He rerekētanga kei roto i tō reo, kei roto rānei i tō manawa? Tērā pea he Recurrent Respiratory Papillomatosis (RRP) tēnei!

Kei te pāngia koe, tāu tamaiti rānei e te rerekētanga o te reo i ētahi wā, he paku pāorooro, he paku whiowhio rānei i te manawa? Kei te raru rānei koe i te maremare tonu? He tohu anō hoki ēnei o te makariri noa. Heoi, i tēnei rā ka kōrero tātou mō tētahi mate onge engari he āwangawanga. Ko tōna ingoa ko (Recurrent Respiratory Papillomatosis) ko (RRP) rānei. Ko tētahi atu ingoa ko (Laryngeal Papilloma). Kaua e manukanuka, ka kōrerohia tēnei mō te ngāwari, i roto i tētahi huarahi e mārama ai koe.

He aha tēnei (RRP)? Kia mōhio tātou?

Ki te kī māmā noa, ko te (RRP) he mate i puta mai i te huaketo e kiia nei ko te (Human Papillomavirus) ko te (HPV) rānei . Ko te mea ka tupu i roto i tēnei ko ngā tipu iti rite ki te pōro (e kiia ana ēnei e mātou ko (Papillomas)) ka puta i roto i tō tātou ara manawa, arā, te ara mai i te waha ki te ihu me ngā pukahukahu. Hei whakamārama, ko te nuinga o ēnei tipu ka puta i te wāhanga o te korokoro kei reira ngā taura reo ((Vocal Cords)) te wāhi e hangaia ai tō tātou reo, arā, te (Larynx). Heoi, i ētahi wā ka horapa atu ēnei tipu ki raro i te pūnaha manawa. Arā:

• Te rere o te roro
• Parani
• Ngā pūkahukahu

He wāhi anō hoki pēnei.

Ko te mea nui, ehara ēnei pukupuku (RRP) i te mea pai , arā, ehara i te matepukupuku. Heoi, ka tere te tipu me te hoki anō mai, ā, he uaua ake te maimoatanga. Tērā pea me mahi ētahi tāngata i ngā pokanga maha i roto i te tau.

Ko wai te mea tino pāngia e tēnei āhuatanga (RRP)?

Ka pā tēnei āhuatanga e kīia nei ko te (RRP) ki ngā tamariki nohinohi me ngā pakeke. Kia kite tātou me pēhea te puta.

RRP tīmatanga-taiohi

I te nuinga o te wā ka kitea tēnei mate i mua i te ekenga o te tamaiti ki te 5 tau te pakeke . Ki te whakatauritea ki ngā pakeke, he kino ake te RRP i roto i ngā tamariki nohinohi, ā, he nui ake te tūponotanga ka hoki anō i muri i te maimoatanga. Nō reira, me tino aro tātou ki tēnei mate i roto i ngā tamariki nohinohi.

RRP tīmatanga-pakeke

Ka taea tēnei te puta i ngā tau katoa, i muri i te 14 tau te pakeke. Heoi, ko te rongo pai he iti ake te auau hokinga mai o te mate i roto i ngā pakeke.

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He pēhea te noa o te (RRP)?

He mate tino onge te RRP. E ai ki ngā tatauranga, tata ki te kotahi i roto i te whā tāngata i roto i te rau mano ka pāngia e ia.

Engari, anei tētahi mea hei mōhio. He tino whai hua te kano ārai mate HPV ki tēnei mate (RRP). E taunakihia ana mō ngā tamariki nohinohi mai i te 11 tau te pakeke. E tumanako ana ngā tohunga hauora mā tēnei kano ārai mate ka whakaiti i te maha o ngā mate pukupuku me ngā mate pēnei i te (RRP) e pā ana ki te HPV ā muri ake nei.

He aha ngā momo huaketo HPV (RRP) e puta ai?

Ko te human papillomavirus (HPV) he rōpū o ngā huaketo e pā ana ki te neke atu i te 100. Ko ētahi o ēnei ka puta ai ngā kiri mākū me ngā kiko makuku (hei tauira, te waha, te korokoro, te tenetene, te nono). Nā te mea ka taea te tuku i te HPV i runga i te taatai, he mea tino noa.

E rua ngā momo HPV e tino pāngia ai te RRP. Ko ēnei ko te HPV 6 me te HPV 11. Ko ēnei ngā mea e tino pāngia ai te nuinga o ngā kiritona ira. Ka taea hoki e te HPV te pāngia ai ētahi momo mate pukupuku, pērā i te mate pukupuku o te kaki me te mate pukupuku o te korokoro. He tino onge, ka pāngia ai hoki e te mate pukupuku o te pūkahukahu.

