Reka twige ku inshinge za Burosumab mu magambo yoroheje.

Hari igihe amazina y'imiti abaganga baduhaye agorana, si byo se? Ariko iyo dusobanukiwe neza uburyo iyo miti igira ingaruka ku mibiri yacu, twumva turuhutse cyane. Uyu munsi turimo kuvuga ku muti umwe udasanzwe, ari wo Burosumab, utangwa nk'urushinge. Ubu ni uburyo bw'ingenzi cyane bwo kuvura, cyane cyane ku barwaye indwara y'uturemangingo yitwa X-linked hypophosphatemia (XLH).

Ni iki koko kigenda gitya kuri uyu muti?

Mu magambo make, X-linked hypophosphatemia (XLH) ni indwara iterwa n’impyiko aho zisohora imyunyu ngugu myinshi ya fosifore ikenewe n’umubiri wacu. Nkuko ushobora kuba ubizi, fosifore ni ingenzi kugira ngo amagufwa yacu akomeze gukomera. Iyo urugero rwa fosifore rugabanutse, amagufwa ashobora gucika intege, gucika intege, kandi ku bana, gukura nabi, ndetse no kubabara mu magufwa no mu ngingo.

Aha niho urukingo rwa Burosumab ruboneka. Uru rukingo rukora mu kugenzura irekurwa rya fosfeti mu mubiri no kugarura urugero rwa fosfeti mu maraso ku buryo busanzwe. Ibi bituma amagufwa abona fosfeti akeneye kandi agatangira gukomera.

Ibintu ugomba kubwira muganga wawe mbere yo gutangira kuvurwa

Mbere yo gutangira ubu buvuzi, ugomba kubwira muganga wawe ibintu bimwe na bimwe bijyanye n'ubuzima bwawe, kuko ayo makuru azamufasha guhitamo niba uyu muti ukubereye cyangwa utakubereye.

• Niba ufite ikibazo cy’impyiko .
• Niba ufite ikibazo cy'ubwivumbure kuri uyu muti wa Burosumab, undi muti uwo ari wo wose, ibiryo, cyangwa irangi.
• Niba utwite , cyangwa utegereje umwana vuba.
• Niba uri umubyeyi wonsa .

Ntugahishe umuganga ibi bintu, kuko ni ingenzi cyane ku mutekano wawe.

Ukoresha uyu muti ute?

Uyu si umuti ushobora gufata uri mu rugo. Burosumab ni urushinge munsi y'uruhu . Uhabwa n'inzobere mu by'ubuzima mu bitaro cyangwa mu ivuriro.

Ese ibi urabiha abana bato?

Yego, mu bihe bimwe na bimwe byihariye, ubu buryo bwo kuvura bushobora guhabwa abana bafite umwaka umwe. Ariko ingamba zihariye zigomba gukurikizwa. Kubwibyo, niba uha umwana wawe uyu muti, gisha inama muganga w'abana ku bijyanye na wo.Ni ngombwa kuganira nabo neza no kumenya ibisobanuro birambuye.

Bite ho iyo mbonye imiti myinshi?

Ibi ntibishoboka kuko bitangwa mu bitaro. Ariko, niba ubona ko wafashe uyu muti urenze urugero, hamagara Ikigo cy'Igihugu gishinzwe gutanga amakuru ku burozi mu bitaro by'igihugu bya Colombo ako kanya. Cyangwa ujye mu Kigo cyita ku Buvuzi bwihutirwa (ETU) cy'ibitaro biri hafi yawe.

Nakora iki iyo ntakaje dose?

Ni ingenzi cyane kujya kwa muganga/ku ivuriro ku minsi yagenwe no ku gihe cyagenwe kugira ngo ubu buvuzi bugende neza. Ntucikwe n'iyi miti iyo ari yo yose kubera impamvu iyo ari yo yose. Niba udashobora kujyayo ku munsi wagenwe, hamagara muganga wawe ako kanya umubwire ibyo, kandi umugire inama ku munsi ukurikiyeho.

Indi miti idakwiye gukoreshwa hamwe n'uyu muti

Hari imiti myinshi idakwiye gufatwa na Burosumab, bityo ni ngombwa cyane kubwira muganga wawe imiti yose ufata.

Niba ufata imiti ikurikira, menya neza ko uyivuze:

• Kalisitiriyoli
• Fosfeti yo mu kanwa

Uru rutonde ntirwuzuye. Bwira muganga wawe imiti yose ufata (harimo na vitamine, imiti y'ibimera, n'inyongeramusaruro). Nanone, vuga ukuri niba unywa itabi, unywa inzoga, cyangwa ukoresha indi miti.

Ibintu byo kuzirikana mu gihe cyo kuvurwa

Niba ibimenyetso byawe bitarakira neza, cyangwa bisa n'aho birushaho kuba bibi, bwira muganga wawe. Muganga wawe azagukurikiranira hafi mu gihe ufata uyu muti. Azakenera kandi gupima amaraso buri gihe kugira ngo arebe urugero rwa fosifate mu mubiri wawe.

Ni izihe ngaruka mbi zishobora kubaho?

Kimwe n'indi miti yose, Burosumab ishobora gutera ingaruka mbi ku bantu bamwe na bamwe. Zimwe muri zo zishobora kuba zikomeye, bityo ni ngombwa kuzimenya.

Uru rutonde si ingaruka mbi zose zishobora kubaho. Niba ubonye ibimenyetso bidasanzwe, nyamuneka shaka inama kwa muganga.