Kua kōrero koe ki tētahi tangata, ā, kua wareware ohorere koe ki te kupu i hiahia koe ki te kōrero? Kua wareware ohorere rānei koe ki te ingoa o tētahi hoa? He mea noa iho tēnei kia puta kotahi, kia rua rānei ngā wā. Engari, ki te mea he maha tonu te puta o tēnei, ki te uaua koe ki te kimi kupu, ki te puhoi haere rānei tō tere kōrero, ehara i te mea noa. Tērā pea koinei te tīmatanga o tētahi āhuatanga e kiia nei ko te Primary Progressive Aphasia (PPA) . Me kōrero noa tātou mō tēnei i tēnei rā.
He aha te PPA?
Ko te Aphasia Tuatahi Whakamua (PPA) he mate pūnaha io e pā ana ki tō tātou roro. Ka pā nui ki ō tātou pūkenga reo, pērā i tō tātou kaha ki te kōrero, ki te mārama ki ngā kōrero a ētahi atu, ki te pānui, me te tuhituhi. Nā te mea he mate whakamua, ka kino haere ngā tohu i te roanga o te wā.
He momo mate wareware te PPA. Ina koa, nō roto i tētahi rōpū mate wareware e kiia nei ko te 'Dementia Frontotemporal (FTD).' I roto i tēnei, ka mate haere, ka mimiti haere ngā pūtau i ngā wāhanga o mua me te wāhanga o te roro e whakahaere ana i te reo me te kōrero. I ētahi wā, he tohu tōmua pea te PPA kei te pāngia te tangata e te mate a Alzheimer .
He momo matua o ngā PPA?
Ae, ka taea te wehewehe i te PPA kia toru ngā momo matua i runga i te āhua o te putanga mai o ngā tohu . He āwhina nui tēnei whakarōpūtanga mō te whānau o te tūroro kia mārama ai ki ngā tohu. Engari kia maumahara, tera pea ētahi tūroro kāore e taea te uru tika ki tētahi o ēnei momo e toru.
| Momo PPA | Ngā āhuatanga matua |
|---|---|
| PPA rerekētanga tikanga (svPPA) | Ko te raru nui o tēnei ko te wareware i te tikanga o ngā kupu . He uaua ki te mārama ki ngā kupu ina kōrero ana tetahi, ina pānui pukapuka rānei. Ka wareware koe ki ngā ingoa o ngā mea. Hei tauira, hei utu mō te kī "kurī", ka taea e koe te whakamahi i tētahi kupu noa pēnei i te "kararehe". |
| PPA whaikōrero kore-rere (nfaPPA) | I tēnei wā , ka pōturi te kōrero, ka uaua te whakataurite i ngā kupu . Kāore i te tika te whakamahinga o te wetereo. He poto ngā rerenga kōrero. Kāore e hiahiatia kia whakamahia ngā kupu iti pēnei i te "a", "the". Tērā pea ka rerekē te reo. |
| PPA momo logopenic (lvPPA) | Ko te raru nui o tēnei momo tangata, kāore e kitea ngā kupu tika hei kōrero . He maha ngā wā ka mutu tā rātou kōrero hei rapu kupu. He uaua ki te whakahoki i ngā kupu kua kōrerotia e tētahi atu. |
Te whanaketanga o te mate (ngā wāhanga)
Kāore te PPA e kino haere i te wā kotahi. Ka tupu mārire.
Wāhanga Tīmatanga (Wāhanga Ngāwari)
I te tīmatanga, kāore pea koe e kite i te rerekētanga nui. I ētahi wā ka roa te wā ki te kimi kupu, ka paku pōturi rānei tō kōrero. Engari i te nuinga o te wā, ka taea e koe te mahi i ō mahi o ia rā ko koe anake .
Wāhanga o Muri Mai
I te whanaketanga o te mate, ka uaua te noho ko koe anake. Ko ngā tohu ka kitea i tēnei wā ko:
- Ka tino whakaitihia te kōrero. He uaua ki te mārama ki te mea e kōrerotia ana.
- Kāore au e mārama ki ngā kōrero a ētahi atu.
- Ka uaua te whakatau i ngā whakataunga uaua pēnei i te whakahaere moni .
- Ka heke te kaha ki te whakaaro me te whakamahere, ā, kāore e taea te mahi i ngā mea pēnei i te taraiwa.
- Ahakoa ngā mahi māmā pēnei i te horoi kakahu, te whakakakahu, me te kai, me āwhina tetahi.
- Ka pōturi te hikoi, ka pakari hoki .
- Ka uaua te horomi i te kai.
- I ētahi wā, ka whakaatu pea rātou i te whanonga pukuriri me te pukuriri.