He tino noa te mate HPV. Engari i te nuinga o te wā, ka memeha noa iho, kāore he raruraru hauora. Kāore anō kia tino mōhio ngā tākuta he aha i pāngia ai ētahi tāngata e ngā mate e pā ana ki te HPV.

Me pēhea te horapa o te HPV i roto i te (RRP)?

Kāore anō kia tino mārama ngā tākuta ki te horapa o te HPV i roto i te (RRP). Engari anei ētahi whakaaro:

Mō ngā tamariki nohinohi

Ina whānau mai he pēpi, mēnā he (Ngā Pōtae Ira Tangata) (ngā pōtae ira tangata) kei roto i te whaea, ka taea te tuku i te (HPV) ki te pēpi mā roto i taua mea. Heoi, he mea nui kia mahara kāore e puta katoa ngā pēpi e pāngia ana i tēnei ara (RRP). Ko te tikanga he iti noa iho te ōrau e pāngia ana.

I ētahi wā, ka pāngia te pēpi e te RRP ahakoa i whānau mai mā te pokanga. E tohu ana tēnei kua horapa pea te HPV ki te pēpi i a ia e noho ana i roto i te kōpū.

Mō ngā pakeke

E whakaponohia ana ka taea te tuku i te HPV ki ngā pakeke mā te moe ā-waha. Ko tētahi atu ariā, ko ngā pakeke whai RRP pea i pāngia e te HPV i te whānautanga, ā, tera pea i "huna" te huaketo i roto i ngā pūtau hauora o te tinana, kātahi ka whakahohe anō mō ​​tētahi take, ka puta te RRP.

He aha ngā tohu o te (RRP)?

Ina puta aua tipu ((Papillomas)) i kōrerotia i mua ake nei ki ngā taura reo me ngā ara manawa, ka uaua pea te kōrero, te manawa, me te horomi. Ko ngā tohu tino kitea ko:

• Te pāorooro o te reo , te ngaro katoa rānei o te reo.
• He oro nui, he oro teitei rānei te stridor ina manawa ana. He rite tōna tangi ki te whiowhio.
• Te manawa tere, te manawa uaua rānei .
• Te maremare tonu .
• Te uaua ki te horomi i te kai .

Ka tirotirohia koe, tāu tamaiti rānei e tō tākuta kia mōhio ai mēnā he RRP tēnei, he mate rānei, pērā i te mate huango, i te mate pāwera rānei.

Me pēhea te tautuhi i te mate (RRP)?

Tuatahi, ka pātai atu tō tākuta ki a koe, ki tō tamaiti rānei, mō ō tohumate, ā, ka tirotirohia e ia tōna tinana. Tērā pea ka whakamahia e ia he whakaata me te rama hei tirotiro i roto i tō korokoro hei tirotiro i ō taura reo. Mēnā e whakaatu ana ō tohumate me tō whakamātautau he RRP pea tōu, ka tukuna koe e tō tākuta ki tētahi tohunga taringa, ihu, me te korokoro (tohunga ENT).

He aha ngā whakamātautau e whakamahia ana hei tautuhi i te mate (RRP)?

Tērā pea ka whakahaerehia e tō tākuta ENT tētahi whakamātautau e kiia nei ko te laryngoscopy . Ko te whakauru i tētahi ngongo angiangi, ngāwari (e kiia nei ko te endoscope) me tētahi kāmera iti me te mārama e piri ana ki a ia, ka tukuna mā roto i tō ihu, ka heke ki raro i tō korokoro hei tirotiro i tō larynx me te ara manawa. Kaua e mataku, i mua i tō mahi i tēnei:

• Kei te mākūkū te ihu me te korokoro o tōu, o tāu tamaiti rānei.
• Kātahi ka tukuna te ngongo mā te ihu, ka heke ki raro i te korokoro, ā, ki roto i ngā taura reo.
• Kātahi ka taea e te tākuta te tirotiro mō ngā puku iti, pērā i ngā tautau karepe, e kiia nei he papillomas.

Hei whakaū i te mate (RRP), me mahi e te tohunga (ENT) he (Biopsy) . Ko te tikanga me tango he tauira kiko iti mai i te puku ka whakamatautauria kia kitea ai mēnā kei roto te huaketo (HPV), ā, mēnā kei roto, he aha te momo. Ko tēnei (Biopsy) ka mahia i roto i te rūma pokanga, i raro i te mate whakamoe whānui. Ka tangohia tēnei tauira kiko mā te whakamahi i ngā taputapu motuhake e piri ana ki te (Endoscope). Kātahi ka whakamatautauria i roto i te taiwhanga.

He tino onge pea te hiahia o te tākuta manawa ki te tirotiro i roto i te trachea pēnei, ka tango tauira.

