Kei te mamae koe i te mate pūtau hāripiri? Me kōrero tātou me pēhea te whakahaere i tēnei mamae.

He raruraru tonu te mamae mō te tangata e ora ana me te Mate Pūtau Hīnati ( SCD ). Ki te kī māmā, ka huri ngā toto toto whero i roto i ō toto mai i te porowhita ki te āhua hānati. Ka mau ēnei toto toto āhua hānati ki roto i ngā oko toto iti rawa o tō tinana, ka aukati i te rere o te toto . Koinā te wā ka pāngia koe e te mamae nui. Ka kiia tēnei he "raruraru mamae." Ko te nuinga o te wā ka pā tēnei mamae ki te tuara o raro, ngā ringa, ngā waewae, te uma, me te puku. Mō ētahi tāngata, ka roa pea te mamae, ka roa rānei, nā ētahi atu raruraru hauora i puta mai i te mate. Ina noho koe me tēnei momo mamae, ka nui ake te tūponotanga ka pāngia koe e te pouri , te ahotea, me te manukanuka .

Ahakoa te momo mamae e pā ana ki a koe, he maha ngā huarahi hei āwhina i a koe ki te kimi i te whakamarie. Ko te mea nui ko te kōrero ki tō tākuta mō te whakawhanake i tētahi mahere pai hei whakahaere i tō mamae.

Me pēhea te whakahaere i tētahi raruraru mamae?

I te nuinga o te wā, ka taea e koe te whakahaere i te mamae i te kāinga ina tīmata. I te nuinga o te wā ka taea e koe te whakaora mā te whakamahi i ngā rongoā whakamamae mamae ka taea te hoko kore utu pērā i te Paracetamol , i te Ibuprofen rānei. ( Engari kia mahara, kāore te aspirin i te tūtohutia mō te hunga kei raro iho i te 19 tau te pakeke .) Hei tāpiri, tera atu ētahi atu mea ka taea e koe te mahi hei āwhina.

Kia tirohia tēnei kia mārama ai tātou ki ngā mea ka taea te mahi i te kāinga.

Engari i ētahi wā, ki te kore ēnei mea e āwhina, ki te tino kino rānei te mamae, me kawe pea koe, tāu tamaiti rānei ki te hōhipera. I reira, ka hoatu pea e te tākuta he wai IV me ngā rongoā whakamamae mamae kaha ake. Ki te kore e taea te manawanui te mamae, kaua e noho noa ki te kāinga. Haere ki te rūma ohorere hōhipera tata (ETU) i te wā e taea ai.

He maha ngā tākuta e hoatu ana ki te hunga whai mate pukupuku toto he mahere whakahaere mamae hei āwhina i a rātou ki te whakatau i te mamae. E whakamārama ana i ngā mahi ka taea e koe te mahi hei whakahaere i tō mamae ko koe anake. E whakamārama ana hoki me pēhea te āwhina a ētahi atu tākuta, nēhi, kaimahi waka tūroro rānei i a koe i roto i te āhuatanga ohorere. Nō reira, kōrero ki tō tākuta i mua i te tīmatanga o te mamae, me te waihanga i tētahi mahere.

He aha ngā rongoā e wātea ana hei whakaiti me te ārai i te mamae?

He maha ngā rongoā motuhake hei āwhina i te whakaiti i te auau o ngā wā mamae.

• Te waikawa ūrea:Mā te tango i tēnei rongoā i ia rā ka taea te whakaiti i te auau o ngā mamae i roto i ngā pakeke me ngā tamariki.
• L-glutamine (L-glutamine - Endari): Ina whakamahia, ka taea te whakaiti i te roa o te wā e noho ana koe i te hōhipera nā te mamae, te whakaiti rānei i te maha o ngā whakaurunga hōhipera.
• Crizanlizumab-tmca (Adakveo): Ko tētahi tēnei o ngā rongoā hou kua whakaaetia mō te mate pūtau toto toto. He rongoā arotahi tēnei. Ko te tikanga o tēnei, ka mahi tēnei rongoā mā te arotahi motuhake ki ngā pūtau toto whero hei aukati i a rātou kia kaua e piri tahi. Ka whakaitihia te maha o ngā raruraru vaso-occlusive (VOC), ka iti ake te mamae me te kino ki ngā whekau o roto.

Me kōrero koe ki tō tākuta kia mōhio ai mēnā he tika ēnei rongoā māu, mā tāu tamaiti rānei.

He aha ngā mea ka taea te mahi mō te mamae mau tonu?

Ka taea e ngā pānga roa o te mate pūtau maripi te whakararu i ngā mamae mō te wā roa, inā koa mō ngā kaumātua. Hei tauira, ka taea e te hekenga o te rere o te toto puta noa i te tinana te kino i ngā wheua me ngā hononga, ka arahi ki te mamae mau tonu.

Hei whakahaere i tēnei momo mamae mau tonu, ka tohua pea e tō tākuta he rongoā whakamamae hei tango i ia rā. Ka tūtohu pea rātou i te whakaora tinana, i ngā taputapu wheua rānei hei tautoko i tō tuara me ō waewae. I ētahi wā tino kino, ka tūtohu pea ngā tākuta i te pokanga hei whakatika i te raruraru e puta ai te mamae, hei whakangāwari rānei i te io mō te wā poto hei whakamama i te mamae.

Me pēhea te pupuri i tō kaha hinengaro i roto i tēnei mamae?

He tino uaua te noho me te mate pūtau maripi, inā koa mō ngā tamariki. Ko te hunga e mamae tonu ana ka nui ake te tūponotanga ka pāngia e ngā raruraru hauora hinengaro, pērā i te manukanuka me te pouri. Tērā pea ka whakaaro rātou kua wehea rātou i ngā mea e pai ana ki ētahi atu nā tō rātou āhua. Ka taea e ēnei kare ā-roto te whakanui ake i ētahi atu raruraru i puta mai i te mate.

Mena kei te pāngia koe e te ahotea, te pouri, te kore tumanako rānei, he tino āwhina te whaikōrero, te whaikōrero hinengaro rānei. He kaiwhakatakoto whakaaro hauora hinengaroMā te kōrero mō ō raruraru ki tō tākuta, ka kitea e koe ngā huarahi hei oranga angitu me te hauora i roto i te mamae me ngā wero kē atu e pā mai ana me tēnei mate.

Me pātai atu hoki ki tō tākuta, ki tō nēhi rānei mō ngā rōpū tautoko ka taea e ētahi atu tāngata me ngā whānau e noho tahi ana me te mate pukupuku toto. Ka taea e ēnei rōpū te whakarato i ngā whai wāhitanga ki a koe ki te whakapuaki i ngā wheako ki ētahi atu mō te āhua o te noho me te mate, me te tiki tohutohu mō te aro atu ki te mamae me ētahi atu raruraru.