I ētahi wā, kei te pai koe ina ara ake koe i te ata, engari i te roanga o te rā, ka tīmata te ngaro o te kaha o tō tinana? Ina koa ka taumaha, ka piko ō kamo, ka pōturi ō kupu ina kōrero koe, ka uaua rānei ki te hiki i te ringa, i te waewae rānei? Mena kua mōhio koe ki ēnei, he mea nui kia mōhio koe ki te mate e kōrerohia ana i tēnei rā, e kiia nei ko te Myasthenia Gravis , ko te MG rānei te whakarapopototanga.
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He aha te Myasthenia Gravis?
He mate pūnaha ārai mate tēnei ka roa pea mō te wā katoa. Ki te kī ngāwari, ka tīmata te pūnaha ārai mate o tō tātou tinana ki te whakaeke i ngā wāhanga hauora o tō tātou tinana. I roto i te MG, ka aro tēnei whakaeke ki ngā hononga i waenga i ō tātou io me ngā uaua.
Whakaarohia, e kī ana tō tātou roro ki te uaua, "Āe, ka kōpiri koe ināianei." Me haere tēnei karere mā roto i ngā io, ka tae atu ki te uaua. Engari i roto i te tangata whai MG, ka whakararuraruhia ngā "kaiwhakawhiwhi" e haria ana tēnei karere e tō rātou ake pūnaha ārai mate. He rite ki te ngaronga o te tohu ina ngana koe ki te waea atu.
Nā reira, ka ngoikore haere ngā tohu e tukuna ana ki ngā uaua i a rātou e whakamahia ana, ā, ka memeha haere te kaha o ngā uaua. Engari i muri i te wā okioki poto, ka hoki anō ki te āhua noa. Koinei te āhuatanga tino motuhake o MG. Ahakoa ka taea tēnei āhuatanga te puta i ngā tau katoa, he mea tino noa i roto i ngā wāhine kei raro iho i te 40 tau te pakeke me ngā tāne neke atu i te 60 tau te pakeke.
He aha te take e pēnei ai te āhua o tō tātou tinana ki a ia anō? He aha ngā take?
Kāore i te tino mōhiotia he aha te take e whakaeke ai te pūnaha ārai mate i tō tātou ake hononga io-uaua pēnei. Engari ko te take matua he hanga paturopi te tinana hei ārai i ngā kaiwhakawhiwhi e whiwhi ana i te neurotransmitter acetylcholine. Ko tēnei acetylcholine te "karere" e kawe ana i te karere e kī ana ki ngā uaua kia kōpiri. Nō reira, ina āraia te wāhi mahi a tēnei karere, kāore ngā uaua e mahi tika.
Ka whakawhanakehia hoki e ētahi tāngata he paturopi ki ētahi atu pūmua. Ahakoa e whakaarohia ana he pānga ira tēnei, he maha ngā tāngata whai MG kāore he tangata kē atu i roto i ō rātou whānau e pangia ana e te mate.
Kua kitea hoki te repe thymus , he okana i te uma o runga, e pāngia ana. Ka nui haere tēnei repe i roto i ētahi tāngata whai MG. E whakapono ana ngā kairangahau i ētahi wā ka hē te whakamōhio a tēnei repe ki te tinana, ā, ka puta ai ēnei paturopi kāore e hiahiatia.
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Check Availability →He aha ngā tohu matua ka kitea?
He rerekē ngā tohu o te MG i ia tangata, i ia tangata. Tērā pea ka puta ohorere ngā tohu ki ētahi tāngata. Tērā pea ka puta mārire ētahi. Me titiro tātou ki ngā wāhi matua e pāngia ana, me ngā tohu hoki.
| Wāhanga tinana e pāngia ana | Ngā āhuatanga e kitea ana |
|---|---|
| Ngā uaua o te kanohi |
(Mō te tini, ka tīmata te mate i ēnei tohu.) |
| Mata, waha me te korokoro |
|
| Kaki, ringa me waewae | |
| Ngā uaua manawa |
Āhuatanga ohorere: Te raruraru Myasthenia
I ētahi wā, tata ki te 15% ki te 20% o te hunga whai MG ka pāngia e te ngoikore nui o te korokoro me ngā uaua manawa. Ka kiia tēnei he raruraru myasthenia.He āhuatanga ohorere hauora tēnei. Mēnā ka pāngia koe e te uaua ki te manawa, haere tonu ki te Tari Ohorere (ETU) o te hōhipera tata.
Me pēhea koe e tino mōhio ai he mate tēnei?
Mena kei a koe ēnei tohu, me toro atu koe ki tō tākuta whānau i te tuatahi. Mena ka whakapae ia i tēnei, ka tukuna koe e ia ki tētahi tākuta roro. Ka pātai atu ia ki a koe mō ō tohu, ā, ka tirotirohia hoki e ia tō tinana. Hei tāpiri, he maha ngā whakamātautau ka taea te mahi hei whakaū i te mate:
- Ngā whakamātautau toto: Tirohia ō toto mō ngā paturopi kino (ngā paturopi kaiwhakawhiwhi acetylcholine) i kōrerotia e tātou i mua ake nei.
- Whakamātautau Edrophonium: Ka tirohia e tēnei whakamātautau mēnā he rongoā e whakanui ana i tō kaha uaua mō te wā poto. Mēnā ka piki ake te kaha, he tohu pea tēnei nō te MG.