Ka taea te whakaora katoa i te (RRP)?

Engari, kāore anō kia kitea he rongoā mō te RRP i tēnei wā . Ko te whāinga matua o te maimoatanga he tango i ngā pukupuku me te aukati i te tipu anō. Tērā pea ka hiahiatia he pokanga me ngā rongoā mōu, mō tāu tamaiti rānei.

Me pēhea te whakamahi i te pokanga mō (RRP)?

Ko te pokanga te maimoatanga matua mō te RRP. Ka ngana te tākuta ki te tango i te nuinga o te pukupuku me te kore e kino te kiko hauora. He maha ngā tikanga e whakamahia ana hei tango i ēnei pukupuku:

• Pokanga taiaho: Ka whakamahia ngā hihi taiaho hei whakaiti, hei whakangaro rānei i ngā pukupuku.
• Microdebrider: He taputapu matatau tēnei e whakamahi ana i te momi puhoi hei kukume i te puku ki tētahi mata motuhake, kia tere ai, kia pai ai hoki te tango.
• Cryoablation: I roto i tēnei tikanga, ka whakamahia ngā pāmahana tino makariri hei patu i ngā pūtau pukupuku.

Ko te nuinga o ngā pokanga RRP, inā koa ko ngā mea e pā ana ki ngā tamariki, ka mahia i roto i te rūma pokanga i raro i te mate whakamoe whānui. Ko te tikanga kei te moe koe i te wā e pokangahia ana.

Ka taea hoki e ētahi pakeke te mahi pokanga taiaho i te tari. He tere tēnei, ā, kāore e hiahiatia he rongoā whakamoe whānui. Ka hoatu he rongoā whakamoe ā-rohe ki a koe kia kore ai koe e pāngia e te mamae, engari ka ara tonu koe.

E hia ngā pokanga e hiahiatia ana e au, e taku tamaiti rānei mō te RRP?

I muri i te pokanga, he nui ake te tūponotanga ka hoki mai ngā pukupuku RRP. Me whiwhi maimoatanga anō ētahi tāngata i ia wiki torutoru. Ko ētahi pea ka roa te wā i waenga i ngā maimoatanga mō te tau, neke atu rānei. He nui ake te kitea o tēnei hokinga mai i roto i ngā tamariki.

Me pēhea te rongoā mō te (RRP)?

Me hoatu he rongoā ki ētahi tāngata hei tāpiri atu ki te pokanga. Ko ētahi o ēnei ko:

• Te hunga kua neke atu i te whā ngā pokanga i ia tau (RRP).
• Ko te hunga e tere ana te tupu o ō rātou pakiaka.
• Ngā tāngata e uaua ana ki te manawa nā te aukati o ngā ara manawa nā ngā pukupuku.
• Ko ērā kua horapa ki ētahi wāhi o te tinana hua.

Ka kiia ēnei momo rongoā he "whakaora tāpiri" nā te mea ka hoatu i muri i te maimoatanga matua (pokanga) hei āwhina i te ārai i te hokinga mai o te pukupuku. Tata ki te 20% (arā, 1 i roto i te 5) o te hunga whai (RRP) e hiahia ana ki tēnei momo maimoatanga tāpiri.

Ko ngā rongoā tāpiri e hoatu ana ki te (RRP) ka whakaiti i te tipu o te pukupuku i roto i ngā huarahi maha:

• He rongoā ārai huaketo te Cidofovir e aukati ana i te horapa o te huaketo HPV.
• Ka whakamahia e ngā rongoā ārai mate, pērā i te Pembrolizumab , te pūnaha ārai mate o tō tinana ake hei whakangaro i ngā pūtau pukupuku.

He āwhina te kano ārai mate (HPV) ki te maimoatanga (RRP)?

Kua kitea e ngā kairangahau he pai pea te whakamahi i te kano ārai mate HPV hei rongoā āwhina. E ai ki ngā rangahau tuatahi, ka taea e te kano ārai mate HPV te whakaiti i te tipu o ngā pukupuku me te maha o ngā pokanga e hiahiatia ana. Kei te haere tonu ngā rangahau anō.

He aha ngā raruraru ka pā mai i te (RRP)?

Mena he kino rawa te RRP, tera pea ka aukati katoatia tō ara manawa. Mena ka tupu tēnei, me mahi pea koe i te tracheostomy hei whakarato hau ki ō pukahukahu. Ko te tikanga o tēnei ko te hanga i tētahi kōhao ki tō kaki e kiia nei ko te trachea. Ka pā pea te tracheostomy ki tō kaha ki te kōrero. Ma tō tīma hauora koe e ako ki te tiaki i tō tracheostomy me te whakamahi i tō reo.

