Kei te ngaro ngā wāhanga o te roro o tāu pēpi? Me kōrero tāua mō te hydranencephaly?

Āe, i ētahi wā ka tino taumaha te whakaaro ki ngā mate ka pā ki ā tātou pēpi, kāore? Ina koa, ko ētahi o ngā āhuatanga ka akohia e tātou i a te pēpi kei roto tonu i te kōpū he tino uaua, he uaua hoki ki te mārama. I tēnei rā ka kōrero tātou mō tētahi mate roro kino he tino onge, engari he mea nui kia mōhiotia. Ko te hydranencephaly tēnei.

He aha rawa te Hydranencephaly?

Ki te kī māmā noa, he mate pūnaha io onge te hydranencephaly e puta mai ana i te whānautanga. I roto i tēnei mate, e rua ngā wāhanga tino nui o te roro o te pēpi, e kiia nei ko ngā hemispheres cerebral , kāore e hangaia. Whakaarohia, ko te wāhanga nui rawa atu o tō tātou roro ko te cerebrum. Koinei te wāhi e noho ai ēnei hemispheres e rua. Ko te whakaaro, te mahara, me te kare ā-roto e whakahaerehia katoatia ana e ēnei hemispheres cerebral.

Nō reira, i roto i te pane o te pēpi e pāngia ana e te hydranencephaly, te wāhi e tika ana kia noho ai ngā taha roro, he pēke kei roto i te wai cerebrospinal (CSF) . Ko tēnei wai cerebrospinal (CSF) te wai e karapoti ana, e tiaki ana hoki i tō tātou roro me te taurakira. Engari i tēnei wā, ka rerekē te āhua o te mate.

I roto i te wā, ka tīmata te tipu haere o ngā māhunga o ēnei pēpi. Tērā pea ka puta mai ētahi atu tohu kino. Heoi anō, he maha ngā wā ka mate te pēpi i muri tata i te whānautanga mai i tēnei mate, ahakoa kāore i roto i te kōpū o te whaea.

He aha te rerekētanga i waenga i te Hydranencephaly me te Hydrocephalus?

Kua rongo pea koe i tētahi mate e kiia nei ko te hydrocephalus. Ko ēnei mate e rua he mahunga nui me te kohikohinga o te wai cerebrospinal (CSF). Engari he tino rerekē ēnei mate e rua.

Ko te Hydrocephalus he mate e pupū ake ai te wai i roto i te roro, e kiia nei ko te wai cerebrospinal (CSF), ka piki ake te pēhanga i roto i te angaanga. Ka taea e tēnei te kino o te roro. Ka kitea pea i te whānautanga, ka puta rānei i muri i tētahi aituā, i tētahi mate rānei. I ētahi wā, ka puta anō hoki te hydrocephalus hei tohu o tētahi mate e kiia nei ko te hydranencephaly.

Engari i roto i te hydranencephaly, kāore te roro e whanake tika i te wā e noho tonu ana te pēpi i roto i te kōpū. Ko te tikanga he iti ake ngā wāhanga o te roro e whanake ana.

He mea nui kia wehewehea ēnei āhuatanga e rua, nā te mea he tino rerekē ngā maimoatanga me te putanga. He maha ngā pēpi e pāngia ana e te hydrocephalus ka taea te ora mēnā ka tika te tātaritanga me te rongoā. Heoi, ko ngā pēpi e pāngia ana e te hydranencephaly kāore e ora.

Nā, he aha te rerekētanga i waenganui i tēnei me te holoprosencephaly?

He rerekē anō tēnei āhuatanga e pā ana ki te whanaketanga o te roro.I roto i te holoprosencephaly, kāore te wāhanga o mua o te roro o te pēpi (forenga mua), arā, ngā taha roro kua whakahuatia ake nei, e wehea. Arā, kaua e rua ngā wāhanga, engari kotahi tonu. Heoi, i roto i te hydranencephaly, kāore rawa aua taha roro e wehea.

I runga i te kaha o te mate, ka ora pea ētahi pēpi me te holoprosencephaly i muri i te whānautanga.

He pēhea te noa o tēnei mate, arā, te Hydranencephaly?

He tino onge tēnei mate. E ai ki ngā whakatau tata a ngā kaipūtaiao, kotahi i roto i te 10,000 hāputanga ka pāngia e tēnei mate, kotahi rānei i roto i te 5,000. He tino iti rawa tēnā.

He aha te take e puta ai te hydranencephaly? He aha ngā take?

