Kei te pāngia koe e tēnei raruraru o ō pūkahukahu? Me ako tātou mō te Mate Pūkahukahu Interstitial (ILD)!

He poto te manawa i ētahi wā? He maremare maroke tonu rānei? He ngoikore rānei koe i a koe e whakapau kaha ana? Ehara i te mea he ngenge noa iho ēnei. He tohu anō hoki pea ēnei mō tētahi mate ka kōrerohia e tātou i tēnei rā e kīia nei ko te "Mate Pūkahukahu Interstitial" ("ILD"). Kaua e manukanuka, ka kōrerohia tēnei e tātou i roto i tētahi huarahi māmā noa iho, kia mārama ai koe.

He aha te mate pūkahukahu interstitial?

I te whakarapopototanga, ehara te mate pūkahukahu interstitial (ILD) i te mate kotahi. He rōpū mate. Inaa, neke atu i te 200 ngā momo. Mā ēnei mate ka mumura, ka whara, ka whara hoki te kiko ngawari o roto i ō pūkahukahu ( te interstitium ). Inaianei, tera pea koe e pātai, "He aha tēnei interstitium?" Whakaarohia he rite ki te mea he puranga poihau iti (e kiia nei ko ngā alveoli ) ō tātou pūkahukahu. Ko te interstitium te kiko ngawari i waenganui i ēnei pēke hau me ngā uaua toto e karapoti ana i a rātou. Ina manawa tātou, ka tangohia te hāora ka tukuna ki roto i te toto mā roto i ēnei pēke hau. Nō reira, i roto i te ILD, ka pakaru ēnei kiko nui, nō reira kāore te hāora e tae tika ki te tinana.

Ko te ingoa o te `ILD` ko te `Diffuse Parenchymal Lung Disease (DPLD).` Heoi, ko te `ILD` te ingoa e whakamahia whānuitia ana.

He aha te mea ka pā ki te tinana ina puta te `ILD`?

Mena kei a koe te ILD, ka pakaru ngā wāhanga o ō pūkahukahu e kohi ana i te hāora mai i ō toto ka tukuna ki te toenga o tō tinana. Ka whara tēnei kiko (e kiia ana ko te fibrosis ), ka uaua ai te manawa. Tērā pea ka puta he maremare maroke, pumau. Tērā pea ka ngenge tonu koe nā te mea kāore tō tinana e whiwhi ana i te hāora e ranea ana.

Ki te haere tonu te hanga o tēnei kino, ka ara ake pea ngā raruraru ka mōrearea pea ki te ora. Hei tauira, ko ngā mate pūkahukahu me te ngoikore o te manawa (ka kore te tinana e whiwhi i te nui o te hāora, i te nui rawa rānei o te hauhā).

He aha ngā momo `ILD` kei reira?

E ai ki tā mātou i kōrero ai i mua ake nei, neke atu i te 200 ngā momo `ILD`. Ko tētahi o ngā mea tino kitea ko te `Idiopathic Pulmonary Fibrosis` . Hei tāpiri, ka taea hoki te `ILD` te puta mai i ngā mea i roto i tā tātou taiao mahi (ngā pānga mahi) me ngā mate hononga kiko. Ko ētahi atu tauira ko:

• Te mate pāwera
• Te silicosis
• Te Pneumonitis Irahiko
• Pneumonia Interstitial Kore Motuhake

He aha te rerekētanga i waenga i te 'Mate Pūkahu Interstitial' (ILD) me te 'Pulmonary Fibrosis'?

He mea tēnei e whakapoauau ana i te tini o te tangata.Ko te Pulmonary Fibrosis (Pulmonary Fibrosis) he momo ILD. Ara, ehara i te mea ko ngā ILD katoa he pulmonary fibrosis. Ko te pulmonary fibrosis te hanganga o ngā kōhatu i roto i ngā pukahukahu. Ahakoa he āhuatanga nui tēnei kōhatu o ētahi ILD, ko te mumura pea te āhuatanga matua o ētahi atu ILD.

Ko wai te hunga tino mōrearea ki te whakawhanake i te `ILD`?

