga pūnaha io e puta ai ngā uaua e kore e taea te whakahaere. Ko te dystonia arotahi tētahi momo dystonia.

He aha te Dystonia Arotahi Motuhake mō te Mahi?

He tino motuhake anō hoki tēnei. Mō ētahi tāngata, ka puta noa tēnei āhuatanga o te Dystonia Focal i te wā e mahi ana rātou i tētahi mahi motuhake . Arā, he pai rātou i ētahi atu wā, engari i te wā anake ka tīmata rātou ki te mahi i taua mahi ka tīmata rātou ki te wiri me te ngaro o te mana whakahaere. Koinei te mea e kiia nei e mātou ko te Dystonia Focal Motuhake Mahi .

Whakaarohia ngā tauira pēnei i ēnei:

• Te mamae o te kaituhi: Kua rongo pea koe i tēnei. Ina tuhituhi tonu koe, ina mahi whakamātautau rānei koe, ka piri whakarere ngā uaua o tō ringa me ō maihao, ā, kāore e taea te tuhituhi. Kāore e taea e ētahi tāngata te pupuri tika i te pene.
• Te dystonia a te kaiwaiata: Ka pā tēnei ki te hunga e takaro ana i ngā taonga puoro pērā i te kitā, te vaiorine, me te piano. Ka whakakikitia ohoreretia ngā uaua o ngā ringaringa me ngā maihao, ka nekeneke, ā, ka kore e taea te takaro i ngā nota. Ka pāngia hoki te hunga e takaro ana i ngā taonga puoro parahi, rakau rānei e ngā uaua o ngā ngutu, o te kauae, o te arero rānei (embouchure dystonia).
• Ngā āhuatanga e puta ana i roto i ngā kaitākaro ("ngā yip"): Ka kōrerohia tēnei e tātou ā muri ake nei.

Ko te dystonia arotahi mahi-motuhake te mea e kitea pinepine ana i roto i te hunga e mahi ana i ngā mahi, i ngā hākinakina rānei e hiahia ana ki te nui o ngā pūkenga nekeneke pai. Hei tauira, ko ngā kaitākaro tēnehi, ko ngā kaiwhakapai makawe, me ngā kaipeita.

He aha te rerekētanga i waenga i te Focal Dystonia me te Carpal Tunnel Syndrome?

I ētahi wā, he rite tonu ngā tohu o ēnei mate e rua, ā, ka pōhēhē pea. Heoi, he rerekē rawa ngā pūtake o ēnei mate e rua.

Ko te dystonia arotahi ka puta mai i tētahi raruraru o te whakawhitiwhiti kōrero i waenga i tō roro me ngā io . Arā, he raruraru kei roto i ngā tohu e haere ana mai i te roro ki ngā uaua.

Heoi, ko te Carpal Tunnel Syndrome he mate e puta ana ina pēhia te io (te io waenga) e rere ana i roto i te ringaringa. He maha ngā wā ka puta tēnei i ngā nekehanga ringa auau (te whakamahi nui rawa) me ētahi atu raruraru rānei ki te io.

Ahakoa he rite ngā tohu, he rerekē te pūtake, nō reira he rerekē te maimoatanga. Koia te mea nui kia tika te tautuhi i te mate.

He aha ngā "yips"?

Ko "The yips" te ingoa i hoatu ki te mate i kōrerohia e tātou i mua ake nei, ko te Task-specific Focal Dystonia, e pā ana ki ngā kaitākaro, inā koa ko te hunga e takaro ana i ngā hākinakina e hiahia ana kia nui te whakamahinga o te ringa, o te ringaringa rānei . Whakaarohia i te wā e tata ana te kaitākaro kirikiti ki te pōro, ki te patu rānei, i te wā rānei e tata ana te kaitākaro korowha ki te patu i te pōro, ka ngaro whakarere tōna mana whakahaere i tōna ringa, ka oho, ā, kāore e taea te mahi tika i te mahi. Koinei te mea e kīia nei e tātou ko "the yips." He mea noa tēnei i roto i ngā kaitākaro korowha me ngā kaitākaro pēihipora.