- Ngā whakamātautau whakaohooho roro: Ka werohia he ngira iti ki roto i te uaua, ā, ka inehia te tere o ngā tohu io. Ka taea tēnei te whakamahi hei tirotiro i te tere o te ngoikore o te uaua ina whakamahia tonutia (electromyography).
- Whakamātautau tio: Ka whakatakotoria he tio ki runga i te kamo e takoto ana mō ētahi meneti hei tirotiro mēnā ka ara ake te kamo. Mā tēnei ka taea te whakaatu i te āhua o te mate nā te mea ka pai ake te whakawhitiwhiti kōrero uaua-io i te wā poto mā te makariri.
- Whakaahua: Kia whakaūtia te mate, ka taea te mahi i tētahi matawai CT, MRI rānei hei tirotiro mō ngā raruraru o tō repe thymus, pērā i te pukupuku (thymoma).
He aha ngā maimoatanga e wātea ana?
He mate kāore e taea te whakaora katoa i te MG, engari ka taea te whakahaere angitu. Mā tō tākuta e whiriwhiri te maimoatanga tino tika māu i runga i te kaha o ō tohu, tō tau, me tō hauora whānui.
1. Ngā rongoā whakapakari uaua: Ko te rongoā tuatahi ko ngā rongoā pēnei i te pyridostigmine. Ka mahi ēnei mā te whakanui ake i te nui o te acetylcholine i te hononga io-uaua. Ka puta te kaha i roto i te 15-30 meneti o te tangohanga, ā, ka roa mō te 3-4 hāora.
2. Ngā rongoā ārai mate: He maha ngā tāngata e hiahia ana ki ēnei rongoā nā te mea ko tō tātou ake pūnaha ārai mate te take o te mate. Tuatahi, ka hoatu he steroids pēnei i te prednisone, kātahi ka whakawhitihia ētahi atu rongoā pēnei i te azathioprine. E hia marama pea ēnei e puta ai ngā hua.
3. Te tango i te manawa: Ahakoa he pukupuku kei roto i te repe manawa, mā te tango pokanga ka tino whakaitihia ngā tohu i roto i ētahi tūroro.
4. Whakaora IV:Ka hoatu tēnei maimoatanga ina tino kaha ngā tohu, i ngā wā rānei pēnei i te myasthenia crisis.
- Plasmapheresis: Ka tangohia e tētahi mīhini motuhake ngā paturopi kino mai i ō toto ka whakahokia mai te plasma hauora ki tō tinana.
- Whakaora IVIG: Mā te tuku i ngā paturopi (immunoglobulin) i tangohia mai i ngā kaituku hauora ki te tinana, ka whakarerekētia te mahi a te pūnaha ārai mate mō te wā poto.
- Ngā paturopi monoclonal: He paturopi motuhake ēnei i hangaia i roto i te taiwhanga e aro ana, e whakaeke ana hoki i ngā wāhanga motuhake o te pūnaha ārai mate e kore e mahi tika ana.
Me pēhea koe e tiaki ai i a koe anō?
Haunga te maimoatanga hauora, ka taea e koe te whiwhi i te oranga nui mai i ngā huringa iti ki tō momo noho.
- Kia pai te kai: Kia maha ngā kai iti i te rā, kaua e kai nui kotahi. Kai i ō kai matua i te wā e nui ana tō kaha. Kōrero ki tō tākuta mō te tango i ngā rongoā whakapakari uaua i mua i te kai.
- Whakakorikori tinana, engari kia mōhio ki ō rohe: Ahakoa ka taea e te whakakorikori tinana te hoatu i te kaha mō te wā roa, karohia te whakapau kaha rawa. Pātai atu ki tō tākuta, ki tō kaiwhakaora tinana rānei, he aha ngā whakakorikori tinana e tika ana māu.
- Okioki ina ngenge koe: Me haere tonu ki tāu mahi o ia rā. Engari ina tīmata koe ki te ngenge, okioki. Whakarongo ki tō tinana.
- Kia mōhio ki ngā mea e whakaoho ana i te mate: Tērā pea ka piki ake ngā tohumate o te MG i ētahi tāngata ina mate ana rātou, ina ahotea ana rātou, i te wā paheketanga o ngā wāhine, me te mea hoki e pā ana ki ētahi rongoā. Kōrero ki tō tākuta mō tēnei.
Karere Tangohia ki te Kāinga
- Ehara te Myasthenia gravis (MG) i te mea ka pā ki a koe. He raruraru tēnei ki te pūnaha ārai mate o tō tinana.
- Ko ngā tohu matua ko te ngoikore o ngā uaua ka piki haere i te roanga o te rā, inā koa ko te kamo e takoto kau ana, te tirohanga rua, me te uaua ki te kōrero me te horomi.
- Ki te pāngia koe e te uaua ki te manawa, he āhuatanga ohorere tēnei. Haere tonu ki te Tari Ohorere (ETU) o te hōhipera.
- He mate ngāwari tēnei e taea te whakahaere. Me mahi tahi koe me tō tākuta roro, ā, me whai i te maimoatanga kia tika.
- Mā te whakahaere tika, ka taea e koe te ora i tētahi oranga ora tonu me te MG.
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