Tērā pea ka nui ake te tūponotanga ka pāngia koe e te ILD mēnā:

• Mena kua neke atu i te 70 tau tō pakeke.
• Mena he tāne koe. (Ka pāngia hoki ngā wāhine e tēnei mate, engari he nui ake te pānga ki ngā tāne)
• Mena he kaipaipa koe, he kaipaipa rānei i mua.
• Mena kua pāngia koe e ētahi mate i mua, hei tauira, te Hepatitis C, te Kohi, te Pneumonia, te COPD, te Mate Hononga Tio rānei.
• Ki te manawa koe i ngā mea e kino ana ki ō pukahukahu nā tō mahi, nā tō taiao rānei . Hei tauira: te asbestos, te silica, te harore, te harore, te huakita rānei.
• Mena kua whiwhi koe i te maimoatanga irahiko ki tō uma .

He pēhea te kino o te 'ILD'?

Nā te mea he maha ngā momo `ILD`, ka rerekē te kaha o te `ILD` e pāngia ana e ia tangata. Tērā pea he ngawari ētahi, engari ko ētahi he tino kino. He mea nui, ko te kino o ngā pukahukahu i puta mai i ngā momo `ILD` maha he `kore e taea te whakaora`. Ko te tikanga he uaua ki te whakatika i te kiko kua pakaru. Ka kino haere ētahi momo `ILD` kino i roto i te wā (`whakamua`).

He aha ngā tohu o te `ILD`?

Ko ngā tohu tino kitea o te ILD ko:

• Te uaua ki te manawa (dyspnea): Ka kino haere pea tēnei, inā koa i te wā e whakakorikori tinana ana, e mahi uaua ana rānei.
• He maremare maroke (he maremare kāore he huware).
• Te tino ngenge (te ngenge nui).
• Te mamae, te kore whakamarie rānei o te uma .

Kāore pea ēnei tohu e tino kino i te tīmatanga, engari ka kino haere i roto i ngā marama, i ngā tau rānei. Tērā pea ka puta ake ētahi atu tohu, i runga i te pūtake o te ILD.

He aha ngā take o te `ILD`?

Ka taea te wehewehe i ngā pūtake o te ILD kia rua ngā wāhanga matua: ngā pūtake kua tautuhia me ngā pūtake kāore i tautuhia .

Ngā Take e Mōhiotia ana

Ko te tikanga tēnei ka puta te ILD nā tētahi atu mate kei a koe, nā ētahi rongoā rānei e tangohia ana e koe, te rongoā irahiko, te pānga rānei ki ngā matū kino o te taiao.

Ko ētahi o ngā take matua kua tautuhia:

• Mate Hononga-Kiko: Hei tauira, ko ngā mate pēnei i te Rheumatoid Arthritis (RA), te Lupus, me te Scleroderma.
• Mate Granulomatous: Hei tauira ko te sarcoidosis.
• Te hongi i ētahi matū: ngā mea pēnei i te asbestos, te silica, te tupeka, me te beryllium.
• Mate pāwera manawa (Hypersensitivity Pneumonitis): Ka puta pea tēnei āhuatanga mā te manawa i ngā mea pēnei i te pokepokea ai, te harore, te huakita, te huruhuru manu, ngā matūriki iti rānei o te paru manu.
• Ngā rongoā, ngā maimoatanga rānei: Hei tauira, ngā rongoā pēnei i te amiodarone, te nitrofurantoin, te methotrexate, me te radiotherapy.

Ngā Take Kāore i te Mōhiotia ('Ngā Take Kāore i te Mōhiotia' 'Idiopathic' rānei)

I ētahi wā, kāore e taea e ngā tākuta te kimi i te tino pūtake o te ILD. Ko te tikanga tēnei ka pāngia koe e te ILD, kāore he mate hauora kē atu, kāore hoki he pānga kino ki tētahi mea. Ka kiia tēnei he idiopathic interstitial pneumonia . He maha ngā momo ILD. Ko te momo ILD tino noa, kāore e kitea he pūtake, ko te idiopathic pulmonary fibrosis .