Ko wai te mea ka nui ake te tūponotanga ka pāngia e te Focal Dystonia?

Ahakoa ka taea e te tangata te pāngia e tēnei mate, he mea noa tēnei i roto i ngā pakeke i waenga i te 40 me te 60 tau te pakeke. Kua kitea hoki e ngā rangahau e toru ngā wā ka nui ake te tūponotanga o ngā wāhine ki te pāngia e te focal dystonia i ngā tāne.

He pēhea te noa o tēnei āhuatanga?

He mate nekehanga noa te dystonia, engari he onge noa iho tēnei āhuatanga, e kiia nei ko te focal dystonia. Hei tauira, i te Hononga o Amerika, e pāngia ana e te toru i roto i te tekau mano tāngata.

He aha te take o te dystonia arotahi?

Ina hoki, kāore anō kia taea e ngā tākuta te tohu i te tino take o te focal dystonia. Ka kiia tēnei he "idiopathic". Ko te tikanga kāore i te mōhiotia te tino take.

Engari, e mōhio ana tātou ka puta tēnei āhuatangaNā te mea kāore tō roro me ō io e kōrero tika ana. Kei roto i te roro tētahi rohe e kiia nei ko te "Basal Ganglia" e āwhina ana ki te whakahaere i te nekehanga o ngā uaua. E whakaarohia ana kei roto i tēnei rohe tētahi huringa.

I ētahi wā, ka puta ēnei tohu o te dystonia arotahi me ngā huringa o ngā whanonga o te tangata, pērā i te kaitākaro, te kaituhi, te kaiwaiata rānei. Hei tauira:

• Te whakarerekē i tō tikanga mahi i muri i te whara pūnaha io.
• Te ako i tētahi hākinakina hou, i tētahi taonga puoro rānei.
• Te whai wāhi atu ki ngā whakangungu, ngā whakaaturanga, ngā whakataetae rānei, nui atu i te tikanga.

Ahakoa kāore anō kia whakamātauhia e ngā kairangahau tētahi hononga ira, kua kitea e rātou tata ki te kotahi i roto i te 10 ngā tāngata e pāngia ana e te focal dystonia he hītori whānau tō rātou mō tēnei mate.

He aha te take o te "yips"?

E whakaaro ana ētahi tāngata ko te "yips" ka puta i ngā kaitākaro korowha nā te manukanuka ki te mahi. Arā, ko te pēhanga me te wehi o te whakataetae. Koinā pea tētahi o ngā take. Heoi, ka taea hoki te "yips" te puta mai i te āhua hē, i te nui rawa rānei o te whakamahi.

Waihoki, ko te hunga whai mate hauora ka nui ake te tūponotanga ka pāngia e te "yips":

• Te Pararutiki Hinengaro
• Te Mate Pukupuku Maha

He aha ngā tohu?

Ka rerekē pea ngā tohu o te focal dystonia i runga i te wāhanga o te tinana e pāngia ana. Ko te tohu tuatahi he iti noa te ngaronga o te mahi tahi o ngā uaua. Hei tauira, ki te pāngia ō ringaringa, ka maha pea ngā mea ka taka. Ki te pāngia tō waha, ka nui ake pea te turuturu i a koe e kai ana, e inu ana rānei.

I roto i te wā, ka taea e te dystonia arotahi te arahi ki ngā tohu uaua kino ake:

• Te wiriwiri, te māuiui rānei o te uaua.
• Mamae uaua.
• Te wiri, te oho rānei o ngā uaua (te wiri - myoclonus).
• Ngā tū āhua rerekē o te wāhanga tinana e pāngia ana. Hei tauira, ka piko pea te kaki ki tetahi taha.