Ko te mate pukupuku tētahi atu raruraru. Engari he tino onge tēnei. Ka taea e te mate pai (RRP) te huri hei mate kino. Ka taea tēnei te tupu i ngā tau maha i muri i te tautuhi i te mate. He tino teitei tēnei mōrearea mēnā kua horapa te pukupuku ki ngā wāhanga o raro o te pūnaha manawa. Kāore anō kia tino mōhio ngā tākuta he aha te take (RRP) ka huri ai hei mate pukupuku.

Me pēhea te tiaki i a koe mai i te (RRP)?

Ko te huarahi pai hei tiaki i a koe mai i tēnei mate ko te werohanga HPV.Kia mārama. E taunaki ana te Centers for Disease Control and Prevention (CDC) kia whiwhi ngā tamariki katoa i te kano ārai mate HPV ina 11, 12 rānei ō rātou tau. Ko te hunga kāore i werohia i te wā taitamarikitanga ka taea te whiwhi i te kano ārai mate tae noa ki te 26 tau.

Waihoki, mā te whakamahi i ngā ure tāne ka taea te whakaiti i te mōrearea o te HPV e horapa ana i te taatai, nō reira ka whakaratohia e te RRP ētahi parenga. Heoi, ki te mea kei roto ngā kiritona ira tangata i ngā wāhi kāore i hipokina e te ure tāne, kāore ngā ure tāne e whakarato i te parenga katoa.

Mena he kiritona ira tāne tōu, kei te hapu koe, kei te whakaaro rānei koe kia hapu, kia mōhio koe ki te kōrero ki tō tākuta. I te nuinga o te wā, he iti te mōrearea o te tuku atu i ēnei ki tō pēpi. Mena ka whakatau tō tākuta ki te rongoā i ngā kiritona ira tāne i te wā e hapu ana, he maha ngā maimoatanga haumaru e wātea ana.

He aha te tirohanga mō te hunga whai (RRP)?

He pai te tirohanga mō te nuinga o ngā tamariki me ngā pakeke e pāngia ana e te RRP. Ka taea e te pokanga me te rongoā te whakahaere i ngā pukupuku, me te ārai i a rātou kia kaua e whakararuraru i ngā mahi o ia rā. He tino onge te hiahia ki te tracheostomy, ki te kore ka huri hei matepukupuku.

Me pēhea te noho tahi me te (RRP)?

Mena kei a koe, kei tāu tamaiti rānei te RRP, ka tirotirohia koe e tō tākuta, ā, ka hangaia he mahere maimoatanga. Me whai i aua tohutohu me te pupuri i ō wā whakarite. Mā te mahi pera ka āwhina i te whakahaere i te mate me te ārai i te aukati i te ara manawa e morearea ana ki te ora. Mena he uaua ki te manawa, waea atu ki tō tākuta tonu atu, waea atu rānei ki te 911.

Ko te (RRP) he mate e puta mai ana i te human papillomavirus (HPV). Ka rongoatia e ngā tākuta mā te pokanga, ā, i ngā wā tino kino, mā te rongoā. Ka uaua pea te tinana me te hinengaro ki te mahi pokanga auau, inā koa mō ngā tamariki. Mēnā e hiahia ana koe ki te tautoko, kōrero ki tō tākuta. Ka taea e ia te tuku atu i a koe ki ngā rauemi hei āwhina i te hunga e ora ana me ngā mate mau tonu.

Ngā mea tino nui hei maumahara (Karere hei kawe ki te kāinga)

Āe, me whakarāpopoto e tātou ētahi o ngā mea hei maumahara māu mai i ngā mea kua kōrerohia e tātou:

• Ko te (RRP) he mate i puta mai i te huaketo (HPV) e puta ai ngā tipu rite ki te pōpokorua i roto i te ara manawa, inā koa i te taha o ngā taura reo. Ehara ēnei i te mate pukupuku, engari ka taea te hoki mai anō.
• Ki te pāngia koe e ngā tohu pēnei i te pāorooro o te reo, te uaua ki te manawa, te maremare tonu rānei, rapua he tohutohu hauora.
• Ko te pokanga te maimoatanga matua. I ētahi wā, me whakamahi rongoā anō hoki. Ahakoa kāore he rongoā katoa, ka taea te whakahaere pai i te mate.
• He mea tino nui te kano ārai HPV hei ārai (RRP). Hoatu tēnei kano ārai ki ngā tamariki i te wā tika.
• He mea nui kia whai i ngā tohutohu a te rata, kia kaha hoki te hinengaro i a koe e noho ana me tēnei mate. Kaua e wehi ki te tono āwhina mēnā e hiahiatia ana.

Mena he pātai anō āu mō tēnei, me kōrero ki tō tākuta. Kia ora tonu!