Me pēhea te tautuhi i te ILD? (Tautuhinga)

Ka whai tō tākuta i ētahi mahi hei tātaritanga i te ILD. Tuatahi, ka tirotirohia koe e rātou, ka whakarongo ki ō pukahukahu, ā, ka tirohia mēnā he oro rerekē (pēnei i te pakū). Kātahi ka pātai atu rātou ki a koe i ngā pātai pēnei i:

• Tō hītori hauora katoa me ētahi atu āhuatanga hauora o nāianei.
• Mō ngā rongoā e whakamahia ana e koe i nāianei, i whakamahia rānei e koe i mua .
• Kei roto i tō whānau tētahi o ēnei mate, ētahi atu mate hononga rānei?
• Ahakoa kei roto i tō mahi, i ōu hiahia rānei, ngā āhuatanga ka pā mai ai te 'ILD' .

He aha ngā whakamātautau e whakamahia ana hei tautuhi i te `ILD`?

Mena kei te whakapae te tākuta he ILD tō te tinana, ka whakahaerehia pea e rātou ngā whakamātautau e whai ake nei:

• Ngā Whakamātautau Mahi Pūkahukahu (PFT): He whakamātautau manawa ēnei i te nuinga o te wā, engari i ētahi wā ka uru atu hoki ngā whakamātautau toto, ngā whakamātautau whakakori tinana rānei. Ka tirohia e ēnei te pai o te mahi a ō pūkahukahu.
• Ngā Whakamātautau Whakaahua: Ka mahia he hihi-X o te uma, he matawai CT taumira teitei rānei (HRCT) hei tirotiro i te āhua o ngā pukahukahu. Ka taea e te HRCT te kite i ngā taipitopito tino kikokore.
• Ngā Whakamātautau Toto: Ka whakamātauria he tauira toto mai i tō ringa hei tirotiro mēnā he take e mōhiotia ana (hei tauira, ngā mate hononga kiko) ka puta ai te ILD.
• Te tirotiro i te pūkahukahu:Ko te tikanga o tēnei ko te tuku i tētahi ngongo angiangi, kei roto i te kāmera (he `bronchoscope`) mā roto i tō ihu, i tō waha rānei, ki roto i ō pukahukahu hei tirotiro i ō ara manawa. I ētahi wā, ka taea hoki te tango i tētahi tauira o ngā pūtau (`lavage`) mai i ō pukahukahu.
• Biopsy: I ētahi wā, ka tangohia he wahi iti o te kiko mai i te pukahukahu ka tirohia i raro i te karuārai. Ka āwhina tēnei ki te tautuhi i te momo ILD tuturu. Ka taea te mahi i te biopsy mā te bronchoscopy, mā te pokanga iti rānei (te biopsy pukahukahu pokanga).

He aha ngā maimoatanga mō te `ILD`?

Heoi anō, kāore anō kia kitea he rongoā hei whakaora katoa i te `ILD`.

Kaua e mutu te tumanako. Ko te kaupapa o te maimoatanga he rongoā i te mate taketake i puta ai te ILD, te whakahaere i ngā tohu, me te whakaroa i te haere whakamua o te mate. Tērā pea ka tohua e tō tākuta he rongoā tinana, he hāora tāpiri, he rongoā rānei hei whakaiti i te pupuhi i roto i ō pukahukahu, hei whakahaere rānei i te whara.

He aha ngā rongoā me ngā maimoatanga e whakamahia ana mō te `ILD`?