Haunga ēnei tohu matua, ka pāngia pea te hunga whai dystonia focal e ngā tohu tuarua . Nā te ahotea hinengaro me te ahotea tinana i puta mai i te mate ēnei. Kāore ēnei e pā tika ana ki ngā uaua. Ko ēnei tohu ko:

• Te tirohanga pōuri.
• Te pouri.
• Te uaua ki te moe.
• Te ngenge nui.
• Ngā panonitanga ohorere o te wairua (ngā panonitanga o te wairua).
• Poto te riri.
• He raruraru ki te arotahi.

Tērā pea ka kino haere ngā tohu o te dystonia arotahi i roto i te wā, kātahi ka tau ki tētahi taumata, ka hoki anō. Heoi, mō ētahi tāngata, tērā pea ka mutu te kino haere o te āhua.

Me pēhea te tautuhi i tēnei?

Hei tātaritanga i te dystonia arotahi, ka pātai atu tō tākuta ki a koe mō ō tohumate, tō hītori hauora, ā, ka tirotirohia hoki te wāhanga tinana e pāngia ana.

I te wā e tautuhi ana i te mate, ka ngana tō tākuta ki te whakakore i ētahi atu āhuatanga e puta ai ngā tohu rite (pēnei i ngā whara i te whakamahinga nui rawa). Tērā pea ka whai whakamātautau koe pēnei i ēnei:

• Ngā whakamātautau toto: Tirohia mēnā he mate pāwera, he mate hauora rānei.
• Matawai CT, matawai MRI rānei: Hei rapu i ngā pukupuku, i ētahi atu tipu rerekē rānei i roto i te roro, i te taha rānei o te wāhanga tinana e pāngia ana.
• Electromyogram (EMG): Ka whakamātautau i te tukanga o ō uaua i ngā tohu hiko. Mā tēnei ka taea e koe te whakaaro ki te mahi a ō io me ō uaua.

Me pēhea te rongoā?

Engari, kāore he rongoā mō te dystonia arotahi. Heoi, ka taea e ngā maimoatanga e wātea ana te āwhina i te whakaiti i ngā uaua e pupuhi ana, me te aukati i te kino haere o te mate. Ko ētahi o ngā maimoatanga mō te dystonia arotahi ko:

• Ngā Huringa Āhua Noho: I ētahi wā, mā te whakarerekē i ō kare ā-roto i a koe e mahi ana ka āwhina i tō roro ki te tukatuka i ngā nekehanga me te iti ake o te whakararuraru. Hei tauira, ka iti ake pea te wiri o te uaua o te kaiwhakatangi vaiori mēnā he karapu tana e mau ana. Ka iti ake pea ngā tohu o te kaituhi mēnā ka whakarerekē ia i te āhua o tana pupuri i tana pene. Ka taea hoki e koe te mahi i ngā totoro, i ngā mahi whakakori tinana rānei hei whakahaere i te mamae.
• Ngā rongoā:
• Ka āwhina ngā rongoā ārai-kōriniki , pērā i te Trihexyphenidyl (Artane®), ki te aukati i ngā tohu io e hua ai te mamae o te uaua.
• Ka whakamahia ngā aukati Vesicular Monoamine Transporter 2 (VMAT2) , pērā i te Tetrabenazine (Xenazine®), hei whakarerekē i ngā matū roro e pā ana ki ō io me ō uaua.
• I ētahi wā, ka taea hoki e te rongoā `(Carbidopa/Levodopa (Sinemet))` te whakaora i ngā tohumate.
• Ka taea hoki te whakamahi i ngā rongoā whakangāwari uaua, hei tauira, ko Baclofen, ko benzodiazepines rānei (Clonazepam).
• Ngā Werohanga: Botulinum Toxin (Botox®)He rongoā noa ngā werohanga mō te dystonia. Kua rongo pea koe mō te whakamahinga mō ngā mahi whakapaipai, engari he tino whai hua hoki mō ngā raruraru uaua. Ka werohanga tika ngā tākuta ki te uaua e pāngia ana. Ka ārai te werohanga i ngā tohu mai i te roro e wiri ai te uaua mō te wā poto. Me werohanga te nuinga o te tangata i ia toru marama.
• Pokanga: He tino onge te wā ka tūtohu mai tō tākuta kia pokanga.
• Te Whakaoho Roro Hōhonu (DBS): Ko te whakatakoto i ngā irahiko ki ngā wāhi motuhake o te roro. Mā ēnei taputapu iti ka whakahaere i ngā tohu e whakawhāiti ai ngā uaua.
• Pokanga tango-pūmau whiriwhiri: I roto i tēnei mahi, ka whakakorengia, ka tangohia rānei ngā io e whakakorikori ana i te uaua.