Ko te mea nui kia kaua e mataku ina kite koe i ēnei tohu, engari me atawhai i te tūroro me te aroha me te manawanui.
He aha ngā take o te PPA?
E ai ki tā tātou i kōrero ai i mua ake nei, ko te tino take o te PPA ko te mimiti (atrophy) o ngā wāhanga e pā ana ki te reo o te roro. Nā ngā pūmua rerekē e hangai ana ki roto i te roro tēnei mimiti. Kua tautuhia e ngā kaipūtaiao ētahi momo o ēnei pūmua. Ko te tau, te TDP-43, me te amyloid . Ka kino ēnei pūmua ki ngā pūtau roro, ka whakaiti hoki i tā rātou mahi.
He maha ngā āhuatanga mōrearea e pā ana ki tēnei:
- He raruraru ako pēnei i te dyslexia i te wā o te tamarikitanga.
- Kei te pāngia tetahi o te whānau e ēnei āhuatanga (Te awe ira ).
Me pēhea te tautuhi i te mate?
Ki te whakapae koe kei a koe, kei tētahi rānei e tata ana ki a koe te PPA, he mea nui kia kite koe i tētahi tākuta whai tohu . Ka pātai atu tō tākuta ki a koe mō ō tohu, te roa o te wā e pāngia ana koe, me tō hītori hauora whānau. Hei tāpiri, ka whakahaerehia pea e rātou ētahi whakamātautau hei āwhina i te tautuhi i te mate.
| Whakamātautau | He aha te mahi a tēnei? |
|---|---|
| Whakamātautau roro | Ka whakamatautauria tō āhua hinengaro, ō urupare, ō nekehanga, me tō kaha kia mōhio ai koe ki te mahi a tō roro. |
| Aromatawai reo-kōrero | Ka whakamātauhia e te Tākuta Mate Reo-Kōrero ō pūkenga kōrero me te mārama. |
| Aromatawai hinengaro-pūnaha | Ka whakamātautau rātou i ngā pūkenga whakaaro o te roro mā te tono i a rātou ki te whakautu i ngā pātai, ki te tuhi pikitia, me te whakaoti rapanga. |
| Ngā Matawai Roro | Ka taea e te matawai MRI (Magnetic Resonance Imaging) te kimi i ngā wāhi e mimiti ana i roto i te roro. Ka taea e te matawai PET (Positron Emission Tomography) te kimi i ngā wāhi e ngoikore ana te mahi a te roro. |
He aha ngā maimoatanga?
Engari, kāore anō kia kitea he rongoā mō te PPA. Kāore anō hoki he rongoā hei aukati i te whanaketanga o te mate. Heoi anō, he maha ngā maimoatanga hei āwhina i te whakapai ake i te kounga o te oranga o te tūroro, hei whakahaere hoki i te whakawhitiwhiti kōrero.
- Whakaora Kōrero: Ka taea e te kaiwhakaora kōrero te āwhina i te tūroro ki te whakawhanake i ngā pūkenga kōrero e toe ana, me te whakaharatau i ngā tikanga kōrero hou (hei tauira, te reo tohu, ngā kāri pikitia). He mea tino nui tēnei.
- Whakaora Mahi me te Whakaora Tinana: Ka āwhina ēnei maimoatanga i ngā raruraru pēnei i te uaua ki te hikoi me ngā raruraru taurite e puta ana i te whanaketanga o te mate.
- Ngā Rongoā: Ka tohua pea e tō tākuta ngā rongoā e tika ana hei whakahaere i te pouri, te manukanuka, me te whanonga whakararuraru i puta mai i te PPA.
Mō te tangata e ora ana me tēnei mate, he mea tino nui te aroha, te tautoko, me te manawanui o te whānau me te hunga e arohaina ana.
Karere Tangohia ki te Kāinga
- Ko te Aphasia Tuatahi Haere Ake (PPA) he mate haere ake e pā ana ki ngā wāhanga o te roro e pā ana ki te reo.
- He momo mate wareware tēnei e pā nui ana ki te kaha ki te kōrero, ki te mārama, ki te tuhituhi, me te pānui.
- Tērā pea ka kitea ngā tohu pēnei i te uaua ki te kimi kupu, te kōrero pōturi, me te wareware ki te tikanga o ngā kupu i ngā wāhanga tōmua.
- Ahakoa kāore e taea te whakaora katoa i te mate, ka taea e ngā maimoatanga pēnei i te whakaora kōrero te whakapai ake i te kounga o te oranga o te tūroro.
- Mena kei a koe, kei tētahi rānei e tata ana ki a koe ēnei tohu, he mea tino nui kia toro atu koe ki te tākuta tonu mō ētahi tohutohu.
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