• Corticosteroids: Ka āwhina ngā rongoā pēnei i te prednisone ki te whakaiti i te pupuhi i roto i ngā pukahukahu.
• Ngā rongoā ārai-pūkahukahu me ngā rongoā paitini-pūkahukahu: Ka taea e ēnei rongoā te whakaroa i te tere o te puta o ngā kōpurapura i roto i ngā pukahukahu. Tauira: Azathioprine, Cyclophosphamide, Pirfenidone, Nintedanib.
• Ngā Rongoā Koiora: Ka whakamahia ngā rongoā pēnei i te Rituximab hei rongoā i ētahi mate pūnaha ārai mate me ētahi atu āhuatanga e hua ai te ILD.
• Te rongoā mō te GERD: Mena kei a koe te mate reflux gastroesophageal (GERD), ka kino ake pea te ILD. Nō reira, ka hoatu pea he rongoā ki a koe hei whakahaere i te waikawa o te puku.
• Te Whakaora i ngā Pūkahukahu: He kaupapa whakangungu motuhake tēnei, he kaupapa ako hoki. Mā ngā whakangungu manawa me ngā mahi whakakori tinana ka whakapakari i ō pūkahukahu, ka māmā ake hoki te manawa.
• Whakaora Hāora: Ki te kore e nui te hāora e whiwhi ana i roto i ō toto, i ō kiko rānei, ka tohua pea e tō tākuta he hāora tāpiri. Ka hoatu tēnei mā te ngongo ihu, mā te kopare kanohi rānei.
• Te Whakatō Pūkahukahu: Mō te hunga e tino kino ana te ILD, ko te whakato pūkahukahu te huarahi whakamutunga pea.

Ngā pānga taha o te maimoatanga

Ka taea e ētahi maimoatanga mō te ILD (ina koa ko ngā corticosteroids me ngā rongoā cytotoxic) te whakaiti i tō pūnaha ārai mate. Nō reira, ka aroturukihia koe e tō tākuta i ia wā, ka tūpato hoki mō ngā raruraru ka pā mai.

Ka taea te ārai i te ILD?

He uaua ki te ārai i ngā momo ILD maha. Heoi, ka taea e koe te mahi i ēnei hei whakaiti i tō tupono ki te whakawhanake i te ILD:

• Whakahaeretia ngā āhuatanga hauora kei a koe (hei tauira, ngā mate hononga o te kiko).
• Āta karohia te hongi i ngā matū kino ki ngā pukahukahu.
• Ki te mahi koe i ngā wāhi kei reira te asbestos, te puehu whakarewa, ngā matū rānei, mauria he manawa e tika ana (he kopare hei tātari i ngā matūriki i te hau).
• Ka pāngia pea koe e ngā mate pāwera roa e ngā mea pēnei i te tarutaru maroke, te witi, te paru manu, te huruhuru manu rānei, me ngā pūnaha whakamahana me te whakamatao. Mauria he respirator ina mahi koe me ēnei mea.
• Mena kei a koe tētahi āhuatanga pēnei i te mate hononga kiko, te sarcoidosis rānei, kōrero ki tō tākuta mō ngā huarahi hei ārai i te ILD.
• Ki te kai paipa koe, kati rawa. Ki te kore koe e kai paipa, kaua e tīmata.

He aha te āhua o te heke mai mō te tangata whai `ILD`?

Mena kei a koe te ILD, ka mahi tahi kōrua ko tō tākuta ki te whakatau me pēhea te whakahaere i tō āhua, i runga i te pūtake o te ILD. Hei tauira, mena nā tō mahi, nā te mate pāwera rānei (hypersensitivity pneumonitis) tō ILD, me mutu pea te mahi me te mea e hua ai te ILD, me mahi rānei i ngā mahi whakatūpato motuhake.

Ahakoa ka taea e ngā rongoā te whakaiti i te pupuhi, he pumau tonu te whara e puta ana i roto i ngā pukahukahu nā te ILD. Ko te tikanga tēnei kāore e taea te whakakore i te kino. Mena he mate kei roto i a koe, mā te whakahaere pai i taua mate ka āwhina i te ārai i ngā kino atu. Mena he ILD tōu kāore e kitea he take (idiopathic), ka rongoāhia e tō tākuta ō tohumate, ā, ka ngana ki te ārai i ngā kino atu.

He aha ngā raruraru pea ka pā mai i te `ILD`?

Mena ka kino rawa te ILD, ka puta pea ngā raruraru morearea ki te ora, pēnei i:

• Te toto toto tiketike o te pūkahukahu
• Pūkahukahu Hinga (Pneumothorax)
• Ngā Mate Pukupuku
• Te ngoikore o te manawa
• Matepukupuku Pūkahukahu

He aha te roanga o te oranga o te tangata whai `ILD`?