Me pēhea te ārai i tēnei?

E ai ki tā tātou i kōrero ai i mua, kāore anō kia mōhiotia he tino take o te focal dystonia, nō reira kāore he huarahi hei tino ārai i tēnei. Heoi anō, kei reira ētahi āhuatanga ka kino ake ai te focal dystonia. Nō reira, mā te mōhio ki ēnei mea ka āwhina:

• Āta karohia ngā nekehanga auau rawa, ngā kōrero rānei (i runga i te wāhi e pāngia ana).
• Te whakahaere i te ahotea mā roto i ngā tikanga hauora.
• Whakaitihia te ngenge mā te moe hauora, te whakakori tinana, me te kai tōtika.

He aha te tirohanga?

Ka horapa pea te Focal Dystonia i ētahi wā, ā, ka pā ki ētahi atu wāhanga o tō tinana. Kua kitea, tata ki te 1 i roto i te 6 tāngata e pāngia ana e te mate, ka horapa te Focal Dystonia ki ētahi atu wāhanga.

Heoi, ko te rongo pai, ka taea e te maimoatanga te whakaiti i te auau me te kaha o ngā tohu o te focal dystonia. Ki te kore ō tohu e pai ake i muri i te maimoatanga, me kōrero ki tō tākuta. Me whakarerekē pea tō maimoatanga.

He aha atu anō taku e pātai atu ai ki te tākuta?

Ina haere koe ki te tākuta, he mea pai kia pātai koe i ēnei pātai:

• He aha te tino take o aku tohumate?
• He aha ngā whakamātautau e hiahiatia ana hei tātaritanga i te Focal Dystonia?
• Me aha ahau hei whakahaere i ēnei tohumate o te Focal Dystonia?
• He aha ngā kōwhiringa maimoatanga kei a au?
• He aha ngā mea ka pā mai mēnā kāore au e rongoā i te Focal Dystonia?

Hei whakamutunga, ētahi mea hei maumahara

Ko te focal dystonia he mate pūnaha io e puta ai ngā uaua e kore e taea te whakahaere i tētahi wāhanga o te tinana. Ko te focal dystonia, e pā ana ki te ringa, te ringaringa, ngā maihao rānei, he mea tino kitea i roto i te hunga e whakamahi pinepine ana i ngā pūkenga nekeneke pai (hei tauira, ngā kaiwaiata, ngā kaitākaro, ngā kaiwhakapai makawe, ngā kaituhi).

Ahakoa he rite ōna tohu ki ngā mate pūnaha io, ko te dystonia focal ka puta mai i te raruraru o te whakawhitiwhiti kōrero i waenga i ō io, uaua, me te roro.

Ahakoa kāore he rongoā mō tēnei mate, ka taea te whakahaere pai i ngā tohu mā te whakarerekē i te āhua noho, ngā rongoā, ngā werohanga, ngā pokanga rānei. Nō reira, ki te pāngia koe e ēnei tohu, kaua e mangere ki te rapu tohutohu hauora. Mā te kitenga wawe me te maimoatanga ka pai ake ngā hua.

Te dystonia arotahi, te wiri o te uaua, te neuropathy, te pupuhi o te ringa kaituhi, te dystonia a te kaiwaiata, te yips, te maimoatanga Botox