Ina hoki, kāore anō kia tino mōhiotia e ngā kaipūtaiao te take o te hydranencephaly. Tērā pea he tuku iho, engari kāore anō kia mārama te āhua o tōna putanga mai.

Heoi, i ētahi wā, kua kitea he hononga tēnei āhuatanga ki te pānga o ngā paitini ki te whaea i te wā e hapu ana . Nō reira, me tino tupato i te wā e hapu ana.

He aha ngā tohu o tēnei mate?

Ina whānau mai he pēpi me te hydranencephaly, tera pea ka rite tōna āhua ki tētahi pēpi noa i ngā rā tuatahi. Nō reira, tera pea he uaua ki te kite wawe tonu. Ka tīmata ngā tohumate ki te puta i roto i ngā wiki, i ngā marama rānei tuatahi o te oranga. Anei ētahi o ngā tohumate ka puta pea:

• Ko te kore e tupu pai ko te tikanga kāore te pēpi e piki ana te taumaha, e kore hoki e whanake tika .
• Ka piki ake, ka heke rānei te pakari o te uaua, me te wiriwiri hoki o te uaua .
• He nui ake te upoko i te mea noa.
• Te uaua ki te kite me te whakarongo .
• Te pakari o ngā peka.
• Te uaua ki te manawa .

Mena kei a koe tētahi, neke atu rānei o ēnei tohu, he mea tino nui kia rapu tohutohu hauora tonu atu.

Me pēhea te tautuhi i te mate Hydranencephaly?

Ka kitea pea tēnei āhuatanga i mua i te whānautanga o te pēpi, arā, i te wā o te matawai ultrasound . E mōhio ana koe, ka hangaia he whakaahua o te pēpi i roto i te kōpū o te whaea i te matawai ultrasound. Kātahi ka kitea kua ngaro ngā taha roro o te pēpi.

Mena ka kitea he hydranencephaly i te wā e hapu ana i te wā e puta ai te whakaahua oro-whakaata, ka tonoa pea e te tākuta he MRI kia mārama ake ai ngā whakaahua.

Heoi, i ētahi wā kāore e kitea i te wā e hapu ana, ā, ka roa pea te mate i muri i te whānautanga o te pēpi. Mēnā koinei te āhua, ka roa pea ngā wiki, ngā marama rānei hei tātaritanga i te mate. Nā te mea, e ai ki te kōrero i mua ake nei, tera pea te pēpi e āhua noa ana i te tīmatanga.

Ka taea e te tākuta te whakaū i te āhua i runga i ngā tohu o te pēpi me te MRI o te roro. Ka taea e te MRI te āwhina ki te wehewehe i te hydranencephaly mai i ētahi atu āhua, pērā i te hydrocephalus me te holoprosencephaly, i kōrerohia i mua.

Hei tāpiri, ka taea te whakahaere i ētahi atu whakamātautau, pēnei i:

• Angiography: Ko te tango pikitia X-ray o ngā oko toto mā te whakamahi i tētahi tae motuhake.
• Matawai CT: He huarahi anō tēnei hei tango pikitia o te roro.
• Te whakamātautau ultrasound hydranencephaly: He whakamātautau ultrasound e mahia ana hei rapu i tēnei mate.
• Te whakamārama-ā-ira: Ko te tikanga tēnei he whiti te mārama mā roto i te kiko roro mai i raro i te angaanga hei tirotiro mēnā he āhuatanga rerekē kei roto.
• Whakamātautau ira: Tirohia mēnā he tuku iho.

He aha ngā maimoatanga mō ngā pēpi e pāngia ana e te hydranencephaly?

He take tino tairongo tēnei. Mēnā ka whakaūtia te hydranencephaly i te wā whakamātautau i mua i te whānautanga, ka whakatau ētahi whānau ki te whakatahe rongoā , arā, te whakamutu i te hāputanga mō ngā take hauora. He whakatau tino uaua tēnei, engari ka whakaratohia e ngā tākuta me ngā kaiwhakatakoto whakaaro te tautoko e tika ana i aua wā.

Ki te whānau mai he pēpi me te hydranencephaly, kāore he rongoā. Ko te whāinga matua o te maimoatanga he whakaiti i ngā tohu me te whakarite kia tino whakamarie te pēpi.