He pātai tēnei e pātaihia ana e te tini tāngata. Ko te roanga o te oranga o te tangata whai `ILD` e whakawhirinaki ana ki te pūtake o te `ILD` me tōna kaha. Ka taea e ētahi tāngata te noho noa me te kore maimoatanga, me te iti rānei o te maimoatanga mena kāore i te kino tā rātou `ILD`. Mena kāore tō mate e kino haere ana (arā, mena he `pūmau`), he pai te tirohanga (`prognosis`).

Heoi, mō te hunga e tino kino ana, e tere kino ana hoki te kino o te momo `ILD`, ka poto noa te roanga o te oranga i muri i te tātaritanga, arā, 3-5 tau. Kaua e mataku ki ēnei tatauranga. He rerekē tēnei mō ia tangata.

Me pēhea taku tiaki i ahau anō mēnā kei a au te 'ILD'?

Mena kua tāpaetia koe kei te pāngia e te ILD, ko te huarahi pai ki te tiaki i a koe anō ko te mahi tahi me tō tākuta ki te whakawhanake i tētahi mahere hei whakahaere i ō tohu me te ārai i ngā kino atu anō.

• Whakaorahia ngā āhuatanga matua e puta ai te ILD.
• Whakahaerehia ngā mea ka kino ake ai te ILD (hei tauira, te GERD).
• Ki te mahi koe me ngā matū e kino ai ngā pukahukahu, e pāngia ai rānei e ngā mate pāwera mō te wā roa, me mahi koe i ngā mahi whakatūpato haumaru motuhake.

Āhea ahau me toro atu ki te tākuta?

Me toro atu ki te tākuta tonu mēnā kei a koe ēnei tohu:

• Te piki haere o te uaua ki te manawa.
• Te uaua ki te manawa i te wā e whakakorikori ana.
• He maremare maroke tonu.

Ko te wawe o te rongoā i te ILD, ko te pai ake o te putanga.

He aha ngā pātai me pātai atu e au ki taku tākuta?

Kaua e wareware ki te pātai i ēnei pātai ina kite koe i tō tākuta:

• He aha ahau i pāngia ai e tēnei mate?
• He aha ngā kōwhiringa maimoatanga kei a au?
• Ka kino haere tēnei āhuatanga?
• Ka taea te whakaiti i te kino ki ngā pukahukahu?
• He aha ngā huringa ka taea e au te mahi hei whakapai ake i te kounga o tōku ao?

He maha ngā momo ILD. Ko ētahi he ngawari, ko ētahi he tino kino. Tērā pea ka kite koe i ngā tatauranga whakamataku i runga ipurangi, engari ko tō tākuta anake ka taea te kī atu ki a koe he aha tō āhua. Kōrero pono ki tō tākuta, kia mārama ai koe ki ō tumanakohanga. Mā te mahi tahi, ka taea e kōrua ko tō tākuta te whakawhanake i tētahi mahere hei whakahaere i ō tohu me te noho i te kounga pai rawa atu o te oranga.

Kia maumahara tātou ki ngā mea tino nui (Karere hei kawe ki te kāinga)

• Ko te `ILD` he rōpū mate e kino ai ngā kiko ngawari o ngā pukahukahu, e uaua ai te manawa.
• Ko te maremare maroke, te uaua ki te manawa, me te ngenge ngā tohu matua.
• He maha ngā take, ā, i ētahi wā kāore e kitea he take.
• Ahakoa kāore he rongoā katoa, kei reira ngā maimoatanga hei whakahaere i ngā tohu me te ārai i te kino haere o te mate.
• He mea nui kia kaua e momi hikareti, kia kaua e hongi i ngā matū kino, me te whakahaere i ngā mate hauora kei raro.
• Ki te puta ngā tohu, kaua e mataku, engari me rapu tohutohu hauora. He mea tino nui te tātaritanga me te maimoatanga wawe tonu.

Ko te tumanako ka whai hua ēnei kōrero ki a koe. Kia ora tonu!

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