• Ka mahia te pokanga hei tango i te wai nui mai i te roro, ā, ka whakauruhia he ngongo iti (he ngongo iti) hei whakaiti i te pēhanga i roto i te roro. Ahakoa he maimoatanga whai hua tēnei mō te hydrocephalus, he iti noa iho te whakamahinga mō te hydranencephaly.
• Ka taea te whakamahi i te maimoatanga e kiia nei ko te Endoscopic Choroid Plexus Coagulation (ECPC) hei rongoā mō te roro e tere haere ana te whakanui.

Hei tāpiri, ka tūtohu pea te tākuta i ētahi mea pēnei i:

• Ngā rongoā ārai-hōhā .
• Tautoko kai.
• Te whakaora tinana hei whakaiti i ngā tohumate uaua.
• Mena ka ngoikore te manawa, ka hiahiatia pea te tracheostomy (he pokanga iti i te korokoro) me te whakaora manawa ā-ringa rānei.

Ka taea te ārai i tēnei āhuatanga o te hydranencephaly?

Kāore anō kia tino mārama ngā kaipūtaiao he aha tēnei e puta ai, nō reira kāore e taea e rātou te kī me pēhea te ārai. Heoi, e ai ki te kōrero i mua ake nei, kua honoa ētahi take ki te pānga ki ngā paitini i te wā e hapu ana. Hei tauira, ko ngā raau taero pēnei i te kōkaine, te momi hikareti, me ētahi rongoā hopuhopu pēnei i te sodium valproate.

Nō reira, he mea tino nui kia karohia e ngā whaea hapū te pānga ki ngā paitini. He mea nui anō hoki kia kōrero ki tā rātou tākuta mō ngā rongoā katoa e tangohia ana e rātou.

He aha te roanga o te oranga o te pēpi e pāngia ana e te hydranencephaly?

He mea pouri tēnei ki te rongo. Kāore i te tino pai te tirohanga mō ngā tamariki e pāngia ana e te hydranencephaly. He maha ngā pēpi ka mate i mua i te whānautanga, i mua rānei i te kotahi tau te pakeke. He tino onge, me te tiaki tautoko nui, ka taea e te tamaiti e pāngia ana e te hydranencephaly te ora mō ngā tau maha.

Me pēhea te whakatau i tētahi āhuatanga pēnei?

He tino uaua ki te whakatau kei te pāngia tāu tamaiti e te mate pēnei i te hydranencephaly. He mea mārama tēnā.

• He mea tino nui te whakarato ki ngā whānau te mātauranga e tika ana kia mārama ai rātou ki te kino o tēnei mate.
• Waihoki, ko te rapu tohutohu me te whakauru atu ki ngā rōpū tautoko e taea ai e koe te hono atu ki ētahi atu whānau e pāngia ana e ngā āhuatanga ōrite, he puna nui tēnei o te kaha.

He mate whānau onge te Hydranencephaly e pā ana ki te whanaketanga o te roro. I te nuinga o te wā ka kitea i mua atu i te whānautanga, i muri tata mai rānei. Mena kei tō pēpi tēnei mate, ka whakaratohia e tō rōpū hauora ki a koe me tō whānau ngā tautoko katoa, te mātauranga, me te tohutohu e hiahiatia ana e koe. Kia maumahara, ehara i te mea ko koe anake.

Karere Whakamutunga mō te Tango ki te Kāinga

E ngā Māmā me ngā Pāpā, he tino mamae te ngākau, he tino uaua hoki te mate Hydranencephaly. Heoi, he mea nui kia mōhio ki tēnei.

• He tino onge tēnei āhuatanga ka puta ina kore e whanake tika ngā wāhanga o te roro.
• Ka taea te kite i tēnei mā roto i ngā matawai i mua i te whānautanga .
• Ahakoa kāore he rongoā mō tēnei, kei reira ngā maimoatanga hei whakahaere i ngā tohumate, hei whakamarie hoki i te pēpi .
• Nā te mea kāore i te mōhiotia te tino take, he mea nui kia mahia ngā mahi ārai, pērā i te karo i ngā paitini i te wā e hapu ana.
• Ka taea e ngā whānau e pāngia ana e tēnei āhuatanga te whiwhi kaha nui mai i ngā tākuta, ngā kaiwhakatakoto whakaaro, me ngā rōpū tautoko .

Mēnā he pātai anō āu mō tēnei, tēnā kōrero ki tō tākuta. Mā rātou koe e whakarato ki ngā mōhiotanga me ngā aratohu katoa e hiahiatia ana e koe.

` Hydranencephaly, ngā āhua o te roro, ngā hapa whānau, te hauora o te pēpi, te wai cerebrospinal, te hydrocephalus, te tātaritanga i te wā e hapu ana